EPISODE · Aug 12, 2024 · 9 MIN
Episode 481 - Charles Burger, MD
from I'm Aware That I'm Rare: the phaware® podcast · host phaware global association
In this episode, Dr. Charles Burger, the medical director of the Pulmonary Vascular Center at Mayo Clinic in Jacksonville, Florida, discusses the importance of patient registries, specifically the Pulmonary Hypertension Association's PHA Registry (PHAR) for pulmonary hypertension. This registry collects clinical information and surveys from patients to understand their characteristics, treatment options, and outcomes. The PHAR registry also provides opportunities for research on topics like social determinants of health and newly diagnosed patients. @CharlesBurgerMD @MayoClinic @PHAssociation Learn more about pulmonary hypertension trials at www.phaware.global/clinicaltrials. Follow us on social @phaware Engage for a cure: www.phaware.global/donate #phaware Share your story: [email protected] #phawareMD
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Episode 481 - Charles Burger, MD
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