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Ep34 Pulse 119: Awareness, Staying Cool at Conference, Sibling Stories, Clinical Trial with Tirzepatide

EPISODE · Mar 25, 2025 · 38 MIN

Ep34 Pulse 119: Awareness, Staying Cool at Conference, Sibling Stories, Clinical Trial with Tirzepatide

from PWS United · host PWSA | USA

The latest in PWSA | USA events and PWS news in research, family support, and advocacy.  Awareness Topics Nutrition in the PWS Family - Prader-Willi Syndrome Association | USA Nutrition Discourse in the PWS Community - Prader-Willi Syndrome Association | USA 2025 DD Awareness Month: We’re Here All Year! – NACDD Women in PWS: Moving Forward Together - Prader-Willi Syndrome Association | USA What is neurodiversity? - Harvard Health Neurodiversity and Prader-Willi Syndrome - Prader-Willi Syndrome Association | USA United in Hope Conference High-Level 2025 Conference Schedule Home - 2025 United in Hope PWS Conference Mural: 2025 PWS Conference Mural Photo Submission - Prader-Willi Syndrome Association | USA For info on sponsorship opportunities: [email protected] 50th Anniversary Journey of Hope Gala: PWSAUSA 50th Anniversary: Journey of Hope Celebration - Campaign PWSA Memory: Vanja Holm's contribution to our knowledge of PWS - IPWSO Share your PWSA Memory: 50 Year Anniversary - Prader-Willi Syndrome Association | USA Events Recognizing and Addressing Hyperphagia Early in Prader Willi Syndrome Fundraisers Zahra's Night of Light - Campaign United We Brunch - Campaign PWSA Fundraising Pages - Campaign Spotlight on Hope Share Your Story - Prader-Willi Syndrome Association | USA Advocacy Take Action: Help Pass the Sunshine Genetics Act in Florida! - Prader-Willi Syndrome Association | USA Soleno Sibling/Family Member Stories: [email protected] Soleno Caregiver Photo & Story Release Form (for minor siblings) Feb 2025.docx Soleno Adult Sibling Photo & Story Release Form Feb 2025.docx Family Support Staying Cool at Conference - Prader-Willi Syndrome Association | USA Ask Nurse Lynn: Respiratory Infections - Prader-Willi Syndrome Association | USA Ask Nurse Lynn - Prader-Willi Syndrome Association | USA Share Your "PWS in Adulthood" Story - Prader-Willi Syndrome Association | USA Research Tirzepatide Study: [email protected] or 206-987-2540 PWSA | USA Webinar: About Harmony Biosciences TEMPO PWS Clinical Announcements/Resource Spotlight What is Early Intervention?   Intro Music: https://www.bensound.com/; License certificate #2242442 

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Ep34 Pulse 119: Awareness, Staying Cool at Conference, Sibling Stories, Clinical Trial with Tirzepatide

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