Empowered by Hope

Send us a text, we want to hear from you!In this episode, Ashlyn sits down with Danielle Ireland—licensed therapist and host of Don’t Cut Your Own Bangs—for a real, unfiltered conversation about the internal pressure so many medical parents and caregivers carry.That constant voice that says you’re both too much and not enough… that you should be doing more, even when you’re already doing everything… that it’s all on you to hold it together and make it okay.Together, they explore: why that sharp inner voice often gets louder when you’re exhausted, overloaded, and carrying complex medical responsibilities  the myth of “normal”—and why it’s a shaky and often harmful measuring stick in both mental health and medicine  how labels, diagnoses, and “normal ranges” can be helpful information without becoming a verdict on your worth  the cycle so many parents experience: motivation → reinvention → burnout → shame → repeat  why your nervous system doesn’t need more pressure—it needs safety, honesty, and small moments of relief And importantly—this isn’t just a conversation about awareness. It’s also practical.Danielle shares simple, grounding ways to meet yourself in real time: becoming aware of what you’re actually feeling  acknowledging it somewhere safe  letting it guide your next tiny step You’ll also hear powerful prompts like “Am I lying right now?” and “Where is the water warm?”This episode meets you where you are—not where you think you should be.If you’ve been hard on yourself behind the scenes or quietly wondering if you’re doing enough… this is for you.You are capable. You are equipped. And you are not alone.Danielle Ireland: Speaker. Licensed Therapist. Podcast Host. Ballroom dancer. Actress. Recovering perfectionist. Wife. Mother & Super-sized laugher.Don't Cut Your Own Bangs Podcast: A podcast for unfiltered living.Embrace the messy journey to live a life you love.We kindly ask that you share this podcast with other families who might benefit from our insights and support. Additionally, please take a brief moment to leave a review on your preferred podcast platform, which helps us to reach as many families as possible who are navigating this challenging journey, so they can find our support circle and access the assistance they rightfully deserve. No one should walk this journey alone.To get more personal support, connect with us directly at: https://parentempowermentnetwork.orgFacebook: Parent Empowerment NetworkInstagram: ParentEmpowermentNetworkJoin the Parent Empowerment Network Community of HopeGet your copy of She is Charlotte: A Mother’s Physical, Emotional, and Spiritual Journey with Her Child with Medical Complexities by Emily K Whiting on Amazon 

Send us a text, we want to hear from you!There’s a moment many medical parents know too well: the late-night scroll, the knot in your throat, the feeling that you need an answer and a hand to hold—right now. That’s where our story begins, with two moms, a Facebook group, a long hospital stay, and one honest message that turned fear into friendship.Co-hosts and close friends, Ashlyn Thompson & Ashley Milbourne, talk about how relationships change when your child’s care gets complex, and why connecting with someone who has lived your kind of hard can be the difference between white-knuckling it and moving with steadier breath. You’ll hear how to use social groups without spiraling, how to spot the few voices you can trust, and when to mute notifications to protect your nervous system. We share the art of calibrated honesty—giving or asking for the right level of detail—and the relief that comes when someone gets your “memory anniversaries” without a long backstory.This conversation goes beyond social media. We map practical paths to real connection through specialists’ nurses, child life teams, Parent to Parent networks, school resources, and quiet referrals that respect privacy and boundaries. We highlight why dads and male caregivers need their own lifelines, and offer simple scripts for reaching out when words are hard. Along the way we trade hard-won “cheat codes” for daily logistics, celebrate tiny wins with rituals that stick, and name the truth: support for you is support for your child, because a steadier parent advocates better.If you’ve felt alone in the maze, we’re here to say you’re capable, you’re equipped, and you don’t have to do this by yourself. Listen for real talk, gentle structure, and the kind of friendship that holds both the fear and the fight. If this conversation resonates, share it with someone who needs a lifeline, subscribe for more, and leave a review to help other families find us. Your people are out there—let’s help you meet them.Time Stamps: 0:00 Welcome & Purpose Of The Show1:40 Why Relationships Change With Medical Kids4:55 Ashlyn And Ashley’s Origin Story10:45 Honest Support Without Overwhelm15:30 Using Social Groups Wisely22:30 Boundaries, Needs, And Safe Friends28:30 The Weight We Carry And Memory Dates35:00 Beyond Social: Finding Real ConnectionsWe kindly ask that you share this podcast with other families who might benefit from our insights and support. Additionally, please take a brief moment to leave a review on your preferred podcast platform, which helps us to reach as many families as possible who are navigating this challenging journey, so they can find our support circle and access the assistance they rightfully deserve. No one should walk this journey alone.To get more personal support, connect with us directly at: https://parentempowermentnetwork.orgFacebook: Parent Empowerment NetworkInstagram: ParentEmpowermentNetworkJoin the Parent Empowerment Network Community of HopeGet your copy of She is Charlotte: A Mother’s Physical, Emotional, and Spiritual Journey with Her Child with Medical Complexities by Emily K Whiting on Amazon 

Send us a text, we want to hear from you!You know your child best. The challenge is proving it in a 15-minute appointment or during morning rounds at the hospital.In this episode, Emily talks with Amy Lamb, creator of My Health Journal, about a simple journaling system that helps caregivers track symptoms, medications, sleep, stress, and daily observations in one organized place.When patterns are documented clearly, doctors can see what you see. That’s how Amy uncovered her mother’s misdiagnosis after years of stalled treatment.This isn’t about perfect record-keeping. It’s about reducing mental load, easing communication with providers, and turning your instincts into usable evidence.If you’re tired of trying to remember everything, second-guessing yourself, or leaving appointments wishing you’d said more, this conversation is for you.As a thank you to our community, Amy is offering Empowered by Hope listeners 20% off their own My Health Journal. If this feels like a tool that could help you stay organized and confident in appointments, the discount details are listed below.About Amy LambAmy Lamb is a Certified Health and Wellness Coach with nearly 30 years of experience in the financial services industry.Her work was shaped by her mother’s serious health crisis. After years of appointments with multiple doctors, conflicting opinions, and treatments that weren’t working, Amy began consistently tracking her mom’s symptoms, medications, nutrition, sleep, and daily changes. Clear patterns emerged — and eventually revealed a misdiagnosis.That experience led her to create My Health Journal, a simple, structured tool designed to help caregivers and patients.Her goal is simple: help people take control of their health story with clarity and confidence.Learn more: https://hereistomyhealth.com/Purchase a journal: https://hereistomyhealth.com/shop-1Discount for Empowered by Hope ListenersUse promo code PEN20 for:20% off your purchase at www.hereistomyhealth.com***Sales tax and shipping apply and are automatically calculated at checkout. Tax and shipping will vary based on location and shipping method selected. No expiration date.We kindly ask that you share this podcast with other families who might benefit from our insights and support. Additionally, please take a brief moment to leave a review on your preferred podcast platform, which helps us to reach as many families as possible who are navigating this challenging journey, so they can find our support circle and access the assistance they rightfully deserve. No one should walk this journey alone.To get more personal support, connect with us directly at: https://parentempowermentnetwork.orgFacebook: Parent Empowerment NetworkInstagram: ParentEmpowermentNetworkJoin the Parent Empowerment Network Community of HopeGet your copy of She is Charlotte: A Mother’s Physical, Emotional, and Spiritual Journey with Her Child with Medical Complexities by Emily K Whiting on Amazon 

Send us a text, we want to hear from you!Some weeks call for a pause.Last week, we were scheduled to release a new episode sharing a valuable resource for medical parents. But with everything that unfolded in our country, it felt important to step back, take a breath, and model what we so often encourage within this community: giving ourselves space and grace when things feel heavy, and allowing time to process before pressing on.So this week, we’re revisiting a conversation from the early days of Empowered by Hope—an episode that has quietly carried many parents through dark nights. We’ll return to our planned new episodes next week.Originally shared in February of 2023, this episode centers on a question that sits in the chest and refuses to leave when a child is hurting: Why does God allow suffering, especially when it involves our children?For many parents, this question emerges through faith language; for others, it rises as a deeper, human longing for meaning, justice, or understanding. However it shows up for you, the weight of it is real. And in moments like the ones we’re living through now—when suffering and injustice feel overwhelming and impossible to make sense of—this question often returns.We don’t try to fix what can’t be fixed with tidy answers. Instead, we tell the truth about fear, anger, guilt, resentment, and the moments we felt abandoned—alongside the moments we were surprised by peace.Together, we name four anchors that actually hold:Rejecting shame and the reflex to blame ourselves for a diagnosisLeaning into a grounding truth many parents find strength in: that our children are deeply loved, and that their pain is not meaninglessAllowing reflection or prayer—raw, repetitive, sometimes wordless—to be exactly what it is, without polishing or performancePracticing acceptance without agreement with suffering, so we can make clear decisions, listen for wisdom, and keep showing up for the child we adoreIf you’ve ever stood in a hospital hallway and wondered how to walk back into a room full of beeps and worry, this episode offers presence over platitudes, honesty over explanations, and space to face the full breadth of your emotions without judgment.Sometimes hope begins not with answers, but with the relief of not holding it all by ourselves.We kindly ask that you share this podcast with other families who might benefit from our insights and support. Additionally, please take a brief moment to leave a review on your preferred podcast platform, which helps us to reach as many families as possible who are navigating this challenging journey, so they can find our support circle and access the assistance they rightfully deserve. No one should walk this journey alone.To get more personal support, connect with us directly at: https://parentempowermentnetwork.orgFacebook: Parent Empowerment NetworkInstagram: ParentEmpowermentNetworkJoin the Parent Empowerment Network Community of HopeGet your copy of She is Charlotte: A Mother’s Physical, Emotional, and Spiritual Journey with Her Child with Medical Complexities by Emily K Whiting on Amazon 

Send us a text, we want to hear from you!January on Empowered by Hope is dedicated to something we talk about often but live out imperfectly: self-care. Or, as we prefer to name it in medical-parent reality, self-preservation — the small, necessary choices that allow us to be the parent advocates we want and need to be.This episode opens with a deeply personal conversation as we honor Emily K. Whiting, our incredible co-founder of Parent Empowerment Network and co-host of Empowered by Hope. Emily shares her decision to pause her formal role with the organization and the podcast in order to focus fully on her family and the ongoing complex medical needs that first inspired both PEN and this podcast.This is not an ending. It’s a season.We name a hard truth with compassion: when hospital days, surgeries, advocacy, and parenting stack up, something has to give. Choosing family does not mean abandoning a mission — sometimes it means protecting it in a different way. Emily’s decision reflects the very values PEN was built on: discernment, courage, faith, and honoring what each season requires.From there, we zoom out to the larger story you helped build. What began as a kitchen-table idea has grown into a global community across 18 countries. We revisit why being diagnosis-agnostic matters, why undiagnosed families must always feel fully included, and how that commitment led to one of our proudest outcomes: connecting Hardikar families worldwide, supporting expanded research cohorts, published guidance, and a first-ever family gathering. It’s one powerful example of what happens when determined moms, loving families, caregivers, and clinicians move together — faster answers, clearer direction, and a quieter kind of hope that lasts.In true Emily & Ashlyn fashion, this episode offers listeners powerful takeaways as we get practical. If “self-care” feels like another impossible task, we rename it self-preservation: being honest with ourselves about what must be prioritized right now and what might need to be paused or tabled for a season. The mission continues with open hands. Expect more empowering and honest conversations with medical parents who truly understand, trusted subject-matter experts and credible voices diving into the topics you’ve asked for, shared resources that make the journey a little lighter, and plenty of love, laughter, and support — the same steady presence this community is built on. We kindly ask that you share this podcast with other families who might benefit from our insights and support. Additionally, please take a brief moment to leave a review on your preferred podcast platform, which helps us to reach as many families as possible who are navigating this challenging journey, so they can find our support circle and access the assistance they rightfully deserve. No one should walk this journey alone.To get more personal support, connect with us directly at: https://parentempowermentnetwork.orgFacebook: Parent Empowerment NetworkInstagram: ParentEmpowermentNetworkJoin the Parent Empowerment Network Community of HopeGet your copy of She is Charlotte: A Mother’s Physical, Emotional, and Spiritual Journey with Her Child with Medical Complexities by Emily K Whiting on Amazon 

Send us a text, we want to hear from you!New year energy can feel fraudulent when you’re parenting through hospital stays, procedures, and constant logistics. We’re trading perfection for something truer: a simple ritual to release what hurts and a short list of keepers that actually help us breathe, love, and carry on. No grand resolutions, no reinvention—just small, honest choices that hold up under real life.We start with a plate-smashing ritual—yes, really—to mark what we’re done carrying: self-depletion, people-pleasing, and the belief that unconditional love demands self-abandonment. Then we move to what stays. Laughter on purpose, curated so it finds us even on hard days. Childlike wonder that turns clouds, stars, and tiny flowers into quick routes back to calm. Ten minutes of morning prayer for alignment when the schedule is anything but predictable. Deep breathing to reset a nervous system trained by years of fight-or-flight. A phone in the “peace and presence” basket so feeding, rocking, and bedtime become connection instead of multitasking. And self-advocacy—asking for what we need from care teams and our circle without apology.Along the way we reframe mistakes with grace. You can name a misstep and still honor your heart. Own it, repair, and try again. That stance—gentle and steady—makes space for gratitude to grow, even in grief. We talk practical tools for caregivers of medically complex kids, from boundary-setting to micro-rest, and how to build a more regulated baseline without pretending life is easy. This is trauma-aware, faith-rooted, and deeply human.If this conversation gave you breath or language for your own reset, follow and share it with another caregiver who needs hope. Subscribe, leave a review, and email us your “leave behind” and “keepers”—we’d love to hear what goes on your plate and what you’ll carry forward.We kindly ask that you share this podcast with other families who might benefit from our insights and support. Additionally, please take a brief moment to leave a review on your preferred podcast platform, which helps us to reach as many families as possible who are navigating this challenging journey, so they can find our support circle and access the assistance they rightfully deserve. No one should walk this journey alone.To get more personal support, connect with us directly at: https://parentempowermentnetwork.orgFacebook: Parent Empowerment NetworkInstagram: ParentEmpowermentNetworkJoin the Parent Empowerment Network Community of HopeGet your copy of She is Charlotte: A Mother’s Physical, Emotional, and Spiritual Journey with Her Child with Medical Complexities by Emily K Whiting on Amazon 

