SCI Care: What Really Matters

Send us Fan MailDr. Alexander (Sasha) Rabchevsky joins Dr. Michael Fehlings to discuss autonomic and cardiovascular control after spinal cord injury, promising neuromodulation results, and the future of SCI research Learning goals:Cover the importance of autonomic function and cardiovascular control after SCIDiscuss the impact of neuromodulation in SCIProvide an overview of future research directions in SCI The opinions of our host and guests are their own; ISCoS does not endorse any individual viewpoints, given products or companies. You can follow us on Twitter and LinkedInContact us directly with any questions or comments at [email protected]

Send us Fan MailCaroline Treanor chats with Dr. Michael Fehlings about degenerative cervical myelopathy (DCM) structured rehabilitation approaches as well as the highly anticipated upcoming ReMiDY trial. Learning objectives:What is degenerative cervical myelopathy (DCM) and why is it important?Discussed the ReMiDY trial and the importance of evaluating structured rehabilitation for DCMCovered enhanced recovery after surgery (ERAS) protocols for DCM and the role of structured rehabilitation The opinions of our host and guests are their own; ISCoS does not endorse any individual viewpoints, given products or companies. You can follow us on Twitter and LinkedInContact us directly with any questions or comments at [email protected]

Send us Fan MailDr. Michael Fehlings is joined by Dr. Chester Ho – one of the new Associate Editors at Spinal Cord.  The conversation covers Dr. Ho’s perspectives on the current state of spinal cord injury research and opportunities for implementing evidence-based approaches in the clinic. Learning goals:The concept of early surgical intervention for acute spinal cord injury was discussedThe Canadian knowledge translation efforts to implement Time is Spine were reviewedOther key areas in spinal cord injury treatment were discussed The opinions of our host and guests are their own; ISCoS does not endorse any individual viewpoints, given products or companies. You can follow us on Twitter and LinkedInContact us directly with any questions or comments at [email protected]

Send us Fan MailDr. Michael Fehlings is joined by Dr. Mohit Arora to discuss his recent publication in Spinal Cord “Evidence-based recommendations for health professionals to improve care of people with spinal cord injury and cognitive impairment: An update to the psychosocial clinical practice guide”. This episode covers the factors contributing cognitive impairment after SCI, cognitive screening approaches, and future directions for the field. Learning goals:Cognitive impairment after spinal cord injury is common, frequently overlooked, can occur immediately after injury, and arises from multiple contributing factors. If not proactively addressed, it can significantly compromise rehabilitation and long-term outcomes.Routine, validated cognitive screening should occur early and continue across the lifespan, supported by tailored communication strategies and person-centred care.We now have clear, evidence- and consensus-informed recommendations, but meaningful impact depends on system level implementation, including workforce training and supportive clinical environments.What questions will be raised in this webinar/podcast?Introductory remarks from Michael FehlingsMichael Fehlings will ask guest(s) to summarize key points from the manuscriptMichael Fehlings will discuss points with guest(s)Michael Fehlings will ask guest(s) about anticipated future directions for this work as well as clinical impactThe opinions of our host and guests are their own; ISCoS does not endorse any individual viewpoints, given products or companies. You can follow us on Twitter and LinkedInContact us directly with any questions or comments at [email protected]

Send us Fan MailThe Engagement and Peer Support SIG would like to bring the audience through the story of peer support from a historical perspective to its research implications. Teri, Erik, Shane, and Gill will provide how peer support came to be, what it looks like and how different it is, the magic behind it, and how to transform that magic to measurable outcomes and impacts.SpeakersShane Sweet, Associate Professor, McGill University, CanadaGill Hilton, Austin Health, AustraliaErik Berndtsson, Outreach Development Manager, RG Active Rehabilitation, SwedenTeri Thorson, Manager, Peer Coaching and Outreach, SCI British Columbia, CanadaThe opinions of our host and guests are their own; ISCoS does not endorse any individual viewpoints, given products or companies. You can follow us on Twitter and LinkedInContact us directly with any questions or comments at [email protected]

Send us Fan MailKey points:International collaboration is required to produce research that can be interpreted and applied across different regionsAs outcome measures and collection methods continue to evolve a methodical approach to updating research best practices is requiredA larger focus should be on including the thoughts of persons with lived SCI experience when defining research questionsSpeakersDr. Fin Biering-SørensenDr Michael FehlingsThe opinions of our host and guests are their own; ISCoS does not endorse any individual viewpoints, given products or companies. You can follow us on Twitter and LinkedInContact us directly with any questions or comments at [email protected]

Send us Fan MailPeople with the lived experience of SCIs are one of the most vulnerable groups of in the world-both to the extreme heat and weather events which have increased in frequency because of climate change. Although health care professionals have an opportunity to educate their patients about actions they can use to protect themselves during these extreme weather events, many feel unprepared to discuss the topic. Moreover, health care professionals are beginning to experience moral distress about their inability to take action regarding this existential concern. The webinar will include participants from three continents and multiple disciplines. We will use the interactive platform mentimeter to facilitate the interaction of participants, expressing their feelings about climate change and about sharing their actions.The opinions of our host and guests are their own; ISCoS does not endorse any individual viewpoints, given products or companies. You can follow us on Twitter and LinkedInContact us directly with any questions or comments at [email protected]

Send us Fan MailKey points:This podcast summarizes the results of a rigorous evaluation of the evidence for physiotherapy interventions in spinal cord injury using the GRADE methodologyMuscle strengthening exercises are effective for partially paralyzed muscles with MRC Grade 3 and 4 strengthFurther evidence is required in the optimal management of severely paretic musclesSpeaker: Dr. Joanne Glinsky is an Associate Professor of Allied Health (Sydney Local Health District/University of Sydney) and a Senior Research fellow at the John Walsh Centre for Rehabilitation (Kolling Institute/University of Sydney). She has a strong interest in physiotherapy management of people with Spinal Cord Injury and has worked for over 25 years as a clinician, educator and researcher in this field.The opinions of our host and guests are their own; ISCoS does not endorse any individual viewpoints, given products or companies. You can follow us on Twitter and LinkedInContact us directly with any questions or comments at [email protected]

