Episode 54: Emily O'Sullivan | Zellweger Syndrome episode artwork

EPISODE · Sep 15, 2025 · 1H 11M

Episode 54: Emily O'Sullivan | Zellweger Syndrome

from Rarely Normal · host Katelyn Nugent and Lindsay Weekes

What a special guest and impactful episode - we're thrilled to connect with Emily this week about her daughter Cora. Her story is one that had to be told! From her path to motherhood, to the impossible decisions she had to make, planning a memorial and carrying on Cora's life and legacy in a way that's special to her and her family...to then face impossible decisions with her second child...Emily's light and thoughtfulness is will leave a lasting impression.Zellweger syndrome is a rare disorder that affects multiple organs and systems. It is caused by mutations in genes responsible for the assembly and function of peroxisomes, small organelles in cells that play a crucial role in breaking down certain fats and toxins.

What a special guest and impactful episode - we're thrilled to connect with Emily this week about her daughter Cora. Her story is one that had to be told! From her path to motherhood, to the impossible decisions she had to make, planning a memorial and carrying on Cora's life and legacy in a way that's special to her and her family...to then face impossible decisions with her second child...Emily's light and thoughtfulness is will leave a lasting impression.Zellweger syndrome is a rare disorder that affects multiple organs and systems. It is caused by mutations in genes responsible for the assembly and function of peroxisomes, small organelles in cells that play a crucial role in breaking down certain fats and toxins.

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Episode 54: Emily O'Sullivan | Zellweger Syndrome

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What a special guest and impactful episode - we're thrilled to connect with Emily this week about her daughter Cora. Her story is one that had to be told! From her path to motherhood, to the impossible decisions she had to make, planning a memorial...

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