Send us a text, we want to hear from you!This open conversation between co-hosts, Emily & Ashlyn, offers clear language, practical insight, and zero judgment for parents, caregivers, and anyone walking the tightrope of medical advocacy and family life.What changes when the caregiver’s well-being becomes the foundation of the family—not an afterthought squeezed into the margins? We dig into the real-world difference between mental well-being (clear thinking, decision-making, stress management) and emotional well-being (awareness, regulation, expression), and show how both systems work together when you’re navigating complex care, hospital stays, and the relentless logistics of raising a medically complex child.We share a raw, honest arc—from coasting on grit to running on fumes—and the moment a therapist reframed anxiety through the lens of modeling. Kids don’t just hear our words; they absorb our state. When we pause to name feelings, set a 20-minute boundary for a solo walk, or ask for help before we explode, we’re teaching emotional regulation in real time. That’s not selfish; it’s skill transmission that lifts the whole household. You’ll hear why survival mode makes “take care of yourself” feel impossible, how delayed processing can hit when the fires calm, and how grace—not guilt—creates the space to refuel without apology.We connect the dots between caregiver health, fewer blow-ups, better decisions, calmer hospital interactions, and a higher quality of life for every member of the family. We also point you to a companion blog with expanded reasons and resources, plus a preview of our next chapter on the “how” of making change stick in a busy, unpredictable reality.If this resonated, subscribe, share it with a friend who needs it, and leave a quick review to help other caregivers find these tools. Tell us: what’s one small refuel you can commit to this week?We kindly ask that you share this podcast with other families who might benefit from our insights and support. Additionally, please take a brief moment to leave a review on your preferred podcast platform, which helps us to reach as many families as possible who are navigating this challenging journey, so they can find our support circle and access the assistance they rightfully deserve. No one should walk this journey alone.To get more personal support, connect with us directly at: https://parentempowermentnetwork.orgFacebook: Parent Empowerment NetworkInstagram: ParentEmpowermentNetworkJoin the Parent Empowerment Network Community of HopeGet your copy of She is Charlotte: A Mother’s Physical, Emotional, and Spiritual Journey with Her Child with Medical Complexities by Emily K Whiting on Amazon 

Send us a text, we want to hear from you!A powerful new anthem is available for parents walking the complex medical journey with their children. Emily Whiting sits down with singer-songwriter Gina Brooklyn to unveil "Through Every Storm," a song created specifically for the Parent Empowerment Network community that captures the heartache, hope, and profound love that defines raising a medically complex child.The song's journey began over a year ago when Gina, moved by the mission of supporting parents through medical complexity, set out to transform Emily's heartfelt words into music. "Every second, every moment that I get to love you is such a gift," begins the lyrical journey that acknowledges both the privilege and pain of loving a child through medical challenges. What makes this collaboration uniquely powerful is how it balances hopeful realism – neither glossing over struggles nor surrendering to despair.In a surprising twist of providence, shortly after writing this song for others, Gina found herself battling serious health challenges of her own. Following a severe COVID infection, she received diagnoses of POTS, mast cell activation disease, and hereditary alpha tryptasemia – experiences that brought new depth to lyrics like "If it rains or if it pours, His love will carry you through every storm." Gina vulnerably shares this personal journey, revealing how her own medical complexity has deepened her connection to the song's message."Through Every Storm" releases in late August, with 50% of all proceeds directly supporting Parent Empowerment Network's mission. A beautiful music video featuring Charlotte and Emery will follow on YouTube. Whether you're sitting at a NICU bedside, up at 2 AM with a child in pain, or simply needing a reminder that you're not alone, this song offers a musical sanctuary where weary parents can find rest. Download it, share it, and let it carry you through your own storms – while helping us continue supporting families just like yours.Links to view and download "Every Storm": https://lynkify.in/song/through-every-storm/jD2JXqMeYouTube Video: https://www.youtube.com/watch?v=dQ0BRnPv7nMWe kindly ask that you share this podcast with other families who might benefit from our insights and support. Additionally, please take a brief moment to leave a review on your preferred podcast platform, which helps us to reach as many families as possible who are navigating this challenging journey, so they can find our support circle and access the assistance they rightfully deserve. No one should walk this journey alone.To get more personal support, connect with us directly at: https://parentempowermentnetwork.orgFacebook: Parent Empowerment NetworkInstagram: ParentEmpowermentNetworkJoin the Parent Empowerment Network Community of HopeGet your copy of She is Charlotte: A Mother’s Physical, Emotional, and Spiritual Journey with Her Child with Medical Complexities by Emily K Whiting on Amazon 

Send us a text, we want to hear from you!When you’re caring for a medically complex child, you need help—but it’s overwhelming and exhausting to field the constant “Let me know how I can help,” “Just call me if you need anything,” or “What can I do for you?” messages. The decision fatigue for parents in crisis is grueling. We desperately need the help, but our supporters need a clear path that empowers them to actually be helpful.That’s why Ashlyn sat down with Jordan Arogeti, co-founder of Support Now, to share a free support registry every family needs to know about. Most of us are already juggling donation platforms, blogs, group texts, social media pages for updates, and meal train sign-ups… but what if all your needs—meals, childcare, fundraising, prayer requests, volunteer help, and more—could live in one customizable, evolving registry? Hallelujah.Support Now is built to be supporter-led, giving your friends and family a clear path to help. They can see exactly what you need, choose how they want to contribute, and adapt as your family’s needs change—all without adding to your plate. Unlike tools that fizzle out after a few weeks, the registry is designed for sustainable, long-term support during the toughest seasons.This conversation is personal. Ashlyn was introduced to Jordan by PEN Board Member Abby Zachritz (aka Advocacy Abby), Support Now’s Director of Family Advocacy. Together, they’re making it easier to rally your “village” in real life, not just on social media.If you’ve ever felt the weight of being asked “What can I do?” when you’re too exhausted to answer, this episode is for you. Hear why Parent Empowerment Network wants every family to know about this life-changing resource—and how Support Now is transforming the way communities show up for each other.Resources from this episode:https://www.supportnow.org/Jordan's TEDx Talk: https://www.supportnow.org/Support Languages Quiz: https://www.supportlanguages.com/Advocacy Abby: https://www.advocacyabby.comConnect - Database for Medical Expense Grants: https://grants.supportnow.org/We kindly ask that you share this podcast with other families who might benefit from our insights and support. Additionally, please take a brief moment to leave a review on your preferred podcast platform, which helps us to reach as many families as possible who are navigating this challenging journey, so they can find our support circle and access the assistance they rightfully deserve. No one should walk this journey alone.To get more personal support, connect with us directly at: https://parentempowermentnetwork.orgFacebook: Parent Empowerment NetworkInstagram: ParentEmpowermentNetworkJoin the Parent Empowerment Network Community of HopeGet your copy of She is Charlotte: A Mother’s Physical, Emotional, and Spiritual Journey with Her Child with Medical Complexities by Emily K Whiting on Amazon 

Send us a text, we want to hear from you!The journey of caring for a child with rare disease or complex medical needs often leaves parents and caregivers isolated in their experience. While friends and family genuinely want to help, many struggle with knowing how to truly support without overstepping or saying the wrong thing.Amy (Board) Bradford brings her decades of experience working with rare disease communities to share powerful, actionable strategies for supporting caregivers effectively. This conversation goes beyond the typical "let me know if you need anything" platitudes to provide specific ways supporters can take meaningful initiative.The episode reveals three foundational approaches that can transform how we show up for caregivers: first, taking time to learn the specialized medical language of a condition rather than expecting caregivers to constantly educate; second, remembering to ask about the caregiver's emotional experience rather than focusing exclusively on the child's medical journey; and third, creatively adapting environments and activities to be more inclusive without burdening families with all the planning.As Amy shares from her experience running camps for children with bleeding disorders, "We instilled in our staff that this was a week that we would never say no to our children." This philosophy of creative problem-solving and adaptation offers a powerful model for how supporters can reframe their thinking to create more inclusive experiences.Whether you're a friend, family member, or community supporter looking to make a meaningful difference in a caregiver's life, or if you're a caregiver wanting to help your support circle understand how to better show up for you, this episode provides the language and practical steps to strengthen these crucial connections. Send this episode to someone in your support circle today – no explanation needed.About Amy (Board) Bradford: Amy is an accomplished patient engagement leader and global storyteller with the proven ability to build unwavering patient community connections in complex environments. She is the Director of Patient Engagement of Believe Limited, an agency dedicated to the Rare Disease, Health and Wellness, and Patient Connection and Community space.Believe Limited, The Patient People: https://www.believeltd.com/We kindly ask that you share this podcast with other families who might benefit from our insights and support. Additionally, please take a brief moment to leave a review on your preferred podcast platform, which helps us to reach as many families as possible who are navigating this challenging journey, so they can find our support circle and access the assistance they rightfully deserve. No one should walk this journey alone.To get more personal support, connect with us directly at: https://parentempowermentnetwork.orgFacebook: Parent Empowerment NetworkInstagram: ParentEmpowermentNetworkJoin the Parent Empowerment Network Community of HopeGet your copy of She is Charlotte: A Mother’s Physical, Emotional, and Spiritual Journey with Her Child with Medical Complexities by Emily K Whiting on Amazon 

Send us a text, we want to hear from you!Child Life Specialist, Brittany Luther, brings over twenty years of expertise to answer these questions in this emotionally powerful conversation. She explains how children naturally communicate their fears and process trauma through play—whether that's with specialized medical toys from organizations like The Butterfly Pig or simply through creative exploration with everyday items.Brittany introduces two transformative concepts parents can immediately implement: "wonder" and "pause." By creating unhurried space to wonder with your child about their experiences and feelings, you open pathways for them to express themselves in their own time and way. This practice helps children work through medical trauma at their developmental level, restoring their sense of control and agency.The discussion explores age-appropriate preparation strategies for medical procedures—from paper chain countdowns for preschoolers to detailed preparation plans for teenagers. Through the story of young Maren's journey with her stoma care, we see how consistent, honest communication paired with simple distraction techniques gradually transformed a painful daily procedure into a moment of empowerment and connection.Perhaps most touching is the validation for parents who've had to perform painful procedures on their children. The guilt is real, but as Brittany and host Ashley demonstrate, these moments can ultimately strengthen the parent-child bond when approached with honesty, compassion, and support. Seeking help from child life specialists isn't a sign of failure—it's a powerful way to expand your child's circle of support and reclaim the joy of simply being their parent.*After the episode recording, Brittany’s time was spent with a warm cup of tea and “Lemon Swirls” both in the comfort of her beautiful office and in the McGill Rose Garden for her quiet reflection and work to rest her voice!Brittany Luther is a Certified Child Life Specialist with nearly 20 years of experience supporting children and families through medical challenges. With advanced training from Duke, Vanderbilt, and the Children’s Hospital of Philadelphia, she has worked in high-acuity settings including emergency care, oncology, and neurology. Now based in Charlotte, she combines part-time hospital work with her private practice, where she helps children, teens, and families navigate seasons of transition, diagnosis, and grief with compassion and hope.We kindly ask that you share this podcast with other families who might benefit from our insights and support. Additionally, please take a brief moment to leave a review on your preferred podcast platform, which helps us to reach as many families as possible who are navigating this challenging journey, so they can find our support circle and access the assistance they rightfully deserve. No one should walk this journey alone.To get more personal support, connect with us directly at: https://parentempowermentnetwork.orgFacebook: Parent Empowerment NetworkInstagram: ParentEmpowermentNetworkJoin the Parent Empowerment Network Community of HopeGet your copy of She is Charlotte: A Mother’s Physical, Emotional, and Spiritual Journey with Her Child with Medical Complexities by Emily K Whiting on Amazon 

Send us a text, we want to hear from you!MaryJenner, a nurse with a creative heart, founded The Butterfly Pig after writing a children's book about embracing differences—a theme that would become central to her mission of transforming pediatric medical experiences through play. Her company creates realistic medical simulation tools that children can use with their favorite stuffed animals, helping them process everything from IV placements to ostomy care in a safe, empowering environment.The power of these medical toys extends far beyond simple distraction. When children experience procedures as something happening to them, they often feel powerless and afraid. But when they can parallel process by caring for their own "patients," something remarkable happens—they begin to understand, cooperate, and even take pride in their medical journeys. Ashley shares how her daughter went from requiring restraint during stoma care to proudly showing her stoma to friends at school after playing with a doll that had the same equipment.This transformation occurs because children naturally learn through play. By creating approximately 80 different realistic medical devices scaled for toys, The Butterfly Pig taps into children's innate processing mechanisms. Parents and healthcare providers report children who previously couldn't sit still during procedures becoming engaged participants when they have their own medical tools to work with. The benefits extend to siblings too, who develop understanding rather than fear when they can engage with medical equipment through play.What began as a creative project has evolved into a movement that's changing how families experience healthcare. The Butterfly Pig has introduced a Wishful Wings program where supporters can purchase toys for families who need them, creating a community of care around children with medical needs. As Mary explains, each medical experience gives children "a different type of superpower" they can eventually use to help others, transforming challenges into strengths that shape who they become.https://thebutterflypig.com/https://www.instagram.com/TheButterflyPighttps://www.facebook.com/TheButterflyPigWe kindly ask that you share this podcast with other families who might benefit from our insights and support. Additionally, please take a brief moment to leave a review on your preferred podcast platform, which helps us to reach as many families as possible who are navigating this challenging journey, so they can find our support circle and access the assistance they rightfully deserve. No one should walk this journey alone.To get more personal support, connect with us directly at: https://parentempowermentnetwork.orgFacebook: Parent Empowerment NetworkInstagram: ParentEmpowermentNetworkJoin the Parent Empowerment Network Community of HopeGet your copy of She is Charlotte: A Mother’s Physical, Emotional, and Spiritual Journey with Her Child with Medical Complexities by Emily K Whiting on Amazon 

