The Road Less Stumbled: Paul Bugeja and FSHD

What this episode covers

Diagnosed at age 35 vibrant Paul Bugeja shares his personal journey with Facioscapulohumeral Muscular Dystrophy (FSHD). In this conversation with humour and enthusiasm Paul reflects on the signs of FSHD that were present in his childhood, the importance of exercise, and how he views his condition as an opportunity for growth rather than an obstacle. Paul emphasises the significance of embracing uncertainty, finding joy in ‘collecting souls’, his involvement in advocacy organisations while sharing his journey of writing a book about his experiences with FSHD. SHOW NOTESFSHD Global https://fshdglobal.orgMuscular Dystrophy Australia https://www.mda.org.auMuscular Dystrophy Queensland https://mdqld.org.auMuscular Dystrophy Foundation Australia https://mdaustralia.org.au

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Frequently Asked Questions

How long is this episode of You, Me & Muscular Dystrophy?

This episode is 38 minutes long.

When was this You, Me & Muscular Dystrophy episode published?

This episode was published on November 1, 2025.

What is this episode about?

Diagnosed at age 35 vibrant Paul Bugeja shares his personal journey with Facioscapulohumeral Muscular Dystrophy (FSHD). In this conversation with humour and enthusiasm Paul reflects on the signs of FSHD that were present in his childhood, the...

Can I download this You, Me & Muscular Dystrophy episode?

Yes, you can download this episode by clicking the download button on the episode player, or subscribe to the podcast in your preferred podcast app for automatic downloads.