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You Have A Friend in LEMS

First published

02/23/2022

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health

medicine

society

culture

personal

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LEMS Aware

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    Introducing the LEMS Aware Podcast

    Release Date: 02/02/2022

    Description: Welcome to the LEMS Aware Podcast. We’ve been waiting foryou.My name is Kevin Freiert, and I will be your host. Lambert-Eaton myasthenic syndrome, also known as LEMS, is arare neuromuscular disease that can have a profound effect on a person'smobility and quality of life.  LEMS disrupts the communication between nerves andmuscles.  LEMS typically causes severe debilitatingand progressive weakness in the upper legs and hips, making it difficult for aperson to walk or even stand. LEMS can also weaken the muscles of the upper arms andshoulders, making self-care and independence difficult.  Some people with LEMS also experience othersymptoms, such as dry mouth or problems with vision.  LEMS Aware was created to deliver relevant information,resources, and connections to patients and caregivers who may be living with oraffected by LEMS.The LEMS Aware Podcast lets you hear from people in the LEMScommunity on topics that matter to you.

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    Transforming LEMS Challenges into Courage

    Release Date: 05/01/2024

    Description: On this episode of the LEMS Aware podcast, we are joined by Patrick, who shares his challenging journey to receiving a LEMS diagnosis. As someone dedicated to serving others through work and church, Patrick struggled with suddenly needing to rely on others for help. His diagnosis process forced him to take significant time off, burning through his sick leave. Like many of our guests, Patrick's experience taught him the importance of being in tune with his body, recognizing when something feels "off," and persistently advocating for himself to seek answers about his health.LEMSaware.com was created to deliver relevant information, resources, and connections to patients and caregivers who may be dealing with LEMS.  Wherever you are on your journey-searching for the right doctor, the right diagnosis, or the right treatment-this site can guide you to that next milestone.  

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    Don't Let Your Diagnosis Define You

    Release Date: 05/01/2024

    Description: On this episode of the LEMS Aware podcast, we are joined by Karyn. Karyn first started feeling her symptoms of LEMS 24 years ago, but wasn’t diagnosed until 2013. Living with her disease for almost 12 years before receiving her diagnosis helped her adapt to life in new ways, become more comfortable in her condition and gave her time to accept that a new normal is okay. Karyn’s frequent moves throughout her life, as well as her career as a social worker, enabled her to see her abilities and how they have changed as part of her life but not what defined her life. LEMSaware.com was created to deliver relevant information, resources, and connections to patients and caregivers who may be dealing with LEMS.  Wherever you are on your journey-searching for the right doctor, the right diagnosis, or the right treatment-this site can guide you to that next milestone. 

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    Episode 46 - LEMS Family Association

    Release Date: 05/01/2024

    Description: Join us on a special podcast with Price Wooldridge as he discusses his journey navigating Lambert Eaton Syndrome (LEMS). Price is not only a strong advocate for the LEMS Family Association, but is a patient himself. Learn about his amazing journey to finding answers and living with LEMS. To learn more about LEMS please visit: lemsfamily.org Enjoy!

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