Send us a text, we want to hear from you!How do you hold on to hope when you know your child is dying—and there’s no diagnosis, no cure, and no roadmap forward? Co-hosts, Ashlyn Thompson & Ashley Milbourne are joined by Dr. Tasha Faruqui—award-winning pediatrician, rare disease parent, and now debut author—who invites us into the heart of her story, which inspired her forthcoming memoir: Keep Your Head Up: A Mother’s Story of Chasing Joy in the Face of Grief, releasing September 16, 2025.Dr. Faruqui's second daughter, Soraya, was born with a rare, undiagnosed condition that remains a mystery more than thirteen years later. Though trained in medicine, Tasha found herself unprepared for the emotional and existential weight of parenting a child with a limited life expectancy. What she searched for—but couldn’t find—was guidance through anticipatory grief: the complex, quiet mourning that begins long before loss. So, she wrote the book she needed—one that shines a compassionate and unflinching light on this often-overlooked experience faced by so many families.Keep Your Head Up is not only a memoir—it’s a love letter to parents navigating the unthinkable. With honesty, warmth, and hard-earned wisdom, Dr. Faruqui offers a blueprint for how to keep living, loving, and even laughing in the midst of prolonged uncertainty. Through this conversation, she opens up about how she balances motherhood with medicine, why self-care is not selfish, and how her definition of hope shifted from curing her daughter to cherishing her—one beautiful, present moment at a time.✨ Keep Your Head Up is available September 16, 2025. Pre-orders are available now on Amazon.✨ 100% of proceeds will benefit organizations close to the Faruqui family’s heart.This isn’t just a conversation—it’s a glimpse into the soul of a book that will change the way we think about parenting, medicine, and what it means to keep showing up with love. If you’ve ever faced the unknown, this is the episode—and the story—you didn’t know you needed.Join her Instagram community (@thefaruqui5) for real-time insights, resilience, and inspiration!https://wWe kindly ask that you share this podcast with other families who might benefit from our insights and support. Additionally, please take a brief moment to leave a review on your preferred podcast platform, which helps us to reach as many families as possible who are navigating this challenging journey, so they can find our support circle and access the assistance they rightfully deserve. No one should walk this journey alone.To get more personal support, connect with us directly at: https://parentempowermentnetwork.orgFacebook: Parent Empowerment NetworkInstagram: ParentEmpowermentNetworkJoin the Parent Empowerment Network Community of HopeGet your copy of She is Charlotte: A Mother’s Physical, Emotional, and Spiritual Journey with Her Child with Medical Complexities by Emily K Whiting on Amazon 

Send us a text, we want to hear from you!As parents of children with complex medical needs, our hearts often ache with worry about our other children. Are they getting enough attention? Will they feel less important? Do they resent their sibling's conditions? These questions haunt us during late-night hospital stays and therapy appointments.What we rarely discuss, though, is the remarkable beauty that emerges in these siblings' lives. Through heartwarming stories like seven-year-old Nora proudly telling her class about her sister's rare condition on Rare Disease Day, or Cole developing an extraordinary voice at a young age, we discover the gifts hidden within our challenging journeys.Ashlyn & Ashley share their personal experiences raising both medically complex and typically developing children, revealing how these siblings develop profound empathy, advocacy skills, problem-solving abilities, and perspective far beyond their years. They discuss the importance of taking off what they call the "Sherlock Holmes hat" – that constant problem-solving mode parents develop – so that we parents can simply enjoy our children and create meaningful connections through small moments like car rides or special traditions.Perhaps most striking is the resilience these children show. Despite hospital stays that separate families and the inevitable imbalance of attention, these siblings often demonstrate remarkable forgiveness, adaptability, and joy. They remind us that children have an extraordinary capacity to live in the moment and find happiness within challenging circumstances. This conversation offers hope that while your family's path may look different than imagined, your children are developing unique strengths through challenges most families never face. Your "typical" children aren't just surviving this experience - with your love and attention to their needs, they're thriving in ways that will serve them throughout their lives.Recommended Resources: Supporting the Siblings with Wendy Plant, PhD - Excellent webinar for parents presented by Courageous Parents NetworkCourageous Parents Network: Sibling SupportChild Life on Call: Supporting Siblings: How Child Life Specialists Can HelpWe kindly ask that you share this podcast with other families who might benefit from our insights and support. Additionally, please take a brief moment to leave a review on your preferred podcast platform, which helps us to reach as many families as possible who are navigating this challenging journey, so they can find our support circle and access the assistance they rightfully deserve. No one should walk this journey alone.To get more personal support, connect with us directly at: https://parentempowermentnetwork.orgFacebook: Parent Empowerment NetworkInstagram: ParentEmpowermentNetworkJoin the Parent Empowerment Network Community of HopeGet your copy of She is Charlotte: A Mother’s Physical, Emotional, and Spiritual Journey with Her Child with Medical Complexities by Emily K Whiting on Amazon 

Send us a text, we want to hear from you!Every parent of a medically complex child wonders: Will my child grow up knowing how deeply they are loved? Will they appreciate how hard I fought for them? In this episode, we bring you a powerful answer straight from someone who’s been there.Annelise Frazier, born with a rare and complex medical condition, shares her story of growing up with surgeries, complications, and hospital stays—but more importantly, growing up surrounded by love. She reflects on the biggest gift her parents gave her: they loved her so boldly and advocated so fiercely that she never felt different or defined by her diagnosis. Instead, she felt like a kid—just a kid—who was deeply cherished.For parents in the thick of this journey, this episode is a glimpse into the future—a message of reassurance that your child will remember the love more than the fear, the joy more than the hardships. Annelise’s perspective will remind you that your love and advocacy are not just necessary, but transformative.Join Ashlyn & Ashley for this heartwarming conversation that will uplift and encourage you to keep going, keep loving, and keep believing in the beautiful life ahead for your child. *Spoiler, Annelise has the same condition as Ashlyn & Ashley's daughters!Make sure to subscribe, share your thoughts with us, and connect with our community—we are all in this together!Annelise Frazier is a small town bookstore owner diagnosed with Classic Bladder Exstrophy, Postural Orthostatic Tachycardia Syndrome, Ehlers Danlos Syndrome and Mast Cell Activation. She has been chronically ill since birth, but does not let that define her. She loves reading romance novels, baking allergy friendly treats, spending time with her family and raising her pet cat Fig and rescue Border Collie, Hollie. When not at her bookstore, she and her husband enjoy traveling the country searching for the greatest history museums. Annelise has spoken out for children with disabilities at many conferences and intends on using her background in medical research to provide a safe space for all those struggling with the daily life of medical complexities. Shop & Support Annelise: Pig City BooksBookstore Website: https://www.pigcitybooks.com/Online Bookstore: https://bookshop.org/shop/pigcitybooksOnline Audiobook membership: We kindly ask that you share this podcast with other families who might benefit from our insights and support. Additionally, please take a brief moment to leave a review on your preferred podcast platform, which helps us to reach as many families as possible who are navigating this challenging journey, so they can find our support circle and access the assistance they rightfully deserve. No one should walk this journey alone.To get more personal support, connect with us directly at: https://parentempowermentnetwork.orgFacebook: Parent Empowerment NetworkInstagram: ParentEmpowermentNetworkJoin the Parent Empowerment Network Community of HopeGet your copy of She is Charlotte: A Mother’s Physical, Emotional, and Spiritual Journey with Her Child with Medical Complexities by Emily K Whiting on Amazon 

Send us a text, we want to hear from you!Leah Darrow, renowned public speaker and mindset coach, joins Emily Whiting on the Empowered by Hope podcast to share her inspiring journey from faith-based public speaking to impactful mindset coaching. As mothers with children facing complex medical challenges, Leah and I connect deeply over our shared experiences in balancing personal passions with the demands of family life. Through her programs like Power Made Perfect and Motivated Mompreneur, Leah sheds light on how a Christ-centered approach can empower individuals to thrive and overcome life's obstacles.Leah opens up about the crucial role mindset training played during her time in the NICU, both for herself and her son. Drawing from a decade of personal development and unwavering faith, she demonstrates how mindset practices can become second nature in times of crisis. Mindset Practices:Let go of what you cannot control - write down what you can control and focus on thatYour energy and your words matter - choose words of hopeDo not try to go back to the life you had beforePractice forgiveness and radical mercy, for yourself and othersHer story is a testament to resilience and the transformative power of focusing on what we can control, offering guidance to anyone grappling with intense emotional and physical challenges.This episode emphasizes the strength found in community support, reminding us that by coming together, we can navigate life's challenges with grace and hope. Join us as we encourage each other to extend mercy to ourselves and others, fostering resilience and embracing change to build a brighter future.Leah Darrow is a mindset coach, speaker, and mom of seven who helps women transform their lives through personal growth and faith. As the host of The Leah Darrow Podcast and creator of Power Made Perfect, Leah empowers women to live intentionally and unlock their God-given potential. Connect with her on Instagram @leah.darrow or at leahdarrow.com.We kindly ask that you share this podcast with other families who might benefit from our insights and support. Additionally, please take a brief moment to leave a review on your preferred podcast platform, which helps us to reach as many families as possible who are navigating this challenging journey, so they can find our support circle and access the assistance they rightfully deserve. No one should walk this journey alone.To get more personal support, connect with us directly at: https://parentempowermentnetwork.orgFacebook: Parent Empowerment NetworkInstagram: ParentEmpowermentNetworkJoin the Parent Empowerment Network Community of HopeGet your copy of She is Charlotte: A Mother’s Physical, Emotional, and Spiritual Journey with Her Child with Medical Complexities by Emily K Whiting on Amazon 

Send us a text, we want to hear from you!Join us for an exploration of pediatric feeding challenges as we sit down with Jaclyn Pederson, the dynamic CEO of Feeding Matters. Through Jaclyn's personal journey and professional insights, we uncover the critical, yet often sidelined, issue of pediatric feeding disorders. In a world where validation for these struggles was once elusive, Feeding Matters has championed the recognition of pediatric feeding disorder as a standalone diagnosis, bringing a sense of acknowledgment and relief to countless families.This episode is a treasure trove for parents and caregivers seeking to understand the intricacies of pediatric feeding disorders. We highlight the subtle signs and symptoms that may suggest a feeding issue, and the pivotal role of parental intuition in navigating these challenges. As Jaclyn shares, finding knowledgeable care can be daunting in this emerging field, but she offers encouragement and resources that empower parents to become strong advocates for their children. Feeding Matters equips families with tools to effectively communicate with healthcare providers, ensuring that they are heard and understood.The conversation doesn't stop at identifying the problem. We delve into the empowering work Feeding Matters does to support families, from their comprehensive online resources to the Power of Two coaching program. This episode promises insights and support that can make a significant difference in the lives of children and families touched by feeding disorders.Resources:FeedingMatters.orgFacebookInstagramJaclyn Pederson, MHIA system thinker and positive team builder, she uses transformational leadership principles to develop energized and efficient workgroups that influence significant organizational and systemic change for all affected by pediatric feeding disorder –such as the development of the expanded PFD Alliance. Jaclyn also manages Feeding Matters’ strategic partnerships with numerous professional associations including American Speech-Language-Hearing Association (ASHA), American Society of Parenteral and Enteral Nutrition, and the North American Society for Pediatric Gastroenterology, Hepatology and Nutrition (NASPGHAN).We kindly ask that you share this podcast with other families who might benefit from our insights and support. Additionally, please take a brief moment to leave a review on your preferred podcast platform, which helps us to reach as many families as possible who are navigating this challenging journey, so they can find our support circle and access the assistance they rightfully deserve. No one should walk this journey alone.To get more personal support, connect with us directly at: https://parentempowermentnetwork.orgFacebook: Parent Empowerment NetworkInstagram: ParentEmpowermentNetworkJoin the Parent Empowerment Network Community of HopeGet your copy of She is Charlotte: A Mother’s Physical, Emotional, and Spiritual Journey with Her Child with Medical Complexities by Emily K Whiting on Amazon 

