Knowing When Fine is Not Fine: One AxSpA Patient's Experience

In this episode of The Psoriatic Arthritis Club, host Shelley Fritz talks with Mini, who shares her journey living with Axial Spondyloarthritis (axSpA) — from decades of unexplained pain and delayed diagnosis to finally finding the right care team and treatment.

Mini opens up about what it means to live with daily inflammation, the emotional and physical toll of feeling dismissed, and how she learned to advocate for herself and her care. Her message is clear: “Fine is not fine.” Speaking up and finding a doctor who truly listens can change everything.

Listen now to learn how open communication and self-advocacy can help people living with axSpA reclaim control over their health and well-being.

Contact Our Host

Shelley Fritz, Patient-Centered Engagement and Insights Manager at the Global Healthy Living Foundation: [email protected] 

A podcast series produced by Ben Blanc, Director, Digital Production and Engagement at GHLF.

We want to hear what you think. Send your comments or questions to [email protected]

The Psoriatic Arthritis Club is a podcast series produced by the non-profit Global Healthy Living Foundation, its arthritis patient community CreakyJoints, and this episode was made possible with support from UCB.

Learn more at creakyjoints.org/psoriatic-arthritis-club 

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