PODCAST · health
Invisibility By Ciardha
by Kimberley Hepburn
Join us to learn more about those disabilities/disorders that are 'invisible' to the naked eye. Some includes mental health conditions, chronic pain conditions and many more.
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Beyond the binge-purge: The Reality of Bulimia
Bulimia Nervosa, or simply bulimia, is a serious mental health condition characterized by recurring episodes of binge eating (consuming large amounts of food in a short period, often out of control). Followed y compensatory behaviours life self-induced vomiting, excessive exercise, fasting, or misuseof laxatives, to try to 'undo' the binge.Health Risks exists with bulimia; such as electrolyte imbalance, gastrointestinal issues like acid reflux, stomach rupture or chronic sore throat, dental problems, swollen salivary glands, irregular menstrual cycles and often deep emotional distress, depression and anxiety.Bulimia affects about 1-2% of the population but could be more due to underreporting. It commonly begins in late teens to early adultood to all genders. MAny appear to be in 'normal' or higher weight range leading doctors and loved ones to miss the signs.Binging may be used to numb feelings; purging becomes the attempt to regain control. Bulimia can be difficult to spot but has a few signs like disappearing after meals, evidence of purging like frequent bathroom visits, wrappers and laxatives.Cognitive Behavoural Therapy (CBT) to break the binge-purge cycle and address underlying thoughts, nutritional counseling, medication, therapy and monitoring are treatment types that can lead to recovery. It happens one step at a time, not overnight.Speaking up saves lives. Here are a few who’ve shared their stories: Demi Lovato, singer and activist, has talked openly about living with bulimia, addiction, and the journey to self-acceptance.Russell Brand revealed he struggled with bulimia as a teen-breaking stigma for men.Paula Abdul opened up about her long battle with the disorder, breaking ground in the entertainment world.Lady Gaga has spoken about struggling with both anorexia and bulimia, advocating for mental health support.Mental health challenges are real and support is available through the Ministry of Health and Wellness and local non-Governmental Organisations (NGOs).Mental Health & Suicide Prevention Helpline: Call 888-NEW-LIFE (888-639-5433). This is a national 24-hour service provided by the Ministry of Health and Wellness.U-Matter (Youth Support): A messaging-based chatline for young people. Text 876-838-4897 via WhatsApp or SMS.SafeSpot (Child/Teen Hotline): Call 888-723-3776 or WhatsApp 876-439-5199. This is a dedicated multi-sectoral helpline for children and adolescents. U-Matter Chatline: This is a messaging-based chatline for youth in partnership with the Ministry of Health and Wellness. You can reach them via WhatsApp at (876)838-4897.Emergency Services: For urgent physical safety or medical emergencies, call 119.Child Protection and Family Services Agency (CPFSA) Hotline: This hotline provides mental health and emotional support for children and adolescents and operates 24/7. Contact them at (876) 9223826.Thank you for joinging me on this episode of Invisibility by Ciardha Remember, Invisible no more. Open Eyes, Open Minds. See you next time!!#EatingDisorderAwareness#EDAwareness #EatingDisorderRecovery #EDEducation #MentalHealthMatters#UnderstandingED #BodyNeutrality#DietCultureDropout #IntuitiveEating#AllBodiesAreGoodBodies #FoodFreedom #EDRecoveryCommunity#NEDA (National Eating DisordersAssociation) #RecoveryIsPossible #SupportNotStigma #HealingJourney #BoysGetEDsToo
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Anorexia: More than just a diet
TRIGGER WARNINGAnorexia Nervosa is a serious mental illness characterized by:Extreme restriction of food intake.An intense fear of gaining weight, even when underweight.A distorted body image, where someone sees themselves as larger thanthey are.Anorexia is not a choice. Recovery from anorexia is possible—but it takes time, support, and often a team approach.Treatment may include:Psychotherapy – Especially Cognitive Behavioural Therapy (CBT), Family-Based Therapy (FBT), or Dialectical Behaviour Therapy (DBT)Nutritional rehabilitation – Helping the body and brain recover from malnutritionMedical monitoring – Tomanage physical health and risk factorsMedication – Sometimesused for co-occurring anxiety or depressionInpatient or residential treatment – For more severe or life-threatening casesiF someone you love is struggling:Don’t comment on their weight or food. Even compliments can be triggering.Avoid praise for weight loss. You never know what’s behind it.Be patient, not pushy.Recovery is hard, and resistance is part of the illness.Listen, validate, and encourage treatment. Offer to go with them or help find support.Say things like:“I’m worried about you, and I care.”