Send us a text, we want to hear from you!Step into the empowering world of healthcare advocacy with us as we welcome the inspiring Melissa Paige, Co-CEO of the Healthcare Advocate Summit. A recognized expert in patient access programs and navigation, Melissa combines her extensive medical knowledge, diverse pharmaceutical expertise, and leadership skills to drive process improvement and redesign workflows that enhance efficiencies in healthcare. Her unwavering passion for the well-being of patients fuels her relentless pursuit of breaking down access barriers and advocating for the highest quality care.In this episode, Melissa shares her extraordinary journey as a patient advocate and entrepreneur, offering unique insights from her career. As an outspoken advocate, licensed pharmacy technician, and educator, Melissa has dedicated her life to making healthcare more accessible and compassionate. She applies the "Know, Think, Feel, Do" strategy to every endeavor, creating remarkable and meaningful experiences for patients, caregivers, and industry professionals alike.Together, we explore the intricate landscape of accessing medication for rare diseases, drawing from Melissa's personal experiences as the eldest sibling of a brother with Duchenne muscular dystrophy. Melissa sheds light on practical strategies for overcoming obstacles in the healthcare system, including the critical role of financial counselors, pharmacy technicians, and advocacy organizations.As a co-host of the Healthcare Advocate Summit, an annual conference For Advocates, By Advocates®, Melissa highlights the importance of collaboration between pharmaceutical companies, advocacy groups, and patients in addressing the unique challenges faced by those with orphan rare diseases. Through engaging discussions, we underscore the power of asking "why not" to push boundaries and inspire persistent advocacy, ensuring no one feels isolated or overwhelmed in their healthcare journey.Join us in this vital conversation that champions hope, compassion, and collaboration in the fight for better healthcare outcomes.Connect with Melissa Paige: LinkedInHealthcare Advocate SummitNational Association of Medication Access & Patient AdvocacyWe kindly ask that you share this podcast with other families who might benefit from our insights and support. Additionally, please take a brief moment to leave a review on your preferred podcast platform, which helps us to reach as many families as possible who are navigating this challenging journey, so they can find our support circle and access the assistance they rightfully deserve. No one should walk this journey alone.To get more personal support, connect with us directly at: https://parentempowermentnetwork.orgFacebook: Parent Empowerment NetworkInstagram: ParentEmpowermentNetworkJoin the Parent Empowerment Network Community of HopeGet your copy of She is Charlotte: A Mother’s Physical, Emotional, and Spiritual Journey with Her Child with Medical Complexities by Emily K Whiting on Amazon 

Send us a text, we want to hear from you!Today's guest is Carleigh Joseph-Olivas, a licensed perinatal social worker, full spectrum doula, maternal mental health therapist, and parenting coach.  Her passion for supporting women and families through the profound transformations of pregnancy, childbirth, and the postpartum period makes her the perfect expert to guide us through today's topic.This two part episode focuses on the emotional journey of pregnancy, delivery,and postpartum, particularly when faced with medical complexities. Emily and Carleigh explore the grief that often arises when childbirth does not go as planned while emphasizing the importance of trusting oneself and fostering community support for parents. Part 1: • Understanding the grief associated with unplanned childbirth experiences • The importance of nurturing mothers alongside their newborns Part 2 (start at 31 minute mark): • Rebuilding trust following negative medical experiences • Techniques for parents to express and process emotions • Encouraging community support and reaching out for help • Reclaiming one's inner voice as a tool for navigating parenting challenges • The role of parents as fierce advocates for their children About Carleigh Jospeh-OlivasAs owner and founder of Nurtured Roots Doula and Family Services, Carleigh has established a practice that answers the question that inspires her work, ‘Everyone wants to hold the baby. Who holds the mother?” Her previous work in providing supportive counseling and connection to resources for parents of children with medical complexities impacts the scope of her dedicated service to families beyond the labor room. With a deep commitment to ‘restoring the village’, Carleigh is determined to build a supportive network that nurtures the well-being of mothers, strengthens family bonds, and fosters a healthy start for infants and children. By addressing the emotional, mental, and social needs of parents, she aims to create a safe and empowering environment where families can thrive together. A future midwife and fierce advocate for maternal health initiatives, Carleigh envisions a world where birthing and parenting is an empowering and deeply connected experience. Through her work, Carleigh is dedicated to educating, supporting, and addressing disparities in maternal care while honoring the emotional and spiritual bonds between mothers and their children.Instagram: NurturedrootshoustonWe kindly ask that you share this podcast with other families who might benefit from our insights and support. Additionally, please take a brief moment to leave a review on your preferred podcast platform, which helps us to reach as many families as possible who are navigating this challenging journey, so they can find our support circle and access the assistance they rightfully deserve. No one should walk this journey alone.To get more personal support, connect with us directly at: https://parentempowermentnetwork.orgFacebook: Parent Empowerment NetworkInstagram: ParentEmpowermentNetworkJoin the Parent Empowerment Network Community of HopeGet your copy of She is Charlotte: A Mother’s Physical, Emotional, and Spiritual Journey with Her Child with Medical Complexities by Emily K Whiting on Amazon 

Send us a text, we want to hear from you!What if a simple bark could bring a little holiday miracle into your life—alerting you to an impending health crisis faster than any device? In this special holiday episode of Empowered by Hope, we’re spreading the spirit of giving and hope as we explore the incredible work of Medical Mutts Service Dogs with Liz Boskovich, Director of Development. Discover how shelter dogs, once overlooked, are transformed into life-saving companions, delivering comfort, safety, and joy to families in need—just in time for the season of miracles.We share the heartwarming story of Patch, a once-lost pup who found his purpose with a young boy named Nick, becoming not only his life-saving companion but also a treasured part of the family’s holiday memories. From detecting seizures to managing PTSD, depression, and diabetes, these remarkable dogs offer life-changing support to individuals facing complex medical needs.Together, we unwrap the details of the application process, costs, and resources like fundraising and grants, ensuring that hope remains accessible to families everywhere. This season reminds us of the power of connection, resilience, and second chances—whether for a shelter dog or a family seeking support.Tune in for a heartwarming message of hope, resilience, and community, and remember: miracles come in all shapes, sizes, and sometimes even with wagging tails. Don’t forget to share your own stories with us as we continue building a supportive community together.Learn more at https://www.medicalmutts.org/Facebook: https://www.facebook.com/MedicalMuttsInstagram: https://www.instagram.com/medicalmuttsservicedogs/TikTok: https://www.tiktok.com/@medicalmutts We kindly ask that you share this podcast with other families who might benefit from our insights and support. Additionally, please take a brief moment to leave a review on your preferred podcast platform, which helps us to reach as many families as possible who are navigating this challenging journey, so they can find our support circle and access the assistance they rightfully deserve. No one should walk this journey alone.To get more personal support, connect with us directly at: https://parentempowermentnetwork.orgFacebook: Parent Empowerment NetworkInstagram: ParentEmpowermentNetworkJoin the Parent Empowerment Network Community of HopeGet your copy of She is Charlotte: A Mother’s Physical, Emotional, and Spiritual Journey with Her Child with Medical Complexities by Emily K Whiting on Amazon 

Send us a text, we want to hear from you!Discover the journey behind the rebranding of our organization to the Parent Empowerment Network, where our mission to uplift caregivers of children with complex medical needs remains steadfast. In this episode, we reveal the thoughtful process of selecting a new name that truly reflects our dedication to supporting those in the parent role. Uncover the significance of our new logo, a beacon of empowerment and hope with sun rays symbolizing new beginnings. We also invite you to explore our freshly launched website, parentempowermentnetwork.org, a hub for connection and community, where you can join us in celebrating this exciting milestone.Emily and Ashlyn share insights on navigating the challenges of parenting during tough times, emphasizing that no caregiver should feel isolated in their journey. They assure you of your capability and readiness to tackle the demanding tasks ahead for your children's well-being. With a warm invitation to subscribe and share your personal experiences, they aim to build a supportive network that thrives on shared wisdom and encouragement. Spread the message to others who might find solace in knowing they're not alone, especially when hope seems distant. Let's walk this path of resilience and solidarity together.We kindly ask that you share this podcast with other families who might benefit from our insights and support. Additionally, please take a brief moment to leave a review on your preferred podcast platform, which helps us to reach as many families as possible who are navigating this challenging journey, so they can find our support circle and access the assistance they rightfully deserve. No one should walk this journey alone.To get more personal support, connect with us directly at: https://parentempowermentnetwork.orgFacebook: Parent Empowerment NetworkInstagram: ParentEmpowermentNetworkJoin the Parent Empowerment Network Community of HopeGet your copy of She is Charlotte: A Mother’s Physical, Emotional, and Spiritual Journey with Her Child with Medical Complexities by Emily K Whiting on Amazon 

Send us a text, we want to hear from you!The ceaseless demands of caregiving could be captured in the powerful metaphor of "death by a thousand paper cuts." Join us as we open up about the raw emotions and daily challenges faced during National Family Caregiver Appreciation Month. Ashlyn and Emily share their deeply personal stories, revealing the overwhelming cycle that comes with managing children’s return to school while juggling relentless caregiving tasks. Even amidst the chaos, there's a shared understanding of the necessity to find calm and peace, and we explore how acknowledging these struggles is crucial in supporting each other.Imagine dealing with a child’s persistent asthma symptoms on top of already complex medical needs. In our heartfelt discussion, we touch on Charlotte's story, shedding light on how such health challenges ripple through family life. The strain of missed school days, the emotional toll on parents, and the constant fear of falling behind are more than minor issues—they’re daily battles. We reflect on how these health issues affect not just the child but every corner of family life, urging both understanding and a positive outlook amidst the stress.Finally, we emphasize the importance of a robust support network, introducing the Parent Empowerment Network as a lifeline for those feeling overwhelmed. This community resource offers a place for parents to connect, share their stories, and find strength among like-minded individuals. We invite listeners to engage with this compassionate community, whether through social media or the foundation’s website, nurturing a space where shared experiences spark empowerment and hope. Join us in this episode as we offer a beacon of support, reminding caregivers everywhere that they are not alone.We kindly ask that you share this podcast with other families who might benefit from our insights and support. Additionally, please take a brief moment to leave a review on your preferred podcast platform, which helps us to reach as many families as possible who are navigating this challenging journey, so they can find our support circle and access the assistance they rightfully deserve. No one should walk this journey alone.To get more personal support, connect with us directly at: https://parentempowermentnetwork.orgFacebook: Parent Empowerment NetworkInstagram: ParentEmpowermentNetworkJoin the Parent Empowerment Network Community of HopeGet your copy of She is Charlotte: A Mother’s Physical, Emotional, and Spiritual Journey with Her Child with Medical Complexities by Emily K Whiting on Amazon 

Send us a text, we want to hear from you!Jamie Olson, publisher of "Uniquely You Magazine," joins us to share her transformative journey from isolation to empowerment. Her story begins with her raising her 12-year-old son with autism, epilepsy, and nonverbal communication, and her relentless quest to find community and resources. Dive into how her involvement with Purposeful Living Inc. not only healed her but also inspired her to create a lifeline for other parents through her magazine.As COVID turned the world upside down, Jamie saw a divine opportunity to launch a special needs magazine, drawing from her experiences and a lack of existing resources. "Uniquely You Magazine" became a beacon of hope for families with special needs children, initially in Indiana and now expanding to Ohio and Michigan. Jamie shares how this free monthly resource connects over 30,000 families with vital information. Hear about the magazine's mission to celebrate the stories and milestones of individuals with disabilities and its powerful community impact.We also explore the profound healing that comes from sharing personal stories, especially for those newly navigating the complex world of medical diagnoses. Jamie emphasizes the necessity of building support circles, offering practical advice and resources like "The Surrender Experiment" by Michael Singer. She passionately underscores the strength found in vulnerability and community connection, encouraging listeners to reach out if they need support. Together, we remind everyone that they are not alone on this journey, reinforcing the power of community, empathy, and shared experiences."At Uniquely You Magazine, we believe in the transformative power of storytelling. Sharing personal experiences not only fosters connection but also empowers individuals and families to navigate their unique journeys with confidence and resilience.Join us in supporting this vital publication and experience the profound impact of sharing your story. Explore our archive of past issues, connect with fellow community members, and discover invaluable resources:"Indiana: https://linktr.ee/uniquelyyouindianaMichigan: https://linktr.ee/uniquelyyoumichiganWe kindly ask that you share this podcast with other families who might benefit from our insights and support. Additionally, please take a brief moment to leave a review on your preferred podcast platform, which helps us to reach as many families as possible who are navigating this challenging journey, so they can find our support circle and access the assistance they rightfully deserve. No one should walk this journey alone.To get more personal support, connect with us directly at: https://parentempowermentnetwork.orgFacebook: Parent Empowerment NetworkInstagram: ParentEmpowermentNetworkJoin the Parent Empowerment Network Community of HopeGet your copy of She is Charlotte: A Mother’s Physical, Emotional, and Spiritual Journey with Her Child with Medical Complexities by Emily K Whiting on Amazon 

Send us a text, we want to hear from you!We're thrilled to spotlight Gabie Benson, owner and founder of Sprout Fundraising, our insightful fundraising and leadership coach, who has been pivotal in elevating our nonprofit endeavors with her expert guidance and empathetic approach.Have you considered starting a nonprofit in honor of your journey with your child's medical challenges? If so, you aren't alone and that's why we invited Gabie to speak to you today. With over 20 years of nonprofit fundraising experience, she shares a passion for empowering nonprofit founders, especially those who feel like underdogs. Gabie and Ashlyn share personal stories, from the challenges faced with our children's medical needs to the societal complexities of parenting, resonate deeply with the struggles of many parents. Through empathy and shared experiences, we celebrate the resilience and grace required to thrive in these roles, all while exploring the unexpected joys of helping others achieve their missions.For those contemplating launching a nonprofit, this episode offers a wealth of knowledge to guide you through the essential steps. From researching community needs and establishing a strong board to crafting a clear mission and vision, we lay out the groundwork for creating a successful organization. We delve into the emotional complexities of fundraising, emphasizing the importance of community support and resilience. With insights from Gabie Benson, we aim to inspire and equip you with the tools needed to embark on your own nonprofit journey, fostering a network of support and hope along the way.Connect with Gabie:https://www.sproutfundraising.comLinkedInCalendlyInstagramWe kindly ask that you share this podcast with other families who might benefit from our insights and support. Additionally, please take a brief moment to leave a review on your preferred podcast platform, which helps us to reach as many families as possible who are navigating this challenging journey, so they can find our support circle and access the assistance they rightfully deserve. No one should walk this journey alone.To get more personal support, connect with us directly at: https://parentempowermentnetwork.orgFacebook: Parent Empowerment NetworkInstagram: ParentEmpowermentNetworkJoin the Parent Empowerment Network Community of HopeGet your copy of She is Charlotte: A Mother’s Physical, Emotional, and Spiritual Journey with Her Child with Medical Complexities by Emily K Whiting on Amazon 

