Episode 559 - Drs. Matina Prapa and Olivier Danhaive

from I'm Aware That I'm Rare: the phaware® podcast · host phaware global association

How a Global Team Is Rewriting the TBX4 Playbook Rare diseases thrive in isolation. TBX4Life is changing that. In this episode, Drs. Prapa and Danhaive share how international collaboration is creating real-time change for patients. From newborn screening to natural history studies to rethinking how we talk about genetic testing, they're helping create a roadmap to a cure. Learn more about pulmonary hypertension trials at www.phaware.global/clinicaltrials. Follow us on social @phaware Engage for a cure: www.phaware.global/donate #phaware #phawareMD Share your story: [email protected] Like, Subscribe and Follow us: www.phawarepodcast.com. @TBX4_Life

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This episode was published on February 10, 2026.

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