For Those Who Care

PODCAST · society

For Those Who Care

Welcome to “For Those Who Care”. Hosted by RuthAnn, who spent 25 years caring for her husband, Lance, a disabled U.S. Navy Veteran living with two rare blood cancers and early onset dementia, this podcast was created for caregivers and those who support them. Gain valuable insights and a deeper understanding of the caregiver’s life through honest conversations, personal stories, and interviews with caregivers and experts. RuthAnn and her guests explore the challenges, joys, and often overlooked moments of caregiving. Whether you are a caregiver yourself or someone who wants to better understand and support the caregivers in your life, this podcast offers insight, encouragement, and community. Join us to connect, listen, and find strength in the caregiving experience. 

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    79 - Pressing Pause: Because Caring Never Really Ends

    Send us Fan MailIn this short episode, I share a personal update about why I’m pressing pause on new episodes of For Those Who Care for a little while. I talk about what it’s been like to keep caring about caregivers after my years of caring for Lance, and why even people who support caregivers need to pay attention to their own limits. I’m not offering “magic solutions” here—just honesty, encouragement, and the same questions I often ask you: What have you done to care for yourself lately? While I take a break to finish school and keep rebuilding my life, all previous episodes will still be here for you to revisit, share, and sit with whenever you need a reminder that your work matters and you are not alone.I do plan to be back, because I care about caregivers–deeply. And you matter more than you know.

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    78 - Isaiah’s Story, Part 2: What End‑of‑Life Care Taught Him About Living

    Send us Fan MailIn this second part of my conversation with Isaiah, we pick up where we left off – looking back on his time helping care for Lance and what it was like as we moved into the beginning of hospice care. Isaiah had already been with us for months by then, and he witnessed that transition – the change in pace, the weight in the air, and the effort it took to keep finding moments of humor and connection. Even with the heaviness of that time, there’s a lot of laughter in this episode.Isaiah, who many may remember as my former co-host Jenna’s son, shares the memories that have stayed with him and the lessons he carries now about empathy, patience, and growing up quickly. We talk about how caregiving shaped him, what end‑of‑life care taught him about being present, and what he learned about himself through it all. And at one point, Isaiah turned the tables and started asking me questions: Were you afraid of the grief? Had you already started grieving before Lance died? How was the process of healing different than you thought it would be? Those questions led to an honest and deeply human conversation about love, loss, and the way healing really works.This episode holds both the honesty and the hope of that time. I share how afraid I was of Lance dying, how I truly didn’t know if I would survive losing him, and how lost I felt when I finally reached a point where I could start living again but didn’t know how. We talk about that final stretch of Lance’s life, how it affected both Isaiah and me, and what it has looked like to move forward through it—not away from it or by ignoring it. For anyone who’s walked through caregiving or loss, I hope this conversation encourages you to believe that life after grief is still possible, and that healing doesn’t erase the story, it helps you carry it forward. At the very end, Isaiah offers a simple invitation: if you ever have the opportunity to care for someone, say yes. You won’t regret it.

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    77 - Caregiving at 18: How Walking Beside Lance Shaped Isaiah’s Understanding of Care (Part 1)

    Send us Fan MailWhen Isaiah agreed to become Lance’s caregiver at just 18 years old, he already knew Lance’s diagnosis was terminal. Most people his age were thinking about school, work, or friends—but Isaiah said yes to something much harder and far more meaningful. In this first part of our two‑episode conversation, he shares what led to that decision, how caregiving reshaped his understanding of compassion and presence, and how those experiences still shape him today, more than five years after Lance’s passing.Isaiah’s care wasn’t medical. It was about showing up. Whether working on small yard projects together, taking drives with us, or laughing over frozen yogurt, Isaiah brought connection and light into a season that could have been defined only by illness. We talk about how simple companionship can ease isolation, what younger caregivers bring to the care experience, and how families can better support them as vital parts of a care team.Toward the end of this episode, you’ll hear a personal conversation Isaiah and I recorded after the formal interview ended. It’s an open reflection on that chapter of our lives—the impact it had on Lance, on Isaiah as a young man, and on me as both Lance’s wife and caregiver. This episode honors that shared journey and reminds us that caregiving, at any age, is really about love, connection, and showing up—especially when the road ahead is uncertain.

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    76 - Supported, Not Shielded: How Jenna Led Her Kids Into Our World of Terminal Illness

    Send us Fan MailAs my husband, Lance, lived with dementia and a terminal diagnosis, the reality of our life stood in stark contrast to the world most families knew. In a season when many people pulled back or didn’t know how to be with us, my friend and former cohost, Jenna, made a different choice: instead of keeping her children at a distance from our reality, she intentionally brought them into our world.In this conversation, Jenna and I talk about what it looked like for her to invite her kids into a life that was not their own — into our home, our routines, and the visible realities of disability and terminal illness. She shares how she decided what to say (and what not to say), how she weighed their different ages and personalities, and how she tried to be honest without overwhelming them.We walk through some of the hardest moments: the unpredictable behaviors that can come with dementia, the questions her kids asked, and the conversations that followed their time with Lance. Jenna also reflects on what she saw growing in her kids as they showed up again and again — their capacity for presence, empathy, and staying with someone whose life looked very different from their own.I share what it meant to me, as Lance’s wife and caregiver, to have a friend willing to sit with us in our reality and bring her children along, not because they had to, but because she believed this was part of forming who they are. If you’ve ever wondered whether to include kids in situations involving disability, dementia, or terminal illness — or if you’re worried you might get it “wrong” — I hope this episode gives you ideas, courage, and a sense that you don’t have to navigate it alone.

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    75 - The Transformative Power of Writing: Maureen Stanton on the Healing Art of Memoir

    Send us Fan MailIn this heartfelt conversation, writer and memoir teacher Maureen Stanton joins me to talk about how writing our stories can help us heal, especially when we’ve lived through seasons of caring for someone we love. Maureen, author of The Murmur of Everything Moving, shares what drew her to memoir, why she loves teaching it, and why caregiving stories are so often overlooked. People outside this world often have no idea how hard caregiving can be, and we talk about why telling these stories out loud and on the page matters so much.We talk about the difference between memoir and autobiography, how to figure out what your memoir is really about, and some common misconceptions new writers bring with them when they start. Maureen also offers down‑to‑earth, practical ideas for writing about hard things—illness, family, and grief—without feeling guilty, disloyal, or selfish.She shares clear, simple ways to begin shaping a life into a book: choosing a focus, finding your voice, and using small everyday moments to bring a story to life. Whether you’re a current or former caregiver, or someone who simply knows it’s time to tell your story, this episode is for you. It is a conversation that feels like sitting down with a trusted friend who believes your story matters and wants to help you tell it.You can read more about Maureen and connect with her through her website: https://www.maureenstantonwriter.com.Photo credit: Heather Perry

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    74 - Friendship, Faith, and Hospice: Preparing for What’s Ahead with Nurse Sharon (Part 2)

    Send us Fan MailIn this second part of my conversation with Sharon, we begin by talking about how our friendship grew after she cared for Lance as his home health nurse. Sharon shares how seriously she considered the decision to become his hospice nurse—asking herself if it was possible to stay professional while also being a friend—and how it all worked out in a way that was deeply meaningful for all of us.From there, we continue exploring hospice care, focusing on the emotional and spiritual sides that reach far beyond medical support. Sharon talks about how hospice teams also care for families, helping loved ones cope with the changes and emotions that come with this stage of life. We discuss the role of hospice nurses in tending to those deeper needs and how chaplains, social workers, and other professionals work together to bring comfort and hope.Sharon reflects on her connection with Lance and what it meant to care for someone she already knew so well, sharing stories from that time, including being a part of Lance’s final wish. She also shares stories from her years of hospice work that show why this calling continues to matter so much to her. We talk about how preparing for aging—emotionally, practically, and spiritually—can make choosing home hospice easier when the time comes. And yes, there are some laughs, as Sharon tells stories and even talks about how she’s preparing for her own aging. She shares one clear message she hopes people will take away: Have those tough conversations.This episode offers an honest, heartfelt look at hospice care—for both body and spirit—and the grace that can be found when we approach life’s hardest seasons with compassion, preparation, and friendship. Sharon really has a way of making hospice less scary. It’s a conversation everyone should listen to.