Send us Fan MailRebuilding a sense of meaning and purpose following trauma is a vital contributor to post-traumatic growth and adapting well to a spinal cord injury (SCI). This webinar shared the co-design process undertaken to develop a course that uses the concept of post-traumatic growth to foster a stronger sense of meaning and purpose after SCI. It presented the course facilitators' reflections on running the program for the last five years, its successes and challenges. Case studies were also used to demonstrate the impact of the course on participants.The opinions of our host and guests are their own; ISCoS does not endorse any individual viewpoints, given products or companies. You can follow us on Twitter and LinkedInContact us directly with any questions or comments at [email protected]

Send us Fan MailPoints:Cauda equina syndrome (CES) is a common emergency condition that neurosurgeons and spine surgeons deal with.The long term consequences and the impact on the person dealing with CES are poorly defined.This podcast explores the impact of CES on the person, including pain and autonomic dysfunction, and management strategies which can be implemented by health care professionals.Nish's Affiliation: Nisaharan Srikandarajah is a Consultant Neurosurgeon specialising in complex spine at The Walton Centre and an Honorary Senior Clinical Lecturer at The University of LiverpoolThe opinions of our host and guests are their own; ISCoS does not endorse any individual viewpoints, given products or companies. You can follow us on Twitter and LinkedInContact us directly with any questions or comments at [email protected]

Send us Fan MailHelen Smith (Ms) Consultant Clinical Psychologist Joe Robinson, Group member and co-facilitator, freelance artist and co-author of "The Very Alternative Guide to Spinal Cord Injury" SCI is a rare condition, not well-understood outside specialist centres. Those who walk again are seen as "lucky" and not "disabled". In fact they have invisible disabilities, which take a heavy toll. Spending time with others with similar experiences, can help with their frustration and isolation. The literature has tended to focus on physical and surgical considerations, not lived experience.A group was created in 2010 at our SCI Centre, providing Peer Support and information (invited speakers). It has been evaluated with positive results, and not required significant resources. Members derive benfit from contributing as well as receiving. It was presented at SCI conferences, but so far has not been replicated, except for two recent versions in the voluntary sector.Not all ambuplegic people suit a group approach, but members report feeling better-informed to manage their unique challenges, better in mood, and supported by others who understand. If you have any questions regarding this podcast, please contact Helen Smith at [email protected] opinions of our host and guests are their own; ISCoS does not endorse any individual viewpoints, given products or companies. You can follow us on Twitter and LinkedInContact us directly with any questions or comments at [email protected]

Send us Fan MailDr. Michael G. Fehlings discusses the future of stem cell therapies for spinal cord injury with Intissar Mohcine & Asma Belarbi, high-school students from the Netherlands. Key points:1) Stem cells are a promising therapeutic approach to repair the damaged spinal cord following injury.2) Preclinical studies have shown exciting improvements in spinal cord structure and motor function.3) A number of issues still need to be resolved before stem cell therapy can be successfully utilized in the clinical setting.The opinions of our host and guests are their own; ISCoS does not endorse any individual viewpoints, given products or companies. You can follow us on Twitter and LinkedInContact us directly with any questions or comments at [email protected]

Send us Fan MailThe podcast for World SCI Day 2025, themed “Fall Prevention, Spinal Cord Protection,” focuses on raising awareness about the critical issue of fall-related spinal cord injuries and how they can be prevented. Falls are one of the leading causes of SCI worldwide, especially among vulnerable populations such as the elderly and individuals in high-risk environments.Discussion was based around the key risk factors contributing to falls, including environmental hazards, physical health issues, and lack of safety measures. Practical solutions, such as home and workplace safety tips, the importance of protective gear, and lifestyle adjustments, were shared to help listeners reduce their risk.Additionally, the podcast explored the role of early intervention after a fall, advancements in SCI treatment, and the importance of rehabilitation. By raising awareness and sharing actionable advice, we aim to promote safer practices and protect spinal health globally.On behalf of the ISCoS Prevention Committee, I am happy to invite you all to listen to this special SCI Day 2025 podcast and be a part of the movement to raise awareness.Speakers (photos saved in Files)1) Prof Belgin Erhan, MDChair, ISCoS Prevention CommitteeBoard Member, ISCoSProfessor and Faculty at Istanbul Medeniyet University, School of MediciHead of the PMR Department at Istanbul Medeniyet University, School of MedicinePresident, National Neurotoxin Society2) Yannis Dionyssiotis, MD, MSc., PhDHead of 2nd Medicine & Rehabilitation Department, National Rehabilitation Center (Ethniko Kentro Apokatastasis, EKA), Athens, GreeceA/Prof. of PMR, Medical School, University of Patras, GreeceThe opinions of our host and guests are their own; ISCoS does not endorse any individual viewpoints, given products or companies. You can follow us on Twitter and LinkedInContact us directly with any questions or comments at [email protected]

Send us Fan MailKey points:1) The incidence and prevalence of spinal cord injury are rising due to an aging population, increased falls with incomplete cervical injuries and the impact of nontraumatic spinal cord injury.2) With this increased incidence of traumatic and nontraumatic SCI, there is a growing need for Spinal Cord Injury Medicine specialists . This has resulted in increased training positions in the US.3) However, many training positions in the US go unfilled and there is a growing need for trained SCI Medicine physicians. Proactive steps are needed to address this shortfall.Host: Dr Michael Fehlings, Editor in Chief of Spinal Cord, Professor of Neurosurgery, Robert Campeau Family Foundation-Dr. CH Tator Chair in Brain and Spinal Cord Research, Vice Chairman Research), Co-Director Spine Program, Department of Surgery, University of TorontoSpeakersDr Jason Silvestre is a resident Physician at the Medical University of South CarolinaDr Robert Ravinsky is a dual-fellowship trained, dual board-certified (Canada & USA) orthopaedic spine surgeon, Department of Orthopaedics and Physical Medicine at the Medical University of South CarolinaThe opinions of our host and guests are their own; ISCoS does not endorse any individual viewpoints, given products or companies. You can follow us on Twitter and LinkedInContact us directly with any questions or comments at [email protected]

