PODCAST · health
The Butterflies: A Turner Syndrome Podcast
by The TS Group
Welcome to the butterfly podcast! We talk all about Turners Syndrome ( a genetic disorder where someone is missing part or all of the X chromosome) each week. We want to grow awareness and representation for girls with Turner Syndrome. Each week we choose a different topic that can rage from a wide variety of topics. We hope you enjoy listening to our rants!
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26
How TS patients manage their health
This week we are discussing the things we do the manage our health and make having TS easier. Contact us/website: linktr.ee/TheButterfliesPodcast
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25
How to support TS patients PT 2
Welcome back! This week, have a part 2 to our little mini series with Ava about her AP research project. In this episode, we talk about her findings and what doctors can do to improve patient care. Website/Contact us : https://linktr.ee/TheButterfliesPodcast?utm_source=linktree_profile_share
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24
Health & Sickness
Welcome back! On todays episode we talk about the various ways TS can affect health. Ranging from pneumonia to anemia, all the way to the heart . We hope this episode helps you learn something new!Website/Contact Info https://linktr.ee/TheButterfliesPodcast?utm_source=linktree_profile_share&ltsid=ed7f5d6e-a86b-4823-a99e-00a49c29602d
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23
Misconseptions
Welcome back! This week we’re diving into misconceptions about TS. From outdated stereotypes to misinformation circulating online, we’re breaking down the myths and getting to the facts. Whether you’re new to learning about Turner Syndrome or looking to deepen your understanding, we hope this helps! Website & Contact info: https://linktr.ee/TheButterfliesPodcast?utm_source=linktree_profile_share&ltsid=002d0022-594f-4412-9d8d-3e157dd3c25f
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22
Driving
This episode of the Butterflies Podcast is going to explore a topic that is often ignored but a real struggle for people with TS: driving. Driving can be a struggle for someone with Turner Syndrome, and that's what we will be going over throughout this episode. We will share ways that you can make the learning as well as the regular driving process- better for you!Contact info and website: https://linktr.ee/TheButterfliesPodcast?utm_source=linktree_profile_share&ltsid=31eb0c97-f007-4946-b0a3-038d13ce07ba
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21
TS & Community
Welcome back! In this weeks episode we discuss on the importance of community for people with Turners Syndrome. Grab a snack and get cozy, we hope you enjoy!Website & Contact info https://linktr.ee/TheButterfliesPodcast?utm_source=linktree_profile_share&ltsid=274e50cc-b075-482b-8f5a-21afc6ff0ddd
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20
How TS affects daily life
This week's podcast will discuss TS and its impact on someone’s life, and the various ways it affects everyone differently. We discuss the physical and mental toll that TS can have. While also highlighting the ways TS can make someone s more resilient. Tune in, and we hope to see you back next week!Website and contact info:https://linktr.ee/TheButterfliesPodcast?utm_source=linktree_profile_share&ltsid=4b8a993d-ce70-40ec-b144-52f514bbbbc9
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Long Distance Friendships
Welcome back! For this week's episode we discuss how we stay connected even while being so far away. Grab a snack and get comfy. We hope you enjoy!Socials & Contact info:https://linktr.ee/TheButterfliesPodcast?utm_source=linktree_profile_share&ltsid=275afa92-be78-4dc9-a34c-b307c9b1df89
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18
Camp Experiences
Hi everyone, welcome back to another episode! Today we are talking about camp and some of our favorite parts. We hope you enjoy. Camp: https://www.ntscamp.org/Contact info and socials: https://linktr.ee/TheButterfliesPodcast?utm_source=linktree_profile_share
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17
Beauty Standards & Body Image
In this weeks episode we discuss beauty standards, body image, and how these impact self-esteem and personal life. We cover how societal expectations and beauty standards shape and affect self esteem as well as how personal struggles and experiences can impact confidence.Contact info & Website: https://linktr.ee/TheButterfliesPodcast?utm_source=linktree_profile_share&ltsid=2a163bbe-d365-4384-aab7-5ba2b390f703
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16
TS & Mental Health
