Fighting Dementia Podcast

On this episode of the Fighting Dementia Podcast, Leon is joined by presenters Fran (Alzheimer’s/mixed dementia) and Tom (mixed dementia) alongside guest Nat from Merseyside Dementia Friendly Radio (MDFR).Nat explains he founded MDFR in early 2020 after caring for family members with dementia and wanting comforting audio without distressing content. The station is dementia friendly rather than dementia focused, offering clear, simple presentation with no news, no adverts, and reduced “sonic clutter,” and curating music around listeners’ “memory bump,” shifting eras from the 1930s–80s to the 40s–90s.Nat shares access options (website mdfr.co.uk, Alexa, and DAB in Liverpool areas), listener feedback, and MDFR’s Merseyside noticeboard for dementia events and services. The group discusses how music supports mood, reminiscence, conversation, and wellbeing, and Nat invites donations and volunteers plus feedback and advisory groups.www.mdfr.co.ukResources & Further Reading:Meditation & Dementia Research:https://news.med.miami.edu/worried-about-alzheimers-meditate-and-mingle-study-says/ https://www.psychologytoday.com/gb/blog/a-subtle-impact/202506/meditation-could-reverse-brain-agingSURF (Service Users Reference Forum): https://surfdementia.org/Alzheimer’s Society: https://www.alzheimers.org.uk/Carers UK: https://www.carersuk.org/Reddit Dementia Communities: https://www.reddit.com/r/dementia/Powers of Attorney Info (UK): https://www.gov.uk/power-of-attorneyChapters:00:00 Podcast Welcome00:29 Meet Nat and MDFR01:15 Why Start the Station02:49 Dementia Friendly Not Focused05:16 How to Listen DAB Alexa Web08:36 Local Flavour Noticeboard10:43 No News No Adverts15:03 Music and Reminiscence Power19:48 Using Music on Bad Days23:00 Science of Music Memory24:48 How to Tune In30:09 Playlist Stories and Videos32:47 Alexa Tips35:05 Final Thanks and Radio Example

On the Fighting Dementia Podcast, Leon is joined by co-hosts Fran and Tom, who live with mixed dementia, and guest Anne Forrester, a chartered legal executive, to discuss why families should arrange lasting powers of attorney (and eventually wills) as early as possible. Anne explains how powers of attorney help trusted people make financial and health/welfare decisions, avoid social services or court involvement, and keep control for longer through clear, personalised instructions, including care preferences and end-of-life guidance.She outlines choosing attorneys, handling disagreements, safeguarding via Office of the Public Guardian registration (taking 12–16 weeks), and the risks and delays of deputyship if capacity is lost. Fran and Tom share how family conversations and early planning bring peace of mind and allow focus on living well with dementia.Resources & Further Reading:Meditation & Dementia Research:https://news.med.miami.edu/worried-about-alzheimers-meditate-and-mingle-study-says/ https://www.psychologytoday.com/gb/blog/a-subtle-impact/202506/meditation-could-reverse-brain-agingSURF (Service Users Reference Forum): https://surfdementia.org/Alzheimer’s Society: https://www.alzheimers.org.uk/Carers UK: https://www.carersuk.org/Reddit Dementia Communities: https://www.reddit.com/r/dementia/Powers of Attorney Info (UK): https://www.gov.uk/power-of-attorney00:00 Podcast Welcome00:38 Why Legal Planning Matters02:08 Anne’s Dementia Story03:29 Family Struggles Without Paperwork06:25 Choosing Attorneys Together10:07 Health and Welfare Decisions12:39 DNR and Personal Wishes15:16 How Many Attorneys to Appoint16:49 When Families Disagree19:16 Fran’s Power of Attorney Setup21:44 Talking It Through as a Family22:13 Talk Early Together23:30 Power Of Attorney Steps26:11 Safeguards And Registration27:30 No LPA Deputyship Costs28:28 Choosing Trusted Attorneys29:34 Complaints And Investigations31:40 DIY Vs Solicitor Help33:05 Living Well After Diagnosis35:17 Acceptance And Peace Of Mind37:38 Insurance Policy Wrap Up38:18 Final Thanks And Disclaimer

On the Fighting Dementia Podcast, Fran (Alzheimer’s/mixed dementia), Tom (mixed dementia), and Marion speak with Jack, chair of the Liverpool Dementia Action Alliance (DAA), about how he became involved through Dementia Friends training and how the DAA works as a Liverpool-wide federation of 114 member organisations.Jack explains the DAA’s focus on spreading dementia awareness, improving dementia-friendly practices in sectors like retail, housing, design, policing, and health, and signposting families to support and activities via directories and social prescribers. The group discusses misunderstandings about dementia, the importance of “living well,” challenges for carers, and approaches like meeting people in their reality. They highlight young-onset dementia awareness (an event on 7 May at Central Library), work with diverse communities, and a key achievement: informing Liverpool’s 2019–2024 dementia action plan, including creating respite beds for carers.Resources & Further Reading:Meditation & Dementia Research:https://news.med.miami.edu/worried-about-alzheimers-meditate-and-mingle-study-says/ https://www.psychologytoday.com/gb/blog/a-subtle-impact/202506/meditation-could-reverse-brain-agingSURF (Service Users Reference Forum): https://surfdementia.org/Alzheimer’s Society: https://www.alzheimers.org.uk/Carers UK: https://www.carersuk.org/Reddit Dementia Communities: https://www.reddit.com/r/dementia/Powers of Attorney Info (UK): https://www.gov.uk/power-of-attorney00:00 Welcome and Introductions01:04 Meet Jack and the Big Question01:49 How Jack Joined the DAA04:48 Dementia Myths and Realities08:00 What the DAA Actually Does10:17 Dementia Friendly Design and Housing12:14 Retail Training and Shop Stickers16:56 Young Onset Awareness Event20:08 Signposting Support and New Charity23:57 Spreading Beyond Liverpool28:19 GP Training and Better Diagnosis31:08 Living Beyond Diagnosis31:54 Finding Support Networks32:45 Staying Active With Purpose34:11 Kind Communication Strategies35:19 Compassionate Distraction38:14 What DAA Actually Is40:09 Reaching Diverse Communities42:10 Biggest Wins And Impact46:49 Unequal Care By Postcode48:19 Navigators And Advocacy51:31 How To Volunteer53:11 Hearing And The Senses55:14 Every Dementia Is Different58:28 Closing Thoughts And Outro

In this episode, the hosts discuss behaviour change with Tom, who lives with dementia, focusing on how hard it can be to build habits like drinking more water and adjusting diet. Tom explains that he often forgets to drink, even during cycling or long periods of focused activity like painting or building a racing simulator, and he questions the point of changing habits given his diagnosis, despite acknowledging water could help with cognition, concentration, exercise, and fatigue. The conversation also covers Tom’s sugar intake, his preference for sweet tastes due to reduced taste, and his view that an active lifestyle offsets diet choices. A later segment reflects on a music therapy discussion about how music can reach people in ways words can’t; Tom shares how music lifts his mood and what he likes to listen to.Resources & Further Reading:Meditation & Dementia Research:https://news.med.miami.edu/worried-about-alzheimers-meditate-and-mingle-study-says/ https://www.psychologytoday.com/gb/blog/a-subtle-impact/202506/meditation-could-reverse-brain-agingSURF (Service Users Reference Forum): https://surfdementia.org/Alzheimer’s Society: https://www.alzheimers.org.uk/Carers UK: https://www.carersuk.org/Reddit Dementia Communities: https://www.reddit.com/r/dementia/Powers of Attorney Info (UK): https://www.gov.uk/power-of-attorneyChapters:00:00 Welcome and Setup00:21 Why Water Is Hard01:46 Hydration and Fatigue03:06 Reminders and Friction03:46 Diet and Sugar Debate06:03 Taste Loss and Sweetness07:39 Motivation to Change08:34 Staying Active Mindset09:48 Sugar Burning Off Argument12:20 Music Therapy Clip13:30 Tom on Music and Mood15:18 Wrap Up and Thanks

