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Traveling With a Rare Disease - Ep. 21 episode artwork

EPISODE · Sep 30, 2025 · 11 MIN

Traveling With a Rare Disease - Ep. 21

from The Fine, But Not Fine Podcast · host Fine, But Not Fine

Traveling with a rare disease isn’t simple—especially when your medication has to stay cold. In this episode, I share the real challenges of flying with Mycosis Fungoides, from packing syringes and sharps containers to navigating TSA rules. I talk about the hotel fridge disaster that forced me to upgrade to a TSA-approved cooler and why planning ahead is the key to stress-free travel. Most of all, I remind you: don’t let fear of complications keep you from seeing the world.

What this episode covers

Traveling with a rare disease isn’t simple—especially when your medication has to stay cold. In this episode, I share the real challenges of flying with Mycosis Fungoides, from packing syringes and sharps containers to navigating TSA rules. I talk about the hotel fridge disaster that forced me to upgrade to a TSA-approved cooler and why planning ahead is the key to stress-free travel. Most of all, I remind you: don’t let fear of complications keep you from seeing the world.

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Traveling With a Rare Disease - Ep. 21

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Frequently Asked Questions

How long is this episode of The Fine, But Not Fine Podcast?

This episode is 11 minutes long.

When was this The Fine, But Not Fine Podcast episode published?

This episode was published on September 30, 2025.

What is this episode about?

Traveling with a rare disease isn’t simple—especially when your medication has to stay cold. In this episode, I share the real challenges of flying with Mycosis Fungoides, from packing syringes and sharps containers to navigating TSA rules. I talk...

Is there a transcript available for this episode?

Yes, a full transcript is available for this episode. You can read the complete transcript on the episode page.

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