EPISODE · Jun 11, 2026 · 10 MIN
150 Appointments: What Rare Disease Treatment Actually Costs - Ep. 32
from The Fine, But Not Fine Podcast · host Fine, But Not Fine
150 in-office treatment appointments in a single year. Three days a week, every week, driving to another city because there's no NBUVB light where I live — or where I work. In this episode, I'm talking about what treatment actually costs: the miles, the time, the scheduling, the money. And the harder question underneath all of it — whose job actually lets them do this? Because not everyone has the flexibility I do. And that matters.
What this episode covers
150 in-office treatment appointments in a single year. Three days a week, every week, driving to another city because there's no NBUVB light where I live — or where I work. In this episode, I'm talking about what treatment actually costs: the miles, the time, the scheduling, the money. And the harder question underneath all of it — whose job actually lets them do this? Because not everyone has the flexibility I do. And that matters.
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150 Appointments: What Rare Disease Treatment Actually Costs - Ep. 32
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