“You don’t have to go through this alone.”“You’re more than your body.”You might not fix it—but your presence can make all the difference.Celebrities Who’ve Shared Their Stories Lily Collins portrayed an anorexia survivor in To the Bone and shared her own experience with the illness.Demi Lovato has spoken candidly about her struggles with eating disorders and recovery.Karen Carpenter, a legendary singer, tragically passed away from complications related to anorexia—bringing much-needed attention to the illness.These stories remind us that fame, success, and beauty don’t protect us from mental illness. And no one is immune to the painAnorexia is not a diet.It’s not about food.It’s a devastating mental illness—and a cry for help.If you’re struggling, or someone you know is, please remember:You are not alone. You are not broken. You are not beyond help.Recovery isn’t easy—but it is worth it. And you are worth it.Mental health challenges are real and support is available through the Ministry of Health and Wellness and local non-Governmental Organisations (NGOs).Mental Health & Suicide Prevention Helpline: Call 888-NEW-LIFE (888-639-5433). This is a national 24-hour service provided by the Ministry of Health and Wellness.U-Matter (Youth Support): A messaging-based chatline for young people. Text 876-838-4897 via WhatsApp or SMS.SafeSpot (Child/Teen Hotline): Call 888-723-3776 or WhatsApp 876-439-5199. This is a dedicated multi-sectoral helpline for children and adolescents. U-Matter Chatline: This is a messaging-based chatline for youth in partnership with the Ministry of Health and Wellness. You can reach them via WhatsApp at (876)838-4897.Emergency Services: For urgent physical safety or medical emergencies, call 119.Child Protection and Family Services Agency (CPFSA) Hotline: This hotline provides mental health and emotional support for children and adolescents and operates 24/7. Contact them at (876) 9223826.Thank you for joinging me on this episode of Invisibility by Ciardha Remember, Invisible no more. Open Eyes, Open Minds. See you next time!!#EatingDisorderAwareness#EDAwareness #EatingDisorderRecovery #EDEducation #MentalHealthMatters#UnderstandingED #BodyNeutrality#DietCultureDropout #IntuitiveEating#AllBodiesAreGoodBodies #FoodFreedom #EDRecoveryCommunity#NEDA (National Eating DisordersAssociation) #RecoveryIsPossible #SupportNotStigma #HealingJourney #BoysGetEDsTooMusic track: Coming Of Age by HazelwoodSource: https://freetouse.com/musicNo Copyright Vlog Music for Videos
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Introduction to Eating Disorders: More than just food
Trigger Warning (TW)Eating disorders are very serious, complex mental health conditions that involve disordered thoughts and behaviours around food, body image, and weight.Treatment and Recovery Theray: CBT, DBT, FBTMedical MonitoringNutritional counselingMedication to address underlying conditions such as anxiety and depression.Support group or peer recovery communitiesIf someone you care about is struggling: Listen without being judgemental Avoid commenting on their ppearance, food or weight- even compliments can be triggering.Encouraging professional helpBe patient-it's not about "just eating more" or "snapping out of it"Let them know they are worthy and loved exactly as they are. Even just saying “I see you. I’m here for you” can be powerful.Mental health challenges are real and support is available through the Ministry of Health and Wellness and local non-Governmental Organisations (NGOs).Mental Health & Suicide Prevention Helpline: Call 888-NEW-LIFE (888-639-5433). This is a national 24-hour service provided by the Ministry of Health and Wellness.U-Matter (Youth Support): A messaging-based chatline for young people. Text 876-838-4897 via WhatsApp or SMS.SafeSpot (Child/Teen Hotline): Call 888-723-3776 or WhatsApp 876-439-5199. This is a dedicated multi-sectoral helpline for children and adolescents. U-Matter Chatline: This is a messaging-based chatline for youth in partnership with the Ministry of Health and Wellness. You can reach them via WhatsApp at (876)838-4897.Emergency Services: For urgent physical safety or medical emergencies, call 119.Child Protection and Family Services Agency (CPFSA) Hotline: This hotline provides mental health and emotional support for children and adolescents and operates 24/7. Contact them at (876) 9223826.Thank you for joining me on this episode of Invisibility by Ciardha. Remember, Invisible no more. Open Eyes, Open Minds. See you next time!!#EatingDisorderAwareness#EDAwareness #EatingDisorderRecovery #EDEducation #MentalHealthMatters#UnderstandingED #BodyNeutrality#DietCultureDropout #IntuitiveEating#AllBodiesAreGoodBodies #FoodFreedom #EDRecoveryCommunity#NEDA (National Eating DisordersAssociation) #RecoveryIsPossible #SupportNotStigma #HealingJourney #BoysGetEDsToo Music track: Cinematic by AylexSource: https://freetouse.com/musicNo Copyright Background Music
