Ep89 Pulse 145: PWS Awareness Month, DC Fly-In, Voices on VYKAT 4, Autism Blog

from PWS United · host PWSA | USA

The latest in PWSA | USA events and PWS news in research, family support, and advocacy. 24 Hour Crisis Line: 941-312-0400 Pulse Header Celebrating Occupational Therapy Month: How OT Builds Confidence, Comfort, and Skills for Life - Prader-Willi Syndrome Association | USA Occupational Therapy, Parent Perspective - Prader-Willi Syndrome Association | USA Spotlight on PWS Diving in to Volunteering - Prader-Willi Syndrome Association | USA Share Your Story - Prader-Willi Syndrome Association | USA Resource Spotlight Treatment Approaches for Prader-Willi Syndrome PWS Awareness Month PWS Awareness Month - Prader-Willi Syndrome Association | USA United in Action - Campaign Events | Fundraisers Magnolias & Mimosas - Campaign PWS Community Day Registration (Miami) Survey Miami_PWS_Community_Day_Digital_Invite.pdf PWSA Events Podcast Ep88: What is a Rare Pharmacy? How PWS Families Receive Care Through PANTHERx | PWS United Advocacy Monday Office Hours for DC Fly-In Attendees: Join from Zoom Workplace app - Zoom Friday Office Hours for DC Fly-In Attendees: Join from Zoom Workplace app - Zoom Family Support Living Between Diagnoses: Hunter’s Journey with Prader-Willi Syndrome and Autism - Prader-Willi Syndrome Association | USA Ask Nurse Lynn: Cataplexy Evaluation - Prader-Willi Syndrome Association | USA Submit your own non-emergency medical question: Ask Nurse Lynn - Prader-Willi Syndrome Association | USA Research Soleno Webinar: One Year of VYKAT XR - Celebrating milestones in treating hyperphagia in PWS TEMPO PWS Clinical Study For Prader-Willi Syndrome - Enroll Today PWS Clinician Information Collection Form - Prader-Willi Syndrome Association | USA Intro Music: https://www.bensound.com/ License certificate #2242442  Music: www.purple-planet.com Disclaimer for show notes:  This episode is sponsored by Soleno Therapeutics, the makers of VYKAT XR. While PWSA | USA does not endorse any specific treatment, we recognize the importance of sharing information about options available to the PWS community. Decisions about medical care should always be made in consultation with a qualified healthcare provider. Please visit www.vykatxr.com for information on use and potential side effects.

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