Send us a text, we want to hear from you!"What did I do wrong?" "How did I cause this?""Is this my fault?"Some form of this question is the first thing to cross the mind of almost every single parent at what we refer to as "the moment of impact" - the moment a parent learns their child is not ok and requires medical intervention.Take a trip back with us to our original episode of Empowered by Hope as we share our emotional journeys through parenting children with complex medical needs, focusing on the ever-present shadow of guilt. Ashlyn opens up about the life-altering decision to venture into medical tourism, seeking a transformative surgery for her daughter Emery in London. Meanwhile, Emily reflects on her tireless efforts to provide the best care for her daughter Charlotte, navigating a labyrinth of specialists and daily challenges. Together, we explore the heartache and resilience that come with these struggles, offering our insights and support to those walking a similar path.Unravel the heavy emotions that accompany a challenging diagnosis as we dissect the guilt that often haunts parents of children with medical complexities, no matter the diagnosis or severity. Through candid discussions, we emphasize that such feelings are not a reflection of parental inadequacy but rather a natural part of the journey. We tackle the difficult reality of balancing heart-wrenching medical decisions with the love for our children, and how guilt can blur the truth of our devotion. By sharing our personal experiences, we aim to provide clarity and reduce self-judgment, allowing parents to navigate their path with more confidence and self-compassion.Community and connection are lifelines in these challenging times, and we emphasize their importance by encouraging open communication and shared stories. We discuss practical strategies for managing guilt and finding hope, such as writing letters to oneself or seeking solace in spiritual beliefs. Our goal is to create a welcoming space where listeners feel seen and understood, reinforcing that no one is alone in their journey. We invite you to connect with us, share your stories, and spread the support to others who might benefit from these heartfelt conversations.And please, remember, your child's diagnosis is NOT your fault. We kindly ask that you share this podcast with other families who might benefit from our insights and support. Additionally, please take a brief moment to leave a review on your preferred podcast platform, which helps us to reach as many families as possible who are navigating this challenging journey, so they can find our support circle and access the assistance they rightfully deserve. No one should walk this journey alone.To get more personal support, connect with us directly at: https://parentempowermentnetwork.orgFacebook: Parent Empowerment NetworkInstagram: ParentEmpowermentNetworkJoin the Parent Empowerment Network Community of HopeGet your copy of She is Charlotte: A Mother’s Physical, Emotional, and Spiritual Journey with Her Child with Medical Complexities by Emily K Whiting on Amazon 

Send us a text, we want to hear from you!Finding it hard to imagine your child transforming their fear of medical appointments into proud moments of bravery? This episode of Empowered by Hope illuminates that journey through the inspiring story of Charlotte, Emily’s daughter, who recently earned a bravery award for her courage. Navigating the complexities of medical procedures with your child is never easy, but preparation and self-care can make a world of difference. Ashlyn opens up about her own experiences with Emery, sharing pivotal moments that taught her the importance of being a calming presence. From the significance of clear communication with healthcare providers to the simple yet profound act of staying in the room during traumatic procedures, discover strategies that can help alleviate both your child's and your own anxiety during these challenging times.Empowering children in medical settings is crucial, and proactive steps such as creating a "poke plan" can turn anxiety into confidence. Learn how involving child life specialists and practicing at home can transform a child’s experience, as illustrated by Ashlyn who made ultrasounds enjoyable for Emery, by incorporating her love for animals and superheroes. Celebrate the small victories and the strength that comes from supportive connections, and remember, you are not alone on this journey. Subscribe for more insights and share your own stories to help sustain this empowering community.We kindly ask that you share this podcast with other families who might benefit from our insights and support. Additionally, please take a brief moment to leave a review on your preferred podcast platform, which helps us to reach as many families as possible who are navigating this challenging journey, so they can find our support circle and access the assistance they rightfully deserve. No one should walk this journey alone.To get more personal support, connect with us directly at: https://parentempowermentnetwork.orgFacebook: Parent Empowerment NetworkInstagram: ParentEmpowermentNetworkJoin the Parent Empowerment Network Community of HopeGet your copy of She is Charlotte: A Mother’s Physical, Emotional, and Spiritual Journey with Her Child with Medical Complexities by Emily K Whiting on Amazon 

Send us a text, we want to hear from you!Receiving a life-altering diagnosis for your child reshapes everything. In this episode, Emily shares the emotional journey of discovering Charlotte’s rare condition—Hardikar Syndrome, a diagnosis with only nine documented cases worldwide at the time. We reflect on those heart-wrenching days and how hope and support helped Emily & Dan navigate the unknown. A key figure in our story is Dr. Alanna Strong, whose expertise and care have been invaluable.We explore how using #hardikar on social media led us to a global network of 21 families affected by Hardikar Syndrome. What began as a few online connections has grown into a strong community. Together, we’ve deepened our understanding of the syndrome and doubled the patient population for research initiatives led by Dr. Strong. This episode highlights the power of genetic research and community-driven support.Navigating a rare medical condition can be isolating, but it also brings moments of hope. We discuss how a diagnosis provides clarity, connection, and access to essential resources. No family should face this journey alone, and we invite listeners to share their stories and connect with us. Together, we can find strength in unity and spread a message of hope and resilience for families facing rare medical challenges.Hardikar Resources:1. "Charlotte has a Diagnosis!"2.  "Novel Insights into the Phenotypic Spectrum and Pathogenesis of Hardikar Syndrome" 3. Contact Dr. Alanna Strong 4. Private Hardikar Syndrome Support Group - click here to join this group if you are the parent of a child with Hardikar or you have Hardikar5. Get your copy of She is Charlotte: A Mother’s Physical, Emotional, and Spiritual Journey with Her Child with Medical Complexities by Emily K Whiting on Amazon We kindly ask that you share this podcast with other families who might benefit from our insights and support. Additionally, please take a brief moment to leave a review on your preferred podcast platform, which helps us to reach as many families as possible who are navigating this challenging journey, so they can find our support circle and access the assistance they rightfully deserve. No one should walk this journey alone.To get more personal support, connect with us directly at: https://parentempowermentnetwork.orgFacebook: Parent Empowerment NetworkInstagram: ParentEmpowermentNetworkJoin the Parent Empowerment Network Community of HopeGet your copy of She is Charlotte: A Mother’s Physical, Emotional, and Spiritual Journey with Her Child with Medical Complexities by Emily K Whiting on Amazon 

Send us a text, we want to hear from you!Imagine discovering that the best medical treatment for your child's rare condition is halfway across the globe. Join us, Ashlyn and Emily, as we recount the incredible journey of Ashlyn's daughter, Emery, who was born with bladder exstrophy. Ashlyn's advocacy journey for Emery led them to a life-changing procedure at Great Ormond Street Hospital in the UK, making Emery the first American to undergo the 20+ year old surgery. This episode of Empowered by Hope underscores the importance of global medical options and the pivotal role of empowered parenting and relentless advocacy in finding the best care for our children.We detail our efforts to bring the revolutionary Kelly Continence procedure to the US, highlighting Charlotte's Hope collaboration with top surgeons Dr. Imran Mushtaq from London, Dr. Marc LeClair from France, and Dr. PJ Lopez at Rainbow Babies and Children's Hospital in Cleveland, Ohio. Learn about the collective quest to make this life-changing surgery accessible to more families, sparing them the daunting task of traveling abroad. We share highlights from a recent webinar where parents engaged with these world-leading experts, showcasing the power of advocacy in expanding medical horizons.Navigating the journey of advocating for your child can be overwhelming, but you're not alone. We provide practical advice on trusting your instincts, seeking multiple opinions, and staying informed about new treatments. Our episode emphasizes the strength found in unity and the importance of connecting with others for support. We invite you to subscribe, share your personal journeys, and remember that even on the toughest days, you are doing an exceptional job. Share your story with us at [email protected] and join our community of empowered parents.Additional Episode Resources:Link to Bladder Exstrophy-Kelly Continence Procedure Webinar: https://www.uhhospitals.org/health-talks/articles/2024/09/care-for-children-with-bladder-exstrophyWe kindly ask that you share this podcast with other families who might benefit from our insights and support. Additionally, please take a brief moment to leave a review on your preferred podcast platform, which helps us to reach as many families as possible who are navigating this challenging journey, so they can find our support circle and access the assistance they rightfully deserve. No one should walk this journey alone.To get more personal support, connect with us directly at: https://parentempowermentnetwork.orgFacebook: Parent Empowerment NetworkInstagram: ParentEmpowermentNetworkJoin the Parent Empowerment Network Community of HopeGet your copy of She is Charlotte: A Mother’s Physical, Emotional, and Spiritual Journey with Her Child with Medical Complexities by Emily K Whiting on Amazon 

Send us a text, we want to hear from you!Imagine facing the overwhelming task of preparing your child with complex medical needs for school. Emily knows this journey all too well with her daughter Charlotte, and in this heartfelt episode of Empowered by Hope, she shares her invaluable experiences. From dealing with feeding tubes and medications to navigating physical limitations, Emily and Ashlyn provide practical strategies and compassionate insights to help you become a confident advocate for your child within the school system. Learn how to tailor educational experiences that allow your child to grow, develop, and genuinely enjoy their learning journey despite the challenges they face.We also discuss the critical role of parental advocacy, offering three essential tips that can make a world of difference. Find out how to secure an intervention specialist, leverage the power of parent support groups, and trust your instincts to ensure your child's needs are met effectively. Emily's firsthand advice underscores the importance of speaking up and recognizing that each child's school journey is unique—it's perfectly okay for their path to look different from others. Join us for this supportive and empowering conversation, and don't forget to subscribe, share your stories, and spread the word to those who might benefit from this invaluable guidance.We kindly ask that you share this podcast with other families who might benefit from our insights and support. Additionally, please take a brief moment to leave a review on your preferred podcast platform, which helps us to reach as many families as possible who are navigating this challenging journey, so they can find our support circle and access the assistance they rightfully deserve. No one should walk this journey alone.To get more personal support, connect with us directly at: https://parentempowermentnetwork.orgFacebook: Parent Empowerment NetworkInstagram: ParentEmpowermentNetworkJoin the Parent Empowerment Network Community of HopeGet your copy of She is Charlotte: A Mother’s Physical, Emotional, and Spiritual Journey with Her Child with Medical Complexities by Emily K Whiting on Amazon 

Send us a text, we want to hear from you!Imagine the fear gripping you as you hear your child’s complex medical diagnosis for the first time. It’s a fear Ashlyn Thompson and Emily Whiting deeply understand and tackle head-on in this episode of Empowered by Hope. Join us as we explore ways to transform that paralyzing fear into a wellspring of courage and hope. From acknowledging the terror of the unknown to verbalizing your fears and reducing their grip, we share strategies to help parents advocate fiercely for their children while navigating their unique journeys with resilience.We delve into the intersection of fear and faith, underlining the importance of accepting fear as a part of life and taking actionable steps to manage it. Highlighting the value of mental health support, whether through therapy or medication, we emphasize that seeking help is a sign of strength, not weakness. Ashlyn’s personal story about Emory’s pre-op preparation shines a light on finding courage amid overwhelming dread. Remember, you are not alone in this journey—our community is here to offer comfort, support, and hope every step of the way. Subscribe, share your stories, and connect with us to find the strength and solidarity you need.We kindly ask that you share this podcast with other families who might benefit from our insights and support. Additionally, please take a brief moment to leave a review on your preferred podcast platform, which helps us to reach as many families as possible who are navigating this challenging journey, so they can find our support circle and access the assistance they rightfully deserve. No one should walk this journey alone.To get more personal support, connect with us directly at: https://parentempowermentnetwork.orgFacebook: Parent Empowerment NetworkInstagram: ParentEmpowermentNetworkJoin the Parent Empowerment Network Community of HopeGet your copy of She is Charlotte: A Mother’s Physical, Emotional, and Spiritual Journey with Her Child with Medical Complexities by Emily K Whiting on Amazon 