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Seasonal Affective Disorder: Riding the seasonal rollercoaster
In this episode, we dive into Seasonal Affective Disore (S.A.D), a type pf depression that maps to the seasons. WHile often called "winter depression," it affects millions globally through changes in energy, mood, and sleep. Celebrities who have opened up about SAD include:Adele, who said the British winters triggered "really bad" seasonal depression.Ryan Reynolds, who spoke candidly about his mental health journey, noting that the grey, dark winters in his native Vancouver affected his mood and energy.Rosie O'Donnell, she is an early advocate for SAD awareness, she has demonstrated 'inversion therapy' and light box usage on her shows to manage symptoms.Natalie Imbruglia, the singer has shared her experiences with seasonal shifts, highlighting that SAD can affect anyone regardless of their creative successWhile Jamaica is known for its sunshine, mental health challenges are real and support is available through the Ministry of Health and Wellness and local non-Governmental Organisations (NGOs).Mental Health & Suicide Prevention Helpline: Call 888-NEW-LIFE (888-639-5433). This is a national 24-hour service provided by the Ministry of Health and Wellness.U-Matter (Youth Support): A messaging-based chatline for young people. Text 876-838-4897 via WhatsApp or SMS.SafeSpot (Child/Teen Hotline): Call 888-723-3776 or WhatsApp 876-439-5199. This is a dedicated multi-sectoral helpline for children and adolescents. U-Matter Chatline: This is a messaging-based chatline for youth in partnership with the Ministry of Health and Wellness. You can reach them via WhatsApp at (876)838-4897.Emergency Services: For urgent physical safety or medical emergencies, call 119.Child Protection and Family Services Agency (CPFSA) Hotline: This hotline provides mental health and emotional support for children and adolescents and operates 24/7. Contact them at (876) 9223826.Thank you for joinging me on this episode of Invisibility by Ciardha Remember, Invisible no more. Open Eyes, Open Minds. See you next time!!
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Postpartum Depression
If someone you love is struggling after childbirth, here’s how to support them:Don’t say “but the baby’s healthy!” That invalidates their experience.Ask, don’t assume – “How are you really feeling?”Take action – Cook a meal. Hold the baby while they shower. Text just to check in.Encourage professional help – Offer to help find a therapist or go with them.Watch for warning signs – If they talk about not wanting to live, or seem disconnected, get help immediately.Support can be life-saving. Don’t wait for them to ask—because they may be too deep in it to reach out.You’re Not Alone – Celebrities Who’ve Spoken OutChrissy Teigen wrote openly about her PPD, saying she didn’t think she could love her baby the way she was “supposed to.”Brooke Shields broke barriers when she publicly discussed her postpartum experience in the early 2000s.Adele, in interviews, has talked about her postpartum anxiety and the shame that came with it.Serena Williams spoke about the emotional struggles after a traumatic birth.Their stories remind us: this can happen to anyone. And healing is possible.Support is availableJamaica Mental Health and Suicide Prevention HelplineThis is a 24/7 service available to everyone in Jamaica. You can reach them by calling (888) 639-5433 or 888-NEW-LIFE.This helpline is provided by the Ministry of Health and Wellness and offers mental health support over the phone. SafeSpot: This is Jamaica's national child and teen helpline, operated by the Office of the Children's Advocate. They offer confidential counselling for children and teens 24/7. You can contact them via:Phone: (888) 723-3776or888-SAFE-SPOT Text: (876) 439-5199 Snapchat: @safespotjaInstagram: @safespotja U-Matter Chatline: This is a messaging-based chatline for youth inpartnership with the Ministry of Health and Wellness. You can reach them via WhatsApp at (876) 838-4897. Ministry of Health & Wellness Mental HealthToll-FreeHelpline: You can also call (888) 663-5683 or 888-ONE-LOVEfor mental health support.Child Protection and Family Services Agency (CPFSA)Hotline:This hotline, at (876) 922-3826, provides mental health and emotional support for children and adolescents and operates 24/7.Emergency Line: In case of an immediate crisis, you can call 119, which is the national emergency number for police, fire, and medical assistance, includingmental health emergencies.Thank you for joining me on Invisibility by Ciardha. Invisible no more; open eyes, open minds.
