EPISODE · Dec 10, 2024 · 1H 16M
#48 - Julien: Aspartylglucosaminuria, life as an EMT
from Ethers Club · host Sero
Send us Fan MailAspartylglucosaminuria (AGU), is a rare and fatal disease that currently has no treatment. Julian shares the experience of Julia Taravella, and her children Daniel and Alexander.Julian was an EMT, and has first hand experience with the American medical system. To support this podcast please consider donating to the cause:https://www.raretrait.com/home_1https://www.amazon.com.br/Nazira-Purrpose-like-other-English-ebook/dp/B0DNHX7BJQSupport the showBlog: https://blog.ethers.club/Social: https://x.com/0xSeroGithub: https://github.com/0xserohttps://www.youtube.com/channel/UCeNLqAes-kUMjWksPA6d-BA/
What this episode covers
Send us Fan Mail Aspartylglucosaminuria (AGU), is a rare and fatal disease that currently has no treatment. Julian shares the experience of Julia Taravella, and her children Daniel and Alexander. Julian was an EMT, and has first hand experience with the American medical system. To support this podcast please consider donating to the cause: https://www.raretrait.com/home_1 https://www.amazon.com.br/Nazira-Purrpose-like-other-English-ebook/dp/B0DNHX7BJQ Support the show Blog: https://blog.et...
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#48 - Julien: Aspartylglucosaminuria, life as an EMT
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