Leon catches up with Marian, Tom’s wife and co-host, on how behavior changes have gone as Tom’s dementia progresses, focusing on hydration, diet, routines, and learning new skills. Marian says Tom enjoys painting and golf, but finds drinking enough water harder, using Alexa reminders, fridge stickers, and bottled water visibility to help. They discuss taste changes driving a sweet tooth, small diet shifts like moving from white to brown bread, and balancing enjoyment with healthy choices. Marian believes behaviour change is still possible eight years after diagnosis if the person wants it, noting Tom’s motivation and the podcast giving him purpose and lifting his mood during fatigue. She also shares practical support tips: routines, prompts, and doing tasks like cooking together as he struggles to follow recipes and read steps.Resources & Further Reading:Meditation & Dementia Research:https://news.med.miami.edu/worried-about-alzheimers-meditate-and-mingle-study-says/ https://www.psychologytoday.com/gb/blog/a-subtle-impact/202506/meditation-could-reverse-brain-agingSURF (Service Users Reference Forum): https://surfdementia.org/Alzheimer’s Society: https://www.alzheimers.org.uk/Carers UK: https://www.carersuk.org/Reddit Dementia Communities: https://www.reddit.com/r/dementia/Powers of Attorney Info (UK): https://www.gov.uk/power-of-attorneyChapters:00:00 Welcome and catch up00:50 Diet and sweet cravings02:30 Getting more water03:52 Hobbies versus habits05:21 Balancing enjoyment and health07:07 Can change still happen07:42 Acceptance and denial09:08 Podcast as purpose11:09 Subscribe and support11:39 Living in the present12:39 Tea making and recipes13:54 Routines and reminders15:45 Final thanks and disclaimer

In this episode, the host catches up with Fran about behaviour change months after focusing on habits like drinking more water, improving sleep, and learning new skills. Fran shares that a type 2 diabetes diagnosis pushed her to take diet and hydration more seriously, cutting back on high carbs, sugar, processed foods, and snacks like chocolate and crisps, while aiming for an “80/20” balance and using an app that rates how processed foods (and cosmetics) are. She describes feeling better, losing weight, walking more, and noticing improved sleep when eating less “rubbish.” The conversation also covers the importance of purpose and staying mentally active with dementia, and Fran explains recent sundowning symptoms, how she recognizes them, and how she retrains herself to keep going rather than stop.https://play.google.com/store/apps/details?id=io.yuka.androidChapters:00:00 Welcome and catch-up00:50 Diabetes wake-up call02:12 Diet swaps and treats04:22 Using an app to shop smarter06:04 Support at home and hydration08:30 Sleep, sugar, and slip-ups11:34 Why purpose keeps you going13:24 Understanding sundowning16:05 Coping strategies and pacing18:23 Final thoughts and disclaimer

Dave Bellis of Radfield Home Care, a domiciliary home care franchise in northwest England, explains how his company supports around 80 people at home across areas including Waterloo, Crosby, Sefton, Southport and Formby, and how clients find them through word of mouth, advertising, and local authority links rather than dementia-specific referrals. He shares why he left a 30-year corporate accounting career after redundancy and his parents’ dementia experience, and describes the challenges of setting up a regulated service and building staffing capacity.The discussion covers benefits of staying at home with dementia, including familiarity and avoiding separation, plus live-in care as an option for couples. They outline tailored services (medication, meals, personal care, community outings), the importance of continuity and dementia training, advice to start small and build care, and the impact of caregiver burnout, loneliness, denial, and the need for early family conversations and diagnosis.Chapters:00:00 Meet Dave00:44 Referrals and Access05:38 Starting a Care Business07:34 Why Home Helps Dementia16:16 Choosing Care Advice20:14 Diagnosis Barriers23:22 Family Support Strain26:20 Independence Matters30:42 Training And Communication35:30 Acceptance Beats Stigma37:12 Final Thanks And Outro

In this episode, we continue the discussion from last week about the importance of routines, especially for those living with dementia. Hosts Tom, Fran, and their partners Mary and Frank share personal experiences on how maintaining a routine helps them manage daily life and cognitive function.We talk about the disruptive impact of festive seasons like Christmas on their routines and how they adapt to changes. The episode also explores practical tips like using diaries for planning, engaging in activities to stay mentally active, and the significance of having a supportive community. Whether dealing with dementia or supporting someone who is, this episode offers valuable insights for all.Resources & Further Reading:Meditation & Dementia Research:https://news.med.miami.edu/worried-about-alzheimers-meditate-and-mingle-study-says/ https://www.psychologytoday.com/gb/blog/a-subtle-impact/202506/meditation-could-reverse-brain-agingSURF (Service Users Reference Forum): https://surfdementia.org/Alzheimer’s Society: https://www.alzheimers.org.uk/Carers UK: https://www.carersuk.org/Reddit Dementia Communities: https://www.reddit.com/r/dementia/Powers of Attorney Info (UK): https://www.gov.uk/power-of-attorneyChapters:00:00 Introduction00:55 Christmas and Routine Disruptions02:17 Managing Daily Routines04:24 Work and Routine Structure06:30 Living in the Moment10:26 Energy Management13:27 Exploring New Hobbies and Skills14:01 The Joy of Painting by Numbers15:12 Engaging in Creative Activities16:33 The Importance of Routine18:40 Staying Active with Dementia19:41 Final Thoughts and Reflections

In this episode of the Fighting Dementia Podcast, we are joined by Frank and Marion, partners of Tom and Fran, as we discuss the significance of maintaining routines for those living with dementia. With the aftermath of the Christmas holiday season as a backdrop, our guests share their experiences and challenges in managing daily routines. We dive into how disruptions during holiday periods can lead to increased agitation and exhaustion, emphasising the need for structure and predictability. Additionally, we touch on the importance of self-care for those supporting people with dementia, discussing the balance between caregiving duties and personal well-being. Frank and Marion provide valuable insights from their years of experience, highlighting the benefits of acceptance, the role of community, and the everyday strategies that support both the caregivers and those living with dementia. Join us for this heartfelt conversation as we explore practical ways to foster a balanced life amidst the complexities of dementia care.Resources & Further Reading:Meditation & Dementia Research:https://news.med.miami.edu/worried-about-alzheimers-meditate-and-mingle-study-says/ https://www.psychologytoday.com/gb/blog/a-subtle-impact/202506/meditation-could-reverse-brain-agingSURF (Service Users Reference Forum): https://surfdementia.org/Alzheimer’s Society: https://www.alzheimers.org.uk/Carers UK: https://www.carersuk.org/Reddit Dementia Communities: https://www.reddit.com/r/dementia/Powers of Attorney Info (UK): https://www.gov.uk/power-of-attorneyChapters:00:00 Introduction to the Podcast00:24 Discussing the Importance of Routines01:47 Challenges of Maintaining Routines03:57 Personal Routines and Self-Care06:25 Balancing Caregiving and Personal Time13:03 Managing Schedules and Routine Changes15:03 Managing Energy Levels in Dementia Care16:48 Understanding the Disconnect Between Mind and Body18:25 Words of Wisdom for Dementia Caregivers22:13 Changing Perceptions: From Carer to Supporter27:58 Concluding Thoughts and Podcast Outro

Welcome to the latest episode of the Fighting Dementia Podcast, where hosts Leon, Tom, and Fran share their personal experiences and insights into living with dementia. Joined by Tom's wife Marion, they discuss the significance of adopting new skills and hobbies for brain health and emotional well-being. Hear inspiring stories of painting, polygraphy, golf, and even candle making, and learn how these activities can bring moments of joy and fulfillment. This episode emphasises living in the moment, tackling the challenges of dementia head-on, and the importance of staying mentally active. Tune in for an uplifting conversation on managing dementia, from diagnosis to daily life, filled with practical advice and heartfelt moments.Resources & Further Reading:Meditation & Dementia Research:https://news.med.miami.edu/worried-about-alzheimers-meditate-and-mingle-study-says/ https://www.psychologytoday.com/gb/blog/a-subtle-impact/202506/meditation-could-reverse-brain-agingSURF (Service Users Reference Forum): https://surfdementia.org/Alzheimer’s Society: https://www.alzheimers.org.uk/Carers UK: https://www.carersuk.org/Reddit Dementia Communities: https://www.reddit.com/r/dementia/Powers of Attorney Info (UK): https://www.gov.uk/power-of-attorneyChapters:00:00 Introduction to the Fighting Dementia Podcast00:35 The Importance of Learning New Skills00:55 Tom's Experience with Polygraphy and Painting01:30 Fran's Artistic Journey05:02 Marian's Hobbies and Interests07:09 Tom and Fran on Trying New Things12:22 The Value of Trying New Activities13:16 Reminiscence Corner13:40 Embracing the Moment14:05 Living in the Present15:06 Coping with Diagnosis15:55 Challenges and Acceptance16:46 Support and Understanding18:04 Planning for the Future19:23 Raising Awareness20:19 The Importance of Early Diagnosis25:40 Final Thoughts and Reflections