Send us Fan MailThe International Spinal Cord Injury Survey (InSCI) found that sleep problems rank among the top six most common and debilitating health issues for people with SCI — and are the second most likely to go untreated. While rehabilitation centres routinely manage issues like pain, spasticity, and bladder, bowel, and sexual dysfunction, sleep is often overlooked. Risk screening for sleep disorders is inconsistent and typically ad-hoc, and most centres refer suspected cases to sleep specialists for assessment and ongoing management. However, recent research shows it is feasible for rehabilitation centres to manage common, uncomplicated sleep disorders "in-house". In this podcast, we explore why sleep deserves more attention in SCI care— and how rehabilitation centres can take a more active approach.SpeakersMarnie Graco, PhDemail: [email protected] Scientist | Institute for Breathing and Sleep, Austin Health, Melbourne, AustraliaNancy Gray MND Research Post-Doctoral Fellow (MNDRA)Senior Fellow | Melbourne School of Health Sciences, The University of Melbourne, AustraliaHardeep Singh Kainth, MD, FAAPMR, Dip. SCI MedicineAssociate Clinical Professor, Division of Physical Medicine & Rehabilitation, Department of Medicine, University of Alberta, Edmonton, CanadaMedical Lead, Spinal Cord Injury Rehabilitation, Edmonton, CanadaThe opinions of our host and guests are their own; ISCoS does not endorse any individual viewpoints, given products or companies. You can follow us on Twitter and LinkedInContact us directly with any questions or comments at [email protected]

Send us Fan MailKey points:Key sensory afferent pathways from the urinary bladder to the spinal cord often remain intact in spinal cord injuries above the level of the conus medullaris. b) The urinary bladder wall urothelial cells, sensory nerves, interstitial cells, smooth muscle cells and the chemo/mechanosensors in the urethral paraneurons or “brush cells” play a key role in bladder neurophysiology. c) Knowledge regarding the sensory afferent pathways from the bladder could guide future neuromodulation therapeutic options for the neurogenic bladder after SCI.Spinal Cord JournalThe opinions of our host and guests are their own; ISCoS does not endorse any individual viewpoints, given products or companies. You can follow us on Twitter and LinkedInContact us directly with any questions or comments at [email protected]

Send us Fan MailDr. Michael Fehlings - Professor of Neurosurgery, Robert Campeau Family Foundation-Dr. CH Tator Chair in Brain and Spinal Cord Research, Vice Chairman Research), Co-Director Spine Program, Department of Surgery, University of Toronto and Editor in Chief of Spinal Cord.Dr Carlotte Kiekens - Head of the Physical and Rehabilitation Medicine Unit at Ospedale San Giuseppe, IRCCS MultiMedica in Milan, ItalyThe opinions of our host and guests are their own; ISCoS does not endorse any individual viewpoints, given products or companies. You can follow us on Twitter and LinkedInContact us directly with any questions or comments at [email protected]

Send us Fan MailIn this episode, Dr François Theron and Dr Federico Montero preview the upcoming 4th ISCoS International Regional Symposia, to be held on 18–19 July 2025 at the Rebouças Convention Center, São Paulo, Brazil.They share what makes this year’s symposia exceptional — from the diversity of its global speaker faculty to the urgent clinical and scientific themes being addressed. Together, they explore how the event will bring together spinal cord injury specialists, researchers, and rehabilitation professionals across Latin America and beyond.Whether you're an experienced clinician, early-career researcher, or allied health professional, this episode highlights why the ISCoS Regional Symposia 2025 is a must-attend event for anyone shaping the future of SCI care.🗓️ Event Dates: 18–19 July 2025 📍 Location: Rebouças Convention Center, São Paulo, Brazil 🔗 Register now: https://iscossymposia4.org/The opinions of our host and guests are their own; ISCoS does not endorse any individual viewpoints, given products or companies. You can follow us on Twitter and LinkedInContact us directly with any questions or comments at [email protected]

Send us Fan MailDr. Michael Fehlings - Professor of Neurosurgery, Robert Campeau Family Foundation-Dr. CH Tator Chair in Brain and Spinal Cord Research, Vice Chairman Research), Co-Director Spine Program, Department of Surgery, University of Toronto and Editor in Chief of Spinal Cord.Prof. Ashley Craig - Professor at Kolling Institute, Faculty of Medicine and Health, The University of Sydney.The opinions of our host and guests are their own; ISCoS does not endorse any individual viewpoints, given products or companies. You can follow us on Twitter and LinkedInContact us directly with any questions or comments at [email protected]

Send us Fan MailTraumatic SCI is a relatively common occurrence in rural areas of low income countries. However, rehabilitation services in these areas are either unavailable or inaccessible by the majority. Psychosocial services are scarce and hardly tailored towards a diagnosis such as traumatic SCI. Left with no option, healthcare professionals such as nurses, medical doctors, surgeons and therapists take responsibility of using their general counselling skills to provide some psychological support to persons with SCI, with variable outcomes. Training psychological aspects to healthcare providers at all levels and formal involvement of local social support groups such as; religious leaders, peer group trainers and family in supporting persons with SCI in the continuum of care in resource constrained areas is crucial. Still, there is a need for a more formal and consistent SCI-specific psychosocial counselling and support for persons with SCI in these setting.This webinar promotes the Professor Paul Kennedy Legacy Scholarship for Psychology and showcases how the 2024 winner has benefitted from this award. The 2025 Scholarship is currently open – for further information and to request an application form contact [email protected] opinions of our host and guests are their own; ISCoS does not endorse any individual viewpoints, given products or companies. You can follow us on Twitter and LinkedInContact us directly with any questions or comments at [email protected]

