7. Finding Her Voice in Early Adolescence With PKU with Norah and Staci

Metabolically SpeakingRare conditions, Real stories.Finding Her Voice in Early Adolescence With PKUWith Norah and StaciAt 11 years old, Norah is learning to navigate early adolescence while living withPKU - balancing school, friendships, jazz band, sports clubs, and the desire tosimply fit in. With support from her Mom, Staci, she’s building confidence andindependence as she learns to manage her condition and advocate for herself.In this episode, Norah shares what it really feels like to grow up with PKU, fromsleepovers and celebrations to managing formula and explaining her condition toothers. Together, Norah and Staci reflect on how their family works as a team tobalance responsibility, independence, and daily PKU care.Join us for this uplifting conversation on Metabolically Speaking, a reminder thatchildren living with PKU don’t want sympathy, they want understanding, normalcy,and the chance to thrive on their own terms.Show NotesFind out more about Cambrooke:www.cambrooke.com/aboutwww.linkedin.com/company/cambrooke-therapeuticswww.instagram.com/ajinomoto_cambrookewww.facebook.com/AjinomotoCambrookeGet in touch with us: [email protected] Baker:www.instagram.com/phenylketonuriaandmewww.linkedin.com/in/maridithbakerwww.facebook.com/maridith.bakerResources from Norah and Staci:NPKUA Mentor Program: Mentor | NPKUAMetabolically SpeakingRare conditions, Real stories.