Willow's Journey with Angelman Syndrome | Liverpool News

A one-year-old girl named Willow, the first daughter of five sons, has been diagnosed with Angelman syndrome — a rare genetic disorder causing severe developmental delays, potential lifelong epilepsy, and likely non-verbalism. Her parents, Lee and Rachel Jenkinson, noticed delays around six months and sought answers, finally receiving the diagnosis in June after extensive testing. The condition stems from a missing or inactive UBE3A gene on chromosome 15. Though the news is devastating, the family remains hopeful, inspired by other children who’ve gained mobility with support. They’re now hunting for an accessible home and launching a fundraiser to raise £1,600 for mobility aids and equipment not covered by the NHS. Willow, described as joyful and loving, is the heart of their mission — ensuring she lives her best life despite the challenges. Listen in comfort:Get a discount on a Soli Pillow: http://solipillow.com/discount/dnn. Advertise on DNN:[email protected] This is an automated, high-level news summary based on public reporting.Report issues to [email protected]. View sources & latest updates:https://sources.thednn.ai/b7cfd58c1bd7e048