Send us Fan MailISCoS OT and PT SIGs SCI Pre Workshop Day“Implementation of WHO:s Rehab 2030, Package of Interventions”How do we implement available research into interventions in our daily work?Speaker details:Guillermo Gomez, Physiotherapist from Buenos Aires, Argentina and Johanna Wangdell OT, PhD. Department of Occupational therapy and Physiotherapy at Sahlgrenska University hospitalGothenburg SwedenCurrent Chairperson of the International Network of Spinal Cord Injury Physiotherapists (SCIPT) and the ISCoS Physiotherapists Special Interest Group.Current ALME – SLAP Vice chair (Latin American and Caribbean SCI Association).What the workshop is:Educational day with focus on implementation of research and to share clinical practice.OT and PT have separate programs before lunch and a joint program in the afternoon.Objectives:To update and train participating colleagues on different topics and aspects dedicated to the management of people with SCI, oriented towards the rehabilitation work of OT and PT, and how do we implement available research into interventions in our daily work?Our aim is not to be scientific, but to focus on implementing science. We will use WHO:s Package of Interventions as our framework to highlight that material as well.Why you are doing it:The main idea was born from a need of the OT and PT executive committees to hold a pre-day workshop for all colleagues attending the ISCOS annual congress to improve their knowledge in the field of SCI.We hope that this can attract more OT/PTs to the scientific conference as well as making ISCOS more relevant for OT/PT. We would like to see this workshop as a complement to the scientific congress.Why people should join:Take advantage of this pre-workshop day to increase your experience and knowledge of the work of OT and PT within the rehabilitation team for people with SCI. We have speakers from different regions of the world who will cover the most interesting topics, assistive technology, tenodesis grip, functional arm-hand training, electrical stimulation, community based therapy, trunk muscle function, guidelines, wheelchair, among other…The participants who do research will still present their research at the congress and we create a forum for discussions on how to implement new knowledge in the pre workshop.When:Gothenburg, October 8th, 2025. 9.00-17.30The opinions of our host and guests are their own; ISCoS does not endorse any individual viewpoints, given products or companies. You can follow us on Twitter and LinkedInContact us directly with any questions or comments at [email protected]

Send us Fan MailThe SCI Care: What Really Matters podcast aims to provide valuable insights and the most up-to-date information for those providing care to people with spinal cord injury (SCI) worldwide. The vision of the International Spinal Cord Society (ISCoS) is to "facilitate healthy and inclusive lives for people with spinal cord injury or dysfunction globally".The opinions of our host and guests are their own; ISCoS does not endorse any individual viewpoints, given products or companies. You can follow us on Twitter and LinkedInContact us directly with any questions or comments at [email protected]

Send us Fan MailThe International Spinal Cord Society and Wellspect present a transformative discussion on changing care perspectives for individuals with spinal cord injuries, featuring leading medical experts Dr Charalampos Konstantinidis from the National Rehabilitation Centre and Dr Christina-Anastasia Rapidi from the General Hospital of Athens. Host Kristijan Kesinovic guides the conversation through critical aspects of rehabilitation and long-term wellbeing, with particular emphasis on bladder management during both acute and chronic phases.These experts share valuable insights on transitioning from initial care to long-term independence, including crucial discussions on sexual health and fertility options. Dr Konstantinidis addresses fertility possibilities for both men and women, whilst Dr Rapidi emphasises the importance of comprehensive rehabilitation approaches. Their discussion underscores the vital shift from viewing people as perpetual patients to recognising them as individuals with full life possibilities, highlighting the importance of specialised healthcare support throughout their journey.The opinions of our host and guests are their own; ISCoS does not endorse any individual viewpoints, given products or companies. You can follow us on Twitter and LinkedInContact us directly with any questions or comments at [email protected]

Send us Fan MailIn this episode, host Rima Kamal (Wellspect) explores the complexities of caring for children with spina bifida with Dr Fahad Alyami, Head of the Saudi Paediatric Urology Group and Associate Professor at King Faisal Specialty Hospital and Research Centre in Riyadh. The discussion delves into the critical aspects of paediatric care for those with spina bifida, from early intervention to adolescent transition. Dr Alyami explains the importance of bladder management from birth, the challenges families face in daily care routines, and the crucial role of multidisciplinary healthcare teams.The conversation addresses key aspects of paediatric care, particularly the transition from childhood to adult healthcare services. Dr Alyami emphasises the significance of specialised spina bifida clinics where multiple specialists can coordinate care under one roof, highlighting the development of transitional urology as a subspecialty to bridge the gap between paediatric and adult care. The discussion concludes with inspiring success stories of individuals with spina bifida who have gone on to lead fulfilling lives, including having families of their own, demonstrating how proper medical care and support can positively impact life outcomes.The opinions of our host and guests are their own; ISCoS does not endorse any individual viewpoints, given products or companies. You can follow us on Twitter and LinkedInContact us directly with any questions or comments at [email protected]

Send us Fan MailIn this episode, released to coincide with World Spina Bifida Day, host Anders Tennby (Wellspect) explores the challenges and opportunities in improving life quality for those with spina bifida. Joined by experts Hanna Gabrielsson from Sweden and Pierre Mertens from Belgium, the discussion delves into the complexities of this congenital disorder. Gabrielsson, a registered nurse with a thesis on adults with spina bifida, explains the condition's medical aspects and the challenges individuals face, including the need for consistent self-care and the impact of cognitive impairments. Mertens, president of Child-Help International and father to a daughter with spina bifida, brings a personal perspective, highlighting global disparities in care and support.Resources MentionedGuidelines for the Care of People with Spina Bifida (spinabifidaassociation.org)International Federation for Spina Bifida and Hydrocephalus (ifglobal.org)NOSCOC Special Interest Group on Spina Bifida (noscos.org)Child-Help International (www.child-help.international)MMCUP (Swedish national quality register for spina bifida) (mmcup.se)Note on Prevalence Rates: During the podcast, there was a discussion about the prevalence of spina bifida. It's important to clarify that prevalence rates can vary significantly between regions and depending on whether prenatal diagnoses are included. In Sweden, for example, the estimated prevalence before prenatal screening is approximately 5 per 10,000, but the actual number of children born with spina bifida is considerably lower, at about 5-10 children per year (or 1 per 100,000 newborns). Globally, reliable incidence studies are lacking, especially in the Global South where many cases may not reach hospitals. Reported figures vary widely, from as high as 14 neural tube defects per 1,000 births in some areas to as low as 1 in 10,000 in others. This wide range highlights the need for more comprehensive and standardised global data collection on spina bifida prevalence.The opinions of our host and guests are their own; ISCoS does not endorse any individual viewpoints, given products or companies. You can follow us on Twitter and LinkedInContact us directly with any questions or comments at [email protected]

