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Pathfinders Podcast - Life and the world with a muscle-weakening condition

Description

Pathfinders Neuromuscular Alliance is the first organisation in the world run by and for adults with muscle-weakening conditions. Our Pathfinders talk about life and the world from the perspective of an adult with a muscle-weakening condition, in a society not made with us in mind.

Details

Language:

en

Release Date:

08/18/2020 00:18:21

Authors:

Dr Jonathan Hastie

Genres:

society

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Episodes

    Pathfinders Podcast with Sanjeev Mann & Gianluca Luisi - Episode 6: Food

    Release Date: 9/30/2022

    Duration: 23 Mins

    Authors: Dr Jonathan Hastie

    Description: In the sixth episode of the Pathfinders Podcast Sanjeev and Gianluca discuss food;  their Italian and Indian favourites, cooking and eating out.

    Is Closed Captioned: No

    Explicit: No

    Pathfinders Podcast with Sanjeev Mann & Gianluca Luisi - Episode 5: Independence

    Release Date: 8/5/2022

    Duration: 29 Mins

    Authors: Dr Jonathan Hastie

    Description: In the fifth episode of the Pathfinders Podcast Sanjeev and Gianluca discuss independence; what it means to them, acceptance, the impact of the care crisis on them, their dream home, pros and cons of living with parents & Pathfinders PA training. 

    Is Closed Captioned: No

    Explicit: No

    Pathfinders Podcast with Sanjeev Mann & Gianluca Luisi - Episode 4: Representation

    Release Date: 7/8/2022

    Duration: 25 Mins

    Authors: Dr Jonathan Hastie

    Description: In the fourth episode of the Pathfinders Podcast Sanjeev and Gianluca discuss representation in the media and video games; their favourite movies, role models, theatre accessibility, opportunities in the arts, disabled video game characters and the potential for development disability sports games and accessing games.

    Is Closed Captioned: No

    Explicit: No

    Pathfinders Podcast with Sanjeev Mann & Gianluca Luisi - Episode 3: Mental health

    Release Date: 6/24/2022

    Duration: 26 Mins

    Authors: Dr Jonathan Hastie

    Description: In the third episode of the Pathfinders Podcast Sanjeev and Gianluca discuss their mental health. 

    Is Closed Captioned: No

    Explicit: No

    Pathfinders Podcast with Sanjeev Mann & Gianluca Luisi - Episode 2: Social life

    Release Date: 6/10/2022

    Duration: 31 Mins

    Authors: Dr Jonathan Hastie

    Description: In the second episode of the Pathfinders Podcast Sanjeev and Gianluca discuss their social lives; what they like to do, accessibility and limitations, driving, PA support, buses and planes, favourite destinations, tips for flying and their funny holiday stories.

    Is Closed Captioned: No

    Explicit: No

    Pathfinders Podcast with Sanjeev Mann & Gianluca Luisi - Episode 1: Football

    Release Date: 5/27/2022

    Duration: 32 Mins

    Authors: Dr Jonathan Hastie

    Description: In the first episode of the Pathfinders Podcast meet Sanjeev and Gianluca and hear them talk about their love of football; their teams, stadium access, favourite players, favourite football moments, tips for disabled football fans & powerchair football.

    Is Closed Captioned: No

    Explicit: No

    Pathfinders Podcast Episode 3: Disability in Movies

    Release Date: 1/26/2021

    Duration: 41 Mins

    Authors: Dr Jonathan Hastie

    Description: We talk about The Upside, Untouchable, The Fundamentals of Caring, Inside I'm Dancing, Cinemability, Ironside, When You Remember Me, Me Before You and Crip Camp. Our thoughts on how disability is portrayed.

    Is Closed Captioned: No

    Explicit: No

    Pathfinders Podcast Episode 2: Living Life to the Max

    Release Date: 7/10/2020

    Duration: 55 Mins

    Authors: Dr Jonathan Hastie

    Description: For our second episode Phillip and Jon are joined by musician and adult with DMD Alex James, who talks to us about his new single Direction and life as a musician with DMD. Alex James' single is available on spotify here: https://open.spotify.com/album/0LNlndSYFJr4yG1N9BKS4d?si=KOR2GODbTVawGIW0zp2kWA

    Is Closed Captioned: No

    Explicit: No

    DMD Pathfinders podcast with Phillip Carroll - Life and the World with Duchenne

    Release Date: 6/10/2020

    Duration: 32 Mins

    Authors: Dr Jonathan Hastie

    Description: In our pilot podcast episode, DMD Pathfinders discuss life and the world with Duchenne. Phillip Carroll hosts Jon Hastie and Mark Chapman, cofounders of DMD Pathfinders who talk about their personal journey with Duchenne, travel, road trips and flying with a wheelchair.

    Is Closed Captioned: No

    Explicit: No

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