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Ep30 Pulse 117: Commitment to Advocacy, Rare Disease Week, 50th Gala Tickets, Calls to Action

EPISODE · Feb 25, 2025 · 38 MIN

Ep30 Pulse 117: Commitment to Advocacy, Rare Disease Week, 50th Gala Tickets, Calls to Action

from PWS United · host PWSA | USA

The latest in PWSA | USA events and PWS news in research, family support, and advocacy.  Events Rare Disease Day Rare Disease Day Hub: PWS - Rare Disease Day - Prader-Willi Syndrome Association | USA Rare Disease Week - EveryLife Foundation for Rare Diseases Live Stream: Rare Disease Week - Attendee Corner Virtual Rare Disease Week - EveryLife Foundation for Rare Diseases Rare Disease Day 2025 – Join Us! Rare Disease Week Advocacy Calls to Action: Join Rare Disease Week Advocacy from Home - Prader-Willi Syndrome Association | USA United in Hope Conference Hotel Locator: PWSA (Prader-Willi Syndrome Association) | 2025 International Prader-Willi Syndrome Conference - 6/24/25 - 6/28/25 - Phoenix, AZ | Tempe | Advanced Reservation Systems Home - 2025 United in Hope PWS Conference Mural: 2025 PWS Conference Mural Photo Submission - Prader-Willi Syndrome Association | USA For info on sponsorship opportunities: [email protected] 50th Anniversary Journey of Hope Gala: Donate to Diamonds & Denim 2025 Share your PWSA Memory: 50 Year Anniversary - Prader-Willi Syndrome Association | USA BIPOC Listening Sessions: Listening Session: Prader-Willi Syndrome Fundraisers Prader-Willi Hot Stove | Powered By GiveSmart PWSA Fundraising Pages - Campaign Spotlight on Hope New Mexico teen receives national acclaim for Girl Scout Gold Award project - KOB.com Share Your Story - Prader-Willi Syndrome Association | USA Call to Action! Call to Action: Save Our Clinical Trials - Prader-Willi Syndrome Association | USA Advocacy Aardvark Therapeutics Rings the Closing Bell | Nasdaq Family Support Celebrating National Caregivers Day 2025 - Prader-Willi Syndrome Association | USA Ask Nurse Lynn: Memory, Confabulation, and Aging in PWS - Prader-Willi Syndrome Association | USA Ask Nurse Lynn - Prader-Willi Syndrome Association | USA Share Your "PWS in Adulthood" Story - Prader-Willi Syndrome Association | USA Research New Project Seeks to Identify Characteristics that Predict Challenging Behaviors in PWS - Prader-Willi Syndrome Association | USA Twins & Prader-Willi Syndrome Survey Announcements/Resource Spotlight Call for Nominations or Board of Directors mailto:[email protected] LisaGrazianoLMF​[email protected] Raise-Your-Voice-Toolkit-PWSA-USA-Revised-Version-2021.pdf   Intro Music: https://www.bensound.com/; License certificate #2242442 

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Ep30 Pulse 117: Commitment to Advocacy, Rare Disease Week, 50th Gala Tickets, Calls to Action

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