Leon hosts Tom and Fran - both living well with dementia (Tom diagnosed 8 years ago, Fran 6 years ago) - alongside guest Grahame Smith, Associate Professor in Mental Health Innovation, to discuss brain health, neurodegeneration, and practical ways to live positively with dementia. The episode highlights Tom’s detailed painting of a ship in a cove (completed over three weeks) and how learning new skills like painting, carving wood, dancing, or joining a choir can support brain health by building new neural connections rather than relying on old pathways. Fran shares starting paint-by-numbers, how it sparked childhood memories, and a humorous near shoplifting incident while buying art supplies.Resources & Further Reading:Meditation & Dementia Research:https://news.med.miami.edu/worried-about-alzheimers-meditate-and-mingle-study-says/ https://www.psychologytoday.com/gb/blog/a-subtle-impact/202506/meditation-could-reverse-brain-agingSURF (Service Users Reference Forum): https://surfdementia.org/Alzheimer’s Society: https://www.alzheimers.org.uk/Carers UK: https://www.carersuk.org/Reddit Dementia Communities: https://www.reddit.com/r/dementia/Powers of Attorney Info (UK): https://www.gov.uk/power-of-attorneyChapters:00:00 Welcome to the Podcast 03:21 Fran Tries Paint-by-Numbers: Memories, Laughter, and Getting Started06:06 Hands, Movement & Touch: Motor Skills, Dancing, and Staying Active10:12 Living Well With Dementia: Changing Behaviours, Social Connection, and Support Networks15:36 Identity, Grief, and the ‘Self’: A Zen/Buddhist Lens + Tech, AI, and Memory18:20 Subscribe & Community Mission + Living for the Moment (Peter’s Story)20:01 Mindfulness Myths vs Being Present: Breaking Out of the ‘Box’ at Any Age23:06 Diagnosis as a Wake‑Up Call: Changing Attitudes & Behavior24:56 “Is Dementia You?” Identity, Labels, and Redefining Your Life29:29 Routines for Brain Health: Cognitive Rehearsal (and When to Break the Routine)32:50 Social Connection vs Sedentary Habits: TV, Tech, and Staying Engaged36:42 Reminiscence Corner: Overstimulation in Crowds & How to Cope45:43 Wrap‑Up, Thanks, and Listener Reminder to Do Your Own Research

In this episode of the Fighting Dementia Podcast, hosts Leon, Fran, Tom, and Lizzie welcome music therapist Lizzie for an enlightening discussion on the benefits of music therapy for those living with dementia. Lizzie shares her journey into music therapy, highlights the personalised approach she adopts to engage patients of all ages, and recounts heartwarming stories of how music has helped individuals connect and communicate. The conversation also delves into practical advice for integrating music into daily life to enhance emotional well-being. Tune in to discover the transformative effects of music and learn practical tips for incorporating music therapy into dementia care.Resources & Further Reading:Meditation & Dementia Research:https://news.med.miami.edu/worried-about-alzheimers-meditate-and-mingle-study-says/ https://www.psychologytoday.com/gb/blog/a-subtle-impact/202506/meditation-could-reverse-brain-agingSURF (Service Users Reference Forum): https://surfdementia.org/Alzheimer’s Society: https://www.alzheimers.org.uk/Carers UK: https://www.carersuk.org/Reddit Dementia Communities: https://www.reddit.com/r/dementia/Powers of Attorney Info (UK): https://www.gov.uk/power-of-attorneyChapters:00:00 Introduction to the Podcast00:09 Meet the Presenters00:31 What is Music Therapy?02:14 Lizzie's Journey into Music Therapy05:33 Working with Different Groups08:21 Impact of Music on Dementia15:43 Memorable Moments in Music Therapy19:09 Reflecting on Personal Experiences19:33 The Power of Music in Dementia Care20:26 Choosing the Right Music21:26 Practical Tips for Using Music at Home21:46 The Role of Music Therapists26:01 Improvisation and Personalized Music31:32 Music's Emotional Impact35:58 Concluding Thoughts and Advice

Welcome to the Fighting Dementia Podcast! In this episode, hosts Leon and Tom, who was diagnosed with dementia eight years ago, are joined by Meryl and Dawn. Dawn shares her experience of living with posterior cortical atrophy, a rare form of dementia, while Meryl discusses her role as a supportive partner. The group converses about their daily routines, the challenges of maintaining independence, and the significance of music therapy in Dawn's life. The episode also delves into the importance of routine, dealing with new symptoms, and future plans for support. Tune in for an insightful conversation about living with dementia and the supports that make a difference.Chapters:00:00 Welcome to the Fighting Dementia Podcast00:20 Meet Meryl and Dawn01:08 Music Therapy and Learning New Skills02:49 Kitchen Adventures and Daily Challenges05:33 The Importance of Routine10:12 Community Groups and Social Connections11:42 Traveling and Managing Fatigue14:32 Independence and Daily Life Adjustments21:32 Perception of Time and Planning27:16 Daily Life with Dementia27:33 Using Alexa for Reminders29:44 Maintaining Independence31:02 Support and Caregiving34:55 Reflecting on the Past42:31 Music Therapy Benefits48:13 Therapy and Cognitive Issues52:59 Concluding Thoughts

Welcome to this episode of the Fightin g Dementia Podcast where hosts Leon, Fran, and Tom discuss their intentions for 2026 in the context of living with dementia. They stress the importance of focusing on intentions rather than goals for a kinder approach to managing expectations. The conversation touches on brain health, early detection, and the importance of public awareness and support for dementia. Fran and Tom share their own journeys and challenges while advocating for better resources and support networks. The team also shares exciting plans for their care home management software and a new app aimed at helping people with dementia live better lives. They wrap up with a call to action, encouraging listeners to like, subscribe, and share the podcast to help spread awareness.Resources & Further Reading:Meditation & Dementia Research:https://news.med.miami.edu/worried-about-alzheimers-meditate-and-mingle-study-says/ https://www.psychologytoday.com/gb/blog/a-subtle-impact/202506/meditation-could-reverse-brain-agingSURF (Service Users Reference Forum): https://surfdementia.org/Alzheimer’s Society: https://www.alzheimers.org.uk/Carers UK: https://www.carersuk.org/Reddit Dementia Communities: https://www.reddit.com/r/dementia/Powers of Attorney Info (UK): https://www.gov.uk/power-of-attorneyChapters:00:00 Welcome to the Fighting Dementia Podcast00:07 Meet the Hosts: Personal Stories00:52 Understanding Dementia: Intentions vs. Goals01:05 Brain Health and Dementia Prevention02:44 Living Well with Dementia04:13 Challenges and Advocacy07:09 Future Plans and Innovations14:03 Raising Awareness and Fighting Stigma17:57 Final Thoughts