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Major Depressive Disorder
Living in the shadows of Major Depressive Disorder can feel incredibly isolating, but it doesn't have to be a life sentence. By opening our eyes and our minds, by fosteringunderstanding and support, we can begin to dismantle the stigma and bring these experiences into the light. We can help individuals feel seen, heard, and ultimately, less invisible.If someone you love is struggling:Don't push toxic positivity. Instead of 'just cheer up'. Try 'I'm here for you, even on the low days.'Be consistent. Reach out regularly, even if they don't always respond.Encourage treatment without judgment. Offer to help find a therapist or go with them to appointments.Listen-really listen- without needing to 'fix' them. Sometimes the best thing you can say, “You’re not a burden. I’m not going anywhere.”Focus on their strengths: Notice and acknowledge what they are doing well. Set small, realistic goalstogether.Encourage social connection: Helpthem stay connected with friends and family, even if they withdraw at times. Lonliness can worsen symptoms.Reduce stress: Help create a calm and structured environment, as stress can trigger or worsen symtoms.CAREGIVERS REMEMBER TO TAKE CARE OF YOURSELF!!Set boundaries: Recognise your own limits and don't try to do everything. Your well-being is also important.Seek Support for yourself: Consider joining a support group for families of people with mental illness. Sharing experiences and coping strategies with others in similar situations can be incredibly helpful.Talk to a therapist or counsellor: Processing your own feelings and experiences can help you better support your loved one.Here’s the truth—stigma kills. It keeps people from seeking help. It isolates. It silences. Helplines and Hotlines:Jamaica Mental Health and Suicide Prevention HelplineThis is a 24/7 service available to everyone in Jamaica. You can reach them by calling (888) 639-5433 or 888-NEW-LIFE. This helpline is provided by the Ministry of Health and Wellness and offers mental health support over the phone. SafeSpot: This is Jamaica's national child and teen helpline, operated by the Office of the Children's Advocate. THey offer confidential counselling for children and teens 24/7. You can contact them via:Phone: (888) 723-3776 or888-SAFE-SPOT Text: (876) 439-5199 Snapchat: @safespotjaInstagram: @safespotja U-Matter Chatline: This is a messaging-based chatline for youth inpartnership with the Ministry of Health and Wellness. You can reach them via WhatsApp at (876) 838-4897. Ministry of Health & Wellness Mental HealthToll-Free Helpline: You can also call (888) 663-5683 or 888-ONE-LOVE for mental health support.Child Protection and Family Services Agency (CPFSA)Hotline:This hotline, at (876) 922-3826, provides mental health and emotional support for children and adolescents and operates 24/7.Emergency Line: In case of an immediate crisis, you can call 119, which is the national emergency number for police, fire, and medical assistance, includingmental health emergencies.Thank you for joining me on Invisibility by Ciardha. Remember our motto: Invisible no more; open eyes, open minds. Let's continue to have these important conversations.