Send us a text, we want to hear from you!Imagine creating an eight-page care document for your in-laws just to ensure your child's complex medical needs are met. That's the reality many parents face, and it's exactly the kind of challenge we're tackling in this episode of Empowered by Hope. Emily, our go-to for all things organization, shares her tried-and-true methods for turning chaos into clarity. We explore the delicate balancing act required to manage medical appointments, household chores, and personal relationships, all while keeping your sanity intact.When everything feels like it's on fire, how do you decide what to handle first? We discuss the art of prioritizing urgent tasks, emphasizing the importance of slowing down to be more effective. Emily and I delve into the emotional toll of caregiving and why giving yourself grace can be a lifesaver. From differentiating between emergent and non-emergent tasks to accepting and asking for help, we share personal anecdotes and practical strategies to help you keep your head above water.Finally, we discuss the tools that help us stay organized even with ADHD. A simple notepad from Ashlyn's mom, listing the top three daily priorities, has been a game-changer. We talk about setting realistic goals, managing external pressures, and the pitfalls of procrastination. By the end of the episode, you'll feel empowered and reminded that you're not alone on this journey. Join our community, share your experiences, and together, let's find strength and support in one another.We kindly ask that you share this podcast with other families who might benefit from our insights and support. Additionally, please take a brief moment to leave a review on your preferred podcast platform, which helps us to reach as many families as possible who are navigating this challenging journey, so they can find our support circle and access the assistance they rightfully deserve. No one should walk this journey alone.To get more personal support, connect with us directly at: https://parentempowermentnetwork.orgFacebook: Parent Empowerment NetworkInstagram: ParentEmpowermentNetworkJoin the Parent Empowerment Network Community of HopeGet your copy of She is Charlotte: A Mother’s Physical, Emotional, and Spiritual Journey with Her Child with Medical Complexities by Emily K Whiting on Amazon 

Send us a text, we want to hear from you!Discover the transformative power of living in the moment as we navigate the intricate world of parenting children with complex medical needs. You'll hear Ashlyn's heartfelt account of her daughter Emery's remarkable journey through a tough post-surgery recovery in England. Emery's amazing ability to bounce back from pain to joy teaches us valuable lessons about mindfulness, and we'll discuss how children naturally embrace this state of being and how, unfortunately, adults can often disrupt this instinct.We'll take you on a family beach trip where medical challenges, like Charlotte's recent surgery and high risk for UTIs, initially threatened to overshadow the fun. Learn how meticulous planning, effective communication, and creating a supportive team environment can turn potentially stressful situations into memorable and joyful experiences. This discussion is packed with practical advice for balancing medical concerns and family enjoyment, helping you to acknowledge fears while staying present in the moment.Finally, we'll share actionable strategies for integrating mindfulness into your daily routine to enhance well-being. From starting your day without reaching for your phone to short YouTube meditations, deep breathing exercises, and grounding techniques, these tips are designed to keep you centered despite life's chaos. We also delve into personal self-care practices, like favorite meditation techniques and sensory experiences, to foster calm and joy. Join our community of support and share your stories with us at [email protected] kindly ask that you share this podcast with other families who might benefit from our insights and support. Additionally, please take a brief moment to leave a review on your preferred podcast platform, which helps us to reach as many families as possible who are navigating this challenging journey, so they can find our support circle and access the assistance they rightfully deserve. No one should walk this journey alone.To get more personal support, connect with us directly at: https://parentempowermentnetwork.orgFacebook: Parent Empowerment NetworkInstagram: ParentEmpowermentNetworkJoin the Parent Empowerment Network Community of HopeGet your copy of She is Charlotte: A Mother’s Physical, Emotional, and Spiritual Journey with Her Child with Medical Complexities by Emily K Whiting on Amazon 

Send us a text, we want to hear from you!Discover the transformative power of understanding trauma with the expertly insightful Sarah Curry, communication manager for Cincinnati's Ronald McDonald House and a certified trauma and resilience specialist. Sarah guides us through the complexities of trauma, particularly as it relates to caregiving for children with complex medical needs. Through her invaluable expertise, we explore how recognizing and comprehending trauma can shift our approach, allowing us to ask more compassionate questions like "what happened to you?" instead of "what's wrong with you?"We delve into the science behind trauma, examining how it affects the brain and behavior. Sarah breaks down the physiological changes that occur during traumatic experiences and the importance of establishing safety and trust. By understanding these mechanisms, caregivers can better manage their own responses and support those they care for. Practical strategies and personal anecdotes highlight the necessity of trauma-informed care, ensuring that even in high-stress situations, we can foster resilience and a sense of control.Empathy, support, and self-care emerge as crucial themes throughout our conversation. Sarah emphasizes the significance of maintaining boundaries and preventing burnout for caregivers, while also providing tools to help trauma survivors feel understood. Listen as we unravel the concept of the "window of tolerance," and share actionable advice to navigate trauma awareness and recovery. By being trauma-informed, we not only support those in need but also reinforce our own well-being and strength in this shared journey. Subscribe and share your story with us as we continue to support each other.We kindly ask that you share this podcast with other families who might benefit from our insights and support. Additionally, please take a brief moment to leave a review on your preferred podcast platform, which helps us to reach as many families as possible who are navigating this challenging journey, so they can find our support circle and access the assistance they rightfully deserve. No one should walk this journey alone.To get more personal support, connect with us directly at: https://parentempowermentnetwork.orgFacebook: Parent Empowerment NetworkInstagram: ParentEmpowermentNetworkJoin the Parent Empowerment Network Community of HopeGet your copy of She is Charlotte: A Mother’s Physical, Emotional, and Spiritual Journey with Her Child with Medical Complexities by Emily K Whiting on Amazon 

Send us a text, we want to hear from you!How do you navigate the daily challenges of your child's post-surgery recovery when the experts can only provide clinical advice? Join us on Empowered by Hope as Emily and Ashlyn share their heartfelt journeys, illustrating the real-world struggles and triumphs of managing a child's medical condition, side effects and challenging realities after surgery. Regardless of the surgery type, we promise you’ll come away with practical strategies and clarity on who and where to get the help your child needs. You'll hear firsthand how other parents have built strong support circles and found the right professionals to guide them through different aspects of care.Have you ever felt unsure about making critical decisions for your child’s health? We get it. Trusting your inner voice can be daunting, but as caregivers, we know our children best. In this episode, we underscore the power of intuition and being well-informed, helping you to confidently navigate your role as an advocate. We conclude with a powerful reminder of the collective strength and resilience within our community, encouraging you to share your stories and connect with others who understand. Tune in, be inspired, and remember: you are never alone on this journey.We kindly ask that you share this podcast with other families who might benefit from our insights and support. Additionally, please take a brief moment to leave a review on your preferred podcast platform, which helps us to reach as many families as possible who are navigating this challenging journey, so they can find our support circle and access the assistance they rightfully deserve. No one should walk this journey alone.To get more personal support, connect with us directly at: https://parentempowermentnetwork.orgFacebook: Parent Empowerment NetworkInstagram: ParentEmpowermentNetworkJoin the Parent Empowerment Network Community of HopeGet your copy of She is Charlotte: A Mother’s Physical, Emotional, and Spiritual Journey with Her Child with Medical Complexities by Emily K Whiting on Amazon 

Send us a text, we want to hear from you!Ever wish you had a quick, powerful resource to tackle your biggest pediatric caregiving challenges? We promise to make every minute count as we unveil our refreshed, streamlined podcast format designed just for you! Join Ashlyn Thompson and Emily Whiting as they return to Empowered by Hope, eager to share how our bite-sized, focused episodes will bring you clear, actionable advice on topics that matter most to caregivers. Whether you're navigating complex medical needs or seeking ways to be heard by healthcare professionals, our concise episodes will provide the support and solutions you need without taking up your precious time.In this episode, we also reflect on our successful gala and look forward to the exciting future of Charlotte's Hope Foundation. We also discuss how we plan to foster more interaction with our listeners, making it easier for you to share your pressing questions and concerns. Our goal is to create a community where caregivers feel seen, heard, and supported every step of the way. Tune in to learn how our new format will offer you the targeted, efficient, and effective support you've been looking for!We kindly ask that you share this podcast with other families who might benefit from our insights and support. Additionally, please take a brief moment to leave a review on your preferred podcast platform, which helps us to reach as many families as possible who are navigating this challenging journey, so they can find our support circle and access the assistance they rightfully deserve. No one should walk this journey alone.To get more personal support, connect with us directly at: https://parentempowermentnetwork.orgFacebook: Parent Empowerment NetworkInstagram: ParentEmpowermentNetworkJoin the Parent Empowerment Network Community of HopeGet your copy of She is Charlotte: A Mother’s Physical, Emotional, and Spiritual Journey with Her Child with Medical Complexities by Emily K Whiting on Amazon 

Send us a text, we want to hear from you!Embark on a journey of hope and celebration with us, as Emily Whiting and Ashlyn Thompson unveil the grandeur of the upcoming Celebration of Hope Gala. This episode of Empowered by Hope is about painting the town with the vibrancy of giving, where every dance step taken and every bid placed at the auction is a stride toward empowering families with children facing complex medical needs. Get ready to don your Derby hats and raise your mint juleps to the cause that binds us in unity and resilience, echoing the stories of those who've found strength in the embrace of our community.It’s not just a gala; it’s a beacon of light for many, akin to the guiding mission of Charlotte's Hope Foundation, explored in detail through our heartfelt conversation. Feel the anticipation build for an evening suffused with the spirit of philanthropy, featuring live music that stirs the soul and heartfelt narratives that remind us why we gather. Whether gracing us with your presence or championing the cause from afar by joining our silent auction, your support carves pathways of hope for countless families. And when the curtain rises on this special night in Wooster, Ohio, remember the power of community and the shared promise that none of us walks this path alone.Get your tickets or donate early if you can't attend: https://go.rallyup.com/celebrationofhope/Campaign/DetailsWe kindly ask that you share this podcast with other families who might benefit from our insights and support. Additionally, please take a brief moment to leave a review on your preferred podcast platform, which helps us to reach as many families as possible who are navigating this challenging journey, so they can find our support circle and access the assistance they rightfully deserve. No one should walk this journey alone.To get more personal support, connect with us directly at: https://parentempowermentnetwork.orgFacebook: Parent Empowerment NetworkInstagram: ParentEmpowermentNetworkJoin the Parent Empowerment Network Community of HopeGet your copy of She is Charlotte: A Mother’s Physical, Emotional, and Spiritual Journey with Her Child with Medical Complexities by Emily K Whiting on Amazon 

Send us a text, we want to hear from you!"Feeling lost in the maze of funding options for your child's needs? My proven system can help. I'll guide you through a clear, step-by-step process to identify grants and foundations that match your child's needs. Stop wasting time on dead-end searches. Gain the confidence to secure the financial support your child deserves, and free up your time to focus on what matters most."  -Abby Zacharitz, Empowered by Hope Podcast Guest Abby Zacharitz, joins us to share her heart-wrenching yet inspiring journey of hope and advocacy in today's episode of Empowered by Hope. From the depths of a near-drowning incident with her toddler son, Advocacy Abby emerged as a force of support for all parents facing the complexities of raising children with medical needs. She offers a system to help families find financial backing and emotional solace without the exhaustive searches that steal precious time.Hope can often be the strongest medicine, a theme powerfully woven through our conversation as we traverse the paths of families relentlessly pursuing treatments like hyperbaric oxygen and stem cells for their children. These aren't just treatments; they're lifelines, often unreachable through the net of traditional insurance. We spotlight the shared strength and ingenious resourcefulness of Abby's community, parents uniting under the banner of Relentless Hope to share breakthroughs across diverse diagnoses. Finally, Abby offers a beacon of guidance for parents navigating the treacherous waters of healthcare costs, and caregiving support. Her comprehensive grant coaching course delivers the tools and knowledge to secure crucial support, moving beyond the noise to address practical needs like insurance nuances and finding custom grants. It's about teaching families to fish in the vast sea of resources, empowering them with independence and clarity. We wrap up by reinforcing our commitment to the mission of Charlotte's Hope Foundation, inviting our listeners to engage, subscribe, and draw strength from stories that cement our belief in unity and the power of a community that faces challenges together, for our children.Be sure to get on the waitlist for her exciting live digital course that will be packed with tools, guides, and realistic implementation steps to help your family break through limitations that stand in the way of getting your child what they need:Advocacy AbbyUnlocking Financial Resources: Step-by-We kindly ask that you share this podcast with other families who might benefit from our insights and support. Additionally, please take a brief moment to leave a review on your preferred podcast platform, which helps us to reach as many families as possible who are navigating this challenging journey, so they can find our support circle and access the assistance they rightfully deserve. No one should walk this journey alone.To get more personal support, connect with us directly at: https://parentempowermentnetwork.orgFacebook: Parent Empowerment NetworkInstagram: ParentEmpowermentNetworkJoin the Parent Empowerment Network Community of HopeGet your copy of She is Charlotte: A Mother’s Physical, Emotional, and Spiritual Journey with Her Child with Medical Complexities by Emily K Whiting on Amazon 

Send us a text, we want to hear from you!Imagine being 21 years old, newly married, in the middle of dental school and excited to start a family, then finding yourself in the NICU with your newborn for four months, completely unexpected. When life presented Leah Crum with the surprise of raising a daughter with extremely rare medical needs, she embraced it with resilience and hope. On our podcast, Leah shares her uplifting journey, revealing how she transformed her worldview to celebrate her daughter Camilla's unique milestones, rather than conform to societal expectations. Her story isn't just one of parenting through adversity but a lesson in treating oneself with the same kindness we would offer the little ones we fiercely protect.This episode is a tapestry of real emotions, strategies, and coping mechanisms that speak to any parent facing their own set of challenges. Leah's narrative takes us from the disarming moments of Camilla's early medical battles to finding joy in the everyday nuances of family life that redefine 'normal.' Her insights shed light on the power of initiating open conversations and finding strength in community support, proving that isolation can be conquered with a proactive stance and a compassionate heart.As we wrap up our heartfelt discussion, Leah & Ashlyn leave us with valuable takeaways on personal growth, childhood nostalgia, and the creative outlets that help manage anxiety—be it walking the dog or crafting bead bracelets. Her vibrant spirit is a reminder to listen to our needs and find solace in the things that bring us simple pleasures. Join us for this powerful conversation, where we celebrate the courage it takes to face the hard things and do so together, for the sake of the children we love.Please consider leaving a review if this episode resinated with you and sharing it with others so they too can feel supported and encouraged by the incredible courage and enthusiasm for life Leah shares with us. Follow Leah Crum:Instagram: https://www.instagram.com/leahcrum_/Join us at the Celebration of Hope Gala: a Derby Affair on May 4th in Wooster, OH as we gather to celebrate the undeniable impact of hope and band together to carve a better path forward for families who find themselves on the journey of rising a child with medical challenges. Tickets available now—secure your spot today! Space is limited, and we want you We kindly ask that you share this podcast with other families who might benefit from our insights and support. Additionally, please take a brief moment to leave a review on your preferred podcast platform, which helps us to reach as many families as possible who are navigating this challenging journey, so they can find our support circle and access the assistance they rightfully deserve. No one should walk this journey alone.To get more personal support, connect with us directly at: https://parentempowermentnetwork.orgFacebook: Parent Empowerment NetworkInstagram: ParentEmpowermentNetworkJoin the Parent Empowerment Network Community of HopeGet your copy of She is Charlotte: A Mother’s Physical, Emotional, and Spiritual Journey with Her Child with Medical Complexities by Emily K Whiting on Amazon 

