EPISODE · Oct 28, 2024 · 41 MIN
Episode 34: Michelle Fruhschien | Jordan's Syndrome
from Rarely Normal · host Katelyn Nugent and Lindsay Weekes
What a powerhouse mom and rare disease advocate - we are thrilled to welcome Michelle to the studio this week. We talk about her daughter Hailey and her ultra-rare Jordan's disease (which is means it affects less than 1-50K people) as well as the power of 'community' and fight to be seen!https://mamabearforrare.com/https://jordansguardianangels.org/Jordan's Syndrome Letters + Numbers: PPP2R5D
What this episode covers
What a powerhouse mom and rare disease advocate - we are thrilled to welcome Michelle to the studio this week. We talk about her daughter Hailey and her ultra-rare Jordan's disease (which is means it affects less than 1-50K people) as well as the power of 'community' and fight to be seen!https://mamabearforrare.com/https://jordansguardianangels.org/Jordan's Syndrome Letters + Numbers: PPP2R5D
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Episode 34: Michelle Fruhschien | Jordan's Syndrome
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