EPISODE · Feb 24, 2026 · 9 MIN
Going to DC for Rare Disease Week - Ep. 28
from The Fine, But Not Fine Podcast · host Fine, But Not Fine
This episode is the “before.” Before I head to Washington, DC for Rare Disease Week on Capitol Hill, I share why I said yes, how I’ve prepared, and what I’ll be advocating for as a rare disease patient. We talk about insurance denials, the Protect Rare Act, and how advocacy can look different for each of us—at the national, state, or local level.
What this episode covers
This episode is the “before.” Before I head to Washington, DC for Rare Disease Week on Capitol Hill, I share why I said yes, how I’ve prepared, and what I’ll be advocating for as a rare disease patient. We talk about insurance denials, the Protect Rare Act, and how advocacy can look different for each of us—at the national, state, or local level.
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Going to DC for Rare Disease Week - Ep. 28
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