Jake’s Fight for a Life-Saving Drug | Liverpool News

A teenage fighter against a cruel genetic disease is turning heads—and forcing change. Jake McGregor-How, 16, lives with Friedreich’s ataxia, a degenerative condition that’s stealing his mobility and threatening his health. A promising new drug, Omaveloxolone, could slow or reverse his decline—but it’s not available on the NHS. His family is crowdfunding to fund treatment in Germany, sparking a parliamentary outcry over NICE’s stalled approval process. Jake’s grandmother, Ann, spoke in Parliament, pleading for urgent reform to NICE’s rigid criteria—time is running out for kids like Jake. The Prime Minister acknowledged Jake’s case, promising a meeting with a Health Minister. Meanwhile, Jake’s treatment has begun, and his family’s fundraising has surpassed £133,000 of their £300,000 goal—thanks in part to a stranger inspired to take on physical challenges for the cause. Listen in comfort:Get a discount on a Soli Pillow: http://solipillow.com/discount/dnn Advertise on DNN:[email protected] This is an automated, high-level news summary based on public reporting.Report issues to [email protected]. View sources & latest updates:https://sources.thednn.ai/d2b8219abf566a25