Living with MHE: Expert Insights on Diagnosis, Treatment, and Hope for Families

In this episode of the Paley Podcast, Drs. David Feldman and Aaron Huser discuss Multiple Hereditary Exostosis (MHE), a rare genetic orthopedic condition characterized by the development of multiple bony growths that can affect mobility, comfort, and long-term joint health. The conversation explores how MHE presents from childhood through adulthood, common symptoms families may encounter, and the importance of early diagnosis and proactive management. Dr. Feldman and Dr. Huser explains how treatment strategies are individualized, ranging from careful monitoring and physical therapy to surgical intervention when growths interfere with joint function, alignment, or nerve structures. The episode also highlights the role of multidisciplinary care and the value of bringing families and medical professionals together in shared learning environments. As part of this discussion, the doctors preview the 2026 Orthopedic Treatment of Rare Conditions Symposium (OTRCS) - an educational event hosted by The Paley Foundation to support patients, families, and clinicians through expert-led sessions, collaboration, and community building focused on rare orthopedic conditions such as MHE. This episode aims to provide clarity, reassurance, and practical insight for families navigating MHE, while emphasizing that with thoughtful planning and coordinated care, patients can lead active and fulfilling lives. Through the dedicated MHE Center at the Paley Orthopedic & Spine Institute, patients and families receive world-class, personalized care from a multidisciplinary team committed to improving outcomes and quality of life for those living with Multiple Hereditary Exostosis.