Send us Fan MailAs anticipation builds for the 63rd Annual Meeting of the International Spinal Cord Society, Professor Micheal Fehlings shares his excitement with Dr Stolwijk-Swuste, a Rehabilitation specialist and Associate Professor at De Hoogstraat Revalidatie. Our hosts invite the spinal cord community to this unique event, located in a charming and inspiring venue: A Room with a Zoo at Flanders Meeting & Convention Center, Antwerp.This 3 day event unites leading experts in spinal cord injury care and research to share groundbreaking advancements and innovative solutions in the pursuit of bettering the lives of individuals living with, or caring for those with a spinal cord injury. To learn more about our interactive programme and to register your place, please visit: https://iscosmeetings2024.orgThe opinions of our host and guests are their own; ISCoS does not endorse any individual viewpoints, given products or companies. You can follow us on Twitter and LinkedInContact us directly with any questions or comments at [email protected]

Send us Fan MailThe Vison of ISCoS is to "facilitate healthy and inclusive lives for people with spinal cord injury or dysfunction globally". Partnership and collaboration is key in helping us to realise this vision. We are delighted that we have been able to partner with Wellspect to deliver, in addition to a number of webinars and podcasts, educational support for the ISCoS International Regional Symposia.In this webinar, the 2nd ISCoS International Regional Symposium -  Sharing world knowledge for practical advancements will be discussed by the panel:Dr. Ronald Reeves, MD , Chair of the ISCoS Education Committee, Dr. Francois Theron, MBChB, MMed,  Chair of the ISCoS Affiliated Societies and Networks Committee Professor Moon Suk Bang, MD, Phd, Seoul National University College of Medicine and Chair of the Local Organising Committee.The panel highlight the work of the Korean Spinal Cord Society and spinal cord Injury care in Korea and discuss the work of the ISCoS Regional Symposia Initiative to promote multi-disciplinary, integrated care and training, the comprehensive care for which ISCoS is well known, within affiliated societies and regional networks.The opinions of our host and guests are their own; ISCoS does not endorse any individual viewpoints, given products or companies. You can follow us on Twitter and LinkedInContact us directly with any questions or comments at [email protected]

Send us Fan MailWelcome to the future of Spinal Cord. In this episode, our hosts Dr. Fehlings and Professor Anthony S. Burns welcome us to a new era of ISCoS’s flagship journal, Spinal Cord. Conceptualised in 1963, Spinal Cord is a specialised, international journal that publishes peer-reviewed manuscripts, to showcase powerful medicinal insights and support those within the SCI community. Appearing monthly, both online and in print, Spinal Cord invites contributions on spinal cord anatomy, physiology, injury and associated disease management, and importantly, improving the quality of life for those living with a spinal cord injury. As this unique, interdisciplinary journal progresses into its next chapter, Dr. Fehlings and Professor Anthony S. Burns have initiated an open call for Associate Editors to join their team of esteemed doctors, researchers and practitioners in bringing this journal to life. To apply for this role, please visit: Call for Application: Associate Editors of Spinal Cord | Spinal Cord (nature.com)Or to learn more about Spinal Cord, please visit: Journal Information | Spinal Cord (nature.com)SCI Care GuidelinesThe opinions of our host and guests are their own; ISCoS does not endorse any individual viewpoints, given products or companies.If you enjoyed this podcast, please rate, review and subscribe with the podcast provider of your choice.This show is brought to you by ISCoS - you can follow us on Twitter and LinkedInThe SCI Care: What really Matters podcast aims to provide valuable insights and the most up-to-date information for those providing care to people with spinal cord injury (SCI) worldwide. The vision of the International Spinal Cord Society (ISCoS) is to "facilitate healthy and inclusive lives for people with spinal cord injury or dysfunction globally".Partnership and collaboration are key to achieving this vision. Our episodes include expert guests, persons with lived experience and representatives from the industry supporting SCI care. We invite you to:ISCoS 2024 will take place in Antwerp, Belgium 22 - 25 September 2024Contact us directly with any questions or comments at [email protected] opinions of our host and guests are their own; ISCoS does not endorse any individual viewpoints, given products or companies. You can follow us on Twitter and LinkedInContact us directly with any questions or comments at [email protected]

Send us Fan MailManaging bladder and bowel health is a critical, yet often overlooked aspect of patient care, especially for those with spinal cord injuries (SCI). In a recent podcast episode host, Tracey Tattam, a Nurse Educator at the Spinal Injuries Unit Queensland, Australia is joined by Josefin Oja, a nurse and urotherapist at the spinal cord injury department Umeå, Sweden and Maria Moschovou, a specialist rehabilitation nurse at the Linköping University Hospital Rehabilitation department. They discuss and explore factors important for being compliant with the therapy and long-term compliance, the possible barriers that arise, how to overcome these, and the importance of a healthy bladder and bowel.The initial phase of rehabilitation for newly injured SCI patients can be overwhelming. The sudden influx of information, coupled with the intimate nature of bladder and bowel care, often leaves patients feeling vulnerable. Josefin emphasises the need for educational materials that are not only concise but personalised to the individual's needs. A key factor in successful management is establishing a routine that is as close to the patient's pre-injury habits as possible, adapting techniques to their unique situations.Long-term challenges also persist. As Maria notes, methods that were effective during initial rehabilitation may not suffice as time moves on. Patients often return, desperate for solutions to new or evolving issues. This highlights the need for continuous support and follow-up, ensuring that care plans adapt over time. A notable aspect of long-term management is addressing the cultural sensitivities of caring for patients from diverse backgrounds. This requires not only a deep understanding of different cultures but also strategies to introduce and discuss intimate care products in a respectful and effective manner.Both experts stress the importance of education – for patients and healthcare professionals alike.  Using smart, simple solutions over complicated or invasive procedures can prove to be more effective.  Our panel agreed that the management of bladder and bowel health for SCI patients is complex. Healthcare professionals can empower patients to lead healthier, more independent lives through education, patience, and continuous improvement of care plans.We hope you enjoy listening. The opinions of our host and guests are their own; ISCoS does not endorse any individual viewpoints, given products or companies. You can follow us on Twitter and LinkedInContact us directly with any questions or comments at [email protected]

