You, Me & Rare Disease ep. 2 of 2

You, Me & Rare Disease ep. 2 of 2 acknowledging International Rare Disease Day 28th February On You, Me & Rare Disease episode 2 of 2 we feature insights from Carly Findlay, OAM,  Clare Reilly and Leanne Watson.Their personal experiences with rare diseases of LGMD, MS, Ichthyosis, and Cancer.They emphasise the importance of awareness, community support, and the need for dedicated Rare Diseases Day to foster understanding and solidarity. GUEST LINKS Carly Findlayhttps://carlyfindlay.com.au/hire-me/https://www.instagram.com/carlyfindlay/ Clare Reilly https://www.wheelchairmeetswilderness.orghttps://www.instagram.com/clare.reilly/ Leanne Watsonhttps://www.leanneSWHEellife.comhttps://www.instagram.com/leannes_wheel_life/  MUSICMusic: Without You by Declan DP License: https://license.declandp.info Free Download / Stream: https://audiolibrary.com.co/declan-dp...Music promoted by Audio Library:    • DAILY No Copyright For You – Without You b...    CHAPTERS 01:05 Introduction to Carly Findlay and Her Advocacy06:11 Living with Ichthyosis: Challenges and Experiences10:30 Navigating the Medical System with Rare Diseases15:07 The Importance of Rare Diseases Day and Community Support16:14 Introduction to Rare Diseases and MS18:37 Understanding Multiple Sclerosis21:18 Living with a Rare Disease23:13 The Importance of Rare Diseases Day23:47 Understanding Limb Girdle Muscular Dystrophy29:22 The Impact of Living with a Rare Disease