Episode 197 - Kristen Wieneke episode artwork

EPISODE · Oct 11, 2018 · 7 MIN

Episode 197 - Kristen Wieneke

from I'm Aware That I'm Rare: the phaware® podcast · host phaware global association

Kristen Wieneke is a long term pulmonary hypertension survivor. She was diagnosed in 2003 during open heart surgery to repair an ASD. She discusses the stigma that comes with rare disease, the importance of clinical trials and why patients must be their own advocate. Learn more about pulmonary hypertension trials at www.phaware.global/clinicaltrials. Never miss an episode with the phaware® podcast app. Follow us @phaware on Facebook, Twitter, Instagram, YouTube & Linkedin Engage for a cure: www.phaware.global/donate #phaware @antidote_me

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Episode 197 - Kristen Wieneke

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This episode is 7 minutes long.

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This episode was published on October 11, 2018.

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Kristen Wieneke is a long term pulmonary hypertension survivor. She was diagnosed in 2003 during open heart surgery to repair an ASD. She discusses the stigma that comes with rare disease, the importance of clinical trials and why patients must be...

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