Losing a Sibling to Epilepsy

In this episode, Karan and Sophie are joined by Maya Boyce and Alexandria Tonore to explore a side of epilepsy that isn’t often talked about: the experience of being a sibling. Maya and Alexandria open up about the fear, responsibility, love, and grief that come with growing up alongside someone living with epilepsy — and what it means to continue on after losing a sibling to this disease.Their stories shed light on how epilepsy shapes families, how grief evolves over time, and why support for siblings is just as essential as support for patients.Thank you to our sponsor UCB for making this podcast possible. For resources and ways to get involved, visit thecameronboycefoundation.org.