S02E08: Championing the Spectrum

In this powerful episode, we are joined by NY State Assemblyman Angelo Santabarbara, a dedicated autism dad and lifelong advocate for the cause. Angelo shares his personal journey as a second-generation immigrant, detailing how his background in civil engineering and service in the Army Reserves laid the foundation for his transition into politics—all inspired by his son, Michael, who is on the spectrum. We dive into Angelo’s deep connection with the Autism Society Greater Hudson Region, where he served as a board member for many years. His passion for advocacy has driven his fight for essential supports and services for the autism community. He highlights his groundbreaking initiative, Autism Action NY, a comprehensive 5-Step Plan designed to streamline services and provide the right support for individuals and families affected by autism. Angelo also introduces the free NY Disability ID Card, a critical tool to assist individuals in communicating essential information, particularly in high-stress situations like traffic stops or TSA checkpoints. We discuss the importance of early diagnosis, the challenges many parents face when their child is first diagnosed, and how our organization is there to guide them through the process. The conversation touches on the significant financial challenges associated with raising a child with autism, including annual care costs and the importance of self-direction budgets from the state. Angelo shares his work on the NY State Autism Advisory Board, which is breaking new ground in healthcare by driving solutions like sensory-friendly emergency rooms and addressing the employment crisis for individuals with special needs. Finally, we explore the ongoing fight to combat stigma, promote social acceptance, and create more inclusive employment opportunities for the autism community. This episode is a must-listen for anyone passionate about advocacy, public policy, and supporting individuals with autism. Episode Chapters 00:00 Intro - A Friendly Rivalry 02:31 From Engineer to Politician - An Autism Dad's Origin Story 05:50 Finding Help in Challenging Times 07:05 What Will Change Your Life - Supports, Services & Advocacy 09:02 Chasing your Passion for the Cause 09:54 The Autism Action NY 5 Step Plan 12:10 Win-Win for Everybody - The free Disability ID Card 17:07 A Helping Hand - the Autism Society Greater Hudson Region 18:07 Fact of the Day - Annual Cost of an Autistic Child 19:32 Erase the Lines - NY State Autism Advisory Board 23:03 Fighting the Stigma - Advocating for Special Needs 26:53 Getting Better by Speaking of the Spectrum!