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    73 - When Comfort Matters Most: Understanding Hospice with Nurse Sharon (Part 1)

    Send us Fan MailIn this episode, I’m joined once again by my dear friend Sharon. You may recognize her from last week's episode about Home Health. Sharon first cared for my late husband Lance as his home health nurse, and two years later, when it was time to begin hospice, I asked if she would be his hospice nurse. Having her walk with us through that season meant more than I can say.Sharon talks about what hospice really is, common misconceptions, how it differs from palliative care, when it’s typically recommended, and what families can expect when care begins. She also helps paint a picture of what home hospice looks like and how support extends beyond medical needs to include comfort, understanding, and connection. She brings years of experience as a hospice nurse, and shares stories that reveal the heart of her work—the moments that have shaped her, the memories of patients that have stayed with her, and what continues to inspire her to do this kind of meaningful care. Our conversation offers insight, reassurance, and hope for anyone wanting to better understand hospice care. Be sure to tune in next week for part two as we talk about the emotional and spiritual sides of hospice care—the fears, the misconceptions, and the ways hospice helps both patients and families find peace through the end-of-life journey.

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    72 – When Home Becomes the Place of Care: Talking Home Health with Nurse Sharon

    Send us Fan MailIn this episode, I sit down with my dear friend Sharon, a registered nurse who played a very special role in our journey—she was my late husband Lance’s home health nurse, and later, his hospice nurse. With many years of experience in both home health and hospice care, Sharon brings warmth, expertise, and insight to this conversation about what it really means to heal, live, and find comfort at home.Together, we talk about who home health care is designed to help, the kinds of medical and therapy services it provides, and how it differs from hospice or in-home caregiving. Sharon explains how care teams coordinate with doctors to build a plan that supports both safety and independence, while also giving families the education and confidence to manage care at home. She also walks us through what the process looks like—from getting the referral to that first home visit. This conversation is both informative and personal, setting the stage for our next episode where Sharon returns to talk about hospice care.

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    71 – You Don’t Have to Be the Hero: Jenna on Supporting Someone Through Grief (Part 2)

    Send us Fan MailGrief is hard enough in private, but walking through it publicly adds a different kind of weight. In this second half of my conversation with my dear friend and former co-host, Jenna, we talk about what it has been like for her to witness my grief and healing unfold through this podcast, and what has helped her walk through it with me in a healthy, honest way.Jenna shares practical and caring advice for anyone supporting someone through grief: being honest with yourself and the grieving person about your capacity, setting and communicating boundaries, resisting the urge to be a hero, and asking hard questions like, “Can I really take this on?” She talks about how, sometimes, the most loving thing you can do is acknowledge that you cannot be the one to show up so you don’t unintentionally add to someone’s trauma or create yet another loss.From the perspective of the person grieving, we explore how to communicate honestly with the people trying to support you—whether you want to actively work toward healing or need to sit in your grief for a while, and why it’s important not to expect any one person to be everything for you. We emphasize the value of seeking professional help, especially when complicated histories can make leaning on certain people harder. We also talk about what it means to be an effective listener when grief feels overwhelming or repetitive, and how life is a continuous opportunity to grow rather than a place you ever fully arrive. Jenna closes with reflections on prioritizing healthy ways of living and nurturing your relationships now, because you never know what life will bring, and it is easier to walk through grief when you begin from a healthier place.

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    70 - Not to Fix, But to Stay: A Conversation with Jenna on Supporting Someone Through Grief (Part 1)

    Send us Fan MailWhen someone you love is grieving, knowing how to support them can feel complicated and even uncomfortable. This episode feels less like an interview and more like a window into a deeply personal conversation. My dear friend and former co-host, Jenna, joins me to talk honestly about what it looks like to walk through grief with someone you care about. Together, we reflect on our shared experience of grief — from moments of silence and discomfort to presence and honesty — and what we’ve learned about showing up for one another when things feel heavy.As we talk, we touch on the fact that grief isn’t linear, why you don’t need to be everything for someone who’s grieving, how to be honest about your capacity without creating another loss, and why support isn’t about fixing. It's about staying. We also revisit our unexpected “grief trip” to Ireland, and how that experience revealed how differently grief can unfold for each of us.Whether you’re grieving or walking beside someone who is, this episode is a reminder that love doesn’t fix grief — it simply stays present through it. This is a vulnerable, unfiltered conversation, one you’re invited to quietly sit in on. If you’ve ever wondered what true support through loss sounds like in real life, this episode is for you.

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    69 - Dr. Carolyn Larkin Taylor: Understanding Lewy Body Dementia and Other Neurological Diseases

    Send us Fan MailNeurologist and author Dr. Carolyn Larkin Taylor joins For Those Who Care for an important conversation about Lewy Body Dementia (LBD)—a complex and often misunderstood condition that blends symptoms of Parkinson’s disease and Alzheimer’s.Dr. Taylor explains what Lewy Body Dementia is, how it’s diagnosed, and why it can be particularly challenging for families and caregivers. She notes that actor Robin Williams was found to have Lewy Body Dementia, which helped bring more public attention to this often misunderstood condition. She also offers practical, compassionate advice for anyone caring for a loved one with a neurological condition—whether that’s LBD, Alzheimer’s or other dementia, multiple sclerosis, or Parkinson’s disease.Throughout the episode, Dr. Taylor shares how lifestyle choices—nutrition, exercise, sleep, etc—play a powerful role in brain health and quality of life. She underscores that while there’s no cure, there is so much that can be done to support both the patient and the caregiver.As we close, I mention two trusted sources of information and help: the Lewy Body Dementia Association and the National Institute on Aging, both of which offer education, community, and hope for those walking this path.Learn more about Dr. Taylor’s work and her memoir, Whispers of the Mind: A Neurologist’s Memoir, at https://www.carolynlarkintaylorauthor.comPhoto credit: Courtesy of Dr. Carolyn Larkin Taylor.

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    68 - Whispers of the Mind: Stories of Courage and Resilience with Dr. Carolyn Larkin Taylor

    Send us Fan MailNeurologist and author Dr. Carolyn Larkin Taylor joins me to talk about her book, Whispers of the Mind: A Neurologist’s Memoir, and why she felt called to share these deeply human stories now, after more than three decades in neurology. She reflects on how she found her way into neurology, the patients and families who changed her forever, and what they taught her about resilience, courage, and the many ways people keep showing up for life while facing terminal illness.Dr. Taylor shares who she believes will benefit most from reading Whispers of the Mind—from caregivers and families to medical students, residents, and seasoned clinicians—and what she hopes they carry with them after closing the book. She also offers grounded, heartfelt advice to young women who feel called to both medicine and motherhood, speaking honestly about the challenges and rewards of doing both.​We talk about what nearly drove her away from medicine and what ultimately kept her in it, as well as the personal experiences that shaped who she is as a neurologist. Dr. Taylor describes how these moments deepened her compassion for patients and families and influenced the way she shows up for them.​She opens up about her own experience with grief and how it changes the brain—sometimes looking and feeling like a traumatic brain injury, yet with the possibility of healing—and how hard it can be to function when you are in that fog. Speaking directly to anyone who has wondered if their deep grief meant they were “losing their mind,” she offers validation, language for what is happening, and gentle guidance for moving through it rather than around it, including a poignant story in her book about pseudo-dementia from severe depression and profound grief.​Dr. Taylor also offers practical advice on how to live as well as possible while dealing with serious neurological conditions, emphasizing that these stories are about the shared emotions of patients, caregivers, and clinicians alike. She shares how her beloved therapy dog, Prancer, became an essential part of her medical team, bringing comfort and connection to people in some of their most difficult moments. For anyone who has ever experienced the coldness of medical providers, this conversation and this book reveal the deeply human side of medicine.​Learn more about Dr. Carolyn Larkin Taylor and her work at: https://www.carolynlarkintaylorauthor.com/Photo credit: Courtesy of Dr. Carolyn Larkin Taylor.