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SCHIZOPHRENIA: bEyOnD ThE STeReOTYpEs
Jamaica Mental Health and Suicide Prevention Helpline: This is a 24/7 service available to everyone in Jamaica. You can reach them by calling (888) 639-5433 or 888-NEW-LIFE. This helpline is provided by the Ministry of Health and Wellness and offers mental health support over the phone.SafeSpot: This is Jamaica's national child and teen helpline, operated by the Office of the Children's Advocate. They offer confidential counseling for children and teens 24/7. You can contact them via: Phone: (888) 723-3776 or 888-SAFE-SPOT Text: (876) 439-5199 Snapchat: @safespotjaInstagram:@safespotja U-Matter Chatline: This is a messaging-based chatline for youth in partnership with the Ministry of Health and Wellness. You can reach them via WhatsApp at (876) 838-4897. Ministry of Health & Wellness Mental Health Toll-Free Helpline: You can also call (888) 663-5683 or 888-ONE-LOVE for mental health support.Child Protection and Family Services Agency (CPFSA) Hotline: This hotline, at (876) 922-3826, provides mental health and emotional support for children and adolescents and operates 24/7.RISE Life Management Services: This organization offers mental health support and can be reached at (876) 967-3777-8 or toll-free at 888-991-4146. Important Considerations:Suicidal thoughts can affect anyone, and it's important to remember that things can get better with support. Reaching out to a crisis counselor can provide a safe space to talk and help you see that there are other options. Jamaica is working to break down the stigma associated with mental health and encourage open conversations.
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Depression: More than just feeling sad
Jamaica Mental Health and Suicide Prevention Helpline: This is a 24/7 service available to everyone in Jamaica. You can reach them by calling (888) 639-5433 or 888-NEW-LIFE. This helpline is provided by the Ministry of Health and Wellness and offers mental health support over the phone.SafeSpot: This is Jamaica's national child and teen helpline, operated by the Office of the Children's Advocate. They offer confidential counseling for children and teens 24/7. You can contact them via: Phone: (888) 723-3776 or 888-SAFE-SPOT Text: (876) 439-5199 Snapchat: @safespotjaInstagram:@safespotja U-Matter Chatline: This is a messaging-based chatline for youth in partnership with the Ministry of Health and Wellness. You can reach them via WhatsApp at (876) 838-4897. Ministry of Health & Wellness Mental Health Toll-Free Helpline: You can also call (888) 663-5683 or 888-ONE-LOVE for mental health support.Child Protection and Family Services Agency (CPFSA) Hotline: This hotline, at (876) 922-3826, provides mental health and emotional support for children and adolescents and operates 24/7.RISE Life Management Services: This organization offers mental health support and can be reached at (876) 967-3777-8 or toll-free at 888-991-4146. Important Considerations:Suicidal thoughts can affect anyone, and it's important to remember that things can get better with support. Reaching out to a crisis counselor can provide a safe space to talk and help you see that there are other options. Jamaica is working to break down the stigma associated with mental health and encourage open conversations.
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Mental Health and You
KEY FACTS TAKEN FROM WHOAffordable, effective and feasible strategies exist to promote, protect and restore mentalhealth.·The need for action on mental health is indisputable and urgent.Mental health has intrinsic and instrumental value and is integral to our well-being.·Mental health is determined by a complex interplay of individual, social and structural stressesand vulnerabilities.""Mental health is a state of mental well-being that enables people to cope with the stresses of life, realize their abilities, learn well and work well, and contribute to their community"If you or anyone you know, are struggling today or need someone to talk to about your or someone else's mental health, contact the Jamaica Mental Health and Suicide Prevention Helpline at (888)639-5433.
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Season Two Introduction: Mental Health and You
"Invisibility by Ciardha" returns for its second season, diving deep into the often-unseen landscape of mental health. This season, Ciardha shifts the focus from broad societal perspectives to the deeply personal journey of understanding and nurturing your own mental well-being.In a world that often prioritizes external achievements and relentless productivity, we're invited to explore the inner world – the emotions, thoughts, and experiences that shape our daily lives. Kimberley, with compassion and curiosity, guides listeners through crucial conversations about self-awareness, resilience, and the power of vulnerability.This season tackles questions like: What does genuine mental wellness look like? How can we navigate the complexities of stress, anxiety, and self-doubt? And, most importantly, how can we cultivate a sense of inner peace and connection in a world that often feels isolating?Through insightful interviews, personal reflections, and practical tools, "Mental Health and You" aims to dismantle the stigma surrounding mental health and empower listeners to prioritize their own well-being. Kimberley creates a safe and supportive space for open dialogue, reminding us that vulnerability is a strength and that seeking support is a sign of courage.Join Kimberley as we illuminate the often-invisible aspects of mental health and embark on a journey of self-discovery, healing, and empowerment. Because your mental health matters, and you are far from invisible.
