A Family’s Fight for Seizure Freedom

Some stories stay with you long after the conversation ends.In this episode of The CortiCare Podcast, Brad Beauchamp sits down with Ty, Lisa, and Charlie O’Connor to share the reality of navigating a rare genetic epilepsy diagnosis, years of seizures, hospital stays, clinical trials, surgeries, and the constant search for answers. Charlie is one of only a handful of children in the world living with a rare GABRA2 variant. His journey has included more than 30 medications, EEG monitoring, infantile spasms, ketogenic therapy, brain surgery, VNS therapy, and breakthrough moments that gave their family hope again. But this episode is about more than medicine.It is about advocacy. Community. Choosing joy in the middle of uncertainty. And what it means to keep moving forward even when there is no clear roadmap.The conversation also gives an honest look at the role EEG played throughout Charlie’s journey and how timely neurological insight helped shape critical decisions along the way.Watch now and hear a story of resilience, persistence, and hope from a family determined to keep fighting for their son.Be sure to follow Charlie and his story at his Instagram page! @charlies.story https://www.instagram.com/charlies.story?utm_source=ig_web_button_share_sheet&igsh=ZDNlZDc0MzIxNw==Listen to The CortiCare Podcast on:- YouTube: https://youtube.com/playlist?list=PLbc8iIZezPT89aRJzx8UJVTSPhXMUMMtd&si=0AyqOazngiWuCwx1 - Apple: https://podcasts.apple.com/us/podcast/the-corticare-podcast/id1769209300 - iHeart Radio: https://www.iheart.com/podcast/269-the-corticare-podcast-219417392/- Spotify: https://open.spotify.com/show/0j0xF3Ss554mtH1A1bfcPp?si=306448c2a70d42e5- RSS Feeds: ⁠https://rss.com/podcasts/the-corticare-podcast/#CortiCare #PatientStory #EpilepsyAwareness #Neurodiagnostics #Healthcare #TheCortiCarePodcast