Hypospadias Conversations

This episode of Hypospadias Conversations is the conclusion of the discussion that co-hosts John and Bonnie had with Lillian Hayes, Ph.D., Jackie L. Papadakis, Ph.D., Jennifer Hansen Moore, Ph.D. and Jeffrey S. Garofano, Ph.D.—all four are psychologists from leading children’s hospitals. The episode topics centered on the what parents can do to normalize the medical experience their sons will face throughout their lives and help him independently address his medical care as he grows into a young man. The psychologists emphasize that helping young boys feel confident and in control during discussions and doctor visits are key. Helping Young Men Overcome Medical Anxiety and Shame Around Hypospadias CareOverviewA panel of four pediatric psychologists discuss practical strategies for parents to help children and teens with hypospadias navigate doctor appointments without shame, while gradually building their autonomy and self-advocacy skills.Key Points· Normalize the medical experience — Frame urology visits as routine care, not something shameful or secret. Use calm, simple language about why exams matter for healthy growth.· Give control to reduce anxiety — Let patients choose appointment times, which parent attends, who stays in the room, and even small preferences like "no talking during the exam." Anxiety stems from perceived lack of control.· Prepare and predict — Explain what will happen days ahead: Will there be a physical exam? Blood draws? What order will things happen? Demystifying reduces fear.· Gradual independence — Center even young children in conversations with doctors. By middle school, kids can lead parts of visits. Parents should explicitly state the goal: you will eventually own your medical care.· Reinforce brave behavior — Pair difficult appointments with rewards (favorite meal, treat). This builds positive associations and motivation.· Let the child lead disclosure — Offer information when asked, but don't force conversations. Focus on cultivating their whole identity so hypospadias doesn't dominate their self-concept. Action Items for Parents:· Ask your child's urology team if a pediatric psychologist is available; advocate for one if not· Practice "exposure" by talking through what appointments entail before they happen· Create a brief, age-appropriate script for explaining hypospadias to your child· Identify one small choice your child can make about their next appointment· Step out of the room for 5 minutes during teen visits to give private doctor time Resources Mentioned:· Society of Pediatric Psychology urology special interest group (33 members and growing)· Hypospadias and Epispadias Association· Hypospadias UK Trust· MyHypeLife.org — video stories by and for the community· Sex therapists and medical-institution psychologists for adult support

This episode of Hypospadias Conversations is a continuation of the discussion that co-hosts John and Bonnie had with Lillian Hayes, Ph.D., Jackie L. Papadakis, Ph.D., Jennifer Hansen Moore, Ph.D. and Jeffrey S. Garofano, Ph.D.—all four are psychologists from leading children’s hospitals. The episode topics centered on the emotional and social challenges that boys and men with hypospadias may face, especially around teasing, privacy, relationships, and self-esteem. The psychologists emphasize that preparation, open communication, and confidence-building are key.

This episode of Hypospadias Conversations brings together pediatric psychologists from leading children’s hospitals to discuss the emotional, developmental, and relationship aspects of living with hypospadias. Co-hosts John and Bonnie speak with four psychologists: Lillian Hayes, Ph.D., Jackie L. Papadakis, Ph.D., Jennifer Hansen Moore, Ph.D. and Jeffrey S. Garofano, Ph.D. The conversation focuses on how parents can support children from infancy through adulthood, how shame and anxiety develop, and how openness, self-understanding, and supportive relationships can improve long-term emotional wellbeing.

In this exclusive episode of Hypospadias Conversations, co-hosts John and Bonnie speak with five leading urologic surgeons: Vinaya Bhatia, MD; Lauren Corona, MD; Pankaj Dangle, MD, MCh, FAAP; Christopher Long, MD and Hadley Wood, MD. In episode four of this four part series, topics include: the doctors travels around the globe to perform hypospadias surgeries while educating local doctors at the same time; Dr. Corona and Dr. Bhatia talk about research and funding; and Dr. Bhatia shares details about the long-term care planning tool she’s been working on, and more.

In this exclusive episode of Hypospadias Conversations, co-hosts John and Bonnie speak with five leading urologic surgeons: Vinaya Bhatia, MD; Lauren Corona, MD; Pankaj Dangle, MD, MCh, FAAP; Christopher Long, MD and Hadley Wood, MD. In episode three of this four part series, topics include: the continued discussion of what a successful hypospadias repair is, the importance of hypospadiologists being forthcoming about their complication rates, what spouses or partners should know about hypospadias, complications in those boys and men who never had hypospadias repair surgery, and more.

In this exclusive episode of Hypospadias Conversations, co-hosts John and Bonnie speak with five leading urologic surgeons: Vinaya Bhatia, MD; Lauren Corona, MD; Pankaj Dangle, MD, MCh, FAAP; Christopher Long, MD and Hadley Wood, MD. In episode two of this four part series, topics include: a boy’s right to know he had hypospadias repair surgery as a baby, the psychology assistance program at CHOP (Children’s Hospital of Philadelphia), when hypospadias repair surgery is the correct intervention for a pediatric or adult patient, what does the surgeon consider to be a successful hypospadias repair, and more.

