The Worst Symptoms of Lichen Sclerosus

Lichen Sclerosus affects everyone differently. Each person can have a different variety of symptoms or no symptoms at all. This week I tell you about the common, severe and secondary symptoms I learned about in my research. I also discuss how some of them have affected me. Common Symptoms: Itching (mostly at night) Burning and soreness Fissures, nonhealing legions, and blood blisters Excessive sweating between your legs Chronic urinary tract or yeast infections Severe Symptoms: The fusing of the labia The fusing of the clitoral hood Valvular scarring Secondary Symptoms: Depression Isolation Fatigue Anxiety Loss of relationships Pain during sex, urinating or having a bowel movement Valvular cancer While all of these symptoms are bad the mental health issues can cause the most harm because we may not even realize we are having them. This is why we need to build our community and start speaking to each other. I want to start building a network of support where we can text or talk to each other. I want to help and I need your help. Mentioned in this episode:Finally Get Clear Answers About LS, Menopause, and Your TreatmentIf you’ve ever found yourself listening to this podcast searching for answers… trying to figure out why your body feels different… why your treatment isn’t working… or whether this is menopause, lichen sclerosus, or something else entirely… You’re not alone. And more importantly— you’re not the problem. Most people with LS are left trying to piece together a care plan from short appointments, conflicting advice, and hours of searching like this. That’s exactly why we created the Wholistic Healing Summit. This free, live event (May 11–15, 2026) brings together 12+ leading specialists to help you finally connect the dots between your symptoms, your treatment, and your next steps. Inside the summit, you’ll get answers to questions like: Why does my treatment stop working? Is this LS progression… or hormonal change? What order should I actually be using my medications? How do I navigate intimacy, pain, and changing skin? And if you choose to upgrade, you’ll also get access to exclusive Q&A sessions, where you can hear real questions from people just like you… and get expert answers you’d normally wait months (and pay hundreds) for. This is where the guessing stops. 👉 Register here: https://lssupportnetwork.org/whs If you’re tired of second-guessing your care… this is your next step. P.S. If you’ve ever wished you had more time with a specialist or left an appointment with unanswered questions, the All-Access Pass gives you direct access to expert Q&As you can revisit anytime.