just now

E4: Advocacy - Your Voice Matters

First published

09/12/2023

Genres:

society

documentary

Listen to this episode

0:00 / 0:00

Summary

Duration

Parent Podcast

ALS Caregivers and Beyond

View Podcast

Share this episode

Similar Episodes

    November is National Family Caregivers Month, LENDING SUPPORT TO CANCER CAREGIVERS DURING NATIONAL FAMILY CAREGIVERS MONTH AND BEYOND

    Release Date: 12/05/2022

    Description: Bringing Attention to the Challenges of Caring for Those with Blood Cancer & Finding Solutionsto Ease the Emotional Toll on Caregivers & Patientsfor video and more info, go to https://goodnewsplanet.com/november-is-national-family-caregivers-month-lending-support-to-cancer-caregivers-during-national-family-caregivers-month-and-beyond/#nationalcaregiversmonth #nationalfamilycaregiversmonth #nationalfamilycaregivers #nationalcaregivers #cancer #lendingsupport #patients #emotionaltoll #bloodcancer #health #physical #social #mental #leukemia #understandbloodcancer #kenmiller #drkenmiller #hematologist #oncologist #sinaihospital

    Explicit: No

    McGill Cares - Living with and Supporting a Loved One with ALS

    Release Date: 05/05/2021

    Description: Dr. Angela Genge is Director of the Clinical Research Unit at the Montreal Neurological Institute. She is a neuromuscular neurologist and leads the Amyotrophic lateral sclerosis (ALS) clinical program and multidisciplinary clinic. Dr. Genge has received numerous awards, most recently the 2018 Forbes Norris Award, the DIVA of Distinction Award, and the Governor General Diamond Jubilee Award. Ms. Leigh Stephens is a social worker and a psychosocial counsellor at the ALS Society of Quebec. She supports people living with ALS and their caregivers at every stage of the disease, from diagnosis through end of life and bereavement. Her work developing programs and services for caregivers led to her involvement in the consultation process for the development of the National Policy for Caregivers in Quebec. Dr. Genge will speak about ALS, how it progresses and what treatments are available. Ms. Stephens will provide an understanding of the types of programs and services that exist for persons living with ALS and their caregivers. We would like to thank the Lindsay Memorial Foundation for sponsoring this episode of McGill Cares. Original Air Date: December 16, 2020 McGill Cares is a weekly webcast series designed to support informal caregivers. During candid, 30-minute interviews with leading experts, Claire Webster, Alzheimer Care Consultant and Founder of the McGill Dementia Education Program, explores topics related to caring for a loved one with dementia. For more information about the McGill Dementia Education Program or to make a donation, please visit www.mcgill.ca/dementia. If you have specific topics or questions that you would like us to address during our weekly webcasts, please email us at [email protected].

    Explicit: No

    Episode 9: When the Casseroles Stop Coming

    Release Date: 12/27/2023

    Description: When we learn of a family in need we want to butter up a baking dish and make them a casserole. But for caregivers of those living with dementia the need for help goes far beyond what a hot dish can provide. In this episode of Dementia Caregivers Community hosts Marketta Puckett and Tracey Kendall Wilson discuss the best ways to offer help. Perhaps more importantly, they help families to get comfortable with accepting and even asking for help. 

    Explicit: No

    Floating in the Deep End with Patti Davis

    Release Date: 12/08/2022

    Description: Patti Davis is an author, activist, advocate, and daughter of the 40th President of the United States, Ronald Reagan. She is a frequent contributor to media outlets including the New York Times and The Washington Post and has written several works of both fiction and nonfiction. She is the founder of Beyond Alzheimer’s, a support group program for caregivers of people living with dementia. Her latest book Floating in the Deep End: How Caregivers Can See Beyond Alzheimer’s, recently released in paperback, is an extension of that support group. Part handbook, part memoir, Patti offers practical and important strategies for every stage of the disease. I believe this book is a must read for dementia caregivers. Patti and I discuss the book and the many ways your life changes as a caregiver, the power of showing up and the importance of support. https://www.barnesandnoble.com/w/floating-in-the-deep-end-patti-davis/1138668991

    Explicit: No

Similar Podcasts

    Life is a Sacred Journey

    Release Date: 08/06/2020

    Authors: Micheal Pope

    Description: Celebrating the contribution, role, and impact of elders and caregivers in our community and beyond.

