Episode Seven- Clare

Erythropoietic Protoporphria

Episode 7 of the The Light Sensitivity Podcast podcast, hosted by Stephanie Logan, titled "Episode Seven- Clare" was published on September 25, 2023 and runs 33 minutes.

September 25, 2023 ·33m · The Light Sensitivity Podcast

0:00 / 0:00

Summary

What do you know about light sensitivity skin conditions?  Also known as photosensitivity or sun allergy, this range of conditions involves various symptoms which are caused or aggravated by exposure to sunlight. Join Rodney Mountain in a fascinating discussion with Clare, who has a diagnosis of Erythropoietic Protoporphria (EPP), and Prof Sally Ibbotson, Head of the Scottish Photobiology Service (SPS) at Ninewells Hospital, Dundee, as they delve deeper into the clinical, social and psychological aspects of this condition.  This is the sixth of seven episodes in the SPS’s light sensitivity podcast series. Each episode contains powerful stories of what it is like to live with one of these conditions and ways in which they can be managed. Whether you or someone you know has, or thinks they may have, light sensitivity, or you just have a curiosity for medicine and love to hear people’s stories, this series is for you!  For more information on photosensitivity, please visit the Photobiology Unit, Dundee website:  http://www.photobiology.scot.nhs.uk    Since this recording, there now is a patient-led support group who welcomes anyone who has been diagnosed with photosensitivity, is over the age of eighteen and lives in Scotland. If you would like to join or find out more information please email: [email protected]   Hosted on Acast. See acast.com/privacy for more information.

Episode Description

What do you know about light sensitivity skin conditions?

Also known as photosensitivity or sun allergy, this range of conditions involves various symptoms which are caused or aggravated by exposure to sunlight.

Join Rodney Mountain in a fascinating discussion with Clare, who has a diagnosis of Erythropoietic Protoporphria (EPP), and Prof Sally Ibbotson, Head of the Scottish Photobiology Service (SPS) at Ninewells Hospital, Dundee, as they delve deeper into the clinical, social and psychological aspects of this condition.

This is the sixth of seven episodes in the SPS’s light sensitivity podcast series. Each episode contains powerful stories of what it is like to live with one of these conditions and ways in which they can be managed. Whether you or someone you know has, or thinks they may have, light sensitivity, or you just have a curiosity for medicine and love to hear people’s stories, this series is for you!

For more information on photosensitivity, please visit the Photobiology Unit, Dundee website:

http://www.photobiology.scot.nhs.uk

Since this recording, there now is a patient-led support group who welcomes anyone who has been diagnosed with photosensitivity, is over the age of eighteen and lives in Scotland. If you would like to join or find out more information please email: [email protected]

Hosted on Acast. See acast.com/privacy for more information.