Send us a text, we want to hear from you!Kristy Cook, the heart behind Accessible Adventures, dedicated wife and mother of four, joins us to share her family's story, illuminating the joy and beauty found in life's unexpected paths. Embracing each day with a philosophy of "I'm glad I tried it" over "I wish I had," Kristy's narrative is a beacon of positivity for parents who have yet to step outside society's assumptions of life raising a child with special needs. Take a seat at our "campfire conversation", where Kristy recounts adventures that have not only united her family but also provided healing and personal growth. From wheelchair-accessible escapades to the creation of an online community that offers a lifeline of information and support, Accessible Adventures is her family's answer to the scarcity of resources they once faced. With tales of their scenic travels and the impact on their family dynamics, listeners will discover just how transformative new environments and experiences can be for everyone involved.Navigating the emotional currents of quality-of-life decisions, Kristy offers insights into the challenges and triumphs they've faced with their son Robbie's medical treatments. She opens a window into the careful balance between preserving a child's spirit and the efficacy of medical interventions, showing how trusting parental instincts can lead to moments of pure joy. As we wrap up, we're reminded of the importance of supporting each other—just as Kristy and her husband, TJ, have done through their journey. Listen in and be inspired by the strength of a family focused on living a full life, no matter the odds.Accessible Adventures: https://accessibleadventures.net/index.html#/Instagram: https://www.instagram.com/accessible.adventures/?hl=enAccessible Adventures LinkTree: https://linktr.ee/Accessible.adventuresWe kindly ask that you share this podcast with other families who might benefit from our insights and support. Additionally, please take a brief moment to leave a review on your preferred podcast platform, which helps us to reach as many families as possible who are navigating this challenging journey, so they can find our support circle and access the assistance they rightfully deserve. No one should walk this journey alone.To get more personal support, connect with us directly at: https://parentempowermentnetwork.orgFacebook: Parent Empowerment NetworkInstagram: ParentEmpowermentNetworkJoin the Parent Empowerment Network Community of HopeGet your copy of She is Charlotte: A Mother’s Physical, Emotional, and Spiritual Journey with Her Child with Medical Complexities by Emily K Whiting on Amazon 

Send us a text, we want to hear from you!Addendum (Updated After Original Release)Since the release of this episode, the Thomson family experienced an unimaginable loss. Bella passed away on July 14, 2024, after multiple medical complications.Bella’s life was extraordinary—not because of what she endured, but because of the light, joy, humor, and connection she gave so freely to the world. The love within the Thomson family is something you can feel, even through a screen, and it continues to ripple outward in deeply meaningful ways.At Parent Empowerment Network, we are honored to continue sharing Bella’s story and carrying forward the light and love she brought into this world.If this episode resonates with you, we encourage you to follow Kyla’s ongoing work. Through her podcast Beyond Brave, she shares honest, powerful reflections on resilience, grief, healing, and what it means to keep going while carrying deep love.Learn more and listen to Beyond Brave: https://linktr.ee/kylactOriginal show notes from February 2024:In this episode, we’re joined by Kyla Thomson—mom to Bella Brave—whose story is both deeply personal and powerfully universal.Kyla shares what it means to parent a child with complex medical needs—the fear, the advocacy, the constant decision-making—and how her family’s journey transformed not only their lives, but the lives of countless others who found hope through Bella’s story.This conversation moves through the real experience of medical parenting: the isolation that can quietly build  the moments of humor that become lifelines  the shift from surviving to connecting  and the unexpected ways community can form—even in the hardest seasons Kyla speaks openly about turning pain into purpose, learning to trust her instincts as a parent, and finding support in places she never expected.We also explore: navigating the healthcare system and advocating for your child  the power of parental intuition  processing trauma and healing (including EMDR therapy)  and the importance of having tools and support when everything feels uncertain This episode is not just a story—it’s a shared experience of resilience, love, and the strength that can emerge even in the most overwhelming circumstances.Kyla Thomson: https://linktrWe kindly ask that you share this podcast with other families who might benefit from our insights and support. Additionally, please take a brief moment to leave a review on your preferred podcast platform, which helps us to reach as many families as possible who are navigating this challenging journey, so they can find our support circle and access the assistance they rightfully deserve. No one should walk this journey alone.To get more personal support, connect with us directly at: https://parentempowermentnetwork.orgFacebook: Parent Empowerment NetworkInstagram: ParentEmpowermentNetworkJoin the Parent Empowerment Network Community of HopeGet your copy of She is Charlotte: A Mother’s Physical, Emotional, and Spiritual Journey with Her Child with Medical Complexities by Emily K Whiting on Amazon 

Send us a text, we want to hear from you!When Sarah Kalis walked into the room with her son, Crew, I saw more than just a mother and her child; I saw a beacon of hope personified. Sarah, a former special education teacher turned medical mama, joins us to share the profound lessons and stories from her life with Crew, who has cerebral palsy. Her candid narration of the transformations she's undergone – from shock and grief to acceptance and advocacy – is a testament to the power of resilience amidst the unpredictable waves of parenting a child with special needs. This episode is dedicated to every parent who finds themselves on a similar journey, as we offer solidarity and comfort in knowing that even in the depths of challenge, there is community and support ready to lift you up.Navigating the often-uncharted waters of disability parenting, our conversation extends to the wider aspects of entrenched systems that impact families like ours. The frustrations with healthcare policies, the inadequacies of insurance systems, and the fight for necessary resources are all on the table as we discuss Sarah's own experiences within Illinois' challenging framework. It's not just a dialogue but a rallying cry for collective advocacy and systemic change. And amidst these heavyweight topics, we also celebrate the small victories, like achieving milestones and acquiring adaptive equipment, because joy and gratitude are just as vital to our stories as the obstacles we confront.Drawing on her background as a special education teacher, she underscores the indispensable role parents play in shaping their child's educational journey. The chapter on empowering parents in special education reveals strategies for more impactful and collaborative IEP meetings, highlighting the importance of parents' insights and strengths. We conclude with a powerful message of hope and support, reminding listeners of the monumental impact they have in their child's life. We urge families to harness their innate strength, to lean into the support network around them, and to keep moving forward on the path to accessibility and inclusion. Share this episode with someone who could use a reminder that they are not alone, and join us as we continue to support and empower each other through every challenge and triumph.We kindly ask that you share this podcast with other families who might benefit from our insights and support. Additionally, please take a brief moment to leave a review on your preferred podcast platform, which helps us to reach as many families as possible who are navigating this challenging journey, so they can find our support circle and access the assistance they rightfully deserve. No one should walk this journey alone.To get more personal support, connect with us directly at: https://parentempowermentnetwork.orgFacebook: Parent Empowerment NetworkInstagram: ParentEmpowermentNetworkJoin the Parent Empowerment Network Community of HopeGet your copy of She is Charlotte: A Mother’s Physical, Emotional, and Spiritual Journey with Her Child with Medical Complexities by Emily K Whiting on Amazon 

Send us a text, we want to hear from you!Discover the transformative power of Snyder's Hope Theory as it intertwines with the aspirations and resilience of children facing medical challenges. Ashlyn Thompson, joined by the compassionate child life specialist Kimberly Flood, unravels how setting realistic goals can fortify a young one's emotional landscape. Throughout our heartfelt discussions, we shed light on the delicate dance between parenting and advocating, all while fostering independence and self-esteem in our brave little warriors.Taking a deep dive into the nuances of goal-setting, we connect with families from various walks of life, learning how they tailor their approach to celebrate each small triumph. Kim Flood brings invaluable insights from her practice, Bridge to Bravery, illustrating the profound impact of play in reaching developmental milestones and the art of being your child's unwavering champion. We don't just talk about challenges; we celebrate the joyous moments that bond siblings, ensuring every family member feels cherished despite the demands of medical care. As we round off the week, I warmly invite you to lean on the strength of our shared experiences through the Charlotte Hope Foundation. Here, your stories of perseverance and hope resonate, reminding us all that we are part of a larger, supportive community. Subscribe and join us on this journey, where every parent is equipped to raise resilient children amidst adversity, and every child is encouraged to reach for the stars.We kindly ask that you share this podcast with other families who might benefit from our insights and support. Additionally, please take a brief moment to leave a review on your preferred podcast platform, which helps us to reach as many families as possible who are navigating this challenging journey, so they can find our support circle and access the assistance they rightfully deserve. No one should walk this journey alone.To get more personal support, connect with us directly at: https://parentempowermentnetwork.orgFacebook: Parent Empowerment NetworkInstagram: ParentEmpowermentNetworkJoin the Parent Empowerment Network Community of HopeGet your copy of She is Charlotte: A Mother’s Physical, Emotional, and Spiritual Journey with Her Child with Medical Complexities by Emily K Whiting on Amazon 

Send us a text, we want to hear from you!In Part 2,  Emily & Ashlyn examine the intricacies of Snyder's Hope Theory, revealing how it can ignite creativity and lead to innovative treatment options. We delve into the importance of seeking multiple medical opinions and building a robust support network, sharing stories that highlight the transformative journey from acceptance to active pursuit of the best care for our children.Navigating the emotional landscape of parenting a child with special needs is akin to steering a ship through stormy seas—daunting yet possible with a steadfast mindset. This episode emphasizes the power of emotions in shaping our experiences and the value of a motivated mindset in fostering personal and creative solutions for our children. By adopting positive self-talk and reframing our narratives, we uncover strategies to combat feelings of inadequacy and reinforce our agency. Our dialogue doesn't shy away from the realistic aspects of hope, ensuring we view it as a strategy for better outcomes, not a magical cure.In life's most tumultuous chapters, spirituality and faith often become the anchors that keep us grounded. We reflect on their indispensable role in providing solace and guidance, especially when faced with critical decisions regarding our children's well-being. You'll hear how faith can be a source of comfort, assuring us that we're part of a larger plan and never alone in our struggles. Remember, reaching out is a sign of strength, and Charlotte's Hope Foundation is here to extend a helping hand. By sharing our stories and connecting through this platform, we pave the way for hope and support to flourish in the lives of those who need it most.We kindly ask that you share this podcast with other families who might benefit from our insights and support. Additionally, please take a brief moment to leave a review on your preferred podcast platform, which helps us to reach as many families as possible who are navigating this challenging journey, so they can find our support circle and access the assistance they rightfully deserve. No one should walk this journey alone.To get more personal support, connect with us directly at: https://parentempowermentnetwork.orgFacebook: Parent Empowerment NetworkInstagram: ParentEmpowermentNetworkJoin the Parent Empowerment Network Community of HopeGet your copy of She is Charlotte: A Mother’s Physical, Emotional, and Spiritual Journey with Her Child with Medical Complexities by Emily K Whiting on Amazon 

Send us a text, we want to hear from you!In Part 1, Snyder's Hope Theory takes the spotlight, unveiling its profound impact on navigating life's hurdles, especially when it comes to  parenting children facing medical challenges.  As we dissect the elements of hope—goals, pathways, and agency—we translate them into tangible strategies for fostering resilience, both in harrowing times and the mundane stretches of everyday life.The conversation takes a turn through the festive season's joy, reflecting on the importance of family and health.  As the rhythm of routine beckons with the return of school bells, we reflect on the simple joys and trials of parenting, from the evolution of homeschooling to creating a 'comfort box' that grants Charlotte the gift of self-soothing during the night.Lastly, hope shifts from an abstract emotion to a concrete mindset, a tool for advocacy and navigating the labyrinth of life's challenges. We dissect the pragmatic side of hope, illuminating how it can bring solace and solutions to the daunting journey of raising a child with medical needs. By sharing our experiences and the comforting echo of community support, this episode is an invitation to a sanctuary of shared stories and encouragement. So tune in, and let's walk together on this path of empowered growth and relentless hope.Additional Resource:"Snyder Hope Theory" by Society Supports Alliance - this is not our video: https://youtu.be/zTVVaVIE9yw?si=LXWUftTbHYVhIFo1We kindly ask that you share this podcast with other families who might benefit from our insights and support. Additionally, please take a brief moment to leave a review on your preferred podcast platform, which helps us to reach as many families as possible who are navigating this challenging journey, so they can find our support circle and access the assistance they rightfully deserve. No one should walk this journey alone.To get more personal support, connect with us directly at: https://parentempowermentnetwork.orgFacebook: Parent Empowerment NetworkInstagram: ParentEmpowermentNetworkJoin the Parent Empowerment Network Community of HopeGet your copy of She is Charlotte: A Mother’s Physical, Emotional, and Spiritual Journey with Her Child with Medical Complexities by Emily K Whiting on Amazon 