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Myofascial Pain Disorder
Myofascial pain syndrome is a long-term pain condition. It involves some muscles and the thin cover of tissue that holds muscles in place, called fascia. Pressure on these areas, called trigger points, causes pain.This syndrome can happen after a muscle has been tensed over and over. Repeated motions used in jobs or hobbies can be the cause. So can stress-related muscle tension, poor posture and weak muscles. In some cases, the cause of myofascial pain is unknown.The pain of myofascial pain syndrome doesn't go away. Treatment options include exercise, massage, physical therapy and shots in the trigger points. Pain medicines and finding ways to relax also can help. According to available data, experts estimate that up to 85% of the general population may experience myofascial pain syndrome at some point in their lives, making it a very common condition. A significant portion of patients visiting pain clinics are diagnosed with myofascial pain syndrome. Follow us on Instagram https://www.instagram.com/_invisibility_by_ciardha_/ Facebook https://www.facebook.com/profile.php?id=100095151392397 Contact us email: [email protected] WhatsApp: +1(876)4652274 "Invisible No More: Open eyes, open minds" See yah, next time!
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Rheumatoid Arthritis
"Rheumatoid arthritis (RA) is a chronic disease that causes inflammation around the body and commonly presents with pain in the joints.Untreated, RA can cause severe damage to the joints and their surrounding tissue. It can lead to heart, lung or nervous system problems.Common symptoms include chronic pain, stiffness, tenderness, heat and swelling in the joints. RA can make it hard to move and perform daily activities.The causes of rheumatoid arthritis are unknown. Risk factors include smoking, obesity and exposure to air pollution. Women and older people have a higher risk of developing RA."-WHOFacebook Support groups include; Rheumatoid Arthritis Group, National Rheumatoid Arthritis Society (NRAS) (also have a help line)In the Caribbean, The Caribbean Asocciation of Rheumatology in St. Lucia and they will be in Nassau, Bahamas from May 2-4, 2025. Registration open online at https://caribrheum.org/conferences/caribbean-rheumatology-conference-2025Arthritis Foundations in many countries also exist.Follow us on Instagram https://www.instagram.com/_invisibility_by_ciardha_/ Facebook https://www.facebook.com/profile.php?id=100095151392397 Contact us email: [email protected] WhatsApp: +1(876)4652274 "Invisible No More: Open eyes, open minds" See yah, next time!
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Osteoarthritis: A Silent Epidemic
Support from a variety of source exists including health care providers, support groups, and assistive devices.Online groupsOsteoarthritis Online Support Group: A private Facebook group for people with OA My Knee Community: An online peer-to-peer support group with a moderator who posts research and links to resources Local groups Versus Arthritis: Local groups that bring people with arthritis together to share experiences and get support in personPatient advocacy organisations. Osteoarthritis Action Alliance (OAAA): Offers brochures, guides, and fact sheets on OA, as well as a handout with resources and programs for self-care, pain management, and more.Arthritis Foundation Offers support, resources, research, and advocacy for people with arthritis Other resources.CreakyJoints: Helps people find arthritis support groups near them.Wellness Together Canada: Connects Canadians to peer support workers, social workers, and other professionals.Talking to friends and family. You can also talk to friends or family members who have arthritis about your experience.Celebrities with OAGordie Howe: NHL player who was forced to retire in 1971 due to arthritis in his left wrist.Shaquille O'Neal: Basketball star who has had arthritis in his big toe.Dorothy Hamill: Figure skater who has osteoarthritis of the hips, knees, and neck.Robbie Coltrane: The actor who played Hagrid in the Harry Potter movies has severe osteoarthritis in one of his knees. Jennie Garth: The actress was diagnosed with osteoarthritis at age 47. She first noticed stiffness and aching in her hips. Follow us on Instagram, Facebook, email us at [email protected] Invisible no more: Open eyes,open minds!See you next time
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Complex Regional Pain Syndrome
