EPISODE · Feb 19, 2026 · 8 MIN
Surgery in hEDS — A Full-Blown Shitsuation
from Zebras Underground - Patient-Powered Advocacy · host Zebras Underground
Surgery in hEDS — A Full-Blown ShitsuationFor most people, surgery is a medical event.For those of us with hypermobile EDS, mast cells that revolt, dysautonomia that tanks our blood pressure, and anesthesia that either ghosts us or hits like a freight train?It’s a shitsuation.In this episode, we unpack the real science (including a 2026 scoping review published in Rheumatology International) confirming what patients already know: surgical care for hEDS and HSD is under-researched, under-understood, and wildly inconsistent.We talk:-Anesthesia weirdness-Pre-op allergy chaos-Healing that doesn’t follow the brochure timeline-Pain management that misses the mark-And the emotional toll no one prepares you forThis one is equal parts sass and serious strategy — because even when surgery is unpredictable, zebras still deserve relief, stability, and hope.Listen in. And bring your metaphorical index card of doom because we're laughing our ass off. That's no s**t. Get full access to Zebras Underground at zebras.substack.com/subscribe
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Surgery in hEDS — A Full-Blown Shitsuation
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