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    67 - Jenna on Functional Training: Building Strength for Daily Life

    Send us Fan MailIn this episode of For Those Who Care, I’m talking with my former personal trainer Jenna about what functional training really means and why it matters, especially for caregivers. Jenna explains how this kind of training helps people stay strong, mobile, and ready for the physical demands that come with caring for others.She shares a story about a client who didn’t have much time to work out but found ways to stay consistent—and how those small efforts made a big difference for her and her family. Jenna and I also talk about what she noticed in my own movement patterns as a full-time caregiver, what that revealed about the toll caregiving can take, and how training helped me rebuild strength and confidence.Jenna also opens up about her experience working with Lance and how she adapted his training to match his mobility and goals. It wasn’t about adding more years, but about giving him more purpose, comfort, and quality in the time he had.This conversation is a great reminder that movement can be a source of strength, hope, and even healing for caregivers and anyone living with disability or chronic conditions.This episode is for informational and educational purposes only. It is not intended as medical or professional fitness advice. Always consult with a qualified healthcare provider or certified fitness professional before making changes to your exercise or nutrition routine.

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    66 - Walter and Kristine’s Journey: Love, Loss, and Resilience (Part 2)

    Send us Fan MailIn the final part of Walter and Kristine’s story, Kristine reflects on the challenges they faced as Walter applied for disability and came to terms with leaving work behind. She shares how that transition changed their relationship, the toll of balancing full-time work with caregiving, and the struggle of navigating life with no manual for Erdheim-Chester Disease.RuthAnn and Kristine also recall meeting in person for the first time at the inaugural ECD conference and the meaningful connections formed when the caregiver support group began. That network became a source of understanding and encouragement through an isolating journey.Kristine closes this chapter by remembering Walter’s final weeks on hospice and how she began rebuilding her life after 14 years of caregiving. Her story speaks to courage, faith, and the ongoing process of rediscovering oneself after loss.

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    65 - Walter and Kristine’s Journey: Searching for Answers (Part 1)

    Send us Fan MailIn this first part of Walter and Kristine’s story, Kristine shares her heartfelt reflections on the years she and Walter spent searching for a diagnosis. After six long years, they learned that Walter had Erdheim-Chester Disease — the same rare blood cancer RuthAnn’s husband, Lance, faced. Kristine opens up about how their faith sustained them, how their relationship changed as she became his caregiver, and how her nursing background helped her navigate a world of uncertainty and hope. Her story is one of courage, love, and unwavering dedication through life’s hardest moments.If this story touches your heart, please share this episode with someone who might need to hear it. Sharing helps others feel seen and reminds caregivers everywhere that they’re not alone.

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    64 - Unlocking Disability Care: Chanda Hinton on Integrative Care and Caregiver Support

    Send us Fan MailDisability advocate and Chanda Center for Health founder Chanda Hinton joins RuthAnn to talk about living as a care recipient after a life-changing spinal cord injury, why caregivers matter more than they know, and how integrative care is changing what is possible for people with long-term disabilities. Together they explore honest topics like caregiver burnout, what actually feels supportive from the care recipient side, and how practical help for caregivers can shape real health outcomes. Plus, you’ll get a glimpse into Chanda’s advocacy to expand access to services in ways that clearly show her passion and make this an inspiring conversation to listen to.If this conversation resonates, please subscribe and share it with another caregiver or care recipient. You never know who you might help by passing it along.​Timestamps:00:48 – Chanda’s story: her spinal cord injury at age 9 and what led her to create the Chanda Center for Health.​05:20 – What integrative health means and how care recipients benefit from these therapies.​08:54 – Why strong caregiver/care recipient partnerships create the best healthcare outcomes.13:01 – Chanda’s advice for caregivers facing burnout and overwhelm.18:22 – Insight from a care recipient to caregivers and other care recipients.25:56 – How practical help for caregivers improves outcomes for people with disabilities, and what systemic changes are still needed.31:47 – Behind the policy work: how the Chanda Center helped expand access to integrative therapies through Medicaid.​39:28 – Chanda’s guidance for organizations seeking a Medicaid waiver or building their own integrative health center.​41:49 – How caregivers and care recipients can find and learn more about the Chanda Center for Health.​44:27 – Final reflections and closing.Visit https://chandacenter.org for more information.​Photo © Megan Blowey Photography, used with permission.

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    63 - After the Fire Department Arrives: 911 Medical Emergency Part 2

    Send us Fan MailWhen you’re in the middle of a medical emergency, all you can think about is your loved one who needs help right now. It might be days later, after things settle down and the house is quiet again, that you think of all the questions you wanted to ask. Now that we know why the fire department shows up first, EMS Fire Chief Tom takes us inside the house and answers those other questions for us.In this episode you’ll hear:Step-by-step: what the crew does the moment they walk inWhat to do when your loved one is on hospice and a medical emergency happensHow home health services can help you stay in your home longerJust how much firefighters have to know todayThe real culture inside the fire department Tom’s personal story of why he became a firefighterHow to follow up afterward and thank the crewIf you’ve ever had to let the fire department into your house for a medical emergency, this episode is for you. I wish I could have listened to it fifteen years ago.00:58 What actually happens when the fire department walks in04:33 Calling 911 when your loved one is on hospice09:25 How responders handle a stressed-out caregiver14:55 Do firefighters burn out from the same houses over and over?17:59 If your loved one falls, call 911—don’t try to lift them yourself27:25 Who the fire department refers caregivers to for help and resources30:20 Common misconceptions about EMS responses to medical calls40:28 How EMS has evolved in handling calls on chronic illness, disability, & aging46:57 Just how much knowledge firefighters have to carry today49:21 How to thank the crew or give feedback after a call53:29 Tom’s story: why he became a firefighter and why he stayed01:00:57 Thank you, Chief Tom, the Nampa Fire Dept, and thank you to every firefighter out there

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    62 - I Called 911 for a Medical Emergency - Why Did the Fire Department Show Up?

    Send us Fan MailAfter 10 years of calling 911 as a full-time caregiver, I finally got answers to the question I never remembered to ask: “Why is the fire department here instead of the ambulance?”In this eye-opening episode, I sit down with EMS Fire Chief Tom to break down exactly what happens when you dial 911 for a medical crisis.We cover:Why firefighters show up firstThe must-have documents every caregiver needs readyHow to talk to 911 dispatchers so help arrives fasterSafety tips to protect your loved one and the respondersWhat to expect when EMS walks through your doorHow to follow up and improve the next callThis isn’t just for caregivers — it’s for anyone who might ever need to call 911. If you’ve ever been confused, scared, or just wanted to be more prepared — this episode is for you.EMS Fire Chief Tom returns in Part 2 with even more answers.0:26 Intro: Why I made this episode  2:31 Must-have documents for EMS & where to keep them  10:28 Key medical info every caregiver needs ready  13:16 What to tell 911 dispatch so the right help arrives fast  17:26 Why the fire department shows up first  20:52 Tips for non-English speakers or communication barriers  24:50 Home safety tips for patients + responders  37:46 House fire: what to do & how to prepare  44:09 End-of-life conversations: why you need them before 911 is called  53:51 Closing thoughts + please subscribe & share

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    61 - Season 2 Preview: A Quick Look Back & What’s Ahead

    Send us Fan MailWelcome back to For Those Who Care! After a much-needed break, RuthAnn returns with an exciting relaunch for Season 2. Reflecting on 25 years of caregiving - including the heavy moments and heartfelt guest stories from Season 1 - she shares what’s coming next: more caregiver conversations, expert insights, and the essential knowledge she wishes someone had shared with her. This season isn’t just for caregivers. It’s for anyone who wants to be better prepared. Subscribe now so you never miss an episode. Full episodes return next week!