Complex Regional Pain Syndrome (CRPS) Is poorly understood. CRPS is one of the highest pain & inflammatory diseases known carrying a 42/50 in the McGill pain scale. CRPS usually occurs after an injury. There is no simple cure or single treatment recommendations, it requires a multidisciplinary approach to help manage. CRPS has also been described as an “invisible” condition. People diagnosed with CRPS look perfectly healthy on the outside, nevertheless they are suffering from severe, life-altering chronic pain on the inside. The approximate overall incidence rate of CRPS was 26.2 per 100,000 person years with females affected at least three times more often than males. The highest incidence occurred in females aged 61-70 years. For newly diagnosed patients, it was found in research that one-year prior to diagnosis for all CRPS patients spent total costs of $7904 outpatient costs $6706 and pain prescription costs $1862-$7649. At the year of CRPS diagnosis, the median [IQR] costs were significantly higher than the baseline costs with a range of $8508-$16,666; outpatient costs $7251-$13,568; and pain prescription costs $2077-$8856. Over an eight-year period after CRPS diagnosis, costs between all the years ranged from the highest (one-year) to lowest (seven-years), $4845 to $3888. CELEBRITIES WITH CRPS Paula Abdul; American singer and dancer. Former judge on American Idol Constance Marley; half-sister to Reggae singer Robert ‘Bob’ Nesta Marley Barby Ingle; the head spirit program coach at Washington State University Toria Sullivan; collegiate triathlete at Georgetown University George Clooney; American actor Nazair Jones; Seattle Seahawks Maria Cross; American Actress David Beckham; former professional soccer player and international icon Nicole Kidman, American Actress Jo Whiley; British Radio DJ and television presenter Soumitra Chatterjee; a legendary Indian actor SUPPORT/RESOURCES Women & CRPS - cordiscosaile.com/crps-resource-for-women-and-veterans Trial by Fire A film about a rare disease (CRPS) https://youtu.be/B_ocn8Pcsxo?si=GRpCqGV79f33v4Pd The CRPS Warriors Foundation https://hubs.ly/Q01ZYHlt0 International Pain Foundation; https://internationalpain.org/ CRPS UK https://painuk.org/members/charities/crps-uk/ CRPS Facebook Group https://www.facebook.com/groups/2307309606/ The Purple Bucket Foundation https://www.tpbf.org.au/ London Pain Clinic https://www.londonpainclinic.com/complex-regional-pain-syndrome/living-with-complex-regional-pain-syndrome-a-guide-for-friends-and-family/ Chronic Regional Pain Syndrome there is nothing to be seen, apart from sometimes goose bumps or swelling. Remember, CRPS is a enfeeble and difficult condition so for those supporting someone with CRPS make sure that they talk to their friends and family as well, to express their emotions and fears, so that they can be more equipped to support the person with CRPS, even when it can be a very hard task at times. Follow us on Instagram https://www.instagram.com/_invisibility_by_ciardha_/ Facebook https://www.facebook.com/profile.php?id=100095151392397 Contact us email: [email protected] [email protected] WhatsApp: +1(876)4652274 "Invisible No More: Open eyes, open minds" See yah, next time!
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Diabetic Neuropathy
Diabetic neuropathy is a type of nerve damage that can occur if you have diabetes. High blood sugar (glucose) can injure nerves throughout the body. Diabetic neuropathy most often damages nerves in the legs and feet. Diabetic neuropathy is a profoundly serious complication of diabetes that may affect up to 50% of people with diabetes. Slow its progress with consistent blood sugar management and a healthy lifestyle. There are different types of neuropathies based on the nerve that is involved: Peripheral neuropathy (very common) is a type of nerve damage that usually affects the feet and legs and sometimes affects the hands and arms. About one-third to one-half of people with diabetes have peripheral neuropathy. Autonomic neuropathy is damage to nerves that control your internal organs, leading to problems with your heart rate and blood pressure, digestive system, bladder, sex organs, sweat glands, and eyes. The damage can also lead to hypoglycaemia unawareness. Focal neuropathies are conditions in which you typically have damage to single nerves, most often in your hand, head, torso, or leg. The most common types of focal neuropathy are entrapment syndromes, such as carpal tunnel syndrome. Other types of focal neuropathy are much less common. Proximal neuropathy is a rare and disabling type of nerve damage in your hip, buttock, or thigh. The damage typically affects one side of your body and may rarely spread to the other side. Symptoms gradually improve over a period of months or years. SUPPORT GROUPS The Foundation for Peripheral Neuropathy www.foundationforpn.org/support/support-groups Peripheral Neuropathy Resources Online Support Group www.peripheralneuropathyresources.com Peripheral Neuropathy Success Stories (Private Facebook Group) Peripheral Neuropathy Resources (Facebook Group) Neuropathy Care Support Group (Facebook Group) Our Neuropathy Friends (Facebook Group) Our Neuropathy Friends Spouses (Facebook Group) Peripheral Neuropathy Support Network www.pnsnetwork.org On Your Feet (Facebook Group) Western Neuropathy Association Contact: Katherine Stenzel at [email protected] Follow us on Instagram https://www.instagram.com/_invisibility_by_ciardha_/ Facebook https://www.facebook.com/profile.php?id=100095151392397 Contact us Email: [email protected] or [email protected] [email protected] For collaborations email us at [email protected] For corrections email us at [email protected] WhatsApp: +1(876)4652274 "Invisible No More: Open eyes, open minds" See yah, next time!
