Lessons from a caregiver for a rare neurodegenerative disorder

In this episode, we have Bruce Rosky, who is a patient advocate. Bruce shares his personal journey as a caregiver for his wife Jennifer, who was diagnosed with adult polyglucosan body disease (APBD), a rare neurodegenerative disorder. He talks about the challenges he faced as a caregiver, how he coped emotionally with the diagnosis, and how he found support and resources to help him in his role. Bruce also shares his insights on how to balance the practical and emotional aspects of caregiving and how to find ways to adapt to new challenges. Join us for this insightful and inspiring conversation. Bruce Rosky is a patient advocate. He shares his story and discusses his KevinMD article, "A couple's journey with a rare neurodegenerative disorder." The Podcast by KevinMD is brought to you by the Nuance Dragon Ambient eXperience. With so many demands on their time, physicians today report record levels of burnout. Burnout is caused by many factors, one of which is clinical documentation. Studies indicate physicians spend two hours documenting care for every hour spent with patients. At Nuance, we are committed to helping physicians do what you love – care for patients – and spend less time on clinical documentation. The Nuance Dragon Ambient eXperience, or DAX for short, is an AI-powered, ambient clinical intelligence solution that automatically captures patient encounters securely and accurately at the point of care. Physicians who use DAX have reported a 50 percent decrease in documentation time and a 70 percent reduction in feelings of burnout, and 83 percent of patients say their physician is more personable and conversational. Rediscover the joy of medicine with clinical documentation that writes itself, all within the EHR. VISIT SPONSOR → https://nuance.com/daxinaction SUBSCRIBE TO THE PODCAST → https://www.kevinmd.com/podcast RECOMMENDED BY KEVINMD → https://www.kevinmd.com/recommended GET CME FOR THIS EPISODE → https://earnc.me/xLIJXa Powered by CMEfy.