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    60 - Season 1 Finale: Reflecting on Our First Year and What's Next

    Send us Fan MailIn the season 1 finale of For Those Who Care, RuthAnn takes a few minutes to reflect on the past year and the powerful stories and lessons shared about her 25-year caregiving journey, alongside the inspiring voices of her guests. Every story matters—yours included! As we pause for a brief two-month break, we're working on exciting changes for season 2 that will bring valuable insights for everyone, not just caregivers. Stay tuned by hitting the subscribe button so you don’t miss our return, and a more expansive, meaningful season. Thank you for being part of this community!

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    59 - Honoring Tradition: David’s Care for His Aging Parents

    Send us Fan MailIn this episode, RuthAnn sits down with David, a first-generation Portuguese American, to explore his lifelong role caring for his parents, who spoke limited English. From translating as a child to orchestrating their cross-country move to be closer to him and his wife, Jennie, David shares how his cultural values shaped his commitment to family care. He opens up about the challenges of supporting his parents through his father’s illness and passing, and now his mother’s declining memory and desire for continued independence. David discusses navigating tough conversations, planning for future care options, and balancing responsibilities as an only child. Tune in for heartfelt insights and practical tips for anyone facing similar caregiving journeys.We would love to hear from you! Share your caregiving experiences on YouTube or Facebook, or send us a text!

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    58 - Part 4: Shawn’s Continuing Advocacy for His Neighbor

    Send us Fan MailIn this moving and heartfelt final episode of a four-part series, Shawn shares more about his ongoing advocacy for his neighbor, Robert, who has Alzheimer’s. Shawn tells vivid stories about how Alzheimer’s continues to change Robert’s personality and some of the adjustments they have made to help him hold onto small bits of independence. Shawn explains why finding the right care agency is key, and shares how a particular agency has made Robert’s situation more manageable. Shawn also offers practical tips for handling conversations with Alzheimer’s patients, including an incredible story of using Robert’s beliefs to resolve a difficult situation at his apartment complex. These stories highlight how getting to know the person with Alzheimer’s can help you find the best strategies to care for them. Shawn hopes his experiences help caregivers feel less alone and offer ideas for supporting loved ones. We would love to hear from you! Share your caregiving experiences on YouTube or Facebook, or send us a text! 

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    57 - Part 3: Shawn’s Relentless Call to Advocate for His Neighbor

    Send us Fan MailIn this powerful and emotional third episode of a four-part series, RuthAnn and Shawn continue their conversation, exploring Shawn’s transition from caregiver to advocate for his elderly neighbor, Robert, who has Alzheimer’s. Shawn shares vivid stories of the safety measures he was forced to take and why it was so risky for Robert to live alone. He realized later that Robert had been downplaying his symptoms and explaining them away, a common neurological symptom of Alzheimer’s. After the event that forced Robert from his home, Shawn recounts placing him in care homes, facing poor conditions in one, and a false accusation in another when Robert’s Alzheimer’s wasn’t reported. Shawn opens up about the financial toll this has taken on his family because he missed so much work. This is a huge sacrifice to make for a neighbor, but there was nobody else willing to step up and Shawn couldn’t, in good conscience, leave Robert to fend for himself.These stories highlight some of the concerns of elderly people living alone in remote areas, and why it’s especially important in these situations for loved ones to stay vigilant. We would love to hear from you! Share your caregiving experiences on YouTube or Facebook, or send us a text! 

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    56 - Part 2: Shawn’s Continuing Fight to Advocate for His Neighbor

    Send us Fan MailIn this powerful and emotional second episode of a four-part series, RuthAnn continues her conversation with Shawn, a former volunteer firefighter who stepped up for his elderly neighbor, Robert, who was living alone and showing signs of dementia. Shawn tried multiple times to get Robert to allow a 911 call for help, but Robert refused, and as a former firefighter, Shawn knew nothing could be done if help was declined. With no state resources for seniors beyond Adult Protective Services for abuse or neglect, Shawn faced two choices: leave Robert to fend for himself or keep helping. His vivid stories reveal how dementia changed Robert and greatly impacted Shawn’s life. Yet, Robert’s moments of clarity—answering basic questions like what year it is or who the president is—show why diagnosing dementia can be difficult when you don’t see the full picture. These stories highlight the risks posed to everyone, especially when someone with dementia is living alone and still driving, and why dementia and Alzheimer’s need more attention. Shawn hopes that these stories will help caregivers feel less alone. They also serve as a wakeup call to pay better attention to our aging population and the often-overlooked symptoms that signal potential problems.We would love to hear from you! Share your caregiving experiences on YouTube or Facebook, or send us a text! 

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    55 - Part 1: Shawn’s Call to Care for a Neighbor

    Send us Fan MailIn this compelling first episode of a four-part series, RuthAnn introduces her friend Shawn, a former volunteer firefighter who became an unexpected caregiver for his neighbor, Robert, an elderly man who lived alone in a remote area. Shawn shares how their friendship started and tells some pretty vivid stories, many involving Robert’s hazardous driving, that illustrate the dangers dementia posed to Robert and the public. With Robert’s only relative living on the other side of the country, Shawn and his wife chose to step up. These stories highlight why dementia and Alzheimer’s demand care and attention, especially to our aging population. RuthAnn, who cared for her late husband through his dementia diagnosis, hosts this unique story. We would love to hear from you! Share your caregiving experiences on YouTube or Facebook, or send us a text! 

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    54 – RuthAnn & Jenna on Breaking the Isolation of Caregiving Through Community

    Send us Fan MailIn this raw and vital conversation, RuthAnn and Jenna confront a recurring theme in caregiving: the deep isolation and universal struggle to build a supportive community. They explore why outsiders often shy away, daunted by the intense realities of a caregiver’s life, leaving caregivers feeling unseen and alone. With honesty and insight, they discuss how shared values can forge meaningful connections and how setting boundaries can invite support without overwhelming others. This episode challenges listeners to rethink their role in bridging the gap with small, impactful gestures that make caregivers feel valued. Join the conversation and share your thoughts on our YouTube channel or Facebook page! Or send us a text!

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    53 – Maureen Stanton on Caregiving, Alzheimer’s, and the Power of Storytelling

    Send us Fan MailIn this moving episode, Maureen Stanton shares her deeply personal journey as a caregiver for her mother, who lives with Alzheimer’s disease. Through her lens as a writer, Maureen explores the emotional complexities of caregiving, from grappling with her mother’s transformation to finding ways to stay connected as the disease progresses. She reflects on the challenges, grief, and unexpected moments of joy that define her experience, offering insights that will resonate with anyone navigating similar paths.Maureen discusses the role of storytelling in processing her journey, and the importance of kindness and support in caregiving. This episode invites listeners to discover practical tips, heartfelt reflections, and the power of storytelling to heal and connect in the face of Alzheimer’s. Connect with Maureen at www.maureenstantonwriter.comKEY MOMENTS IN THIS EPISODE:[00:00:53] Caregiving and Creativity: Maureen talks about her caregiving role and how writing has helped her navigate advocating and caring for her mom with Alzheimer’s.[00:03:29] A Changed Reality: Maureen reflects on the profound ways Alzheimer’s has reshaped her mother’s life.[00:07:49] A Writer’s Lens: Maureen reads a poignant excerpt from her work about the early days of her mom’s Alzheimer’s.[00:12:06] Separating Disease from Person: A brief look at managing frustration by distinguishing the illness from the loved one.[00:17:00] Real Challenges Uncovered: Maureen shares vivid examples of the daily hurdles of Alzheimer’s caregiving.[00:24:02] Balancing Grief and Self-Care: Insights on sharing caregiving duties and prioritizing personal well-being.[00:26:49] Staying Connected: Maureen describes how she maintains a bond with her mom despite the disease’s progression.[00:31:20] Living in Their World: A key tip for caregivers to adapt to their loved one’s reality.[00:37:21] Parent vs. Partner Caregiving: Maureen explores the unique differences in caring for a parent versus a partner.[00:43:13] Writing as Healing: Maureen discusses how writing helps her process Alzheimer’s and what she hopes it offers others.[00:48:18] The Power of Stories: How stories can support those facing Alzheimer’s or dementia.[00:52:36] Sources of Strength: Maureen shares the support systems that sustain her on her caregiving journey.[00:56:55] The Role of Kindness: Why compassion is a lifeline for caregivers.[00:59:50] A Touching Memory: Maureen recounts a heartwarming story about her mom.[01:01:53] Practical Caregiving Tips: Actionable advice for those caring for someone with Alzheimer’s.[01:03:20] Connect with Maureen: Where to find Maureen’s writing and how to reach out.