Send us a text, we want to hear from you!Navigating the unpredictable journey of parenting a child with medical challenges can feel like sailing in uncharted waters. But imagine finding a constellation of hope that guides you through the darkest nights. That's the essence of our latest conversation, where we share intimate experiences of hospital holidays, the strength it takes to smile in the face of adversity, and the infectious joy of celebrating every small victory. Our stories, including sweet Christmas anecdotes, will warm your heart and remind us all of the resilience that defines families like ours.The festive season often paints pictures of joy and togetherness, but for many of us, it comes with its own set of challenges. In the tender retelling of Emily's daughter Charlotte's NICU journey during Christmas, we uncover the serene moments amidst the chaos, allowing for a deep reflection on what truly matters. We also extend our narrative to celebrate the excitement and hope of the New Year, even as we deal with unforeseen health scares and the constant adaptation required to keep our little ones safe and happy. These stories aren't just ours; they resonate with anyone whose love for their child is the beacon that shines through the toughest storms.This episode doesn't just recount past experiences; it's a clarion call to join hands as we forge a supportive community for parents on similar paths. We're catapulting into 2024 with an open invitation for you to help shape our new program—created to honor milestones, foster connections, and be a non-judgmental space where laughter, tears, and encouragement flow freely. We're more than just voices in your ear; we're fellow travelers on this profound journey, and together, we're building a lighthouse to guide us all to shore. Join us, share your story, and be part of a community where every parent is equipped, capable, and never alone.We kindly ask that you share this podcast with other families who might benefit from our insights and support. Additionally, please take a brief moment to leave a review on your preferred podcast platform, which helps us to reach as many families as possible who are navigating this challenging journey, so they can find our support circle and access the assistance they rightfully deserve. No one should walk this journey alone.To get more personal support, connect with us directly at: https://parentempowermentnetwork.orgFacebook: Parent Empowerment NetworkInstagram: ParentEmpowermentNetworkJoin the Parent Empowerment Network Community of HopeGet your copy of She is Charlotte: A Mother’s Physical, Emotional, and Spiritual Journey with Her Child with Medical Complexities by Emily K Whiting on Amazon 

Send us a text, we want to hear from you!Bridging the gap between children's fear and understanding of medical procedures is no small task. That's where our guest, Kim Flood, a child life specialist from Columbus, Ohio, steps in. Kim has been an invaluable beacon of hope in Emily's journey, helping Charlotte find confidence and coping skills that work for her. She transforms the cold, sterile hospital environment into a safe space where honesty, play, and resilience take center stage. Listen in as we share our personal experiences and discuss the transformative power of child life specialists in pediatric care.Navigating the medical world can be daunting for both children and parents alike. From coping with pain and traumatic procedures to advocating for a child's needs, the challenges can be overwhelming. But Kim, armed with years of experience in multiple departments such as organ transplant floors and burn units , shows us the importance of fostering emotional well-being and maintaining a positive association with the medical environment. In our candid conversation, we explore the value of psychosocial support, the necessity and power of a coping plan, and the significance of letting children witness healthy expressions of emotions. Finishing off our discussion, we touch upon the magic of celebrating small victories and the significance of community and support in parenting. We delve into the impact of Kim's private practice, Bridge to Bravery, designed to navigate children and families through medical needs in their own home. Our conversation underscores the importance of community and the power of resilience in the face of adversity. This podcast is more than just a storytelling platform; it's a resource filled with practical advice, shared experiences, and hope. About Kim Flood: Kim Flood is a Certified Child Life Specialist. She has her MS in child development with a child life specialization.  Kim is passionate about her work with children and teenagers.  She is a mom of 3 kids. Since becoming a parent she has truly valued her child life skills when it comes to preparing kids for challenges in life.   She would be honored to work with your family to help facilitate positive coping skills.  Once certain conversational skills are mastered, she is certain your family will no longer need her expertise as you’ll have the skills to manage it on your own.Bridge to Bravery: Bridge toWe kindly ask that you share this podcast with other families who might benefit from our insights and support. Additionally, please take a brief moment to leave a review on your preferred podcast platform, which helps us to reach as many families as possible who are navigating this challenging journey, so they can find our support circle and access the assistance they rightfully deserve. No one should walk this journey alone.To get more personal support, connect with us directly at: https://parentempowermentnetwork.orgFacebook: Parent Empowerment NetworkInstagram: ParentEmpowermentNetworkJoin the Parent Empowerment Network Community of HopeGet your copy of She is Charlotte: A Mother’s Physical, Emotional, and Spiritual Journey with Her Child with Medical Complexities by Emily K Whiting on Amazon 

Send us a text, we want to hear from you!This is a rerun of an episode from earlier this summer. Ashlyn & Emily will be back next week with a new episode. Happy Thanksgiving to everyone, we are grateful for everyone of you!Imagine the shock of hearing a cancer diagnosis for your small child, an innocent soul you would die to protect, only to realize that dying won't change the prognosis. If that's not hard enough to imagine, add on top of that the shocking discovery that your infant is also facing their own unique medical complexities while still undergoing chemo with your toddler. That's the harsh reality our guest, Lori Szabo, and her husband, Ron, had to face. As a very experienced parent to children with complex medical needs, Lori takes us through her unexpected journey, from the initial diagnosis to the daily challenges and joys that come with raising her unique family. She offers invaluable insights into parenting a child with severe illness, yet living life beyond the medical, emphasizing the importance of unity and resilience within the family.From snorkeling with whale sharks in the Philippines to a hilarious encounter with spicy Indian food in Kuala Lumpur, Lori has filled her family's life with rich travel experiences. She is a passionate explorer, constantly seeking to learn about different cultures. As a mother of four biological children, an adopted child, and a host to an exchange student who joined the family, Lori's love for children knows no bounds. She shares these heartwarming adventures and her family's commitment to maintain a sense of normalcy, despite the medical needs of her children.Life may not always be a serene sail across calm waters, but Lori reminds us that there is always hope and beauty in the chaos. Balancing the needs of a sick child with the needs of other siblings can be a daunting task. However, she provides insightful strategies on how to handle the emotional dynamics of such situations. She also offers a helpful look into the process of transitioning from parent advocate to support mom as children become young adults. As we end this enriching conversation, we would like to remind you that whatever emotional storm you may be weathering, remember, you are not alone. Together, we can navigate through life's turbulent currents. So, tune in, reach out, and let's walk this journey together.We kindly ask that you share this podcast with other families who might benefit from our insights and support. Additionally, please take a brief moment to leave a review on your preferred podcast platform, which helps us to reach as many families as possible who are navigating this challenging journey, so they can find our support circle and access the assistance they rightfully deserve. No one should walk this journey alone.To get more personal support, connect with us directly at: https://parentempowermentnetwork.orgFacebook: Parent Empowerment NetworkInstagram: ParentEmpowermentNetworkJoin the Parent Empowerment Network Community of HopeGet your copy of She is Charlotte: A Mother’s Physical, Emotional, and Spiritual Journey with Her Child with Medical Complexities by Emily K Whiting on Amazon 

Send us a text, we want to hear from you!This is a rerun of a past episode that Ashlyn & Emily want more people to listen to because it is loaded with invaluable knowledge and support for parents expecting a child with medical needs. We will be back with new episodes after Thanksgiving!Navigating the complexities of parenthood is a challenge in itself, but what happens when you add the hurdles of medical needs into the mix? Emily had the privilege of having a heart-to-heart talk with our guest, Elaine Bishop, a seasoned care coordinator and certified nurse midwife, who has been our guiding light through the fog of the shock from the anomalies found in Charlotte at 20 weeks pregnant. Elaine's story of resilience and hope gives comfort and inspiration to all parents paddling through the same waters.Healthcare for children is a labyrinth, especially when they can't voice their needs. Elaine has turned this challenge into her life's work, advocating for children's health from the womb to the world. Our conversation delves into the tough realities of medical treatments, the heartache of seeing your child in pain, and the triumph of standing as their voice. We also unpack the power of parental instinct - it's the unquestionable partner in your child's care team. Make no mistake, you have the right to question, understand and insist on informed consent with any medical treatment.As the saying goes, joy and sorrow are inseparable. Elaine's wisdom shows us that the silver lining in this clouded journey is the ability to trust your instincts, adjust your expectations, and continue finding joy amidst the heartache. How do we steer through unexpected pregnancy challenges? How do we set goals for our children's healthcare? How do we advocate with trust? Tune in for this inspiring conversation, and let's navigate parenthood with hope and resilience, together.We kindly ask that you share this podcast with other families who might benefit from our insights and support. Additionally, please take a brief moment to leave a review on your preferred podcast platform, which helps us to reach as many families as possible who are navigating this challenging journey, so they can find our support circle and access the assistance they rightfully deserve. No one should walk this journey alone.To get more personal support, connect with us directly at: https://parentempowermentnetwork.orgFacebook: Parent Empowerment NetworkInstagram: ParentEmpowermentNetworkJoin the Parent Empowerment Network Community of HopeGet your copy of She is Charlotte: A Mother’s Physical, Emotional, and Spiritual Journey with Her Child with Medical Complexities by Emily K Whiting on Amazon 

Send us a text, we want to hear from you!Have you ever wondered how it feels to care for a child with complex medical needs? We've got the insider scoop for you, direct from the heart of a parent in the thick of it, battling insurance bureaucracy, juggling career advancements, and dealing with unexpected family health scares that life seems to throw as curveballs. Personal, relatable, and raw - our talk is an open book that peels back layers of fear, guilt, and the innate human capacity to endure and adapt.In this episode, we tackle the all-too-familiar financial fears that go hand-in-hand with managing medical complexities. We share first-hand experiences about balancing medical costs, insurance, and maintaining a semblance of normalcy in family life. It's not all doom and gloom, though. We discuss resources and strategies that have been our lifeline, including the importance of accepting help and nurturing open communication within our relationships.Finally, we delve into the emotional labyrinth of parenting a child with medical complexities. Expect conversations about fostering empathy in our children, discussing feelings of isolation and loneliness, and reminding ourselves that it's okay not to have all the answers. After all, we are all capable of more than we often give ourselves credit for. Join us for an episode that is as empowering as it is empathetic, brimming with hope for every parent navigating medical complexities. Tune in for a dose of courage, resilience, and unwavering love.We kindly ask that you share this podcast with other families who might benefit from our insights and support. Additionally, please take a brief moment to leave a review on your preferred podcast platform, which helps us to reach as many families as possible who are navigating this challenging journey, so they can find our support circle and access the assistance they rightfully deserve. No one should walk this journey alone.To get more personal support, connect with us directly at: https://parentempowermentnetwork.orgFacebook: Parent Empowerment NetworkInstagram: ParentEmpowermentNetworkJoin the Parent Empowerment Network Community of HopeGet your copy of She is Charlotte: A Mother’s Physical, Emotional, and Spiritual Journey with Her Child with Medical Complexities by Emily K Whiting on Amazon 

Send us a text, we want to hear from you!Have you ever thought about how trauma could be impacting your journey as a parent or caregiver? Be prepared to journey with me, Ashlyn, and my own therapist, Chelsea Cassel, as we break down this intricate subject. We aim to arm you with the basic knowledge necessary to recognize & understand trauma, its emotional and physical toll, and how to navigate parenting and caregiving while on your own healing path.Throughout the episode, we explore the importance of processing trauma. We dig deep into the brain's response to trauma, with Chelsea explaining how our "lizard brain" can be overwhelmed. We delve into how trauma manifests differently in men and women, touching on reactions like guilt, anger, survivor's guilt, and lack of self-belief. We also discuss the profound power of externalizing our thoughts and feelings, either through speaking or writing, as a practical way to process trauma even if professional help isn't immediately available or a viable option for your circumstances.In the final part of our discussion, we drive home the transformative power of understanding, acknowledging, and processing trauma. We explore how this can liberate us, allowing us to move beyond our past, without letting it define us or our children. We urge you to never minimise your trauma or compare it to others, but instead, fully recognise its impact on your life. We also highlight the crucial role that seeking professional help can play in navigating the healing journey. So join us on this transformative conversation, and let's journey together towards healing and freedom from the chains of trauma.Guest Bio: CHELSEA CASSEL, MA, LMFTAChelsea received her Master’s degree in Marriage and Family Therapy from Indiana Wesleyan University and completed her Bachelor of Science in Psychology at Indiana State University. She is familiar with a variety of therapeutic approaches and techniques that can assist with her clients getting to the source of the problems they are currently struggling with. Chelsea has experience working with a wide range of clientele such as individuals, children, adolescents, couples, infidelity, families, LGBTQ, veterans, grief, addictions and trauma. She has also worked with numerous cognitive and emotional issues such as depression, anxiety, negative self-esteem and much more. When working with couples, Chelsea’s main goal is to explore ways where the couple can get back to what made them fall in love in the first plaWe kindly ask that you share this podcast with other families who might benefit from our insights and support. Additionally, please take a brief moment to leave a review on your preferred podcast platform, which helps us to reach as many families as possible who are navigating this challenging journey, so they can find our support circle and access the assistance they rightfully deserve. No one should walk this journey alone.To get more personal support, connect with us directly at: https://parentempowermentnetwork.orgFacebook: Parent Empowerment NetworkInstagram: ParentEmpowermentNetworkJoin the Parent Empowerment Network Community of HopeGet your copy of She is Charlotte: A Mother’s Physical, Emotional, and Spiritual Journey with Her Child with Medical Complexities by Emily K Whiting on Amazon