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Trigeminal Neuralgia
Trigeminal neuralgia (TN), also known as tic douloureux, is a disorder of the fifth cranial nerve (trigeminal nerve). We have two for each side of our face. However, TN affects only one side of the face. Treatment for TN can be very expensive, with a studying showing that it cost USD3900-USD40,000 in the year of 2018 for sufferers in Taiwan. There are several very famous people that suffer openly of this painful condition; *Salman Khan (Bollywood) *Travis Barker (Blink-182 drummer) *Salma Hayek (Desperado) *Marcia Cross (Desperate Housewives) *Kristin Chenoweth (Glee) *George Clooney (ER) *Steve Kerr (Head coach Golden State Warrior) *Joey Kramer (Aerosmith drummer) There are several places that support can be garnered from: Trigeminal Neuralgia Association UK (also on Facebook) www.tna.org.uk Facial Pain Association www.facepain.org www.painuk.org The Brain Charity www.thebraincharity.org.uk Stanford Healthcare www.stanfordhealthcare.org 650-736-0262 The Facial Pain Association www.raredisease.org UCL Health: Trigeminal Neuralgia Association Support Group www.ucihealth.org 714-944-3044 They meet quarterly from 1300-1500 Trigeminal Neuralgia Association of Canada tnac.org>tnac>support-group Follow us on Instagram https://www.instagram.com/_invisibility_by_ciardha_/ Facebook Contact us email: [email protected] WhatsApp: +(876)4652274 "Invisible No More: Open eyes, open minds" See yah, next time!!
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Fibromyalgia
Fibromyalgia sufferers represent over two million people worldwide. It is one of the most misunderstood conditions due to its non-specific symptoms. As sufferers we need support in many ways especially from our friends and family. Never blame us for developing this conditions especially as it gets worse. No, it is not life-threatening but it is life-changing. Treating FMS is also expensive as it not only costs money but manpower where the sufferer misses work frequently. Studies show treatments are more than USD$393.75/annually with an additional USD$2034/annually depending on severity. Did you know there are many celebrities that have came out as having fibromyalgia? "I wish to help raise awareness & connect people who have it," wrote Lady Gaga, (Stefani Germanotta) on Fibromyalgia. Some other celebrities include; Morgan Freeman Mary McDonough Janeane Garofalo Sinéad O'Connor Susan Flannery Florence Nightingale Rosie Hamlin and many more Get more help from the following organizations: The United Kingdom Fibromyalgia Association UK: https://www.fmauk.org/ Fibromates (North West Fibro Support Group) : https://www.facebook.com/fibromates/ United States of America American Chronic Pain Association in California https://www.acpanow.com/ National council on Disability in Washington, DC https://www.ncd.gov Fibromyalgia Coalition International Inc. in Kansas https://www.fibrocoalition.org National Fibromyalgia & Chronic Pain Association in Utah https://www.fmcpaware.org Email- [email protected] FibroFitWarriors https://fibrofitwarriors.com/ Australia MoreGoodDays https://www.moregooddays.com/ Fibromyalgia Australia https://www.painaustralia.org.au Pain Australia https://www.painaustralia.org.au The Australia Prevention Partnership Centre https://www.preventioncentre.org.au Jamaica Jamaica Council for Persons with Disability https://jcpd.gov.jm/ Follow us on Instagram Facebook Contact us email: [email protected] WhatsApp: +1(876)4652274
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