Erin Taylor and Her Mom Lily on Living Fully with ALS

Send us Fan MailMeet the inspiring duo behind the @unsteadyandready Instagram account, sharing life with ALS.  Here, I sit down with Erin Taylor, diagnosed with ALS at 23, to hear what it’s like to build a life in your twenties while your body changes fast and your natural voice fades.  Erin and her mom Lily show us how advocacy, humor, and everyday love can keep you feeling like a whole person even when ALS is always in the room.  We chat about:• Grieving lost dreams and rebuilding purpose through ALS advocacy• Losing a natural voice and using eye gaze with an AI clone voice• Choosing authenticity online to help others feel seen• Managing dark moments by focusing on what we can control• Finding joy in small outings and planning energy for big experiencesErin shares her heart to educate people that ALS can affect anyone, even someone in their 20's.  She said she didn't know that was possible when she was diagnosed.   If you'd like to share Erin's message, please send this episode to a friend.  Thank you. Hugs, LorriFollow and see what's coming next: Instagram,  Facebook,  Twitter, TikTok,  LinkedIn.