EPISODE · Oct 22, 2024 · 50 MIN
Episode 33: Daniel DeFabio | Menkes Disease
from Rarely Normal · host Katelyn Nugent and Lindsay Weekes
We're overjoyed to welcome Daniel DeFabio to the studio this week. We speak about his son Lucas, who had Menkes Disease, and about the stages of grief, paying it forward, the work he's doing on Global Genes and the creating of The Disorder Channel.Menkes Disease letters + numbers: ATP7Aglobalgenes.org/https://www.thedisordercollection.com/
What this episode covers
We're overjoyed to welcome Daniel DeFabio to the studio this week. We speak about his son Lucas, who had Menkes Disease, and about the stages of grief, paying it forward, the work he's doing on Global Genes and the creating of The Disorder Channel.Menkes Disease letters + numbers: ATP7Aglobalgenes.org/https://www.thedisordercollection.com/
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Episode 33: Daniel DeFabio | Menkes Disease
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