Ep.#9 - 💜 Family Series: Emily Turner - Brave Heart - Warrior Spirit

from CdLS Connections · host Canadian CdLS Foundation

Join us for a conversation with Emily Turner at the recent US CdLS Foundation Eastern retreat in Oxford, Pennsylvania. Emily shares her journey to independence and her current life with her dog living in a tiny house. Emily describes how she has overcome challenges and provides wisdom that we can all learn from. During the retreat, Emily finally received a definitive molecular diagnosis of NIPBL after decades of searching. She shares the importance of the CdLS community to her and what it means to come together to meet clinicians, other families and individuals with CdLS.Send us Fan MailSupport the showThanks for listening to CdLS Connections brought to you by the Canadian CdLS Foundation.Stay connected with our community at www.canadiancdlsfoundation.com and follow us on social media for more stories, support and updates. Together, we're building awareness and connection for everyone affected by Cornelia de Lange Syndrome.(c) Canadian CdLS Foundation. All Rights Reserved.

What this episode covers

NOW PLAYING

0:00 25:36

1×

No transcript for this episode yet

We transcribe on demand. Request one and we'll notify you when it's ready — usually under 10 minutes.

Share this episode

Similar Episodes

No similar episodes found.

Similar Podcasts

LE HAWKESBURY SOCIAL ’BACK TO LIFE’ ADAM STACEY Welcome to the ‘Le Hawkesbury Social’, 'Back to Life’ a space where we celebrate life in all its colors: happiness, joy, love, connection, and even the moments of sadness that make us human. A space where we celebrate life in all its colors: happiness, joy, love, connection, and even the moments of sadness that make us human. Hosted by a passionate mental health advocate, this show dives deep into the topics that truly matter to today’s culture and community. Each episode offers honest conversations, thoughtful reflections, and real stories that bring people together. Whether you’re here for mental health discussions, community connections, or just looking to feel seen and heard in a fast-paced world, you’re in the right place. Adam believes in building a diverse and inclusive community where voices from every background can come together, share, and support one another. That’s why every Wellness Podcast, we open the mic to local community partners, support services, and inspiring voi PMA: Sculpture Garden - Art Tours Philadelphia Museum of Art The Sculpture,Garden presents a superb and versatile outdoor setting for the appreciation of art, offering a lively experience of sculpture for both the casual passerby and devoted art lovers. Gracefully integrated into the existing landscape, the Sculpture,Garden extends the Museum’s vast galleries to the outdoors while strengthening the Museum’s connections to the city and Fairmount Park. Its pathways and vistas, green space, and water feature create a variety of spaces for art while maintaining an open setting that invites Philadelphia’s public to explore a new expression of the Museum’s goal to make more art available to an ever-growing audience. FBC Meridianville, AL - Audio First Baptist Church Meridianville "Welcome to the First Baptist Church Meridianville Podcast, your destination for inspiring sermons and messages that uplift your spirit and enrich your faith journey. Join us each week as we bring you fresh, dynamic teachings from our passionate pastors and guest speakers. Whether you're a longtime member or just exploring your faith, tune in regularly for insightful reflections, engaging discussions, and meaningful connections. Don't miss out on the opportunity to nourish your soul and deepen your relationship with God. Subscribe now and be part of our vibrant community!" Maryam Amir Muslim Central Maryam Amir is the creator of the free app Qariah: The Women Quran Reciters App, available on Google Play and Apple stores. She received her master’s in Education from UCLA, focusing her research on the effects of mentorship rooted in Critical Race Theory for urban high school students of color. Maryam holds a second bachelor’s degree in Islamic Studies from Al-Azhar University and has memorized the Qur’an. Over the past 15 years, she has studied in Egypt and extensively researched various Islamic sciences, including Quranic exegesis, Islamic jurisprudence, Prophetic narrations, and women’s rights within Islamic law.In addition to her academic and religious pursuits, Maryam Amir is the host of the Quran Champions series on Islam Channel and has been interviewed by major news outlets such as BBC, NPR, and CBS. Her work spans spiritual connections, identity actualization, social justice, and women’s studies, and she lectures globally, including in cities like Jerusalem, Mecca, Medina,

Frequently Asked Questions

How long is this episode of CdLS Connections?

This episode is 25 minutes long.

When was this CdLS Connections episode published?

This episode was published on October 8, 2024.

What is this episode about?

Can I download this CdLS Connections episode?

Yes, you can download this episode by clicking the download button on the episode player, or subscribe to the podcast in your preferred podcast app for automatic downloads.

URL copied to clipboard!