Welcome to the Fighting Dementia Podcast! In this special episode, we reminisce about our journey over the past year, discussing with experts, those living with dementia, and their supporters. Hear highlights of our many heartwarming and inspiring conversations, including guest appearances from individuals who continue to live full lives despite their diagnoses. Join us as we reflect on the insights shared, the laughter, and the important lessons learned about person-centered care and community support. We also discuss behavioral changes, the impact of community, and how small efforts can lead to significant positive impacts on those living with dementia. Tune in and help us build a supportive and informative community for all those affected by cognitive issues.Resources & Further Reading:Meditation & Dementia Research:https://news.med.miami.edu/worried-about-alzheimers-meditate-and-mingle-study-says/ https://www.psychologytoday.com/gb/blog/a-subtle-impact/202506/meditation-could-reverse-brain-agingSURF (Service Users Reference Forum): https://surfdementia.org/Alzheimer’s Society: https://www.alzheimers.org.uk/Carers UK: https://www.carersuk.org/Reddit Dementia Communities: https://www.reddit.com/r/dementia/Powers of Attorney Info (UK): https://www.gov.uk/power-of-attorneyChapters:00:00 Welcome to the Fighting Dementia Podcast00:20 Reflecting on the Year: Highlights and Memories01:01 Challenges and Perspectives on Dementia03:05 Inspiring Stories and Personal Triumphs05:00 Behavioral Changes and Support Systems06:26 Engaging Conversations and Personal Growth10:47 Behavior Change and Water Intake11:28 The Impact of Diet and Routine12:59 Vitamin D Deficiency Discussion15:03 Reflecting on the Year17:22 Building a Supportive Community19:45 Concluding Thoughts and Reminders

In this episode of the Fighting Dementia podcast, host Leon and co-host Tom discuss living with dementia and the challenges they face. Tom shares his personal experience battling mood changes before and after his diagnosis. They introduce guest expert Tami Anastasia, who discusses her work in dementia care, the importance of understanding personal histories in dementia, and her new book, 'Dementia, Caregiving, and Personal History: How to Help Cope, Connect, and Heal.' They also dive into the challenges of seeking help as a caregiver, the significance of physical exercise for brain health, and how dementia can sometimes unearth deep-seated emotional issues. The episode wraps up with a reflection on the personal symptoms of dementia experienced by Tom and how both he and his wife navigate life with the condition.Chapters:00:00 Introduction to the Podcast01:03 Discussing Mood Changes02:50 Physical Activity and Dementia03:13 The Importance of Support Groups04:13 Reflecting on Christmas and Singing05:43 Reintroducing Physical Activity10:57 Guest Introduction: Tami Anastasia15:11 Challenges of Asking for Help21:56 Planning for Future Care Needs22:30 Discussing Emotional Challenges24:21 Understanding Dementia and Personal History26:10 Healing Through the Dementia Journey30:08 Tom's Personal Reflections33:09 The Importance of Knowing the Person40:05 Living with Mixed Dementia41:42 Tom's Unique Perspective on Emotions44:19 Concluding Thoughts and Future Plans

Join us in this special Christmas podcast episode where we discuss the challenges of using cookbooks designed for people with dementia. The conversation touches on the need for more practical and visually engaging recipes. Later, Tim, the head of knowledge from the Alzheimer's Society, joins the discussion to talk about the latest research in dementia, the importance of support networks, and how lifestyle changes can impact dementia progression. The episode also highlights the societal stigma around dementia and the invaluable role of caregivers. Tune in for an insightful exploration into living well with dementia and the strides being made in research and support.Christmas is traditionally a time for joy, laughter and creating memories. But for many of the one million people in the UK living with dementia, the festive season can be a painful reminder of how once familiar traditions become harder to hold onto.Dementia is the UK’s biggest killer, with one in three people born today expected to develop the condition. This Christmas, with your donation, Alzheimer’s Society can be here for more people affected by dementia through our lifechanging support services.It will take a society to defeat dementia. To donate or find out more, visit alzheimers.org.uk/Christmas or call Alzheimer’s Society’s Dementia Support Line on 0333 150 3456.Chapters:00:00 Welcome to the Christmas Podcast00:15 Critiquing Cookbooks for Dementia04:11 The Goat Curry Story05:07 Introducing Tim from Alzheimer's Society07:23 Tim's Journey with Alzheimer's Society10:21 Discussing Dementia Stigma16:09 Research and Treatments for Dementia24:07 Exploring the Cost and Benefits of Dementia Treatments24:49 The Individual Nature of Dementia25:35 Challenges and Changes in IV Therapy27:54 Encouraging Participation in Research Trials29:00 Preventing Dementia: Lifestyle Factors31:11 The Impact of Sports on Dementia Risk34:03 Advice for Early Stages of Dementia39:54 Supporting Carers and Emotional Well-being46:45 Concluding Thoughts and Resources

Welcome back to another episode of our podcast dedicated to living well with dementia! In today's episode, we welcome special guests Peter and Deb, who share their inspirational story of living with Alzheimer's for 10 years and finding joy through cycling and community interactions. Peter talks about his unique hobby of riding a penny farthing, while Deb shares her insights on being a supportive friend. Alongside regular guests Tom and Fran, we delve into the importance of routine, remaining independent, and the value of small moments. Tune in for practical tips and heartfelt stories from people who are thriving despite facing cognitive challenges. Don't miss our Reminiscence Corner and the engaging conversations that follow!Resources & Further Reading:Meditation & Dementia Research:https://news.med.miami.edu/worried-about-alzheimers-meditate-and-mingle-study-says/ https://www.psychologytoday.com/gb/blog/a-subtle-impact/202506/meditation-could-reverse-brain-agingSURF (Service Users Reference Forum): https://surfdementia.org/Alzheimer’s Society: https://www.alzheimers.org.uk/Carers UK: https://www.carersuk.org/Reddit Dementia Communities: https://www.reddit.com/r/dementia/Powers of Attorney Info (UK): https://www.gov.uk/power-of-attorneyChapters:00:00 Introduction00:15 Discussing Dementia Cookbooks00:58 Challenges with Cookbook Formats02:34 Exploring Practical Nutrition03:23 The Importance of Sensory Appeal in Cooking08:13 Fitness and Technology13:37 Welcoming Deb and Peter14:38 Peter's Journey with Dementia and Cycling23:51 Embracing Change and Finding New Purpose24:42 Coping with Depression and Memory Issues26:16 Daily Routines and Community Interaction27:10 Maintaining Independence and Support Systems29:08 Changing Perceptions of Dementia35:37 Sharing Personal Experiences and Advice44:09 The Importance of Journaling and Reminiscence48:10 Final Thoughts and Reflections

In this episode of the Fighting Dementia podcast, co-hosts Leon, Fran, and Tom discuss vital topics surrounding dementia for those in the early to middle stages and their supporters. Special guest Michelle King shares her expertise, discussing the establishment of the Active Minds Center and the challenges faced by different communities, including cultural stigmas and the lack of adequate support for people with dementia and their carers. Michelle also highlights the importance of mental stimulation, the role of community, and the need for better policies and awareness. Additionally, Fran and Tom share personal experiences, tips for living well with dementia, and the significance of social interaction and maintaining routines. Tune in for enlightening discussions, practical advice, and inspiring stories.Resources & Further Reading:Meditation & Dementia Research:https://news.med.miami.edu/worried-about-alzheimers-meditate-and-mingle-study-says/ https://www.psychologytoday.com/gb/blog/a-subtle-impact/202506/meditation-could-reverse-brain-agingSURF (Service Users Reference Forum): https://surfdementia.org/Alzheimer’s Society: https://www.alzheimers.org.uk/Carers UK: https://www.carersuk.org/Reddit Dementia Communities: https://www.reddit.com/r/dementia/Powers of Attorney Info (UK): https://www.gov.uk/power-of-attorneyChapters:00:00 Introduction to the Fighting Dementia Podcast00:22 Meet the Co-Hosts: Fran and Tom01:12 Discussing Dementia Cookbooks03:34 The Importance of Routine and Social Interaction04:38 Challenges and Solutions for Dementia Care09:33 Interview with Michelle King: Insights on Dementia Care28:16 Community Outreach and Workshops28:48 Challenges in Dementia Awareness29:53 Medication and Mistrust31:11 Navigating Healthcare Barriers34:02 Intergenerational Projects and Education36:09 The Importance of Community Support41:08 Future Goals and Aspirations48:22 Living Well with Dementia55:22 Closing Remarks and Reflections

