what having a chronic illness is actually like episode artwork

EPISODE · Dec 11, 2025 · 31 MIN

what having a chronic illness is actually like

from Live A Little with Nikki Lilly · host Nikki Lilly/W!ZARD Studios

welcome back to live a little with nikki lilly - your cosy corner of the internet. on this episode, nikki gets raw about chronic illness and why we need to stop romanticising struggle. she's unpacking how social media trends and "inspirational" narratives can actually be pretty toxic when you're living through something genuinely hard. nikki opens up about her AVM diagnosis at six years old, 98 operations (and counting), and how her childhood became defined by hospitals instead of hobbies. she's also calling out the well-meaning but damaging things people say when they don't know how to sit with someone's pain... from "the universe only gives you what you can handle" to "just run a bath and get a takeaway." nikki shares what the right thing to offer someone struggling actually is... settle in for a conversation about what real support actually looks like. don't forget to subscribe and catch new episodes every thursday! Follow Live A Little with Nikki Lilly Instagram: ⁠@livealittlepodcast⁠ TikTok: ⁠@livealittlepodcast⁠ YouTube: ⁠@livealittlepod Learn more about your ad choices. Visit megaphone.fm/adchoices

welcome back to live a little with nikki lilly - your cosy corner of the internet. on this episode, nikki gets raw about chronic illness and why we need to stop romanticising struggle. she's unpacking how social media trends and "inspirational" narratives can actually be pretty toxic when you're living through something genuinely hard. nikki opens up about her AVM diagnosis at six years old, 98 operations (and counting), and how her childhood became defined by hospitals instead of hobbies. she's also calling out the well-meaning but damaging things people say when they don't know how to sit with someone's pain... from "the universe only gives you what you can handle" to "just run a bath and get a takeaway." nikki shares what the right thing to offer someone struggling actually is... settle in for a conversation about what real support actually looks like. don't forget to subscribe and catch new episodes every thursday! Follow Live A Little with Nikki Lilly Instagram: ⁠@livealittlepodcast⁠ TikTok: ⁠@livealittlepodcast⁠ YouTube: ⁠@livealittlepod Learn more about your ad choices. Visit megaphone.fm/adchoices

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what having a chronic illness is actually like

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How long is this episode of Live A Little with Nikki Lilly?

This episode is 31 minutes long.

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This episode was published on December 11, 2025.

What is this episode about?

welcome back to live a little with nikki lilly - your cosy corner of the internet. on this episode, nikki gets raw about chronic illness and why we need to stop romanticising struggle. she's unpacking how social media trends and "inspirational"...

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