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    52 - Transformative Healing Through Travel

    Send us Fan MailIn this solo episode, RuthAnn shares her emotional journey to Ireland, a gift from her late husband, Lance, planned for her 50th birthday while he was on hospice. Delayed by the pandemic, RuthAnn traveled with her friend and co-host Jenna, whose support helped her navigate grief while fulfilling a lifelong dream. Ireland’s kindness and connections with others grieving created a safe space for healing. A special remembrance of Lance deepened RuthAnn’s journey, and a transformative moment reshaped her perspective guiding her toward a new chapter. She reflects on moving forward after loss, offering hope for caregivers and those healing from grief. Share your transformative stories in the comments on YouTube or Facebook! 

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    51 – Part 5: Kevin & Allison on Advocacy, Guardianship, and Teamwork in Caregiving

    Send us Fan MailIn the heartfelt finale of our five-part series, Kevin and Allison share their journey of advocating for their son with multiple disabilities, navigating the legal guardianship process, and thriving as a team. Kevin, a philosophy professor, reflects on his writings about disability and advocacy, revealing the personal motivations behind his work. They discuss the emotional complexities of becoming their son’s legal guardian as he approaches 18, addressing the critical challenges and potential risks their son could face without a legal guardian.The couple opens up about the practical strategies—routines, chore charts, flexibility, and shared responsibilities—that help them manage the unique challenges of caregiving. They also share how parenting their son has transformed their perspectives, their marriage, and their sense of purpose, emphasizing the importance of celebrating the value of individuals with disabilities in a world that often overlooks them. This episode is a powerful call to advocate, connect, and honor the profound impact of caregiving.KEY MOMENTS IN THIS EPISODE:[00:00:47] Exploring Advocacy Through Writing: Kevin shares the origins of his advocacy journey and highlights his key publications on disability.[00:05:33] A Video That Inspires: Allison points listeners to Kevin’s impactful video on disability and heaven, encouraging deeper reflection.[00:07:07] Unexpected Advocacy Challenges: The couple discusses surprising obstacles they faced while advocating for their son.[00:14:53] Navigating Legal Guardianship: Kevin and Allison open up about the emotional and practical steps of becoming their son’s legal guardian at 18.[00:20:35] Teamwork in Caregiving: They reveal how routines, flexibility, and shared responsibilities keep their family strong.[00:26:57] Impact on Their Marriage: The couple reflects on how caregiving has shaped their relationship, for better and for worse.[00:29:04] Unexpected Gifts of Caregiving: Kevin and Allison share positive outcomes that emerged from their caregiving journey.[00:38:06] Advice for New Caregivers: They offer heartfelt wisdom for parents beginning the journey of caring for a child with disabilities.

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    50 – Part 4: Kevin & Allison on Guilt and Navigating the Emotional Weight of Caregiving

    Send us Fan MailIn the fourth episode of our five-part series, Kevin and Allison open up about the complex and often unspoken guilt that shadows their journey as parents of a child with multiple disabilities. They explore how guilt shows up in the decisions they make for each of their children, in their relationship with each other, and in their friendships—often leading them to question their decisions and wonder if they are doing enough.Despite making time for each other every day, they reflect on how the demands of caregiving and the absence of typical outings or date nights have changed what their relationship looks like. They candidly discuss the ways guilt can silently shape daily life, from second-guessing choices to feeling isolated by exhaustion. Kevin and Allison share how their silence or withdrawal is sometimes a signal that they need more outside support, a reality that resonates with many caregivers. Listeners will hear honest reflections on anticipatory guilt, talking about their feelings with their children, and the strategies Kevin and Allison use to get through their days. Their story is a reminder that silence is not the absence of need, and that caregivers everywhere deserve understanding, empathy, and support.KEY MOMENTS IN THIS EPISODE:[00:01:09] The Weight of Guilt: Kevin and Allison talk about how guilt plays a role in their daily lives of caring for their children.[00:04:22] Anticipatory Guilt: Kevin explains briefly what anticipatory guilt is and how that plays out in their life[00:05:48] Talking with Their Children: They discuss that they talk about their feelings of guilt with their kids, and Allison describes how their daughters respond.[00:07:11] Coping Strategies: Kevin and Allison share how they cope with feelings of guilt.[00:08:21] Advice for Parents: They offer some advice to other parents facing similar struggles with guilt.[00:09:53] Reminders of Love: Kevin and Allison talk about how they remind themselves of the love and care they give, especially when guilt creeps in.[00:14:12] Gaining Perspective: They discuss who, beyond their children, helps them see things differently when they feel guilty.[00:18:01] Guilt in Their Relationship: Kevin and Allison open up about how guilt affects their relationship as a couple.[00:22:03] Moments of Pride: The couple shares stories that make them proud of all of their children.[00:23:41] Finding Strength and Hope: Kevin and Allison reflect on how strength and hope play a role in their life.[00:27:19] A Movie’s Message: Kevin shares a favorite movie scene that resonates with his experience as a caregiver.

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    49 – Part 3: Kevin & Allison—Bridging the Gap: Understanding Disability in Everyday Life

    Send us Fan MailIn the third episode of our five-part series, Kevin and Allison invite listeners to step into their world as parents raising a child with multiple disabilities—not just to inform, but to foster genuine understanding and connection across all communities. Through honest stories about navigating school, social life, church, and travel, their stories encourage everyone—especially those not living with disability—to imagine themselves in these scenarios and consider the invisible barriers their friends and neighbors may face.This episode is a call to action for families, friends, and communities who may not have direct experience with disability. Kevin and Allison revealed in the previous episode just how much it means when others reach out, seek to understand, and offer support, even in small ways. Their experiences highlight how isolation grows when families feel unseen or misunderstood, and how inclusion and empathy from others can make a profound difference.Listeners will gain a deeper understanding of how everyday experiences—in school, church, and social life—can leave families feeling excluded or undervalued. Kevin and Allison’s stories reveal how the absence of inclusion and recognition in these settings intensifies isolation, and why being seen, welcomed, and valued by others is so essential for families navigating disability.Whether you’re a caregiver or someone who wants to better support friends and loved ones, this episode offers a powerful invitation to move beyond sympathy and into meaningful connection.Key Moments in This Episode[00:00:41] School Challenges: Kevin and Allison reflect on their journey finding the right educational environment for Jameson, and how school became more difficult as he grew older.[00:08:26] A Difficult School Experience: They recount a painful incident from Jameson’s eighth grade year that highlights the emotional challenges families face.[00:23:16] Faith and Discrimination: Kevin discusses his research on discrimination in religious institutions and how it relates to their experiences.[00:25:14] Social Integration at School: RuthAnn asks about efforts to promote social inclusion versus isolation, and Kevin and Allison share how these dynamics have shifted over time.[00:28:34] Graduation Decisions: Kevin and Allison discuss the complexities and emotions behind deciding whether to hold a graduation celebration for Jameson.[00:31:23] Advice for Parents: Kevin and Allison offer a little guidance for other parents navigating the school system with a child who has disabilities.[00:34:26] Impact on Social Relationships: Kevin and Allison discuss how raising a child with disabilities has affected their friendships and the importance of feeling included by friends outside the disability community.[00:36:29] Church and Inclusion: Discussion on the barriers they’ve faced attending church as a family, and the lack of disability-specific groups or classes.[00:44:13] Creating Spiritual Community: Kevin describes starting a Zoom group to maintain spiritual connections when traditional church settings fall short.[00:48:20] Redefining Church: Kevin shares a personal story about practical support their previous Sunday school offered to RuthAnn and her late husband, illustrating that church is more than Sunday services—and that everyone can play a part.[00:50:45] Feeling Valued: Kevin and Allison speak candidly about the pain of not feeling valued, with RuthAnn relating her own experiences.[00:52:37] Travel and Accessibility: The family discusses the unique challenges of traveling with a child who has disabilities.[01:04:26] Meaningful Memories: Kevin and Allison reflect on their favorite travel moments, emphasizing that every trip brings something worthwhile—and how shared experiences

