The Power of Policy, Storytelling & Ayanna Pressley: Go Inside the D.C. NAAF Conference episode artwork

EPISODE · Sep 13, 2024 · 40 MIN

The Power of Policy, Storytelling & Ayanna Pressley: Go Inside the D.C. NAAF Conference

from Very Nearly Almost · host Lindsey Sullivan

In this episode, Lindsey takes you inside the 2024 National Alopecia Areata Foundation conference. It took place this past June in Washington, D.C. The D.C. setting is an important one for alopecia advocacy work. As listeners know all too well, it’s an election year. It feels like government and public policy are at the forefront of minds and memes, but all that stuff can also feel so divisive and simply out of reach. And what might any that have to do with alopecia? Well, as it happens–a lot! NAAF has an entire Legislative Liaison program in which people with alopecia all across the country–and members of their support squad–aim to meet with their local legislators to implement real, tangible change for those with hair loss. Don’t worry – Lindsey and special guests from this year’s conference -- including NAAF co-founder Donna Murray and Congresswoman Ayanna Pressley -- are going to break it all down for you.  Plus, head to Capitol Hill for Advocacy Day and learn all about the Wigs as Durable Medical Equipment Act.  Next year’s NAAF conference will take place in Chicago on June 26, 27, 28 and 29th. Follow Lindsey on Instagram at @verynearlyalmost and @lindssully. Visit lindseysullivan.net and vrynrlyalmost.com for more. The information provided in this podcast is for educational and informational purposes only and is not intended as medical advice. Always consult with a qualified healthcare professional regarding any medical concerns or treatment options. The views expressed by guests are their own and do not necessarily reflect those of Very Nearly Almost.

In this episode, Lindsey takes you inside the 2024 National Alopecia Areata Foundation conference. It took place this past June in Washington, D.C. The D.C. setting is an important one for alopecia advocacy work. As listeners know all too well, it’s an election year. It feels like government and public policy are at the forefront of minds and memes, but all that stuff can also feel so divisive and simply out of reach. And what might any that have to do with alopecia? Well, as it happens...

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The Power of Policy, Storytelling & Ayanna Pressley: Go Inside the D.C. NAAF Conference

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In this episode, Lindsey takes you inside the 2024 National Alopecia Areata Foundation conference. It took place this past June in Washington, D.C. The D.C. setting is an important one for alopecia advocacy work. As listeners know all too well, it’s...

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