In this episode of the Fighting Dementia podcast, Tom and Leon are joined by Tom's wife Marion and son Kieran. They discuss their recent holiday experiences, the challenges of living with dementia, and the importance of family support. Tom shares his humorous yet insightful stories about attempting paddleboarding and other activities, despite his condition. The episode also features a segment with Leslie and Julie from New Brighton's Light Cinema, discussing their dementia-friendly film screenings and the impact of creating an inclusive community environment. The episode wraps up with a conversation about the benefits of physical activity and the importance of listening to one's body. Tune in for a mix of heartfelt conversations, practical advice, and a few laughs.Resources & Further Reading:Meditation & Dementia Research:https://news.med.miami.edu/worried-about-alzheimers-meditate-and-mingle-study-says/ https://www.psychologytoday.com/gb/blog/a-subtle-impact/202506/meditation-could-reverse-brain-aging SURF (Service Users Reference Forum): https://surfdementia.org/Alzheimer’s Society: https://www.alzheimers.org.uk/Carers UK: https://www.carersuk.org/Reddit Dementia Communities: https://www.reddit.com/r/dementia/Powers of Attorney Info (UK): https://www.gov.uk/power-of-attorneyChapters:00:00 Introduction00:25 Tom's Holiday Experience02:14 Challenges of Traveling with Dementia04:10 Family's Perspective on Dementia06:46 Support Systems and Counseling09:47 Community and Group Support16:45 Dementia Friendly Screenings at the Cinema23:37 Inclusive Cinema Screenings23:56 Personal Cinema Experiences24:27 Dementia-Friendly Screenings25:47 Creating a Community27:12 Reminiscence Through Films33:04 Challenges and Safety Concerns39:48 Maintaining Activity and Health45:06 Conclusion and Final Thoughts

In this episode, Fran and Leon discuss how Fran's father's resilience in battling cancer inspired her approach to life and living with mixed dementia. They talk about the importance of behavior change, finding joy in small things, and the significance of community support. Fran shares her tips on dietary adjustments and maintaining a positive outlook. Tune in to hear heartfelt stories, practical advice, and more about the journey of living with dementia.We unfortunately don't have the video for this episode so please enjoy this audio version.Resources & Further Reading:Meditation & Dementia Research:https://news.med.miami.edu/worried-about-alzheimers-meditate-and-mingle-study-says/ https://www.psychologytoday.com/gb/blog/a-subtle-impact/202506/meditation-could-reverse-brain-aging SURF (Service Users Reference Forum): https://surfdementia.org/Alzheimer’s Society: https://www.alzheimers.org.uk/Carers UK: https://www.carersuk.org/Reddit Dementia Communities: https://www.reddit.com/r/dementia/Powers of Attorney Info (UK): https://www.gov.uk/power-of-attorneyChapters:00:00 Introduction01:46 Reflecting on Last Week's Episode03:15 Fran's Personal Journey and Family Influence07:12 The Importance of Early Diagnosis09:58 Living Positively with Dementia10:17 Engaging with the Community and Giving Talks13:20 Daily Challenges and Coping Strategies16:39 The Role of Support and Medication18:45 Healthy Habits and Lifestyle Changes22:38 The Power of Community and Positive Attitude24:47 Understanding Different Types of Dementia26:58 The Role of Diet in Brain Health28:54 Challenges Faced by Caregivers31:42 Building a Supportive Community34:28 Exploring Taste and Diet Changes42:21 Concluding Thoughts and Next Steps

In this episode of the Fighting Dementia podcast, co-hosts Leon, Fran, and special guest Dr. Grahame Smith, delve into living well with dementia. Fran and Tom share their personal experiences living with dementia, while Dr. Smith, an associate professor in mental health innovation, provides expert insights on dementia care. They discuss behavior changes, therapeutic strategies like problem adaptation therapy, and the importance of mindfulness and community support. The episode underscores the significance of maintaining a positive mindset and finding meaningful activities to improve quality of life for those affected by dementia.Resources & Further Reading:Meditation & Dementia Research:https://news.med.miami.edu/worried-about-alzheimers-meditate-and-mingle-study-says/ https://www.psychologytoday.com/gb/blog/a-subtle-impact/202506/meditation-could-reverse-brain-aging SURF (Service Users Reference Forum): https://surfdementia.org/Alzheimer’s Society: https://www.alzheimers.org.uk/Carers UK: https://www.carersuk.org/Reddit Dementia Communities: https://www.reddit.com/r/dementia/Powers of Attorney Info (UK): https://www.gov.uk/power-of-attorneyChapters:00:00 Introduction to the Fighting Dementia Podcast00:50 Special Guest: Dr. Grahame Smith03:52 The Importance of Person-Centered Care08:20 Brain Health and Preventative Measures11:30 Nutrition and Dementia17:52 The Role of Technology in Dementia Care28:32 Learning New Skills with Dementia34:50 Introducing the Leaf Story App and AI-Driven Journaling Tool38:48 The Role of Journaling in Daily Life40:45 Exploring Various Therapeutic Techniques01:00:28 The Importance of Community and Peer Support01:12:05 Concluding Thoughts and Final Remarks

In this episode of the Fighting Dementia Podcast, Fran, diagnosed with mixed dementia, hosts Marian and others to discuss the importance of water intake and the impact of healthy habits on dementia. Fran shares personal anecdotes about improving her hydration routine, while Tom and Anne reflect on their own experiences and challenges in maintaining these habits. The conversation extends to an inspirational interview with George Rook, who was diagnosed with mixed dementia 11 years ago and emphasizes staying socially engaged and learning new skills. The panel discusses the powerful feedback from their community walk, underscoring the vital role of supporters and promoting awareness on treating people living with dementia with respect. Finally, the episode teases future topics, including behaviour change support through technology and interviews with influential guests.Resources & Further Reading:Meditation & Dementia Research:https://news.med.miami.edu/worried-about-alzheimers-meditate-and-mingle-study-says/ https://www.psychologytoday.com/gb/blog/a-subtle-impact/202506/meditation-could-reverse-brain-aging SURF (Service Users Reference Forum): https://surfdementia.org/Alzheimer’s Society: https://www.alzheimers.org.uk/Carers UK: https://www.carersuk.org/Reddit Dementia Communities: https://www.reddit.com/r/dementia/Powers of Attorney Info (UK): https://www.gov.uk/power-of-attorney00:00 Introduction04:28 Feedback from the Community Walk07:54 Goals of the Podcast and Personal Goals15:19 Behaviour Change and Support Strategies25:35 George Rook Joins the Podcast26:18 Diagnosis and Initial Involvement with Deep Network27:07 Finding Community and Support28:10 The Importance of Social Engagement and Brain Activity29:03 Discovering New Hobbies and Skills30:44 Advocacy and Leadership in Dementia Care31:49 Challenges in Dementia Care Systems34:29 Personal Strategies for Living Well with Dementia45:58 Advice for the Newly Diagnosed and Their Families47:20 Reflections and Future Plans49:07 Closing Remarks and Contact Information

In this episode, co-hosts Fran, Tom and Leon Leon share an honest catch-up on their wellbeing journeys—touching on everything from cutting out sugar and walking more, to the power of behaviour change and building new habits that support a healthy brain. Later in the show, we welcome the inspiring Rosie Whittington, founder of the Me To You Dementia Day Centre, who shares her story as a mental health nurse turned innovative care leader, championing holistic, person-centred support for people living with dementia. You’ll hear practical tips, a deep dive into how environment and community shape our health, and real-life stories about adapting, persevering, and finding joy and purpose—no matter where you are on your dementia journey. Plus, we round off with Reminiscence Corner, reflecting on skill-building and the importance of social connection. Whether you’re living with dementia, caring for someone who is, or passionate about wellbeing, there’s something here for everyone.Mentioned in the podcast & links to further reading:Hydration & diet for brain health — Practical, evidence‑based tips on cutting free sugar, choosing whole foods and keeping well hydrated to support cognition and lower dementia risk; useful guidance for older people and carers. https://www.nhs.uk/live-well/eat-well/eating-well-with-dementia/Bredesen’s “reversal” approach — Overview of Dr Dale Bredesen’s metabolic protocol and case series: intriguing but preliminary and controversial, not yet established as mainstream treatment. https://pubmed.ncbi.nlm.nih.gov/25414524/Problem Adaptation Therapy (PAT) — A short‑term, home‑based behavioural intervention for depression with cognitive impairment that reduces symptoms and improves function in trials. https://pubmed.ncbi.nlm.nih.gov/25821902/00:00 Water, Walking, and Dementia Care05:41 TV Presenter Faces Health Challenge11:11 Behavioral Science and Habit Building17:15 Implementation Intention Strategies23:12 Supporting Dementia Care at Home27:31 "Empowering Patient Involvement"34:03 Breathwork: Transformative Journey to Wellness39:19 Golf Rediscovery Through Scientific Approach45:35 Connecting Evidence for Effective Dementia Care48:57 Reddit's Role in AI and Research53:43 Promoting Supportive Society Mindset01:02:41 Motivational Research Impact01:04:31 Community Connection Reduces Dementia Risk

