The impact of the Friedreich's Ataxia drug on one man's life

Over the last few weeks we’ve been highlighting the stories of people living with Friedreich’s Ataxia and their calls to fund a drug here that they say could massively improve their lives. The drug is called Skyclary’s and, though approved in other European countries, is not available here. Richie Currier, his wife Maria and his cousin Bernard Clarke told Claire their story.

NOW PLAYING

0:00 14:20

1×

No transcript for this episode yet

We transcribe on demand. Request one and we'll notify you when it's ready — usually under 10 minutes.

Share this episode

Similar Episodes

Why Live and Evergreen Models Both Fall Short

Feb 4, 2026 ·18m

Tao Te Ching by Laozi (Author), Stephen Mitchell Audiobook, 04 of 04 Episodes

Sep 30, 2023 ·23m

Tao Te Ching by Laozi (Author), Stephen Mitchell Audiobook, 03 of 04 Episodes

Sep 30, 2023 ·27m

Tao Te Ching by Laozi (Author), Stephen Mitchell Audiobook, 02 of 04 Episodes

Sep 30, 2023 ·24m

Tao Te Ching by Laozi (Author), Stephen Mitchell Audiobook, 01 of 04 Episodes

Sep 30, 2023 ·27m

Discworld 13 - Small Gods by Terry Pratchett - 9 of 9 Episodes

Sep 26, 2023 ·65m

Similar Podcasts

Breaking News Show | eTurboNews Juergen Thomas Steinmetz News is relevant to the global travel and tourism industry, human rights and global issues.Breaking news when it happens and only from the source. LIGHTS, CAMERA, SMILE! Creatives Club Media Lights, Camera, Smile, is a podcast for anyone with a dream to share something with the world, out of the overflow of themselves - be it their mind, their heart, their personalities, and much more. Each of us are alive in this moment in time, with an innate ability to have ideas and create various things to benefit both ourselves and the people around us for a reason, and here, you will find the encouragement, the inspiration, and the motivation to do just that. Hosted by Cicily, founder of Creatives Club, she dives into various topics surrounding creativity and business. Exploring entrepreneurship for creatives in a corporate reality, sharing tips and tricks in a media centered company, answering questions regarding what a creative actually is are just a few of the things discussed on this podcast. Be encouraged to create for yourself as Cicily gets vulnerable by pivoting the camera to herself for the first time.To submit questions for Cicily to answer, or have her address certain t Invictus by Greyana, A Tomione Podfic M+G Readings Sporadic uploads thanks to gallstones.Voldemort intended the object to be used by his most loyal follower in the event that his horcruxes were destroyed, but it ended up in Hermione’s possession instead.It sent her back to a time when he was much less the monster that she’d always known him to be. Nothing could have prepared her for the intelligence and charm of Tom Riddle.He isn’t who she thought he was.Hermione discovers that it’s a dark descent into the madness of the man she should hate, but can’t… a descent she will never emerge fr The Course Mentors Podcast The Course Mentors Hey there, future course creator!Ever feel like turning your know-how into an online course is like trying to solve a Rubik's cube blindfolded? Well, grab your headphones because "The Course Mentors Podcast" is here to be your secret weapon!Meet Aimee and Odette (that's us!), your new best friends in the course creation world. We've been in the trenches for over a decade, and for the last five years, we've been rocking the online course space. Now we're here to spill all our secrets in bite-sized, 15-20 minute episodes that'll fit perfectly in your coffee breaks.No fluff, no filler - just real, actionable advice that'll take you from "um, what's a landing page?" to "holy moly, I just hit six figures!". We're talking everything from crafting your course to marketing it like a pro and building a business that'll have you pinching yourself.Whether you're dreaming of ditching the 9-to-5 grind, adding a sweet extra income str

Frequently Asked Questions

How long is this episode of Calling It?

This episode is 14 minutes long.

When was this Calling It episode published?

This episode was published on June 26, 2026.

What is this episode about?

Can I download this Calling It episode?

Yes, you can download this episode by clicking the download button on the episode player, or subscribe to the podcast in your preferred podcast app for automatic downloads.

URL copied to clipboard!