[ES] Por qué contar importa en el Síndrome de Rett

What this episode covers

En las enfermedades raras, cada persona cuenta.En este episodio introductorio explicamos qué es rettX, el registro europeo del Síndrome de Rett impulsado por las familias, y por qué contar con datos fiables es clave para dar visibilidad, apoyar la investigación y mejorar la defensa de derechos.Un primer acercamiento claro y cercano para entender por qué registrarse es un paso sencillo con un impacto colectivo real.

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Frequently Asked Questions

How long is this episode of Rett Syndrome patient registry?

This episode is 1 minute long.

When was this Rett Syndrome patient registry episode published?

This episode was published on January 10, 2026.

What is this episode about?

En las enfermedades raras, cada persona cuenta.En este episodio introductorio explicamos qué es rettX, el registro europeo del Síndrome de Rett impulsado por las familias, y por qué contar con datos fiables es clave para dar visibilidad, apoyar la...

Can I download this Rett Syndrome patient registry episode?

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