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    48 - Part 2: Kevin & Allison—Finding and Rebuilding Community

    Send us Fan MailIn the second episode of our five-part series, Kevin and Allison reflect on the vital role that community plays in the life of a family caring for a child with disabilities. They share candidly about the strong network of support they built when their son, Jameson, was young—and the profound challenges they faced when a move to a new state meant starting over from scratch.This episode explores the unique difficulties of building and maintaining a supportive community when caring for someone with a disability, especially as children grow older and the differences between them and their peers become more pronounced. Kevin and Allison discuss how advocating for an older child brings new social hurdles, and how the sense of isolation can intensify when typical milestones—like driving or gaining independence—are out of reach for their son.They also offer insight for friends and extended family: Even when caregivers can’t make it to social events, the invitation still matters. Kevin and Allison encourage listeners to continue reaching out to caregivers, emphasizing that feeling included and remembered makes a meaningful difference in their lives.Whether you’re a caregiver or someone hoping to better support a friend or loved one, this episode offers valuable perspective on the importance of community, the realities of social isolation, and the small gestures that can help bridge the gap.Key Moments in This Episode[00:00:50] Why Community Matters: Allison and Kevin explain the importance of community when caring for a loved one with a disability.[00:05:46] Personal Impact: Both share stories about how community support has shaped their lives.[00:10:24] Building Connections: They describe what their community looked like when Jameson was young and discuss the challenges of rebuilding after moving to a new state.[00:21:31] Finding Support: RuthAnn asks for recommendations on resources and groups to help others build community.[00:24:12] Lessons Learned: Allison and Kevin reflect on what they wish they’d known about support networks before moving, and if they would do anything differently.[00:26:23] Advice for Families: They offer practical tips for families navigating disability and relocation, focusing on building a new support system.[00:30:13] Fostering Inclusion: The conversation turns to how communities can be more inclusive and welcoming to families affected by disability.[00:37:33] Communicating with Sensitivity: RuthAnn asks how to become more comfortable asking questions and how to better communicate with people living with disability, and Kevin and Allison offer practical suggestions.[00:44:59] Final Takeaways: Kevin and Allison close the episode with advice for listeners who may not have direct experience with disability.

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    47 - Part 1: Kevin & Allison—Where Their Caregiving Story Begins

    Send us Fan MailIn the first episode of our five-part series, RuthAnn introduces her friends, Kevin and Allison, devoted parents of three and dedicated caregivers to their son with multiple disabilities. This series offers an honest and vulnerable inside look at the challenges, fears, and joys of raising a child with multiple disabilities, providing listeners with a rare perspective on the realities of caregiving.In this episode Kevin and Allison share their family’s journey, discussing the moment they discovered their son’s initial diagnosis, the unfolding of additional disabilities, and the profound ways these experiences have shaped their lives. They open up about the emotional and practical challenges they face, the resilience they’ve built, and the pivotal event that inspired them to become advocates—first for their son, and then for others facing similar challenges in the caregiving community.Tune in for a heartfelt conversation that highlights the power of vulnerability, the importance of community, and the enduring hope found in even the most difficult moments of caregiving.Key Moments in This Episode[00:00:18] Meet Kevin and Allison: RuthAnn introduces her friends and they give listeners a glimpse into their family life.[00:08:08] Navigating Early Questions: RuthAnn discusses the initial diagnosis and asks if healthcare providers addressed their concerns about their son's development.[00:10:14] Finding Resources: The conversation highlights a helpful website for rare chromosome disorders.[00:11:00] Receiving the Diagnosis: Kevin and Allison recount how they learned about their son's diagnosis and what that journey was like for their family.[00:13:25] Discovering Community: They share how it took nearly eight years before finding support within the rare chromosome disorder community.[00:14:24] Understanding the Challenges: Kevin and Allison share specific details about their son's disability and limitations.[00:18:52] Family Decisions: Kevin and Allison reflect on how their son's diagnosis influenced their choices about having more children.[00:30:29] Balancing Roles: RuthAnn asks Kevin about managing his career alongside caring for three children, including one with multiple disabilities.[00:34:30] Sharing Knowledge: Kevin discusses two of the books he has authored on disability.[00:35:19] Becoming Advocates: Allison tells the story of the pivotal experience that led them to advocacy, and both describe what their advocacy work involves.[00:45:41] Advice for New Parents: Kevin and Allison offer guidance to parents just starting their journey with a child with disabilities.Links to items mentioned in this episode:2p15p16.1 microdeletion syndrome FTNW.pdfUnique | Understanding Rare Chromosome and Gene DisordersEmbodiment, Dependence, and GodAmazon.com: Embodiment, Dependence, and God (Elements in the Problems of God): 9781009270076: Timpe: Books

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    46 - Who Are You? Parenting Beyond Expectations

    Send us Fan MailIn this episode, Jenna shares her approach to conscientious parenting — what she considers the cornerstone of raising her children. She reveals how, from the very beginning, she approached each of her children with the question: “Who are you?” Jenna talks about the importance of truly seeing her children for who they are, not who she might want them to be. She describes the sacred responsibility of nurturing their unique qualities and helping them grow into the best versions of themselves — a process that requires patience, attention, and a willingness to let go of expectations.RuthAnn, who never had children but spent years as a devoted caregiver to her late husband, Lance, finds common ground with Jenna’s perspective. She shares how making Lance a priority—putting his needs first and being his strongest advocate—mirrored the dedication Jenna describes in parenting. Together, they explore how both caregiving and parenting call for deep empathy, advocacy, and the ability to put someone else’s well-being at the heart of daily life.Through their conversation, RuthAnn and Jenna discover that, while their journeys may look different on the surface, the core values of love, attentiveness, and advocacy unite them in ways they never expected. Tune in for an inspiring discussion about the universal lessons found in caring for those we love.

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    45 - The Lasting Impact of Words

    Send us Fan MailIn this heartfelt episode, Jenna takes the lead as she opens up about her journey as a stay-at-home mom to her five children. She reflects on the profound realization that, as parents and caregivers, we don’t get to choose how our words or actions shape those around us — but we do have the power to influence how others see the world. Jenna shares how this awareness transformed her approach to parenting, inspiring her to be more mindful of the impact she has on her children and everyone around her.RuthAnn joins the conversation, offering a moving story from her own experience as a long-time caregiver to her late husband, Lance. Together, RuthAnn and Jenna highlight the importance of honest communication and the courage it takes to acknowledge when our words might unintentionally hurt someone we love.Though parenting and caregiving may seem like different paths, RuthAnn and Jenna discover unexpected common ground in the lessons they’ve learned about responsibility, empathy, and the lasting influence of our words and actions. Tune in for a thoughtful discussion about connection, growth, and the power of being present in the lives of those we care for.

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    44 - Moving Through Life: Exercise, Disability, and Aging

    Send us Fan MailIn this episode, RuthAnn and Jenna talk about the role of exercise in their lives and how their friendship began - when Jenna became RuthAnn’s personal trainer. RuthAnn shares how she and Lance were active before his illness, and how staying active continued to support their health and helped Lance maintain some independence after he became disabled. Jenna offers her perspective on the value of exercise beyond appearance,  emphasizing that physical activity can increase abilities for everyone - especially for people with disabilities or those who are aging. She also shares a personal story that changed how she views her body and why she feels grateful for what it can do.Please note: This episode is for informational purposes only and not intended as medical advice. Always consult your healthcare provider before starting any exercise program.