    Explicit: No

    THRIVE: Building Resilient Families

    Release Date: 07/07/2021

    Authors: Austin Child Guidance Center

    Description: This podcast was was created to normalize the challenges of parenthood and to provide parents and caregivers with strategies and support in their efforts to help their children to thrive --- in childhood and beyond.

    Explicit: No

    ALS Pathways

    Release Date: 04/24/2021

    Authors: Mitsubishi Tanabe Pharma Canada

    Description: This convenient, multipart ALS Pathways Podcast Series covers a range of ALS-related topics. Each episode explores a new and interesting subject: learn more about the science of ALS, how to prepare for and manage symptoms, and other tips for both people with ALS and their caregivers.The ALS Pathways Podcasts are free audio files that you can stream or download using your smartphone, tablet device, or desktop computer. Each episode in this series is about 20 minutes in length. Podcasts are a great way to get practical information wherever you are.

    Explicit: No

    Caregivers Haven

    Release Date: 08/23/2020

    Authors: Saundra Boyd

    Description: Caregivers Haven is a community for and by Caregivers. It is dedicated to family caregivers of the mentally ill, however most of what we do can be beneficial to any caregiver.

    Explicit: No

    Canada Nanny Agency

    Release Date: 03/27/2021

    Authors: Preferred Nannies

    Description: Nanny Services Edmonton specializes in matching caregivers, accompanying person and expert caregivers for the elderly, with people who need their services. We connect excellent nannies and caregivers with families seeking quality care for their loved ones.

    Explicit: No

    The Supporting Child Caregivers Podcast

    Release Date: 09/25/2020

    Authors: Alexandra Harrison

    Description: Helpful information about child development and parenting issues for child caregivers--parents, teachers, health workers, and other child caregivers across the globe.

    Explicit: No

    The Alzheimer’s Moment

    Release Date: 05/01/2021

    Authors: Robin Ely

    Description: Tips for Alzheimer’s and dementia caregivers.

    Explicit: No

    Roots Radio

    Release Date: 04/30/2021

    Authors: Lenny and Jessie

    Description: Welcome to Roots Radio...a podcast about sharing experiences with those battling ALS. The overarching goal of Roots Radio is to strengthen and comfort the ALS Community through the sharing of experiences lived by its members. On our podcast, we will hear from those diagnosed with ALS, as well as from caregivers, doctors, researchers, and more. Here at Roots Radio we believe that each of us are rooted in our core experiences and attributes from which we can gain strength to face adversity. We think about the roots of a tree as our grounding principals that symbolize those parts of our lives that are not touched or weakened by ALS. Lenny is a patient advocate for those patients and caregivers living with ALS. He was diagnosed with ALS in July of 2019. Jessie is a social worker who has the privilege of working with the ALS Community. Together we are Roots Radio.If you would like to participate in our project please reach out to us at [email protected]

    Explicit: No

    Beyond Disability Texas - Resources for Special Needs Families

    Release Date: 08/20/2020

    Authors: Beyond Disability Texas

    Description: Every two weeks, we publish a new Beyond Disability Texas episode that helps to identify and highlight resources available to special needs families and caregivers in Texas. Our guests will enlighten and inspire you. Subscriptions are always free and available wherever you find podcasts.

    Explicit: No

    The Stressed Out Caregiver with Casey Price

    Release Date: 09/21/2021

    Authors: Casey Price

    Description: Providing Tips and Strategies for Family Caregivers

    Explicit: No

    The Stressed Out Caregiver

    Release Date: 12/14/2021

    Authors: The Stressed Out Caregiver

    Description: Providing Tips and Strategies for Family Caregivers

    Explicit: No

    Podcast – The Stressed Out Caregiver

    Release Date: 04/08/2021

    Authors: Podcast – The Stressed Out Caregiver

    Description: Providing Tips and Strategies for Family Caregivers

    Explicit: No