Send us Fan MailIn this episode, guest host Dr Kimberley Monden explores the world of SCI clinical research and rehabilitation medicine, exploring patient perspectives and life before, during, and after participation in SCI clinical research with Dr Trumbower, an associate professor in the Department of Physical Medicine and Rehabilitation at Harvard Medical School and Director of the spinal cord injury division at Spalding Rehab Hospital, and the director of the Inspire Lab at Spaulding Rehab Hospital. We also have a participant, Arthur Holt, who will share his experience with Dr Trumbower of the ANEUVO Exostim trial that took place at Spalding Rehabilitation Hospital.Listen as Arthur shares his first-hand account of his journey at Spaulding Rehab Hospital, where he reclaimed vital hand functions, as well as the importance of having the right mindset when it comes to rehabilitation.Dr. Trumbower concludes their conversation by sharing how much potential this study, and others like it, have for the spinal cord injury community whilst also emphasising how much more work there is to be done.We hope you enjoy this enlightening episode of the podcast!The opinions of our host and guests are their own; ISCoS does not endorse any individual viewpoints, given products or companies. You can follow us on Twitter and LinkedInContact us directly with any questions or comments at [email protected]

Send us Fan MailThis webinar, in partnership with Wellspect, aims to raise awareness of these issues. Originally recorded as a webinar, we decided to release it as a podcast as well. We hope you enjoy listening.This episode will cover bladder and bowel management during the different stages of a woman's life, overcoming barriers to break the taboo in discussing such issues, the challenges and risks of becoming a mother with a spinal cord injury and the importance of a good bladder and bowel routine will have on your self-confidence all leading to empowerment and a better quality of life. To do this, host Ami Kivi, Global Product Manager Urology, Wellspect invites Dr Maria Gyhagen, Associate Professor in Obstetrics and Gynecology at Sahlgrenska University at Gothenburg University and Inge Eriks-Hoogland, head of the outpatient department of the Swiss Paraplegic Centre, to shed light on this pressing women's health issue. Their groundbreaking research and advocacy work reveal the widespread impact of these disorders and pioneer new paths in care and empowerment for affected individuals.The prevalence of pelvic floor disorders, such as incontinence and genital prolapse, severely impacts quality of life. Dr Gyhagen's research focuses on the functional dynamics of the pelvic floor, especially post-childbirth, emphasising its multifaceted effects, including compromised self-esteem and sexual dysfunction. She stresses the importance of early diagnosis and targeted support, which are often overlooked in healthcare. Obstetric Anal Sphincter Injury Calculator https://www.sphinctercalc.com/UR-CHOICE Pelvic Floor Disorders Risk Calculator: https://riskcalc.org/UR_CHOICE/Dr Eriks-Hoogland's expertise in spinal cord injuries highlights the unique challenges faced by spinal cord-injured women during pregnancy and childbirth. The podcast highlights heightened risks and the necessity for informed choices and collaborative clinical approaches, ensuring active participation in health decisions. Standardised guidelines in gynaecological care play a vital role in empowering patients and improving care protocols, advocating for a more predictive healthcare approach and addressing societal taboos surrounding pelvic floor disorders through greater awareness and dialogue. SCI Care Guidelines https://register.awmf.org/de/leitlinien/detail/179-014We hope you will enjoy this episode.  The opinions of our host and guests are their own; ISCoS does not endorse any individual viewpoints, given products or companies. You can follow us on Twitter and LinkedInContact us directly with any questions or comments at [email protected]

Send us Fan MailThis episode follows on from our previous webinar "Exploring Sexual Dysfunction," hosted by Francescapaola Polli, Enterology Product Manager for Wellspect in Italy.Returning guests Dr Marcalee Alexander and Dr Gianluca Sampogna provide invaluable guidance on overcoming sexual challenges and achieving fulfilling sexual lives after spinal cord injury.From discussing the role of sex toys in enhancing pleasure to emphasising the importance of bladder and bowel management for sexual activity, Drs Alexander and Sampogna offer practical advice and explore misconceptions surrounding sexual function post-injury.Listeners will gain insights into various aspects, including the impact of accidents during sexual activity, strategies for adolescents navigating sexuality, and fertility considerations for both men and women with spinal cord injuries.ResourcesEverlasting Love: A series is brought to you by Sustain Our Abilities with funding from the Paralyzed Veterans of American Education and Training Foundation.https://vimeo.com/everlastingloveSexual Sustainability: A guide to having a great sex life with a spinal cord disorder by Dr Marcalee Alexander https://www.amazon.co.uk/Sexual-Sustainability-having-spinal-disorder/dp/B08L4969TVItalian Edition https://www.amazon.co.uk/dp/B0976533N9Hindi Version https://www.amazon.co.uk/dp/B099X53TRQSpanish Versionhttps://www.amazon.co.uk/dp/B087G31KBGThe opinions of our host and guests are their own; ISCoS does not endorse any individual viewpoints, given products or companies. You can follow us on Twitter and LinkedInContact us directly with any questions or comments at [email protected]