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    43 - What We Give: Honest Conversations About Sacrifice

    Send us Fan MailSacrifice is a universal experience, but for caregivers, it takes on a unique depth and complexity. In this episode, RuthAnn opens up about the profound sacrifices she made while caring for her husband during his illness, challenging the common misconception that caregiving for a loved one is easy. She shares how being recognized for these sacrifices brought her a sense of validation and understanding. Jenna offers her own perspective as a mother, reflecting on the role of sacrifice in raising children and the importance of service. Together, they discuss how your attitude toward sacrifice shapes your well-being and relationships, the value of supportive communities, and why self-care and setting boundaries are essential to avoid burnout and resentment. Tune in for honest insights on finding meaning, maintaining a positive outlook, and navigating the toughest moments of caregiving and service.

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    42 - Caring Begins Within: The Power of Self-Awareness

    Send us Fan MailJoin RuthAnn and Jenna for an honest conversation about the power of self-awareness in everyday life and caregiving. RuthAnn shares how understanding her own limitations allowed her to set essential boundaries as a caregiver, making her better equipped to advocate for her husband and maintain her own well-being. She explains that self-awareness was key to recognizing when she needed to step back, ask for help, and prioritize self-care, which are crucial skills for anyone in a caregiving role.Jenna explores how self-awareness can transform self-consciousness into self-confidence. By accepting herself and understanding her reactions, she found it easier to let go of worries about others’ opinions. Jenna recounts a workplace encounter that challenged her perspective and, thanks to her self-awareness, allowed her to pause, reflect, and respond thoughtfully rather than defensively. This experience highlights how self-awareness helps us assess feedback, decide what to change, and nurture the qualities that matter most.Throughout the episode, RuthAnn and Jenna discuss how self-awareness is a foundation for setting healthy boundaries, improving relationships, and building resilience - whether you’re a caregiver, a parent, or navigating any of life’s challenges. Tune in for practical insights and a real-life story about how knowing yourself can help you thrive and care for others more effectively.

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    41 - Behind Closed Doors: The Hidden Struggles of In-Home Care

    Send us Fan MailHaving help at home is often seen as a blessing, but few understand the real challenges that come with it. In this episode, RuthAnn opens up about the relentless task of coordinating care providers and services to keep Lance at home - a job that brought as much stress as it did relief. She shares how the constant flow of people disrupted their privacy, required her to carefully evaluate who could be relied upon, and made their home feel less like a sanctuary. Jenna, who worked in their home as Lance’s personal trainer, offers her perspective on the chaos and emotional toll she witnessed firsthand. Together, they discuss the importance of intuition, learning from difficult experiences, and why it’s okay to be selective when vulnerable loved ones are involved. If you’ve ever felt misunderstood or judged for the way you manage in-home care, this candid conversation is for you.

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    40 - Memory, Memoir, and Meaning: Maureen Stanton on Caregiving and "The Murmur of Everything Moving"

    Send us Fan MailIn this moving episode, RuthAnn sits down with acclaimed memoirist Maureen Stanton to discuss her latest book, "The Murmur of Everything Moving". Maureen opens up about her deeply personal journey as a caregiver for her partner Steve during his battle with cancer, a story she chronicles with honesty and grace in her new memoir. She reflects on the challenges and transformations that come with caring for a loved one facing a life-threatening illness, and how those experiences shaped her understanding of love, loss, and resilience.Maureen also shares how her role as a caregiver has evolved over the years, drawing poignant parallels between her young adulthood caring for Steve and her present-day experience supporting her mother through Alzheimer’s. The conversation delves into the emotional complexities of grief, the ongoing process of healing, and how writing can serve as both a refuge and a tool for making sense of life’s most difficult moments.As a creative writing professor, Maureen offers invaluable advice for anyone considering writing their own memoir. She discusses the vulnerability required to tell your story, practical tips for centering yourself during the writing process, and resources for those who want to share their life stories but may not know where to begin. With warmth and encouragement, Maureen guides listeners through the steps of crafting and publishing a memoir, emphasizing the importance of authenticity and connection.Whether you are a caregiver, a writer, or someone seeking to understand the complexities of devotion in the face of adversity, this episode offers insight, support, and inspiration. Maureen’s hope is that caregivers see themselves reflected in her story, and that others gain a deeper appreciation for the courage and compassion required to care for those we love most.Key Moments in This Episode:[00:00:58] Maureen shares a little about herself and what led her to become a writer[00:06:20] Has writing and sharing your story changed the way you look back on your life?[00:10:36] What distinguishes a powerful memoir from other forms of storytelling?[00:12:40] Maureen shares her writing process and talks about vulnerability in sharing such a personal story[00:17:24] How Maureen organized and structured her book as she was writing it[00:23:03] How life and relationships change after a cancer diagnosis, understanding for other caregivers, and advice on supporting family and friends through difficult times[00:31:18] Grief after Steve died[00:32:47] Looking back: Does Maureen ever ask herself how she did it?[00:36:11] The part of her book Maureen wasn't sure she should include[00:40:10] Maureen and RuthAnn briefly discuss hospice and their experiences[00:44:18] How caring for someone at the end of their life transforms you[00:45:29] Tips on writing your own memoir and the process of publishing a book[00:52:42] Life lessons: Advice Maureen would give her younger self as a caregiver[00:55:24] Where to find "The Murmur of Everything Moving" by Maureen Stanton

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    39 - When Advocacy Matters Most: Caregiving Without Compromise

    Send us Fan MailWhen RuthAnn became a caregiver for her husband, Lance, she quickly realized she didn’t fit the traditional mold. She wasn’t quiet, submissive, or content to follow orders without question. In this episode, RuthAnn opens up about the fierce advocacy required to protect her husband’s well-being, especially when faced with medical professionals who expected compliance rather than questions. Jenna joins the conversation, highlighting the impossible decisions caregivers face: when every choice could be a matter of life or death, how do you know which battles are worth fighting? Together, they explore the reality that, in caregiving, you rarely get to choose your battles — because you never know which one will matter most.RuthAnn and Jenna encourage listeners to trust their instincts and advocate for themselves and their loved ones, no matter the situation. Their message is clear: nobody knows your loved one better, and nobody will fight harder for their care. You are the expert in your own journey. Never let anyone tell you otherwise. Tune in for an honest discussion about breaking stereotypes, standing up to authority, and finding the courage to speak out when it matters most.

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    38 - He Wasn't a Science Experiment: The Human Behind the Chart

    Send us Fan MailIn this episode, RuthAnn picks up where the previous conversation left off, reflecting on the dehumanizing treatment Lance received from some residents and medical professionals — treatment that often made him feel more like a science experiment than a person. She shares a couple of powerful stories from Lance’s experiences in the hospital and clinic that highlight the emotional toll of being overlooked in the healthcare system. Jenna, coming from a background of limited medical experience, offers her perspective and asks important questions about what people can do when they feel their concerns are being dismissed. RuthAnn emphasizes the importance of trusting your instincts and shines a light on the often-overlooked challenges faced by caregivers — especially the pressure to stay quiet and comply, even when advocating for their loved ones.Key Moments in This Episode:[00:00:19] Opening: He Wasn't a Science Experiment – Introduction to the episode’s central theme.[00:03:45] RuthAnn reflects on Lance’s thoughts about feeling like a “guinea pig”.[00:04:49] RuthAnn recounts an incident involving residents while waiting for hospital admission.[00:12:01] Jenna poses a poignant question about how common ailments are often dismissed by healthcare providers.[00:14:36] Life lessons: Jenna asks RuthAnn what insights she’s gained from this journey that she hopes others can take with them.Music from Uppbeat (free for Creators!):https://uppbeat.io/t/dan-phillipson/making-progressLicense code: MMVIYFZG7GYXKFWY

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    37 - Trusting Your Instincts: A Powerful Call to Stand Up for Our Veterans