If you’re new here, this is the episode we recommend starting with. In this special kick-off to Series 2, co-hosts Leon, Fran and Tom interview Cherylnn Harper — described as the 'Fairy Godmother' of the podcast, she kickstarted the supportive Dementia community that Fran and Tom are part of.This episode is all about fresh beginnings and real-life inspiration. Leon explains the renewed mission of the podcast: sharing powerful stories and practical strategies for behavior change, whether you’re facing mild cognitive decline or living with dementia.With moving, personal accounts—Tom talks about returning to golf this summer, working in a pub, and cycling long distances, 8 years on from diagnosis; Fran shares how quick diagnosis and positive support expand her years of “living well”; and Cherylnn, reveals how community groups like Sedgemoor are transforming lives.Listeners will hear about:The importance of laughter, activity, and camaraderie in daily life with dementia.How behaviour changes—like diet, social connections, and mental engagement—make a difference.The power of peer support both for those living with dementia and the carers who support them.Why tackling isolation and embracing community can be life-changing.How the show will keep digging into the latest research, personal stories, and expert advice to help everyone “fight dementia” together.If you want to learn about living positively with dementia, get science-backed advice, or simply feel part of an uplifting, no-nonsense community, you’re in the right place.We can’t wait for you to join our journey—starting right here with Season 2, Episode 1!

What happens when someone with dementia cycles 27 miles and discovers they have "the face for a trombone"? Join hosts Leon, Tom, and Fran as they continue honest conversations about living with dementia, featuring special guests Dawn and Meryl.Tom shares medication updates following a scan after his fall, whilst celebrating his recent 27-mile cycling achievement. The episode explores the challenging diagnostic journey, with guests describing initial misdiagnoses of depression or menopause before receiving accurate dementia diagnoses.Dawn and Meryl discuss Dawn's Posterior Cortical Atrophy (PCA) - the same rare dementia affecting Terry Pratchett. This condition impacts visual processing despite normal eyesight, affecting driving, reading music, and spatial awareness.Musical therapy features prominently as Dawn and Meryl share their trumpet and trombone learning journey, with audio clips from their brass band performances demonstrating how new skills remain possible and therapeutic post-diagnosis.The conversation addresses practical challenges including lost independence, driving restrictions, noise sensitivity, and daily tasks taking longer. Partners discuss maintaining equal relationships rather than carer dynamics, whilst finding humor in difficult situations.Throughout, the tone remains hopeful, emphasising that dementia changes lives but doesn't end them. With community support and adaptation, people can pursue interests, learn skills, and maintain meaningful relationships.Resources Mentioned:Support Organizations:Alzheimer's Society: www.alzheimers.org.uk (0330 333 0804)Men in Sheds Association: www.menssheds.org.ukMedical Resources:NHS Dementia Information: www.nhs.uk/conditions/dementiaMemantine medication - discuss with GPTechnology & Daily Aids:Amazon Alexa: www.amazon.co.uk/alexaCultural Resources:Van Gogh Museum: www.vangoghmuseum.nlVan Gogh Immersive Experience: www.vangoghexpo.comBooks:Terry Pratchett novelsVan Gogh lettersFiona Phillips' Alzheimer's booksActivities:British Association for Music Therapy: www.bamt.orgCycling UK: www.cyclinguk.orgSpecialist Support:Rare Dementia Support: www.raredementiasupport.orgEpisode Chapters:00:00 - Introduction & Welcome00:14 - Tom's New Medication & 27-Mile Cycling Achievement02:23 - Garden Party Reflections & Alzheimer's Society Support05:01 - Challenging Public Misconceptions About Dementia13:08 - Diagnostic Journey Challenges & Medical Advocacy19:38 - Introduction of Dawn & Meryl: Valentine's Day Diagnosis25:19 - Dawn's Occupational Health Nightmare & GP Support43:19 - Understanding Posterior Cortical Atrophy (PCA)50:02 - Daily Life Changes & Technology Adaptations1:04:32 - "Don't Get a Puppy" - Practical Advice for New Diagnoses1:25:52 - Community Support & Sedgemoor Group Reflections

In this heartfelt episode of Fighting Dementia Podcast, we hear from Frank, sharing his perspective as a carer supporting his wife Fran through her dementia journey. Frank opens up about the gradual changes he noticed, how they've adapted their daily life together, and the importance of maintaining normalcy while accepting their new reality.We're also joined by Dean McShane, a mental health senior lecturer and director of Merseyside Dementia Friendly Radio - the UK's first DAB dementia-friendly radio station. Dean shares fascinating insights about the power of music as a therapeutic intervention for people with dementia, explaining how personalized playlists can be more effective than medication in reducing agitation and improving quality of life.

In this uplifting episode, Tom returns as co-host to share his experience of living with dementia for over seven years. With Fran and the group, he explores the emotional ups and downs of life after diagnosis—from loneliness and fatigue to joy, humour, and unexpected moments like carol-singing in July.They share honest reflections and practical tips on staying active, adapting routines, and finding meaning through connection and laughter.Whether you’re living with dementia or supporting someone who is, this episode offers hope, insight, and inspiration.Resources in this episode:Alzheimer’s SocietyMentioned as a key support organization.https://www.alzheimers.org.uk/ Playlist for LifeReferenced for music therapy and as an upcoming guest.https://www.playlistforlife.org.uk/Sedgemoor Dementia GroupLocal dementia community group frequently discussed (no direct, unified link; may be local to Liverpool. More info here or add your specific group).Central Library Liverpool Dementia GroupSaturday group referenced.https://www.liverpool.gov.uk/librarie...Dementia Action AllianceReferenced in context of advocacy/events.https://www.dementiaaction.org.uk/Therapy & AdviceReminiscence TherapyDiscussed as a beneficial therapy for people living with dementia.NHS Info on Reminiscence TherapyMedia, Events, & Other ReferencesMatilda (Film)Referenced during discussion about cake.Matilda at IMDbHarry Worth (Comedian)Reference to an old UK comedian known for a specific shop window routine.Harry Worth: WikipediaClassic Harry Worth Clip on YouTubeServices MentionedPrimark Quiet Shopping HourProviding dementia/autism-friendly shopping times.https://corporate.primark.com/en-gb/a...Morrisons Quiet HourAlso providing accessible shopping periods.https://my.morrisons.com/blog/morriso...Clinical ConceptsNeuroplasticityTopic discussed as a brain health concept.Alzheimer’s Society: Neuroplasticity00:00:07 – Introductions & Setting the Scene00:03:11 – Life with Dementia: Staying Positive00:07:27 – Past Lives and IdentityTalking about careers before diagnosis, loss of professional identity, and the value of sharing life stories.00:12:29 – Reminiscence Therapy and MemoryIntroduction to reminiscence therapy, short-term vs long-term memory, and how past memories surface.00:15:16 – Music, Dancing, and Staying ActiveDiscussion about Dr. Ivan’s advice, benefits of dance, singing, and laughter even without formal therapy.00:15:57 – Support Systems: Alzheimer’s Society & NavigatorsHow the Alzheimer’s Society and dementia navigators help explain symptoms, support families, and reduce anxiety.00:18:29 – Stress, Fatigue, and Coping StrategiesManaging the impact of stress on symptoms, using rest, hobbies, and routines to cope with difficult days.00:28:56 – Social Groups & CarersRecognition of carers, the importance of community groups like Sedgemoor, and the realities carers face.00:33:41 – Humor, Acceptance & New PurposeHow humor, perspective shift, and the podcast itself offer purpose and enjoyment despite challenges.00:34:45 – Music Memories & TechnologyUsing music (Playlist for Life, Alexa), how songs stick in the mind, and the practical use of reminders and prompts.00:36:19 – Changes in Diet and TasteDiscussion about changes in taste/smell, diet adaptations, cravings for sweet and spicy food.00:43:01 – Maintaining Confidence & ActivityRebuilding confidence after diagnosis, staying active, practical solutions to day-to-day challenges.00:52:44 – Daily Routines, Coping with ChangeAdapting routines, home adaptations (stairs, planning, navigation), and accidents resulting from symptoms.01:00:04 – Understanding and Preventing DementiaDiscussion on neuroplasticity, risk factors, doubts about preventability, and hopes for societal understanding.01:05:00 – Reflections, Support, and Next StepsPersonal reflections, podcast aims, advice for newly diagnosed, and plans for future episodes.

