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Rare Disease Fatigue is Real - Ep. - 23 episode artwork

EPISODE · Oct 28, 2025 · 11 MIN

Rare Disease Fatigue is Real - Ep. - 23

from The Fine, But Not Fine Podcast · host Fine, But Not Fine

In this episode, I open up about rare disease fatigue—physical exhaustion from treatment, the emotional weight of constant advocacy, and the endless admin grind of managing care. I share what triggers burnout, how I cope through energy management, creativity, and support, and why hitting a wall isn’t failure—it’s a signal to rest and rebuild.

What this episode covers

In this episode, I open up about rare disease fatigue—physical exhaustion from treatment, the emotional weight of constant advocacy, and the endless admin grind of managing care. I share what triggers burnout, how I cope through energy management, creativity, and support, and why hitting a wall isn’t failure—it’s a signal to rest and rebuild.

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Rare Disease Fatigue is Real - Ep. - 23

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Frequently Asked Questions

How long is this episode of The Fine, But Not Fine Podcast?

This episode is 11 minutes long.

When was this The Fine, But Not Fine Podcast episode published?

This episode was published on October 28, 2025.

What is this episode about?

In this episode, I open up about rare disease fatigue—physical exhaustion from treatment, the emotional weight of constant advocacy, and the endless admin grind of managing care. I share what triggers burnout, how I cope through energy management,...

Is there a transcript available for this episode?

Yes, a full transcript is available for this episode. You can read the complete transcript on the episode page.

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