This weeks topic is allout the ways TS can effect mental health with a special guest: Grace's dad! Grab a blanket, and a snack. we hope you enjoy.Contact info & Socialshttps://linktr.ee/TheButterfliesPodcast?utm_source=linktree_profile_share
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15
How to better support TS patients
This weeks ep is all about how others and doctors can better support TS patients with a special guest! Grab a blanket, snack, and get cozy. We hope you enjoy!Contact info & Socialshttps://linktr.ee/TheButterfliesPodcast?utm_source=linktree_profile_share&ltsid=f3d992ab-0448-451a-b9c8-89ab09dc10d0
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14
Cardio & Sports
Welcome back! This week's episode is all about Cardio/Sports and how choices regarding that can be affected by Turner Syndrome. Grab a snack, blanket, and get cozy! We hope you enjoy. Socials & Contact info: https://linktr.ee/TheButterfliesPodcast?utm_source=linktree_profile_share
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13
Fertility
Welcome back! This week's episode is all about fertility and how it can be affected by Turner Syndrome. Throughout this episode we will be focusing on different aspects of reproductive health. Grab a snack, blanket, and get cozy! Socials & Contact info: https://linktr.ee/TheButterfliesPodcast?utm_source=linktree_profile_share&ltsid=a7acd542-fe7b-4232-844d-9a8d4f54a007
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12
Interview with Mary's Parents
Welcome back! This week episode is an interview with Mary's parents. We hope you enjoy! Contact info, where to listen, and our socials: https://linktr.ee/TheButterfliesPodcast?fbclid=PAZXh0bgNhZW0CMTEAAaZtNgsmGkFA6_o151sTP06nMWFzcSGBdTkEExQk7hlumNRbUGPTTYrc7d8_aem_TxjIa5XMlivjwqH1RqlcoA
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TS & the Arts
This weeks episode is all about how people tend to gravitate towards the arts as well as our personal experience with the arts. Grab a snack and a blanket. Get cozy! We hope you enjoy :)
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10
TS Representation in Media
This episode is all about the importance and why TS being shown in media is needed. Get a snack, blanket, and get cozy!
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9
Friends & Family Relationships
This weeks EP is all about TS and how it can affect our relationships with our families. Get cozy, we hope you enjoy! :)
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8
TS & Bullying
This weeks EP is about TS and bullying and our experiences dealing with bullying and what we have noticed. We hope you enjoy!
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7
TS & Friendships
This weeks EP is all about TS and Friendships. We talk about our experiences with friends and also laugh and chat about our friendships with each other.
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6
All about doctors appointments
This weeks episode is all about doctors and what specialists people with TS commonly see.
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5
What our friends want to know about TS
This weeks episode is all about what our friends want to know about TS. Topic was chosen by Sarah. Grab a blanket and a snack we hope you enjoy!
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4
TS and hyper fixations
This weeks episode topic chosen by Sofia is all about TS and hyper fixations. Grab a snack, grab a blanket and get cozy! We hope you enjoy!
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3
TS and learning disabilities
What are some learning disabilities, and how do they affect those with Turner Syndrome? We're discussing that today! What would you like to learn about them? Ask any questions you have in the comments, and we'll answer them.
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2
The click: all about Growth Hormone
This weeks episode is all about growth hormone, and our personal experiences with it. Grab a snack, grab a blanket and buckle in!
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The Butterflies podcast TRAILER
A short trailer of what to expect, our diagnosis stories, and an introduction
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ABOUT THIS SHOW
Welcome to the butterfly podcast! We talk all about Turners Syndrome ( a genetic disorder where someone is missing part or all of the X chromosome) each week. We want to grow awareness and representation for girls with Turner Syndrome. Each week we choose a different topic that can rage from a wide variety of topics. We hope you enjoy listening to our rants!
HOSTED BY
The TS Group
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