'It's brought us closer since I was diagnosed' Tom's story is one of hope and finding the positives of a dementia diagnosis. Joined by his wife, Marion, who has been with him all the way through his journey. The pair of them discuss how they find humour and positives whilst facing the disease. Attributing his dementia to a sense of humour, Tom is living proof that you can indeed live well with dementia.Resources in this episode:Alzheimer's SocietyThe guests reference the Alzheimer's Society, mentioning support, groups, resources, and the "Dementia Talking Point" community forum.Website: https://www.alzheimers.org.ukDementia Talking Point: https://forum.alzheimers.org.ukCarers TrustMentioned as a source of support for carers searching for groups and help.Website: https://carers.orgTide (Together in Dementia Everyday)Referenced in relation to a carers’ group meeting at a Liverpool library.Website: https://www.tide.uk.netYoung Onset Dementia Groups (such as Sedgemoor Group)Specific local groups are mentioned, including the "Sedgemoor group" in Liverpool. While not a national resource, some information may be found via local council or dementia support websites:Liverpool Dementia Action Alliance: https://www.dementiaaction.org.uk/loc...Cheshire "Men in Sheds"Tom mentions trying the "Men in Sheds" initiative, a community project for men (not exclusive to dementia support, but commonly used as a social support option).Age UK (example Men in Sheds programme): https://www.ageuk.org.uk/services/in-...Liverpool to Chester Bike Ride / Alzheimer’s Society Glow WalkThese are referenced as fundraising and community participation events: Liverpool to Chester Bike Ride: https://www.liverpoolchesterliverpool...Alzheimer’s Society Glow Walk: https://www.alzheimers.org.uk/get-inv...Life360Described as a tracker app for safety and independence.Website: https://www.life360.comWilliam Brown Street Library (Liverpool Central Library)Mentioned as a venue for the TIDE group.Website: https://liverpool.gov.uk/libraries/fi...Chapters & Time Stamps00:00 – 00:01:16Introduction & Welcomes Mim, Leon, Fran introduce the podcast and guests Tom and Marion.00:01:16 – 00:07:27The Onset of Symptoms: Realising Something Was Wrong. Tom and Fran share their first experiences of noticing memory issues and changes.Marion discusses the early impact on family dynamics and behaviour.00:07:27 – 00:13:08Diagnosis Journey. Challenges and delays in getting a diagnosis.Emotional and practical effects of receiving the diagnosis.Losing work and driving license.00:13:08 – 00:18:35Life After Diagnosis: Changes & Attitude Shifts. Tom, Marion, and Fran reflect on how their outlook and personalities have changed positively.Relationships, humour, and increased closeness.00:18:35 – 00:25:08Importance of Social Groups and Work. Tom’s experience finding suitable support groups.The impact of working and staying socially engaged.00:25:08 – 00:35:37Finding the Right Support & Community Value and rarity of peer groups for younger people with dementia.Positive outcomes from getting out, joining groups, and making friends.00:35:37 – 00:44:19Physical & Behavioural Changes Beyond Memory Discussion of non-memory symptoms: fatigue, stumbling, change in handwriting, behaviour.Importance of practical advice and occupational therapy.00:44:19 – 00:53:04Day-to-Day Independence & Routines How Tom and Fran manage routines and use tools (like trackers).Stories about confidence, humour, and adapting to new limitations.Tips for maintaining independence.00:53:04 – 00:55:28Advice for Those Newly Diagnosed & Their Partners Tom, Marion, and Fran give heartfelt advice to others at the start of a dementia journey.Focusing on living, not just surviving.00:55:28 – End (~00:55:34)Closing Thoughts & Farewells

Can dementia be detected 20 years before symptoms? Hosts Leon and Stephen talk with Dr. Ivan Koychev from Imperial College London about early risk detection, blood tests, and prevention.They explore the Five Lives app, lifestyle changes that could prevent up to 40% of cases, and what life can look like after diagnosis—with a focus on learning, connection, and hope.Resources in this episode:1. Great Minds (Brain Health Volunteer Register)What is it?A register where people can sign up to contribute to and participate in dementia research, including cognitive tests, genetic screening, and possible involvement in clinical trials.Website:https://www.greatmindsfordementia.uk2. Five Lives AppWhat is it?A free app designed to help people assess their risk of dementia, understand modifiable risk factors, and receive recommendations on lifestyle changes.Website:https://www.fivelives.health/(Available on both the App Store and Google Play)3. Lancet Commission Paper on Dementia PreventionWhat is it?Referenced in the discussion as the source suggesting that 40%-50% of dementia cases may be preventable due to modifiable risk factors.Link to the most recent paper:https://www.thelancet.com/commissions...Chapter 1: Introduction & Guest Background[00:00:00 – 00:03:28] The guys welcomes listeners and introduces Dr. Ivan, a psychiatrist and dementia researcher at Imperial College London.Ivan talks about his dual roles in clinical care and research, and his focus on early detection and prevention of dementia.Chapter 2: Understanding Dementia Risk & Biomarkers[00:03:28 – 00:09:52] Ivan explains what puts people at risk of dementia (e.g., medical history, genetics, biomarkers).Discussion about the role of blood tests, genetics, and other indicators in predicting risk and the complexities of defining “at-risk”.Chapter 3: Predictive Tools and Risk Assessment[00:09:52 – 00:12:49] The group discusses current prediction models for dementia, including the limitations of risk algorithms and the challenge of accurately forecasting who will develop dementia.Chapter 4: Prevention, Lifestyle, and New Research Clinics[00:12:49 – 00:17:56] Ivan details lifestyle steps to reduce dementia risk (e.g., diet, exercise, heart health).Introduction of the dementia prevention clinic model: targeted support and coaching for those at elevated risk.Chapter 5: The Goal—Delaying or Preventing Dementia[00:17:56 – 00:18:25] Brief discussion about whether the aim should be to delay dementia or prevent it outright.Chapter 6: How to Get Involved in Research & At-Home Prevention[00:18:25 – 00:23:09] Ivan shares ways people can participate in research, describes the Great Minds register, and introduces the Five Lives app for self-assessment and risk reduction.Chapter 7: Living Well with Dementia[00:23:09 – 00:29:37] Reflection on how families and individuals can focus on quality of life, maintain activity, and the role of social and intellectual engagement (learning new skills, staying social).Chapter 8: Brain Training, Cognitive Stimulation & Apps[00:29:37 – 00:33:59] Discussion about the effectiveness of brain training, cognitive remediation therapy, and early evidence for digital interventions; exercising caution about claims.Chapter 9: Diagnostic Advances & Blood Biomarkers[00:33:59 – 00:40:47] Updates on research into blood biomarkers, how they may influence diagnosis in the NHS, and their value in primary care.Chapter 10: Reminiscence Therapy & Family Support[00:40:47 – 00:49:22] The hosts and guests explore the value of reminiscence therapy for people with dementia and their families, emphasising connection, communication, and care navigation.Chapter 11: Exciting Developments & Resources[00:49:22 Ivan summarises new developments in medication and prevention research, and shares how to stay up to date, including signing up for the Great Minds register and newsletters.

