just now
Realizing that rare disease will be a part of your life for the rest of your life can be overwhelming - but don't worry, you have a village to help you. The Rare Village is all about living your best rare life, learning from the tribal knowledge of the rare disease community. Together will share our stories, joy and pain, and above all amazing resources from the rare disease community to help you live your best rare life. After all, it takes a village to raise a rare family, and together, we are THE Rare Village.
en-us
09/25/2020 00:32:39
Gina Hann
kids
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