In this exclusive episode of Hypospadias Conversations, co-hosts John and Bonnie speak with five leading urologic surgeons: Vinaya Bhatia, MD; Lauren Corona, MD; Pankaj Dangle, MD, MCh, FAAP; Christopher Long, MD and Hadley Wood, MD. In episode one of this four part series, topics include: issues regarding hypospadias treatment today, what parents should know when their child is diagnosed with hypospadias, what do you need to know when your son is aging out of pediatric care, and more.

Co-hosts Bonnie and John conclude their conversation in part four of the special multi-part series of Hypospadias Conversations featuring Dr. Hazem Mosa, Senior Fellow in Pediatric Urology. In this segment, Dr. Mosa discusses common emotions and concerns of parents upon learning of their child's hypospadias diagnosis, the resiliency of men with hypospadias, what closure looks like for families affected by hypospadias, and how to make hypospadias surgery less traumatic.

Co-hosts Bonnie and John sit down for part 2 of our ongoing discussion with Advocate Jim Lake to go into further depth about surgical reversal options that may be available for those who have had Hypospadias repair surgeries in the past.

Co-hosts Bonnie and John sit down for part 2 of our ongoing discussion with Ashley, to discuss her son’s 16th Hypospadias repair surgery, months prior, to find out how he’s doing now.

Co-hosts Bonne and John continue their conversation in part three of the special multi-part series of Hypospadias Conversations featuring Dr. Hazem Mosa, Senior Fellow in Pediatric Urology. In this segment, Dr. Mosa discusses the roles of mothers and fathers in supporting their child with hypospadias surgery and doctor appointments; how patients are bridging the gap between pediatric and adult doctors; as well as the impact of chordee on sexual and urinary health—and how this curvature of the penis impacts repairs and the decision to have hypospadias surgery in general.

Part 2 of the special multi-part series of Hypospadias Conversations featuring Dr. Hazem Mosa, Senior Fellow in Pediatric Urology. In this segment, Dr. Mosa discusses National health care systems of different countries, what constitutes a complication in hypospadias surgery, what does success look like in hypospadias surgery, and the long-term emotional effects that hypospadias surgery can have on men, among other topics.

In the first segment of this special multi-part series, hosts John and Bonnie speak with Dr. Hazem Mosa to discuss the complex process of informed consent for families deciding on hypospadias repair surgery, “the elephant in the room”, co-morbidities with hypospadias and resources for parents. Dr. Mosa is a senior fellow who trained in pediatric surgery in Alexandria University, Egypt and trained in pediatric urology at Guy’s and St. Thomas’ Hospital and Great Ormond Street Hospital for Children in London, England. He currently works in Cambridge University Hospital. His research focuses on hypospadias surgery complications, informed consent and parental decision making in hypospadias surgery.

Co-hosts Bonnie and John sit down with Ashley, a mother whose adult son was born with penoscrotal hypospadias with chordee. Ashley shares their journey through his 16 surgeries, the emotional impact for their family, and how they’ve coped and remained resilient throughout it all.

Co-hosts Bonnie and John discuss self-esteem and growing up with hypospadias with Tom, a man from the UK who was born with hypospadias and other co-morbidities. Tom discusses his journey from not talking about his hypospadias to becoming comfortable with his body enough to become an outspoken advocate about the condition.

In this episode, hosts Bonnie and John talk with Jim Lake who discusses being born with penoscrotal hypospadias, the numerous surgeries he’s had over his lifetime, and how he’s overcome the shame and secrecy he experienced.

Bonnie interviews Arlene Baratz M.D., a retired physician and mother of a family affected by complete androgen insensitivity syndrome (CAIS). She is a long-time educator, advocate and author in the field of intersex/variations of sex development.

Bonnie and John welcome renowned historian Alice Dreger, Ph.D. to Hypospadias Conversations to discuss the ethical considerations behind hypospadias repair surgery. Alice Dreger is a bioethicist, writer, historian, journalist and former professor of clinical medical humanities and bioethics at the Feinberg School of Medicine, Northwestern U. in Chicago, IL. Her TEDx lecture has been viewed over a million times. Learn more about Alice at her website alicedreger.com.

Hosts Bonnie and John discuss some of the issues related to parenting a child with hypospadias, with special guest, Diane (John’s mom).

General issues that may be faced by those who are born with the congenital urological birth defect Hypospadias are discussed by the hosts.

Get a sneak peek at the Hypospadias Conversations podcast. Hear soundbites from hosts John and Bonnie along with hypospadias community advocates Alice Dreger, PhD, Arlene Baratz MD and Jim Lake, former executive director of the Hypospadias & Epispadias Association..