EPISODE · May 10, 2021 · 21 MIN

Sophie's Hope and GSD1B

from Wait, How Do You Spell That? A Rare Disease Podcast · host waithowdoyouspellthatraredisease

This week, we speak to Jamas LaFreniere, president and founder of the Sophie's Hope Foundation and CureGSD1b -- two nonprofits dedicated to finding a cure for Glycogen Storage Disease Type 1B. GSD is a group of rare metabolic disorders characterized by a missing enzyme that allows the liver to produce glycogen. Learn how to support the Sophie's Hope Foundation here. Learn more about the Cure GSD1B Alliance here.

Episode metadata supplied by the publisher feed · Published May 10, 2021

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This episode was published on May 10, 2021.

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