EPISODE · Jun 16, 2026 · 11 MIN
Episode 577 - Carla Kinsey
from I'm Aware That I'm Rare: the phaware® podcast · host phaware global association
She Went Looking for Answers and Ended Up Building a Lifeline Before Zoom, before Facebook groups, pulmonary hypertension patient, Carla Kinsey, had only a voice on a phone line. That loneliness pushed her to do something terrifying: start a support group herself. What began as a need for connection became a lifeline for countless patients navigating rare disease. Learn more about pulmonary hypertension trials at www.phaware.global/clinicaltrials. Follow us on social @phaware Engage for a cure: www.phaware.global/donate #phaware Share your story: [email protected] Like, Subscribe and Follow us: www.phawarepodcast.com.
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Episode 577 - Carla Kinsey
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