Moving & Not Moving

An episode of the NOTES ON NEUROMUSCULAR podcast, hosted by Anna Mayhew, titled "Moving & Not Moving" was published on April 7, 2025 and runs 30 minutes.

April 7, 2025 ·30m · NOTES ON NEUROMUSCULAR

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Summary

Anna is in conversation with Louise Halling, a trained counsellor. Louise has an undiagnosed limb girdle type muscular dystrophy, a diagnosis she has lived with for over 20 years. We discuss the ongoing grief associated with losing skills when you have a progressive neuromuscular disorder, ideas for adjusting and coping with ongoing losses and how professionals can support people better if they understand the lived experience. Support and further information can be found at https://www...

Episode Description

Anna is in conversation with Louise Halling, a trained counsellor. Louise has an undiagnosed limb girdle type muscular dystrophy, a diagnosis she has lived with for over 20 years. We discuss the ongoing grief associated with losing skills when you have a progressive neuromuscular disorder, ideas for adjusting and coping with ongoing losses and how professionals can support people better if they understand the lived experience.

Support and further information can be found at https://www.musculardystrophyuk.org/support/