HypoPara Unscripted

In this episode of Hypopara Unscripted, Patty welcomes a cast of characters; three inspiring women who share how hypoparathyroidism brought them together and changed their lives forever.  If you have ever felt alone in your diagnosis, this episode is a reminder that through the power of friendship and connection you are not. From shocking diagnoses to a true sisterhood; Liz, Chrissy, and Lisa’s bond, love and support of each other have countered their worries, fears and challenges of living with this difficult and rare condition.  Indulge in this uplifting conversation about togetherness, hope and remembering that in order to make the most of life, you may sometimes need to ‘pivot’! To reach Patty for questions and comments you are welcome to email: [email protected]

In this second episode of HypoPara Unscripted, Patty talks with expert Dr. Rubin about all things hypopara. From the “SHINE” study (a research history examination of participating hypopara patients), to the real-life challenges patients live with every day, Dr. Rubin explains the effects hypopara has on bone health, brain fog, fatigue, and cognitive function. Join Patty and Dr. Rubin as she encourages self advocacy, explains how patients sometimes just don't "feel right” even though lab results look “normal” and she shares the quality of life potential with PTH based therapies. Dr. Rubin’s insight and compassion blended with Patty’s profound patient perspective offers hope, validation and a deeper understanding of what it truly means to live with hypoparathyroidism. To get in touch with Patty Keating, Executive Director of the Hypoparathyroidism Association, please email her at [email protected] 

In this premiere episode of HypoPara Unscripted, your host Patty Keating, Executive Director of the Hypoparathyroidism Association as well as a post-surgical hypopara patient herself, talks with world-renowned endocrinologist Dr. Michael Mannstadt. Together, they uncover how hypoparathyroidism care has evolved, the breakthroughs in genetics, PTH therapy improvements and why validation and respect mean so much to hypopara patients. This honest, hopeful and compelling first episode of Hypopara Unscripted represents a true triumph for those living with hypoparathyroidism and their providers!