Send us Fan MailIn this episode of the podcast, in partnership with Wellspect, host Lisa Beauchemin talks to her colleagues Katherine Fernandez and Dr Lawrence (Larry) Vogel about bladder and bowel management in paediatric spinal cord dysfunction.They discuss physical health alongside social health and lifestyle factors that need to be considered, especially when working with children and teenagers. Being a teenager is challenging enough without the disruption of incontinence. Ultimately, the team aims to help their patients achieve a high quality of life and strive for independence as early as possible.Dr Vogel also highlights the importance of anticipatory guidance, letting patients and their families know what will happen as their child ages and develops.We hope you enjoy this episode of the podcast.The opinions of our host and guests are their own; ISCoS does not endorse any individual viewpoints, given products or companies. You can follow us on Twitter and LinkedInContact us directly with any questions or comments at [email protected]

Send us Fan MailIn this bonus episode, we talk to an SCI grant recipient, Kamrunnaher Koly, from Bangladesh, about her work as a researcher, the new work-care rehabilitation pathway for spinal cord patients in Bangladesh, and how she found her first experience at the ISCoS conference.The opinions of our host and guests are their own; ISCoS does not endorse any individual viewpoints, given products or companies. You can follow us on Twitter and LinkedInContact us directly with any questions or comments at [email protected]

Send us Fan MailIn this bonus episode, we sit down for a conversation with Kathy Zebracki, a clinical psychologist from Shriners Children's, Chicago, and Julian Taylor from Toledo's National Paraplegic Hospital in Spain to learn all about the first-ever paediatric spinal cord injury Special Interest Group (SIG) for ISCoS.Kathy and Julian reveal their ambitions of gathering an international team of experts to focus on this niche medical field, emphasising the need for a multidisciplinary approach.The opinions of our host and guests are their own; ISCoS does not endorse any individual viewpoints, given products or companies. You can follow us on Twitter and LinkedInContact us directly with any questions or comments at [email protected]

Send us Fan MailIn this bonus episode, we spoke with Bill Barrable, Vanessa Noonan, John Chernesky and Barry Monroe of Praxis as they discuss the 62nd ISCoS scientific meeting and the role of their organisation in setting best practices for managing spinal cord injury and rehabilitation. They also discuss the challenges and strategies of involving those with lived experience in planning and participation programs, particularly in regions with prevalent SCI.  We hope you enjoy listening. The opinions of our host and guests are their own; ISCoS does not endorse any individual viewpoints, given products or companies. You can follow us on Twitter and LinkedInContact us directly with any questions or comments at [email protected]

Send us Fan MailIn this episode,  Christine Hendry, CEO of the Spinal Research Institute, chats with two standout grant recipients for ISCoS 2023, Jacob Schoffl and Kiera Tranter to discuss their research.  Jacob discusses research on the effects of spinal cord injury on autonomic and psychosocial health. Meanwhile, Kiera, a physiotherapist shares her invaluable insights on clinical practice guidelines. The opinions of our host and guests are their own; ISCoS does not endorse any individual viewpoints, given products or companies. You can follow us on Twitter and LinkedInContact us directly with any questions or comments at [email protected]

Send us Fan MailIn this bonus episode, Eric Weertz and Geraldine Jacquemin discuss the work of the ISCOS Disaster Committee and the unique difficulties faced in conflict settings that they support, including developing the ISCoS SCI toolkit. The opinions of our host and guests are their own; ISCoS does not endorse any individual viewpoints, given products or companies. You can follow us on Twitter and LinkedInContact us directly with any questions or comments at [email protected]

Send us Fan MailIn this episode, Spinal Research Institute CEO, Kristine Hendry interviews grant awardee Dr. Haleluya Moshi from Tanzania.  Dr Moshi discusses his research on traumatic spinal cord injury in rural areas. Listen as he shares his experience at ISCoS 2023.The opinions of our host and guests are their own; ISCoS does not endorse any individual viewpoints, given products or companies. You can follow us on Twitter and LinkedInContact us directly with any questions or comments at [email protected]

Send us Fan MailIn this episode, Dr Samford Wong, Chair of the newly formed nutrition special interest group, is joined by fellow group members Sharon Lee, Firas Sarhan and Hanne Bjorg Slettahjell as they discuss the plans and developments for this  SIG.  There will also be a Nutrition SIG workshop to be held in ISCoS 2024, more details to come.  The opinions of our host and guests are their own; ISCoS does not endorse any individual viewpoints, given products or companies. You can follow us on Twitter and LinkedInContact us directly with any questions or comments at [email protected]

Send us Fan MailIn this bonus episode, Kristine Hendry, CEO of The Spinal Research Institute, interviews Robert Buren, a researcher studying at the University of British Columbia, Canada and SRI grant awardee, on his research highlighting the effectiveness of cognitive behavioural therapy in managing neuropathic pain and attending benefits of ISCoS 2023. The opinions of our host and guests are their own; ISCoS does not endorse any individual viewpoints, given products or companies. You can follow us on Twitter and LinkedInContact us directly with any questions or comments at [email protected]

Send us Fan MailIn this episode, Candice Care-Unger is a renowned psychosexual therapist and specialist social worker from Sydney. Candice shares her insights on attending the pre-conference psychosocial day.The opinions of our host and guests are their own; ISCoS does not endorse any individual viewpoints, given products or companies. You can follow us on Twitter and LinkedInContact us directly with any questions or comments at [email protected]

Send us Fan MailIn this bonus episode, Beth Collins, a clinical lead at Wellspect Healthcare, interviews colleague and friend Sallyanne Haigh on her recent surgery experience in a non-spinal setting. They discuss the significant gaps in SCI care and the lack of training and knowledge within these settings. Sallyanne shares that despite the successful surgery, the post-op care she received was inadequate due to a lack of understanding of SCI. This experience highlights the urgent need for improved training and education for carers and nurses in non-spinal settings as many patients with SCIs report feeling neglected and misunderstood.The opinions of our host and guests are their own; ISCoS does not endorse any individual viewpoints, given products or companies. You can follow us on Twitter and LinkedInContact us directly with any questions or comments at [email protected]