    Send us Fan Mail37 - Trusting Your Instincts: A Powerful Call to Stand Up for Our VeteransIn this deeply personal and emotional episode, RuthAnn bravely shares a difficult chapter from her life. She recounts an event that took place at the Department of Veterans Affairs hospital, which ultimately led to her husband, Lance, being placed on hospice care. With raw honesty, RuthAnn opens up about the impact of this experience, the emotional toll it took, and the importance of trusting your instincts — especially when faced with a medical system that may not always have your loved one's best interests at heart.RuthAnn reflects on the critical lesson that, even in moments of vulnerability, it’s essential to question and challenge those in positions of authority. She speaks to the heartbreaking reality that sometimes those in charge may not have all the answers, and it's up to us to advocate for ourselves and our loved ones, no matter the situation.In addition to sharing her personal story, RuthAnn uses this episode as a call to action for all listeners to advocate for our veterans. She urges us to pay attention to the challenges and shortcomings of the system that is meant to care for those who served our country. RuthAnn’s story is a powerful reminder that we must stand up for those who have given so much, and push for meaningful change within the Veterans Affairs system.This episode is not only about RuthAnn's heartbreaking journey, but also about sparking a larger conversation on how we can better care for our veterans and ensure they receive the respect, care, and support they deserve.Key Moments in This Episode:[00:01:00] Important background details about Lance’s health and their experience with the Department of Veterans Affairs hospital are shared, providing the context needed to understand the gravity of the situation.[00:04:40] Deep concerns arise over a particular medical procedure, highlighting the internal conflict faced and the strong instincts urging against it.[00:08:10] The medical procedure that would change everything is revealed, leading to the decision to place Lance on hospice care.[00:13:40] A harsh reality is discussed about how veterans are treated within the system meant to care for them, with a powerful call to recognize the urgent need for change.[00:14:21] A call to action: RuthAnn encourages listeners to stand up for veterans and demand change in the system that cares for them.Music from #Uppbeat (free for Creators!):https://uppbeat.io/t/dan-phillipson/making-progressLicense code: MMVIYFZG7GYXKFWY

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    36 - The Courage to Grow: Navigating Change and Embracing New Beginnings

    Send us Fan MailIn this episode, RuthAnn and Jenna dive into the importance of stepping out of your comfort zone and the growth that comes with facing fear and embracing change. RuthAnn shares her personal journey of life after caring for her disabled husband, Lance. After his death, RuthAnn found herself in an entirely new world -  one that was unfamiliar, uncomfortable, and, at times, terrifying. But by taking small, sometimes seemingly insignificant steps, RuthAnn learned that pushing through her fears opened up new possibilities for growth. Over time, these small steps added up, and there were moments when she took big leaps simply because she was tired of holding back.As RuthAnn reflects on how far she’s come, she credits her willingness to step out of her comfort zone and the support from those around her. In this conversation, Jenna poses some thought-provoking questions that challenge the way we view fear, reward, momentum, and the people we surround ourselves with.How do fear and reward influence your actions? Did RuthAnn’s motivations shift as she started to expand her world and take risks?How does momentum impact your willingness to try new things? How important are the people around you when it comes to growth? Does your circle of support help or hinder your journey, and how can surrounding yourself with the right people propel you forward?Tune in for an inspiring conversation about the challenges and rewards of growth, and learn how stepping out of your comfort zone can lead to profound change.

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    35 - From Struggle to Strength: The Power of Mindset

    Send us Fan MailJoin RuthAnn and Jenna for an honest and empowering conversation about the power of mindset. RuthAnn opens up about her experience as a caregiver, reflecting on how, during some of the toughest days, the last thing she wanted to hear was advice on being more positive. It often felt impossible to find anything good when life was overwhelming and hard.But over time, she discovered that practicing gratitude and shifting her mindset on the easier days made it a little easier to face the really hard days. It didn’t change her circumstances, but it did make life a bit more bearable - and it made her more resilient and easier to be around.In this episode, Jenna shares practical tips for changing your mindset, like replacing or reframing thoughts. Tune in for a conversation that offers insight, hope, and simple tools to help you shift your perspective - no matter where you are in life.

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    34 - Living Life on Our Own Terms: The Reality of Invisible Illness

    Send us Fan MailIn this episode, RuthAnn and Jenna dive into the emotional and physical challenges of living with a chronic illness. From Lance’s staggering 70 doctor visits in one year to his ongoing battle with two ultra rare conditions, LCH and ECD, RuthAnn and Jenna reflect on how invisible illness impacts not only the body but also relationships, perspectives, and the way we approach life itself.Lance’s diagnoses at a young age forced him and RuthAnn to confront the harsh reality that time is precious — and how it feels when the outside world doesn’t understand the invisible battle you’re fighting. With humor, resilience, and a determination to enjoy life no matter the circumstances, RuthAnn shares how they navigated their life of hardship through years of uncertainty.RuthAnn and Jenna also explore the difficulty of explaining chronic illness to others, the pressure of people’s expectations, and how living authentically became the only choice in an unpredictable world. Tune in for a candid conversation on the power of perspective, finding joy in the smallest moments, and the importance of embracing life on your own terms — no matter what you’re facing.

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    33 - The Power of Vulnerability: Building Stronger Connections

    Send us Fan MailIn this episode, RuthAnn and Jenna dive into the concept of vulnerability—not just as a perceived weakness, but as a powerful strength. While society often associates vulnerability with fragility, it actually takes immense courage to show up in the world without our armor. RuthAnn and Jenna explore the many benefits of vulnerability, particularly when it comes to building authentic relationships and fostering deeper connections with others.Through personal stories and honest reflections, they open up about their own struggles with vulnerability and the trust required to embrace it. Tune in to hear practical tips and insights on how being vulnerable can lead to stronger, more meaningful bonds with the people around you.

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    32 - How Community Supports Us Through Life's Transitions

    Send us Fan MailIn this episode, RuthAnn and Jenna explore the importance of community, especially during times of change. RuthAnn shares her journey of being part of multiple communities while she was married to Lance, and how she has navigated finding new communities since his passing. She discusses why community was vital in both seasons of her life, and how it continues to be an essential part of her healing process. Jenna, offering her perspective as a mom, provides practical advice on how to find your community, especially after going through a life transition like loss, divorce, or moving to a new place. If you're looking to connect with others or rebuild your community after a significant shift, this episode will offer valuable insights.

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    31 - Finding Joy in the Journey

    Send us Fan MailIn this candid episode, Jenna and RuthAnn share their personal stories of learning to find joy again after facing overwhelming challenges. RuthAnn talks about the difficulties she encountered while supporting her husband Lance through his illness, and how the lack of support from those around them made the journey even harder. Jenna opens up about her experience navigating a divorce and the emotional hurdles that came with it. Though neither of their journeys was easy, both women agree that rediscovering joy was ultimately worth the struggle. Tune in for an honest conversation about resilience, healing, and the importance of finding support when life feels isolating.

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    30 - Finding Laughter in the Darkest Days

    Send us Fan MailIn this heartfelt and humorous episode, Jenna and RuthAnn explore the healing power of laughter in the face of life’s toughest challenges. Jenna opens up about finding humor during her divorce, while RuthAnn shares how laughter kept her grounded while caring for her husband who lived with cancer for over 25 years. Both women discuss how laughter can be a powerful coping mechanism, offering catharsis and perspective when life feels overwhelming. Tune in for personal stories, plenty of laughs, and a reminder that sometimes, a good chuckle is exactly what we need to lighten the load. 

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ABOUT THIS SHOW

Welcome to “For Those Who Care”. Hosted by RuthAnn, who spent 25 years caring for her husband, Lance, a disabled U.S. Navy Veteran living with two rare blood cancers and early onset dementia, this podcast was created for caregivers and those who support them. Gain valuable insights and a deeper understanding of the caregiver’s life through honest conversations, personal stories, and interviews with caregivers and experts. RuthAnn and her guests explore the challenges, joys, and often overlooked moments of caregiving. Whether you are a caregiver yourself or someone who wants to better understand and support the caregivers in your life, this podcast offers insight, encouragement, and community. Join us to connect, listen, and find strength in the caregiving experience.

HOSTED BY

RuthAnn Batchelder

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