Hemophilia: Katie, Kristie and John’s story

What this episode covers

Twins Katie and Kristie discuss their family history of Von Willebrand’s Disease with their father, John. Katie and Kristie were diagnosed later in life, allowing for their complex family history to be explained. This diagnosis has both strengthened their family bond, and also provided a lesson in advocacy for each family member.

Share this episode

Similar Episodes

Living Life Beyond Hemophilia B: A Personal Journey with Chris Woller

Jul 6, 2026 ·29m

We Can't Do it Alone. Business Design, Innovation & Co-Creation | Patrick Van der Pijl, Founding Partner, Business Models, Inc.

Jun 30, 2026 ·60m

America, Meet America

Jun 30, 2026 ·26m

The Evolution of Hemophilia Treatment with Dr. Ken Friedman

Jun 22, 2026 ·39m

The Search For Meaning With the Luckiest "Mann" in the World | John David Mann, NYT Bestselling Author & Coauthor, The Go-Giver

Jun 16, 2026 ·65m

Love Shines Through

Jun 16, 2026 ·21m

Similar Podcasts

Open Gov Stories Open Gov Stories Why do you care about changing the world? Open Gov Stories is a Global Podcast Series, which goes behind the scenes to explore why social change makers really do the work they do. In each episode, listen to candid interviews between friends and colleagues who have devoted their lives to changing the world. Using the StoryCorps model and app, they share personal origin stories, lessons on how to open up governments, empower citizens and change the world, and their visions for the future. Listen to their stories and add your own.This podcast is a partnership of Open Gov Hub and the Transparency and Accountability Initiative, in collaboration with StoryCorps. Interviews provided courtesy of StoryCorps, a national nonprofit whose mission is to preserve and share humanity's stories in order to build connections between people and create a more just and compassionate world. www.storycorps.orgMusic from https://filmmusic.io:"Promises to Keep" by Kevin MacLeod (https://incompetech.com)Lic StoryCorps Stories of the human heart. A candid, unscripted conversation between two people about what's really important in life: love, loss, family, friendship. When the world seems out of hand, tune in to StoryCorps and be reminded of the things that matter most. Hematology Medical Conversation COR2ED Medical Education Join hematology medical experts as they discuss their approaches to hemato-oncology and hemostasis. The conversations explore scientific data, treatment landscapes, and patient experiences of various bleeding disorders and blood cancers incl. lymphoma, myeloma, hemophilia, von Willebrand disease and thrombosis. This independent medical education podcast is for HCPs with the ultimate goal of improving care for their patients. For more information, visit www.cor2ed.com Beyond the Bleeds Hemophilia Outreach Center Beyond the Bleeds is your go-to podcast for navigating life with bleeding disorders like hemophilia, von Willebrand disease, and more. Each episode brings expert insights, inspiring personal stories, and practical advice for managing these conditions. Whether you’re living with a bleeding disorder or supporting someone who is, this podcast offers support, education, and a sense of community. Join us as we explore the challenges, triumphs, and innovations in care. For more resources, visit hemophiliaoutreach.org.

Frequently Asked Questions

How long is this episode of StoryCorps - Hemophilia?

This episode is 8 minutes long.

When was this StoryCorps - Hemophilia episode published?

This episode was published on June 4, 2021.

What is this episode about?

Twins Katie and Kristie discuss their family history of Von Willebrand’s Disease with their father, John. Katie and Kristie were diagnosed later in life, allowing for their complex family history to be explained. This diagnosis has both strengthened...

Can I download this StoryCorps - Hemophilia episode?

Yes, you can download this episode by clicking the download button on the episode player, or subscribe to the podcast in your preferred podcast app for automatic downloads.