Send us Fan MailIn this bonus episode, we talk about a new federally funded research project that involves ISCoS members Professors Allen Heinemann, Jane Duff, Marcel Post, and Ashley Craig. They are working on an international comparative study of rehabilitation length of stay for people living with spinal cord injuries. What's the ultimate balance between prolonged stays and swift discharge for spinal cord injury patients?The opinions of our host and guests are their own; ISCoS does not endorse any individual viewpoints, given products or companies. You can follow us on Twitter and LinkedInContact us directly with any questions or comments at [email protected]

Send us Fan MailClaire Lomas MBE welcomed over 900 participants to the recent 62nd ISCoS meeting in Edinburgh. She shared her moving story from her life before a spinal cord injury to the difficulties she faced immediately after to the triumphs she enjoys since she grieved the life she lost and accepted the life she now has, ultimately changing her future. In this episode. Rober Buren shares his own challenges and triumphs as Canada's first paraplegic Iron Man and continues the conversation with Claire. We hope you enjoy listening. The opinions of our host and guests are their own; ISCoS does not endorse any individual viewpoints, given products or companies. You can follow us on Twitter and LinkedInContact us directly with any questions or comments at [email protected]

Send us Fan MailIn this bonus episode, we caught up with Mohit Arora, Senior Research Fellow and Senior Lecturer at the University of Sydney talking with student and colleague PhD student Jacob Shoffl at the Psychosocial pre-conference day on the 8th Oct during ISCoS 2023. They discuss their biggest takeaways of the day and why they are ISCoS members. We hope you enjoy it. The opinions of our host and guests are their own; ISCoS does not endorse any individual viewpoints, given products or companies. You can follow us on Twitter and LinkedInContact us directly with any questions or comments at [email protected]

Send us Fan MailWelcome to  SCI Care: What really Matters, Edinburgh conversations. This is a series of discussions recorded live during the #ISCoS2023 meeting. Our guests include Debbie Green, the Chair of the Nurse Special Interest Group, Tracey Tattam, a renowned nurse educator, Veronika Geng from Germany, and Letitia Graves from Houston share valuable insights and their involvement in the International Spinal Court Society's Special Interest Group. One of the focal points of discussion is the group's innovative efforts to launch a Massive Open Online Course (MOOC) designed to uplift SCI nursing on a global level.The opinions of our host and guests are their own; ISCoS does not endorse any individual viewpoints, given products or companies. You can follow us on Twitter and LinkedInContact us directly with any questions or comments at [email protected]

Send us Fan MailIn this episode, Dr Ali Jamous talks to Claire Lomas MBE taking us through Claire's remarkable journey from a devastating accident to finding a new purpose in life.Claire shares her experiences from before her accident and the difficult early years of recovering from her injury and when hope seemed lost. She will discuss the little steps that made the biggest impact on her rehabilitation, and it was all of the little steps that she has reach the triumphant goals of today from flying a microlight, riding a motorbike, and completing a number of marathons fundraising in excess of £850,000.Offering invaluable advice Claire emphasises the importance of accepting help and taking small steps toward achieving big goals. Claire's story will inspire you and offer hope to all our listeners. We hope you enjoy this episode. The opinions of our host and guests are their own; ISCoS does not endorse any individual viewpoints, given products or companies. You can follow us on Twitter and LinkedInContact us directly with any questions or comments at [email protected]

Send us Fan MailDr Abayomi Salawu is a neuro-rehabilitation consultant at Hull University Teaching Hospital NHS Trust who is pioneering the use of virtual reality (VR) in rehabilitation. Dr Ram Hariharan is a consultant in spinal injuries at the Princess Royal Spinal Injuries and Rehabilitation Centre in Sheffield and the chair of the UK SCI Research Network.Dr Hariharan and Dr Salawu got together at the recent BSPRM BASCIS Joint Annual Scientific Conference in Sheffield to discuss the remarkable ways in which VR is transforming patient care, particularly for those recovering from traumatic brain injuries and stroke. Dr Salawu's innovative approach creates a virtual environment where patients can safely practice rehabilitation exercises, aiding their recovery and fostering self-reliance. And VR is impacting the rehabilitation landscape beyond physical recovery. We hear how this technology can train patients in other important aspects of self-care, such as bladder and bowel management. Dr Salawu also explains the emerging use of VR in delivering specialised psychological therapies, such as eye movement desensitisation and reprocessing (EMDR) for managing post-traumatic stress disorder (PTSD) symptoms. The insights from this conversation illuminate the transformative power of VR in rehabilitation and its potential to revolutionise patient care. The opinions of our host and guests are their own; ISCoS does not endorse any individual viewpoints, given products or companies. You can follow us on Twitter and LinkedInContact us directly with any questions or comments at [email protected]

Send us Fan MailIn this enlightening discussion, host Dr Ram Hariharan, a consultant at the Princess Royal Spinal Cord Surgery Centre in Sheffield and Chair of the UK Spinal Cord Surgery Research Network, speaks with Mr Nigel Henderson, a former consultant at Stoke Mandeville Hospital and later the clinical director of the National Spinal Injury Centre. He was appointed Clinical Director of the NSIC for 5 years before his retirement from the NHS in 2018. This gave him the opportunity for closer involvement in developing spinal cord injury services locally and nationally. He served as a member, then chair, of the Spinal Cord Injury Committee of the NHS England Spinal Services Group concerned with service organisation, specification and commissioning.He maintains his involvement with spinal cord injury as a Stoke Mandeville Spinal Research (SMSR) Trustee, and the SMSR's work is discussed in this episode. Mr Henderson explains the grant application process, providing valuable insights and guidance on securing funding for impactful research projects and that The SMSR prioritises funding research projects with the potential to improve the lives of those with spinal cord injuries. There is also great importance placed on reaching out to international researchers whilst investing in UK research. The Stoke Mandeville Spinal Research charity has evolved to focus on fundamental research topics impacting SCI patients’ quality of life: neuropathic pain management, UTI prevention, assistive technology and pressure ulcers. We hope you enjoy listening. The opinions of our host and guests are their own; ISCoS does not endorse any individual viewpoints, given products or companies. You can follow us on Twitter and LinkedInContact us directly with any questions or comments at [email protected]