In this episode of the Fighting Dementia Podcast, Leon welcomes Fran as the new co-host, making her debut after originally appearing as a guest in episode three. Fran, who embodies living well with dementia, shares her journey and insights on embracing life after diagnosis. Together, they welcome Nicole from the British Gymnastics Foundation, who introduces the innovative "Love to Move" program, designed to enhance cognition and social engagement for those living with dementia. Nicole discusses the science behind the program, shares heartwarming success stories, and offers practical exercises that listeners can try. The episode encourages listeners to engage with community, embrace available resources, and find empowerment in shared experiences. Tune in for an inspiring conversation on making the most of life with dementia and the powerful impact of movement and connection.

Fran’s journey, as shared in this episode of Fighting Dementia Podcast, is a powerful testament to resilience. Diagnosed with Alzheimer’s and vascular dementia in her mid-50s, Fran, a former nurse in high-pressure environments, faces her condition with unwavering strength. Despite the challenges, Fran’s determination to live a meaningful life shines through. She openly shares her journey from diagnosis to acceptance and has become a passionate advocate for dementia awareness. Her work with the Dementia Action Alliance and the young onset dementia group at Sedgemoor demonstrates her commitment to supporting others. Through talks and community involvement, Fran educates healthcare professionals and reshapes perceptions of dementia.Her story reveals the everyday struggles of dementia, from losing items to facing misconceptions, but Fran’s humor and perseverance offer a message of hope. This inspiring account underscores the need for greater societal awareness and support for those with dementia, showing how one’s impact can remain strong, even as memories fade.Resources in this episode:Dementia Action AllianceFran mentions meeting Leon here and describes it as a key support and advocacy community for people with dementia.Link: https://www.dementiaaction.org.uk/Liverpool Royal Hospital (Royal Liverpool University Hospital)Fran gives talks here to raise awareness for dementia among healthcare professionals.Link: https://www.liverpoolft.nhs.uk/royal-...Mossley Hill HospitalThis is where Fran was referred for assessments related to her diagnosis.Note: Mossley Hill Hospital is part of Liverpool and Sefton Health Partnership, but as of 2023, the hospital’s psychiatric services were being moved.Link: https://www.merseycare.nhs.uk/our-ser...Sedgemoor Care Centre, Norris GreenFran goes to a dementia group here, specifically mentioning support for young onset dementia.(NHS Sedgemoor Centre, Norris Green, Liverpool)Local council info pageAlzheimer’s SocietyImplied as "Alzheimer’s people," with mention of support, diagnosis, information, and medication.Link: https://www.alzheimers.org.uk/A few additional mentions (not formal resources but may be useful):Young Onset Dementia Support GroupsFran emphasizes the importance of joining age-appropriate support groups. The Alzheimer’s Society page above also lists local group finders.Healthcare professionals and dementia specialist nurses00:00:02 Introduction to the Podcast 00:00:07 Welcome and Introduction of Guests 00:00:21 Fran's Diagnostic Journey 00:00:46 Initial Symptoms and Misdiagnosis 00:02:56 Signs of Change and Seeking Help 00:04:36 Challenges at Work 00:06:27 Medical Tests and Uncertainty 00:07:57 Frustrations with the Medical System 00:08:19 Pursuing a Diagnosis 00:10:36 Receiving the Diagnosis 00:12:44 Impact of Diagnosis on Life 00:14:41 Community Support and Awareness 00:17:17 Physical and Mental Challenges 00:19:23 Advocacy and Positivity 00:23:09 Lack of Understanding of Dementia 00:24:41 The Need for a Strategy in Dementia Care 00:26:41 Stigma and Fear around Dementia 00:28:11 Educating Healthcare Professionals

In this episode of the Fighting Dementia Podcast, join host Mim and co-presenter Stephen as they continue their conversation with Dr. Graham Smith, a renowned mental health nurse and dementia researcher from Liverpool John Moores University. Explore the fascinating world of dementia care, where Dr. Smith shares valuable insights from his extensive career in mental health nursing and his involvement in innovative projects such as Project Innovate Dementia.Dive deep into the psychosocial aspects of dementia and uncover stories of individuals who have expanded their horizons through charity work and community involvement. Dr. Smith discusses the challenges and specific differences that dementia presents compared to other mental health conditions. Discover the concept of Living Labs, where people living with dementia collaborate to create practical solutions for everyday challenges.Gain a deeper understanding of how technology can enable and empower individuals with dementia, rather than control them. Dr. Smith also emphasises the importance of preventative measures and maintaining good brain health through lifestyle choices.As the episode unfolds, find out how engagement with meaningful activities, cognitive stimulation, and emotional support can make a significant difference for both individuals with dementia and their carers. Don't miss this enlightening and hopeful discussion that brings a fresh perspective to living well with dementia.Resources mentioned:1. House of Memories (App and Program)A memory-based app and program developed by National Museums Liverpool to help people living with dementia access and share memories.House of Memories – National Museums LiverpoolHouse of Memories App (iOS & Android)2. Dementia Playlists / Music PlaylistsPersonal music playlists as therapeutic tools for people with dementia. While specific apps aren't named, BBC Music Memories is a great free resource to explore.BBC Music MemoriesPlaylist for Life (another popular resource)3. Memory Walks / Memory Walk InitiativesCharity events that encourage physical activity and social engagement to support people living with dementia.Alzheimer’s Society Memory Walks (UK)4. Dementia CafésCommunity events for people with dementia and their carers. Locations vary by region.Alzheimer’s Society Dementia Cafés (UK)5. Project Innovate DementiaA European partnership project focusing on innovative solutions for dementia care.Project Innovate Dementia (NIHR) (Information via NIHR)6. Liverpool John Moores Centre for Collaborative Innovation in DementiaResearch and innovation hub supporting dementia projects in the UK.LJMU Centre for Collaborative Innovation in Dementia7. Power of Attorney & Advance Directives (Not linked but explained)Legal tools in the UK: UK Government – Power of Attorney8. General Tech: Smart Home DevicesMentioned examples: Ring Doorbell, digital locks, smart cookers—available via retailers but not directly linked in the podcast.If you are looking for direct information about “Living Labs” or other specific programs mentioned by Dr. Graham Smith, check the LJMU Dementia Centre link above or explore the National Institute for Health Research:National Institute for Health and Care Research (NIHR)⏱ Timestamps: 00:00 - Introduction 03:15 - Importance of Empathy in Caregiving 07:30 - Dr. Smith's Background in Dementia Research 12:45 - Creative Approaches to Dementia Care 18:20 - Challenges in Dementia Diagnosis and Support 22:10 - Role and Ethics of Smart Technology 29:40 - Caregivers’ Emotional Struggles 35:55 - Positive Aspects and Humor in Caregiving 42:00 - Early Planning and Cognitive Stimulation 47:25 - Preventive Measures and Brain Health Tips 54:10 - Final Takeaways and Closing Remarks

In the debut episode of the "Fighting Dementia" podcast, host Mim invites listeners to embark on a heartfelt journey of discovery and support for families affected by dementia. This weeks guest is co-host Stephen, delving into his experience of having both parents diagnosed with dementia and how he is taking steps to reduce his own risks of the disease. From navigating healthcare hurdles to embracing lifestyle changes that support brain health, this episode provides a compassionate blend of personal stories, expert advice, and a powerful message of hope and resilience. Tune in for valuable insights and encouragement in the fight against dementia.Resources mentioned in this episode:1. Alzheimer's Society UKProvides information, support, and care for people affected by dementia.Website: https://www.alzheimers.org.uk/2. Dementia UKOffers support and information, particularly through their Admiral Nurses.Website: https://www.dementiauk.org/3. Lasting Power of Attorney (LPA) – UK GovernmentOfficial site to set up power of attorney for health/welfare or finance.Website: https://www.gov.uk/power-of-attorney4. Dr. Rangan Chatterjee – Feel Better, Live More PodcastPodcast mentioned for advice on prevention, health and wellness.Website: https://drchatterjee.com/blog/categor...Timestamps:00:00 Introduction to the Episode 02:01 Stephen's Journey 07:01 Understanding Dementia12:01 Navigating the Healthcare System 19:01 Power of Attorney and Legal Preparations 24:01 Emotional and Family Dynamics 32:01 Community and Support Networks 40:01 Role of Technology and Reminiscence Therapy 48:01 Preventative Measures and Personal Health 54:01 Wrapping Up and Future Episodes